Guest guest Posted April 28, 2003 Report Share Posted April 28, 2003 --- Eileen <e.coleman@j...> wrote: << Is anyone aware of bone loss being associated with pa? Eileen>> Hi Eileen, I've been spending some time this weekend reading up on PA, and it seems like there isn't an assosciation of bone loss according to these guys - " In general, the inflammatory rheumatic diseases do not significantly affect bone in general. However, right around the joints, there is a tendency for there to be some loss of mineral of the bone, so we get a little bit of what we call localized osteoporosis around the joints as a response to the inflammation that occurs in the joints.[...] in psoriatic arthritis, patients do not have a really meaningful increased risk for osteoporosis in general in their body " The other doctor says there can be bone damage, but if you are referring to LOSS, it seems not. See the article here > http://www.healthtalk.com/rain/101700/01.html I would recommend this article to newly diagnosed or suspected cases of PA too, it's interesting and enlightening. Shane Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 29, 2003 Report Share Posted April 29, 2003 [ ] Re: bone loss > it seems like there isn't an assosciation of bone > loss according to these guys - That's weird, because just this morning I read on the Psoriasis.org web site, " In fact, half of those with psoriatic arthritis already have bone loss by the time the disease is diagnosed. " They specify loss rather than damage. http://www.psoriasis.org/facts/psa/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 29, 2003 Report Share Posted April 29, 2003 With regard to bone loss, my doctor had me go get a bone scan (I am 33)...there is already some loss around my hip joint. The doctor thinks it is related to the PA, but isn't too worried, she just upped my calcium. I would say if you are concerned, it might make sense to get a bone scan. Its not painful and only takes about 10 minutes... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 30, 2003 Report Share Posted April 30, 2003 - > > it seems like there isn't an assosciation of bone > > loss according to these guys - > > That's weird, because just this morning I read on > the Psoriasis.org web site, " In fact, half of those > with psoriatic arthritis already have bone loss by > the time the disease is diagnosed. " They specify > loss rather than damage. > > http://www.psoriasis.org/facts/psa/ > > I agree. Inflammatory arthritis is listed as a risk factor for osteoporosis(loss of bone density) I asked to be tested(bone density test) and I do have osteoporosis at what is considered a young age. The Rheumy said she wasn't surprised and I was a little irritated that no one had brought this up to me or recommended I be tested. That's why we keep saying we have to be our own advocate and why this group is so important and helpful! Marti Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 30, 2003 Report Share Posted April 30, 2003 Hi , I believe that prednisone can lead to bone loss over a certain period of time, because it can affect your parathyroid glands. Sincerely, Bill Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 1, 2003 Report Share Posted May 1, 2003 [ ] Re: bone loss > I agree. Inflammatory arthritis is listed as a > risk factor for osteoporosis(loss of bone density) > I asked to be tested(bone density test) and I do > have osteoporosis at what is considered a young > age. Did your RD give you any advice on how to help minimize the osteo? This really scares me (in addition to everything else about PA that scares me :-( ) because my grandmother has very, very severe osteoporosis and was recently put into a nursing home because her back is literally crumbling one vertebrae at a time. She only has one " good " vertebrae left, and if that crumbles she will be bedridden. She has been bent over for years, walking with her back so curved that she can't straighten up and her upper body is practically parallel to the floor. I know the pain and frustration the osteo has caused her, and I'm scared to go down that road too. Thankfully I know my diet is good for osteo, but like I said... it's just one more thing about PA that scares me, that I have a greater likelihood of problems with osteo than other people do. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 1, 2003 Report Share Posted May 1, 2003 Hi ...my doctor put me on 1800 mg of calcium citrate a day after seeing the bone loss in my hips...she said citrate is more easily absorbed by the body. She also said to space out the pills over the day - if you take all at once, the body will discard what it doesn't think it needs. She said at this point (I'm 33), I should be OK with just the calcium and not anything more drastic. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 1, 2003 Report Share Posted May 1, 2003 -- > just one more thing about PA that scares me, that I > have a greater likelihood of problems with osteo > than other people do. > > , I'm so sorry your grandmother has had to endure so much pain.My mother was in a nursing home for 2 years before she died so I know how hard it is to see someone you love in that position. Rheum ordered 1200 mg. calcium with vitamin D, split it in 2 doses a day. My doctors disagree about the use of Fosamax for me since I have had ulcers from NSAIDS(Can be hard on digestive track) but I plan to give it a try. It is supposed to slow the loss of bone. Weight bearing exercise is recommended but my mayo Rheumie says no for me due to joint damage. He prefers I do water exercises. Other factors to consider are: Have you had many steroids for treatment? They can thin the bones out. Also