Guest guest Posted May 23, 2007 Report Share Posted May 23, 2007 I will be thinking of you. Everything will work out and we hope to hear from you really soon. in Georgiacthymunroe <cthymunroe@...> wrote: Tomorrow is the big day. I am not feeling too hot right now. This liquid diet is finally kicking in. I just wanted to say thank you to everyone for being very supportive. Everyone has been extremly nice and caring. I'm just so not looking foward to the iv and the feeding tube. I am looking foward to being able to eat again.Wish me luck, , Michigan<FONT face="comic sans ms" color=#ff0000 size=5> in Georgia </FONT><IMG src=" "> Be a better Globetrotter. Get better travel answers from someone who knows. Answers - Check it out. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 23, 2007 Report Share Posted May 23, 2007 BEST OF LUCK, YOU HAVE MANY PEOPLE SENDING YOU POSITIVE ENERGY! CATHY AND TIA SEQUIM, WActhymunroe <cthymunroe@...> wrote: Tomorrow is the big day. I am not feeling too hot right now. This liquid diet is finally kicking in. I just wanted to say thank you to everyone for being very supportive. Everyone has been extremly nice and caring. I'm just so not looking foward to the iv and the feeding tube. I am looking foward to being able to eat again.Wish me luck, , Michigan Be a better Globetrotter. Get better travel answers from someone who knows. Answers - Check it out. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 23, 2007 Report Share Posted May 23, 2007 Good Luck! Keep in touch~ > > Tomorrow is the big day. I am not feeling too hot right now. This > liquid diet is finally kicking in. I just wanted to say thank you to > everyone for being very supportive. Everyone has been extremly nice and > caring. I'm just so not looking foward to the iv and the feeding tube. > I am looking foward to being able to eat again. > > Wish me luck, > > , Michigan > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 23, 2007 Report Share Posted May 23, 2007 , Wishing you all the good luck there is for a successful surgery and a fast recovery. Just keep thinking positive thoughts, and before you know it everything will be behind you. You will be in my prayers. in NY Surgery tomorrow achalasia > Tomorrow is the big day. I am not feeling too hot right now. This > liquid diet is finally kicking in. I just wanted to say thank you > to > everyone for being very supportive. Everyone has been extremly > nice and > caring. I'm just so not looking foward to the iv and the feeding > tube. > I am looking foward to being able to eat again. > > Wish me luck, > > , Michigan > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 23, 2007 Report Share Posted May 23, 2007 GOOD LUCK!!!!!!! C Warren Co-Founder www.achalasia.us From: achalasia [mailto:achalasia ] On Behalf Of cthymunroe Sent: Tuesday, May 22, 2007 7:01 PM achalasia Subject: Surgery tomorrow Tomorrow is the big day. I am not feeling too hot right now. This liquid diet is finally kicking in. I just wanted to say thank you to everyone for being very supportive. Everyone has been extremly nice and caring. I'm just so not looking foward to the iv and the feeding tube. I am looking foward to being able to eat again. Wish me luck, , Michigan Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 4, 2009 Report Share Posted November 4, 2009 Hello everyone!!! I am scheduled for the SCS with paddle placement and laminectomy tomorrow morning. I must admit I am a bit nervous and not too sure how to deal with it. I know that this could be the answer that I have been waiting for the past 9 years of suffering from RSD/CRPS. It has been quite the adventure. One I wouldn't wish on anyone. But I do have tremendous faith in my Dr's and know that I am in terrific hands, so that is at least one thing off of my mind. I have a seizure disorder that is exaserbated by stress. That is why I so need some support from you guys. I have been on the operating room table and actually had a seizure. Needless to say that surgery was cancelled!!! I would just be devastated if that were to happen to me again. Enough about the negatives. I am thankful for all of you, that I am getting this chance to share with you where I am at today, that I have the opportunity to have the SCS placed by such skilled hands and that I will be getting some relief from this pain soon. Thanks to each of you for your presence in my life. I do hope your pain is low and that you are able to enjoy your day! God bless, ~ Utah ________________________________ From: Lynn ston <ljohnston30@...