Guest guest Posted May 19, 2004 Report Share Posted May 19, 2004 Hi there, I wonder if anyone here has encountered of getting implanted and become totally deaf and can't hear even with the implant.... Regards/ Jerome Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 19, 2004 Report Share Posted May 19, 2004 Hey! I didn't know I was supposed to be paid big bucks by the CI companies. When do I get the check? I want to retire. Hal Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 19, 2004 Report Share Posted May 19, 2004 IN the unlikely even that the implant fails, then you get another one from the company. In a message dated 5/19/2004 4:16:34 PM Eastern Standard Time, jt1@... writes: I wonder if anyone here has encountered of getting implanted and become totally deaf and can't hear even with the implant.... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 19, 2004 Report Share Posted May 19, 2004 , I am not paid by anyone to share what I know has been a miracle in my life. I do this because I am very grateful for the techology and others did it for me when I was questioning. Why would I wish to tell someone to do something that I do not feel is a good thing. I often tell people not to go to hearing aid dealers who are out to rob them of their money but to go to reliable hearing aid centers where there are people trained to handle the needs of those with hearing loss with professionalism. Be careful not to listen to the promptings of people who have no idea what they are talking about. Having the implant is your choice. I made mine. There really was little to think about. Without it, I would have had to learn to sign and to make sure my family learned to sign as well as my friends. I figured it was easier on everyone if I made the change rather than expecting everyone in my life to try to accomodate me.. Barry, one of our listmembers, is taking care of his father who had a stroke but I am going to see if I can contact him because he was terrified and unbelieving just like you seem to be. I can't remember his e mail address - if someone can please let me know - so I'm going to the chat tonight in the hopes that he'll be there. You would be amazed at his story. I do not know one person on this list who was or is not frightened as you are. We are all human and the unknown was just as scary to us. We all have the right to choose for ourselves and that choice is still open to you. Alice Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 19, 2004 Report Share Posted May 19, 2004 While waiting for my BTE trial, I have been thinking about CI. Deciding for CI is somewhat difficult. Everytime I'm alone, I feel like it's okay I don't have CI. But everytime I'm around with people and can't follow conversations, can't hear them, trouble with phone, I always have the strong urge to get CI. Regards/ Jerome worse case scenario... Hi there, I wonder if anyone here has encountered of getting implanted and become totally deaf and can't hear even with the implant.... Regards/ Jerome Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 19, 2004 Report Share Posted May 19, 2004 Jerome, You're not alone. <smile> I already told you on another list how close I was to keeping my CI application permanently tucked away in a drawer. I wavered back and forth a million times wondering if this was something I really wanted to do. After experiencing increased difficulty with communication at my internship, I finally made up my mind and submitted my application. I'm glad I did. The way I see it, I have nothing to lose by going through the evaluation. The last thing I want to do is spend the rest of my life wondering what *could* have happened if I chose not to go through this process...but that's just me. <smile> As far as the worst case scenario is concerned...even if my CI is unsuccessful, I may be completely deaf in my left ear but at least I will no longer have to deal with the emotional pain of losing more hearing as the years go by. As you already know, the ultimate decision to get a CI or not is up to you. You'll probably continue to have doubts from time to time, but that's okay. Follow your heart. Somewhere down the line, you'll get a gut feeling that will tell you one way or the other whether getting a CI is the right decision for you. worse case scenario... Hi there, I wonder if anyone here has encountered of getting implanted and become totally deaf and can't hear even with the implant.... Regards/ Jerome Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 20, 2004 Report Share Posted May 20, 2004 Jerome, I cant add much to what said to you. You dont need to make the fateful decision yet. Just take it one step at a time. Deal with the BTE trial. THEN if that is a flop, you move a step closer to the CI. You say you do ok when alone. You KNOW you dont want that for the rest of your life. You are at the fork in the path. Which way to go? Its easy really. This way, or that way? Remain deaf all your life. Or make the decision to go for it and change your life. *---* *---* *---* *---* *---* You can say any foolish thing to a dog, and the dog will give you a look that says, 'Wow, you're right! I never would've thought of that!' -- Dave Barry & Gimlet (Guide Dawggie) Portland, Oregon N24C 3G 8/2000 Hookup rlclark77@... http://home.comcast.net/~rlclark77/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 24, 2004 Report Share Posted May 24, 2004 Hi Jerome, I was implanted with a BAHA (bone anchored hearing aid) implant totally different from a CI but was implanted into my head near my cochlear. 