Guest guest Posted October 24, 2004 Report Share Posted October 24, 2004 Hi, I'm new here, my name is karen. I just wanted to let everyone know about my son. His name is Jake. He is 22 months old, blond hair blue eyes. He was born dec. 23 2002, profoundly death. He failed the newborn screen at the hospital after he was born. The nurse said it was just fluid in his ears from being born. We took him anyway to an ent clinic 2 wks later, where, for some reason he " passed " his abr. Weeks and months went by, and we just had a gut feeling that he was not hearing. At every checkup with his pediatrition, we questioned his hearing and were told his ears were fine. At his 9 month check up we questioned again. The doc told us in a very non caring voice, if he is deaf, there is nothing you can do right now anyway. That was the last time we saw that dr. we took him to Ark childrens hospital(3 hrs. away from home) on march 17 2004. they diagnosed him that day with profound hearing loss. From that day, we have made that trip once a week for therapy. On july 21, he was implanted in the left ear, and turned on mid august. He has done great. we still go once a wk, and just to let you know, he was implanted in the right ear on oct6, and will be turned on , on oct 29th. We are very blessed to have this special boy in our lives. His doc in ark calls him his bilateral baby. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 24, 2004 Report Share Posted October 24, 2004 Hi , Welcome to CI Hear. What a beautiful testimony of the abilities of a cochlear implant! I'm so thrilled for Jake and for you too. It was a brave decision to have him implanted and it is paying off. I'm sorry that the pediatrician didn't help you with this decision. I know that if it were me, I'd make sure he's aware of Jake's ability to hear now. There could be other children with the same issues and that pediatrician needs to be educated rather than squashing all hope. Jake sounds as if he's a beautiful little boy and his future is bright because his parents had the courage to seek out help for him. He is blessed to have you. Thank you so much for sharing and I hope you will continue to tell us about his progress. Best of luck to you with his second activation. I'm sure it will be a wonderful day. Alice > > Hi, I'm new here, my name is karen. I just wanted to let everyone > know about my son. His name is Jake. He is 22 months old, blond hair > blue eyes. He was born dec. 23 2002, profoundly death. We took him to Ark childrens hospital(3 hrs. away from home) on march 17 2004. they diagnosed him that day > with profound hearing loss. From that day, we have made that trip > once a week for therapy. On july 21, he was implanted in the left > ear, and turned on mid august. He has done great. we still go once a > wk, and just to let you know, he was implanted in the right ear on > oct6, and will be turned on , on oct 29th. We are very blessed to > have this special boy in our lives. His doc in ark calls him his > bilateral baby. Jake > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 24, 2004 Report Share Posted October 24, 2004 , I just want to say that I applaud your determination. I hear these stories and it just makes me want to cry. But these are the kids that will do just great because their parents never give up on the dream. Congrats on going bilateral. For us I don't know any other way but it was the best decision I have ever made for my daughter. Welcome to the group. Mom of 4 Marcus 14 12 Jon 10 Annika 2.5 bilaterally implanted 3/1/04 hookup 3/25/04 spastic diaplegic CP my son JAKE Hi, I'm new here, my name is karen. I just wanted to let everyone know about my son. His name is Jake. He is 22 months old, blond hair blue eyes. He was born dec. 23 2002, profoundly death. He failed the newborn screen at the hospital after he was born. The nurse said it was just fluid in his ears from being born. We took him anyway to an ent clinic 2 wks later, where, for some reason he " passed " his abr. Weeks and months went by, and we just had a gut feeling that he was not hearing. At every checkup with his pediatrition, we questioned his hearing and were told his ears were fine. At his 9 month check up we questioned again. The doc told us in a very non caring voice, if he is deaf, there is nothing you can do right now anyway. That was the last time we saw that dr. we took him to Ark childrens hospital(3 hrs. away from home) on march 17 2004. they diagnosed him that day with profound hearing loss. From that day, we have made that trip once a week for therapy. On july 21, he was implanted in the left ear, and turned on mid august. He has done great. we still go once a wk, and just to let you know, he was implanted in the right ear on oct6, and will be turned on , on oct 29th. We are very blessed to have this special boy in our lives. His doc in ark calls him his bilateral baby. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 25, 2004 Report Share Posted October 25, 2004 Hi -- what a special mom you are to have Jake bilaterally implanted at a very young age. He will benefit from the bilateral implants. I am glad that you persevered until you got the answers you needed for Jake and started him off on the right path to hearing again. Snoopy bilateral CIer Quote Link to comment Share on other sites More sharing options...
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