> Stimulator Sent: Tue, November 3, 2009 8:09:23 PM Subject: Re: Lead movement  Thank you for the information, much help.  Funny how geography doesn't seem to change things much ?  So about the Stimulator, I have to wonder if the screws bother your back?  I always had a weak back that progressively gets worse over time and seem to really act up once the stimulator was placed, funny thing is the stimulator is actually for my left leg not my back.  I'm wondering if the hardware and scar tissue will make my back worse.  I must look up these paddles and talked to the Dr about them.  It kills me to take it easy for 3 months at a time to ensure scar tissue has had time to settle in.  Thanks your help. and hope you are feeling well  Lynn  From: Woolrich <john.woolrich@ .co. uk> Subject: Re: Lead movement Stimulator@gro ups.com Date: Monday, November 2, 2009, 6:56 PM  Hi Lynn, My name is and I'm living in the UK, so our group is growing worldwide! You will find that although the distances are great our experiences are very similar. I had my first stimulator fitted with the leads in December 07. It was great and within 6 weeks I was back at work (in hind sight that was too soon!). I work for a local law firm and after a couple of weeks back in the office I reached up to get a file from a top shelf, I'm over 6ft so I didn't have to reach too far, and I felt something " go " in my back and my stim stopped working. A subsequent x-ray showed that the lead had become detached and had migrated down to the base of my spine. Apparently I still hold the record for the furthest migration of a lead in the UK! I went in for further surgery in February 08 when I had a paddle lead fitted. The surgery involved was more invaisive than with just having the basic lead fitted and I had part of the bone removed from my spine, I think its called a lamenectomy and was done under a general anaesthetic. The stim didn't work after that either, due to the incompetence of the surgeon, he didn't connect the lead to the generator properly! I won't bore you with all the details, I had 6 further operations between April 08 and January this year but without much success. But I had seen a new nueurosurgeon over Christmas and New Year and this guy didn't give up on me and he did a lot of research in consulation with the rep from the implant company (St Jude's Medical) and in July I went back and had a new type of lead fitted. Again I had to have more bone removed because the paddles on this type of lead are larger in that they have 16 electrodes per paddle so give much better coverage and the programming options are much greater. Rather than stitch it into place my new paddle is held in place by screws and is very secure. My surgeon even said that after the bedding in process and once everything had healed I could even go bungee jumping if I wanted to he was so confident there would be no movement! The upshot of all this is that everything is working perfectly, I have near 100% pain relief, I'm now off all medication completely and I'm looking to start work again in the next 3 to 4 weeks. It sounds as though you are very active and maybe a paddle lead and screws as opposed to the basic lead and sutures would be an option for you. I would discuss the options with your surgeon and see what he has to say and hopefully he will be able to come up with a solution that's right for you and your lifestyle. I hope this has been of some help but if you have any further questions please do not hesitate to contact me. Warmest regards ____________ _________ _________ __ From: ljohnston30 <ljohnston30> Stimulator@gro ups.com Sent: Mon, 2 November, 2009 4:25:35 Subject: Lead movement  I had my SCS implant put in April 08 for RSD in my left leg, the leads are in my back. I had to have surgery again in Nov 08 because the leads seem to have move or gone bad and had to be replaced. The surgery to redo the leads took 6 hours because the Dr had to remove every bit of scar tissue then we had to change out both sets of leads and do the programming. This week when I turned on the stimulator, the stimulation was way off and in the wrong places like it needs to be seriously reprogrammed. I am going to make an appointment to go see the SCS rep to get it reprogrammed and am hoping that he can straightened it out, if not then my fear is that the Pain Dr will want to surgically fix it. I am active duty military and attend college at night and am worried that I must have lifted too much or have done too much and accidently move the leads. Has anyone had