6 months after activation, it all together stopped working. (To this day, still can't hear from implant) The doctors and my former-audiologist (who is now my friend and keep in touch with) were baffled. They don't know why this happened. So they believe that it was due to more hearing loss on my left side (the implanted side). However, on month after they removed a few parts of the implant, I heard sound like normal again. I tested myself with music from my computer speaker phones and was VERY surprised to hear sound so clearly on my left side. I told my doctors/audiologist (in the follow up appointment) and they were puzzled as to how I can still hear on that side and the implant cannot work for me anymore. My audiologist came up with the theory that maybe it I had some cochlea damage-but that's impossible or else how come I'm still hearing as before?? I still have the 65db of hearing on that side as I've always had since age 12. Anyway, to this day, I still have the major part of the BAHA implant in my head (doctor asked me to keep the outer piece of the BAHA implant in hopes that one day, if the technology of the device gets better, that I could be reimplanted again) and now have been newly implanted with a CI in my right side (the worst side for hearing). So I've moved on but that's not to say that I haven't been " burned " from the experience---oh, yes, I have! I'm trying not to be too excited about my CI upon activation and I'm going thru the " wait and see " sort of phrase before I make up my mind on anything. But thru it all, I'm staying positive until my June 9th hookup appointment next month. Crystal worse case scenario... Hi there, I wonder if anyone here has encountered of getting implanted and become totally deaf and can't hear even with the implant.... Regards/ Jerome Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 24, 2004 Report Share Posted May 24, 2004 Crystal, I'm trying to follow. You have a 65 dB loss I the non-BAHA ear, and I assume no usable hearing in the BAHA ear correct? ____________________________________________ Best Regards, Brad Ingrao, M.S.Ed. CCC-A, FAAA Editor EDEN - The Electronic Deaf Education Network www.bradingrao.com e-mail: info@... worse case scenario... Hi there, I wonder if anyone here has encountered of getting implanted and become totally deaf and can't hear even with the implant.... Regards/ Jerome Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 5, 2004 Report Share Posted June 5, 2004 Hi Brad, I have a 65db loss in the left ear (which was the ear that was implanted with the BAHA). This ear was my good ear and I used to wear a hearing aid on that ear to year before I had a tumour surgery which prevented me from every wearing a HA again. As for the right ear, that has a 100+ db loss (my worse ear) and has been implanted with the Clarion Hi-focus model as of May 6, 2004. Crystal worse case scenario... Hi there, I wonder if anyone here has encountered of getting implanted and become totally deaf and can't hear even with the implant.... Regards/ Jerome Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 7, 2004 Report Share Posted June 7, 2004 Dear Crystal, My name is Taryn and I have progressive hearing loss bilateral. I have about 100db loss in both and I am considering a CI. I will most likely have the surgery by July. Have you had your hook-up day yet? How do you feel about your CI. Do you feel like you are getting a lot of benefit. Have they Crystal <crystal@...> wrote: Hi Brad, I have a 65db loss in the left ear (which was the ear that was implanted with the BAHA). This ear was my good ear and I used to wear a hearing aid on that ear to year before I had a tumour surgery which prevented me from every wearing a HA again. As for the right ear, that has a 100+ db loss (my worse ear) and has been implanted with the Clarion Hi-focus model as of May 6, 2004. Crystal worse case scenario... Hi there, I wonder if anyone here has encountered of getting implanted and become totally deaf and can't hear even with the implant.... Regards/ Jerome Quote Link to comment Share on other sites More sharing options...
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