thyroid medicines can do this. If you haven't already had a bone density test you could ask for a " baseline test " to be done. This might put your mind at ease that you don't have a problem so far. It is possible you are just fine. I'm sorry my posts are scary. PA is a scary disease. I try to let people know that I have a severe case and not everyone will have all the troubles I do. I just read about a new medicine for osteoporosis and I know they are really researching it so I believe there is hope for those of us who do have the added burden of this. One day at a time! Take Care' Marti Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 2, 2003 Report Share Posted May 2, 2003 At 04:50 AM 5/2/03 +0000,Marti wrote: >I'm sorry my posts are scary. PA is a scary disease. Oh, don't apologize! It *is* a scary disease, but the reason I joined this group is to talk about it and find out more about it from people who've been there. I think it benefits all of us here to hear about the good situations like Fred going skiing and living a pretty normal life, and the scarier stuff that we need to be aware of and watchful about, like bone loss or serious medication side effects. The osteoporosis thing just hits me hard right now because the situation with my grandma has just recently gotten a lot worse. But I appreciate your excellent info about it, and I thank you for sharing so much about your specific problems with PA. I'm just sorry you have such a severe case. :-( ~~~~~~~~~~~~~~~~~~~~~~~~~~~~ Visit my personal web site at http://members.shaw.ca/tljohnson/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 2, 2003 Report Share Posted May 2, 2003 , do you take Fosamax? It helps rebuild bone <tljohnson@...> wrote:At 04:50 AM 5/2/03 +0000,Marti wrote: >I'm sorry my posts are scary. PA is a scary disease. Oh, don't apologize! It *is* a scary disease, but the reason I joined this group is to talk about it and find out more about it from people who've been there. I think it benefits all of us here to hear about the good situations like Fred going skiing and living a pretty normal life, and the scarier stuff that we need to be aware of and watchful about, like bone loss or serious medication side effects. The osteoporosis thing just hits me hard right now because the situation with my grandma has just recently gotten a lot worse. But I appreciate your excellent info about it, and I thank you for sharing so much about your specific problems with PA. I'm just sorry you have such a severe case. :-( ~~~~~~~~~~~~~~~~~~~~~~~~~~~~ Visit my personal web site at http://members.shaw.ca/tljohnson/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 2, 2003 Report Share Posted May 2, 2003 At 04:56 PM 5/2/03 -0700, you wrote: >, do you take Fosamax? It helps rebuild bone No, as far as I know I have not had any signs of osteoporosis yet, and my doctors have never even suggested anything like that. (If I'm right, Fosamax is a prescription drug?) But I would like to start taking calcium, based on the suggestions offered to me yesterday. [Editor's Note: : Yes, Fosamax is a prescription drug. If you take it, be sure to take it exactly as indicated (with plenty of water, after you have arisen (to stay up) for the day, and on an otherwise (except for the water) empty stomach--unless your doc or pharmacist has instructed you otherwise. D.] ~~~~~~~~~~~~~~~~~~~~~~~~~~~~ Visit my personal web site at http://members.shaw.ca/tljohnson/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 3, 2003 Report Share Posted May 3, 2003 , everything you said about Fosamax is true, except that you don't have to be upright for the day, just for at the minimum 30 minutes.... <tljohnson@...> wrote:At 04:56 PM 5/2/03 -0700, you wrote: >, do you take Fosamax? It helps rebuild bone No, as far as I know I have not had any signs of osteoporosis yet, and my doctors have never even suggested anything like that. (If I'm right, Fosamax is a prescription drug?) But I would like to start taking calcium, based on the suggestions offered to me yesterday. [Editor's Note: : Yes, Fosamax is a prescription drug. If you take it, be sure to take it exactly as indicated (with plenty of water, after you have arisen (to stay up) for the day, and on an otherwise (except for the water) empty stomach--unless your doc or pharmacist has instructed you otherwise. D.] ~~~~~~~~~~~~~~~~~~~~~~~~~~~~ Visit my personal web site at http://members.shaw.ca/tljohnson/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 13, 2006 Report Share Posted February 13, 2006 Hi team! Hope everyone is well and content. By the way, Happy Valentine's Day to all you sweet people! I have a question about a post I read regarding Red Yeast Rice. It said there are 2 kinds of the rice; one for lowering cholesterol, and one for building bones. I talked to some sales reps at 3 health food stores and none of them had ever heard of the bone building kind of red yeast rice. I went to the website for the International Bone Laboratory and they offer the supplement for about $25 for a month's supply and claim it does lay down new bone. However, they do not say what is different from the other red yeast rice that makes it lay down new bone. Any thoughts out there? Honestly, I get discouraged with this endless process of digging for the truth about products. If I bought everything that was recommended, I'd be spending a couple hundred a month on supplements! Thanks for your help with this. Peace on earth. Cheryl P.S. Other than excersise, what are your best recommendations for reversing bone loss? Quote Link to comment Share on other sites More sharing options...
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