to have multiple surgeries to redo the leads? Having the implant put in once much less twice is not such a great time, it scares me to thing that I would have to keep doing this. Is this normal? Does this come with the territory? I would appreciate your help Lynn Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 4, 2009 Report Share Posted November 4, 2009 Hi , Just wanted to wish you all the best for tomorrow I hope it all goes well for you and that you get the pain relief that you need and deserve. I know its very difficult but try to focus on the positives, that the operation will be a success, and it will help you get through it. I have a morbid fear of anaesthetics and it helped me get through. Keep in touch and let us know how you got on. Best regards  ________________________________ From: s <autahstevens@...> Stimulator Sent: Wed, 4 November, 2009 16:16:39 Subject: Re: Surgery tomorrow  Hello everyone!!! I am scheduled for the SCS with paddle placement and laminectomy tomorrow morning. I must admit I am a bit nervous and not too sure how to deal with it. I know that this could be the answer that I have been waiting for the past 9 years of suffering from RSD/CRPS. It has been quite the adventure. One I wouldn't wish on anyone. But I do have tremendous faith in my Dr's and know that I am in terrific hands, so that is at least one thing off of my mind. I have a seizure disorder that is exaserbated by stress. That is why I so need some support from you guys. I have been on the operating room table and actually had a seizure. Needless to say that surgery was cancelled!!! I would just be devastated if that were to happen to me again. Enough about the negatives. I am thankful for all of you, that I am getting this chance to share with you where I am at today, that I have the opportunity to have the SCS placed by such skilled hands and that I will be getting some relief from this pain soon. Thanks to each of you for your presence in my life. I do hope your pain is low and that you are able to enjoy your day! God bless, ~ Utah ____________ _________ _________ __ From: Lynn ston <ljohnston30> Stimulator@gro ups.com Sent: Tue, November 3, 2009 8:09:23 PM Subject: Re: Lead movement  Thank you for the information, much help.  Funny how geography doesn't seem to change things much ?  So about the Stimulator, I have to wonder if the screws bother your back?  I always had a weak back that progressively gets worse over time and seem to really act up once the stimulator was placed, funny thing is the stimulator is actually for my left leg not my back.  I'm wondering if the hardware and scar tissue will make my back worse.  I must look up these paddles and talked to the Dr about them.  It kills me to take it easy for 3 months at a time to ensure scar tissue has had time to settle in.  Thanks your help. and hope you are feeling well  Lynn  From: Woolrich <john.woolrich@ .co. uk> Subject: Re: Lead movement Stimulator@gro ups.com Date: Monday, November 2, 2009, 6:56 PM  Hi Lynn, My name is and I'm living in the UK, so our group is growing worldwide! You will find that although the distances are great our experiences are very similar. I had my first stimulator fitted with the leads in December 07. It was great and within 6 weeks I was back at work (in hind sight that was too soon!). I work for a local law firm and after a couple of weeks back in the office I reached up to get a file from a top shelf, I'm over 6ft so I didn't have to reach too far, and I felt something " go " in my back and my stim stopped working. A subsequent x-ray showed that the lead had become detached and had migrated down to the base of my spine. Apparently I still hold the record for the furthest migration of a lead in the UK! I went in for further surgery in February 08 when I had a paddle lead fitted. The surgery involved was more invaisive than with just having the basic lead fitted and I had part of the bone removed from my spine, I think its called a lamenectomy and was done under a general anaesthetic. The stim didn't work after that either, due to the incompetence of the surgeon, he didn't connect the lead to the generator properly! I won't bore you with all the details, I had 6 further operations between April 08 and January this year but without much success. But I had seen a new nueurosurgeon over Christmas and New Year and this guy didn't give up on me and he did a lot of research in consulation with the rep from the implant company (St Jude's Medical) and in July I went back and had a new type of lead