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Wellllllllll,

I was implanted before the warnings came out, soooooooooo I never got

mine either.. My mother has been implanted for 11-12 years and never

got hers either. Personal choice, Personal choice.. The company

reccomends it.. You either get it or you don't; If you don't get the

vaccine and do come down with Mengitis, the comapny isn't

responsible..

THAT'S what it's all about.. Covering their butts( at least in my

opinion)

Hugs,

Silly

In , " Dave Pearson " <dkl.pearson@v...> wrote:

> Oh my... someone didn't get his shot... What a gambler!

>

> Pearson

> sville, WA

>

> I can hear as well with my hearing aids as a person with a walker

can jog.

> Re: Re: meningitis shot

>

>

> , A lot of doctors are not personally recommending the

shots. My

> belief is that the main reason people are told in writing that a

shot is

> recommended, is to protect against liability, for the rare case

that may

> show up. As with yourself, I did not get the shot.

> Ralph CII 8/01

> HiRes 2/03

>

>

> > I have not yet gotten the meningitis shot. I just don't feel

concerned

> about it.

> >

> > N24C

>

>

>

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There were millions that didn't get effected by meningitis... Just a few unlucky

one did. And few of them died. It may covered their butts which I don't blame

them at all and save a very few life too. I think it worth it. Don't you?

For those who had it before... there wasn't any history of it. Like any Medical

procedures. It is not perfect. But we learn from them. Right?

My last comments, I was just joking... Sorry for it being taking the wrong way.

Pearson

sville, WA

I can hear as well with my hearing aids as a person with a walker can jog.

Re: Re: meningitis shot

>

>

> , A lot of doctors are not personally recommending the

shots. My

> belief is that the main reason people are told in writing that a

shot is

> recommended, is to protect against liability, for the rare case

that may

> show up. As with yourself, I did not get the shot.

> Ralph CII 8/01

> HiRes 2/03

>

>

> > I have not yet gotten the meningitis shot. I just don't feel

concerned

> about it.

> >

> > N24C

>

>

>

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Guest guest

,

You were clearly implying that the problem was limited to one brand, with

one specific component, Your original note stated: " The implant thought

to be at fault had a positioner in them and were pulled from the market and

the positioner in those implants is no longer used "

From these words, there is nothing that informs people that there were

cases across all 3 CI brands, including people without a positioner, and

suggests that there were no cases of meningitis with the other brands.

At 9:39 AM -0400 8/6/03, sillygirl49677 wrote:

>There is no " fault " anywhere and I didn't mislead anyone, merely

>going by the last update I had concerning the miningitis vaccines;

>however, I have read the newest update now.

>

>I never said any implant was at fault ; you need to go back and

>reread it.. I said there was no proof that the implant was at fault..

>This is not misleading.

>

>That's all I have to say on the subject for now and will move onto

>other things.

>

>For the record Folks, NO ONE IMPLANT IS AT FAULT!

>There isn't any fault, just the need for people to be aware of the

>possibility that it can happen and to be protected if your physician

>or surgeon so suggests.

>

>Anyone can get meningitis.. implanted or not; that's my story and I'm

>sticking with it..LOL

>

>Hugs,

>

>Silly

>

>

>

>

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,

If YOU reread my note, you'll see I was agreeing with Alice, not

disagreeing with her on that point.

At 9:37 AM -0400 8/6/03, snoopy1964@... wrote:

>-- That phrase you never completed is have ... " pneumonia shot as a

>precautionary measure. " Please read through the sentence before taking half a

>sentence out of a phrase. Thank you. What Alice is trying to say is that ALL

>recipients have the pneumonia shot. JUST read to the END next time

>

>--

>Snoopy

>congential rubella-prelingual

>hearing aids since 3

>left implant 3G 7/19/02

>right implant 3G 5/15/03

>Bilateral and loving it!!

>> Alice,

>>

>> " all CI recipients (no matter what brand or model) "

>>

>> Those are the key words for me right there. It should not be viewed as a

>> brand issue. It unfortunately happened to people with all brands.