fitted. Again I had to have more bone removed because the paddles on this type of lead are larger in that they have 16 electrodes per paddle so give much better coverage and the programming options are much greater. Rather than stitch it into place my new paddle is held in place by screws and is very secure. My surgeon even said that after the bedding in process and once everything had healed I could even go bungee jumping if I wanted to he was so confident there would be no movement! The upshot of all this is that everything is working perfectly, I have near 100% pain relief, I'm now off all medication completely and I'm looking to start work again in the next 3 to 4 weeks. It sounds as though you are very active and maybe a paddle lead and screws as opposed to the basic lead and sutures would be an option for you. I would discuss the options with your surgeon and see what he has to say and hopefully he will be able to come up with a solution that's right for you and your lifestyle. I hope this has been of some help but if you have any further questions please do not hesitate to contact me. Warmest regards ____________ _________ _________ __ From: ljohnston30 <ljohnston30> Stimulator@gro ups.com Sent: Mon, 2 November, 2009 4:25:35 Subject: Lead movement  I had my SCS implant put in April 08 for RSD in my left leg, the leads are in my back. I had to have surgery again in Nov 08 because the leads seem to have move or gone bad and had to be replaced. The surgery to redo the leads took 6 hours because the Dr had to remove every bit of scar tissue then we had to change out both sets of leads and do the programming. This week when I turned on the stimulator, the stimulation was way off and in the wrong places like it needs to be seriously reprogrammed. I am going to make an appointment to go see the SCS rep to get it reprogrammed and am hoping that he can straightened it out, if not then my fear is that the Pain Dr will want to surgically fix it. I am active duty military and attend college at night and am worried that I must have lifted too much or have done too much and accidently move the leads. Has anyone had to have multiple surgeries to redo the leads? Having the implant put in once much less twice is not such a great time, it scares me to thing that I would have to keep doing this. Is this normal? Does this come with the territory? I would appreciate your help Lynn Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 12, 2010 Report Share Posted July 12, 2010 It will all work out and things will get btter for you. Keep good thoughts. Let us know how things went and how you are doing in Georgia.  <FONT face= " comic sans ms " color=#ff0000 size=5> in Georgia </FONT><IMG src= " http://us.i1.yimg.com/us.yimg.com/i/mesg/tsmileys2/04.gif " > ________________________________ From: ladybugs2501 <ladybugs2501@...> achalasia Sent: Mon, July 12, 2010 5:41:31 AM Subject: Surgery tomorrow  Last night before surgery, being kept busy by my mum who is making me a dinner to 'farewell solid foods'. trying not to be nervous, i think i'm more anxious about loss of control- a nurse being is hospital is no fun at all! Here's hoping no pain, no reflux/burning, nausea, vomiting etc when i wake up! Here's hoping I'm not pushing it with all these hopes Thanks to everyone for their support and encouragement. Alana Melbourne, Australia Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 26, 2010 Report Share Posted August 26, 2010 Ice Cream was my best friend..... Cream of wheat, rice, oatmeal in a blender, V8, soups in a blender, pureed veggies. in SB In a message dated 8/26/2010 1:16:31 P.M. Pacific Daylight Time, xabishaix@... writes: Thanks for all the tips and well wishing! Will update the group once I have gotten to a computer. Any advice/tips on things to " eat " on the liquid diet and the soft diet? Thanks! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 26, 2010 Report Share Posted August 26, 2010 , Did your doctor give you a list of things to drink? On Clear liquids, they said only things like Juice (apple, cranberry or grape), clear broth (chicken or beef), jello, popsicles, plain coffee or tea (no cream) and lots of water. That is all that I am eating right now. Then they will switch me to a " full liquid " diet, which adds a few more items like pudding and ice cream and creamed/strained soup. But...by Monday I will be on soft food, which right now sounds like heaven. That will mean I can eat pasta, rice, mashed potatoes, fish, ground beef, mushy veggies only. Must avoid steak and bread, seeds, nuts hambergers and hotdogs for entire month. Good luck tomorrow. Julee So Calif. ________________________________ From: xabishaix <xabishaix@...