>>

>>

>>

>>

>>

>> At 10:26 PM -0400 8/5/03, Alice wrote:

>> >If everyone will read the statement made by the Center for Disease

>> >Control which I sent earlier - you will see that all the information

>> >is clearly written. The article does state that the incidence of

>> >meningitis is seen more often in young children but recommends that

>> >all CI recipients (no matter what brand or model) have the pneumonia

>> >shot as a precautionary measure.

>> >

>> >Alice

>> >

>> >

>> >> >> >> Some people died from meningitis after the CI implant.

>> >> >> >>

>> >> >> >

>> >> >> >

>> >> >> >

>> >> >> >

>> >> >> >

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My doctor never suggested getting this shot either...so as of this

time I am another person without the suggested vaccine.

BunEWabbit

bilateral Med El 4-21-03

activation 5-19-03

i thought i was the only one who didn't

> get this shot ... <whew> i don't feel alone now

>

> susan

>

>

>

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HUH? Is Snoopy too? I'm all confused.

> >> >> >> >> Some people died from meningitis after the CI implant.

> >> >> >> >>

> >> >> >> >

> >> >> >> >

> >> >> >> >

> >> >> >> >

> >> >> >> >

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I didn't get the shot either. Everytime I get a flu shot I get the flu so I

didn't get one of those either. The doctor left it up to me.

Sharon Myers

Bilateral

Ralph Chiaradia <ralph.chiaradia@...> wrote:

, A lot of doctors are not personally recommending the shots. My

belief is that the main reason people are told in writing that a shot is

recommended, is to protect against liability, for the rare case that may

show up. As with yourself, I did not get the shot.

Ralph CII 8/01

HiRes 2/03

> I have not yet gotten the meningitis shot. I just don't feel concerned

about it.

>

> N24C

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to keep down confusion on the CI Hear as we have so many 's please

address me by Snoopy only Thank you.

--

Snoopy

congential rubella-prelingual

hearing aids since 3

left implant 3G 7/19/02

right implant 3G 5/15/03

Bilateral and loving it!!

> HUH? Is Snoopy too? I'm all confused.

>

>

> > >> >> >> >> Some people died from meningitis after the CI implant.

> > >> >> >> >>

> > >> >> >> >

> > >> >> >> >

> > >> >> >> >

> > >> >> >> >

> > >> >> >> >

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  • 9 months later...
Guest guest

Greetin' ladie and Gents!

I have papers for meningitis shot from my audie. My brother is going

to set up an appointment for that. Thing is... is it too early to

get that shot? I mean I don't even have a surgery date set yet, or

it doesn't matter?

Well you know, I can't believe it. The journey of CI began on May

13th for me, and it's only beginning! So I know that soon..the

journey will get a little hard, right? Wow... I'm seeing a social

worker (which I think it's for a psych interview) and getting a

meningitis shot appt... still waiting for dr. kohan to call my

brother to let us know if the health insurance has approve yet for my

CT scan. Wow.. things are getting started! Kind of scary and yeah,

anxious!!!!!!

di (;

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In a message dated 5/20/2004 6:56:43 AM Pacific Standard Time,

silly1@... writes:

I'm not positive if this is a life time protection for

Meningitis or not, but those who have had the shot I think only have

to get just the one shot.

According to my doc, it lasts for life. But as suggested, ask your doc

to make sure.

Lee

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Good question !

I'm not even sure on that one.. The best thing to do would be to

call the dr who will be giving the shot and ask how soon you should

get the shot. I'm not positive if this is a life time protection for

Meningitis or not, but those who have had the shot I think only have

to get just the one shot.

Please let us know what you find out on this.

Yep.. I think most of us went through the scary, excited, and

anxious stage prior to getting our ci, but as someone who has been

trhough it, I can only say.. It's the best decision I ever made, and

after the fact, there was no basis for being scared or anxious.

I know.. easy to say once you've been through it..LOL

Hang in there..These feelings are all perfectly normal.

Hugs and have a great day,

Silly MI

In , " diana chang " <diaskci@y...> wrote:

> Greetin' ladie and Gents!

>

> I have papers for meningitis shot from my audie. My brother is

going

> to set up an appointment for that. Thing is... is it too early to

> get that shot? I mean I don't even have a surgery date set yet,

or

> it doesn't matter?

>

> Well you know, I can't believe it. The journey of CI began on May

> 13th for me, and it's only beginning! So I know that soon..the

> journey will get a little hard, right? Wow... I'm seeing a

social

> worker (which I think it's for a psych interview) and getting a

> meningitis shot appt... still waiting for dr. kohan to call my

> brother to let us know if the health insurance has approve yet for

my

> CT scan. Wow.. things are getting started! Kind of scary and

yeah,

> anxious!!!!!!

>

> di (;

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  • 8 months later...

In a message dated 1/21/2005 12:11:57 PM Pacific Standard Time,

scstraub@... writes:

Have

recent adult CI recipients been getting them?

I was implanted a bit over a year ago, like you, i was not required to have

it. I got it anyway, better safe than sorry.....

Lee

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Stan,

Once you get your CI, you're going to be amazed -- believe me!! Best of luck

to you on your surgery!! In the meantime, I'll continue to write more about

my experiences. :) I felt the same way you did after reading posts on the

list about what people could hear. When I learned that people could hear

sounds like birds singing and keys jingling, I was completely blown away.

And to think I told my audi that I'd be happy to have a 20 dB gain in

hearing if nothing else. LOL!

Implanted: 12/22/04 Activated: 1/18/05

Deafblind/Postlingual

BTE hearing aid user 20 years

Severe-profound hearing loss 10 years

" Surviving a loss and letting go is only half of the story. The other half

is the secret belief that we will find, in one form or another, what we have

lost. And it is that potential, shimmery as a star on a clear night, that

helps us survive. " -- Chambers

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Stan,

It's the adage " an ounce of prevention is worth a pound of cure. " Go

for it. I got mine before my CI surgery. While the odds are very,

very remote, you might want to consider FDA's warning about getting

the vaccine for CI surgery -- one could have severe complications such

as death, brain damage, etc. if one wasn't vaccinated against

meningitis. Hospitals are notorious places for catching nosocomial

infections, not limited to just meningitis!

activated 12/8

On Fri, 21 Jan 2005 20:04:55 -0000, runwritebike <scstraub@...> wrote:

>

>

> Hi All,

>

> I asked the surgery center where I am scheduled to get my CI if I

> should get a meningitis shot prior to the surgery. They said that

> they do not require them for adults, but that if I wanted to get one

> I could. I'm not sure whether I should try to get one or not. Have

> recent adult CI recipients been getting them? My surgery is getting

> closer and I'm getting more excited. And, reading 's wonderful

> messages about her surgery and activation is getting me really

> excited. I want to hear snow scrunching too (LOL).

>

> Thanks for any info.

> Stan (CI surgery scheduled for 2/24/05)

>

>

>

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,

Thanks for your reply regarding the meningitis shot and for the words

of encouragement. I plan on going into the CI surgery/activation

with low expectations. I'm like you were saying, " any improvement is

better than what I have now. " However, if I get blown away with the

hearing of birds, people, turn signals (which I haven't heard in a

long time), toilets flushing (LOL), I'll be really, really happy. I

can hardly wait to read more of your CI adventure as it unfolds.

Your words are getting me really excited. I may have to try to speed

up the calendar a little.

Stan (Counting the days to surgery -- 34 WOW!!!!)

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hi stan, can I ask u what is Meningitis Shot mean?? I never hea rof it so I wuld

like to know what it is please realy me back ok thanks,

Beth

runwritebike <scstraub@...> wrote:

Hi All,

I asked the surgery center where I am scheduled to get my CI if I

should get a meningitis shot prior to the surgery. They said that

they do not require them for adults, but that if I wanted to get one

I could. I'm not sure whether I should try to get one or not. Have

recent adult CI recipients been getting them? My surgery is getting

closer and I'm getting more excited. And, reading 's wonderful

messages about her surgery and activation is getting me really

excited. I want to hear snow scrunching too (LOL).

Thanks for any info.

Stan (CI surgery scheduled for 2/24/05)

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  • 2 years later...

Thanks, ,

jefferson is a fine hospital. My parents took me there from NJ

when I was first diagnosed with hearing loss as a kid. My friend had her

implant done at Temple. I guess all of the hospital programs have their own

criteria for the shot. Continued success with your implant.

<smiles> Jackie

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