> achalasia Sent: Thu, August 26, 2010 1:16:28 PM Subject: Surgery Tomorrow  Thanks for all the tips and well wishing! Will update the group once I have gotten to a computer. Any advice/tips on things to " eat " on the liquid diet and the soft diet? Thanks! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 26, 2010 Report Share Posted August 26, 2010 Thanks Julee, this is helpful. No they have not given me the " list " yet. I guess they will do that tomorrow. From: Montoya <medhelpinfo@...> Subject: Re: Surgery Tomorrow achalasia Date: Thursday, August 26, 2010, 3:42 PM  , Did your doctor give you a list of things to drink? On Clear liquids, they said only things like Juice (apple, cranberry or grape), clear broth (chicken or beef), jello, popsicles, plain coffee or tea (no cream) and lots of water. That is all that I am eating right now. Then they will switch me to a " full liquid " diet, which adds a few more items like pudding and ice cream and creamed/strained soup. But...by Monday I will be on soft food, which right now sounds like heaven. That will mean I can eat pasta, rice, mashed potatoes, fish, ground beef, mushy veggies only. Must avoid steak and bread, seeds, nuts hambergers and hotdogs for entire month. Good luck tomorrow. Julee So Calif. ________________________________ From: xabishaix <xabishaix@...> achalasia Sent: Thu, August 26, 2010 1:16:28 PM Subject: Surgery Tomorrow  Thanks for all the tips and well wishing! Will update the group once I have gotten to a computer. Any advice/tips on things to " eat " on the liquid diet and the soft diet? Thanks! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 26, 2010 Report Share Posted August 26, 2010 thanks . This helps me plan! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 26, 2010 Report Share Posted August 26, 2010 > > Thanks for all the tips and well wishing! Will update the group once I have gotten to a computer. > > Any advice/tips on things to " eat " on the liquid diet and the soft diet? > > Thanks! > > > , Do a search on Diet after Nissen fundilpication surgery.I think it is actually a www.upmc .com site Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 25, 2010 Report Share Posted October 25, 2010 Hi everybody, My surgery is tomorrow - everybody think healthy, successful, c-toma free, hearing restoring thoughts for me. :0) I'll send a message once I'm feeling up for it to let you all know how it went. Thanks! Bridget Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 27, 2010 Report Share Posted October 27, 2010 Just an update - my surgery was yesterday. The surgery took about 4 hours and was successful as far as the doctor could tell. He somehow did not have to make an incision behind my ear and did all of the work through my ear canal...making my recovery already much easier than surgery #1. He took out two c-tomas and was confident that he got everything in one piece. He took a small cartilage graft and combined it with a titanium prosthesis to reconstruct my hearing bones and patched the hole in my eardrum. I'm still pretty groggy today and I'm feeling a bit nauseous but haven't thrown up at all. They gave me a nausea patch behind my good ear and I assume that's helping me from tossing my cookies. I'll update again as I recover more....thanks everybody! Bridget > > Hi everybody, > > My surgery is tomorrow - everybody think healthy, successful, c-toma free, > hearing restoring thoughts for me. :0) I'll send a message once I'm feeling up > for it to let you all know how it went. > > Thanks! > Bridget > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 28, 2010 Report Share Posted October 28, 2010 Sounds good, thanks for the update and rest up and heal well!On 27 October 2010 21:26, bridgetburke123 <bridgetburke123@...> wrote:  Just an update - my surgery was yesterday. The surgery took about 4 hours and was successful as far as the doctor could tell. He somehow did not have to make an incision behind my ear and did all of the work through my ear canal...making my recovery already much easier than surgery #1. He took out two c-tomas and was confident that he got everything in one piece. He took a small cartilage graft and combined it with a titanium prosthesis to reconstruct my hearing bones and patched the hole in my eardrum. I'm still pretty groggy today and I'm feeling a bit nauseous but haven't thrown up at all. They gave me a nausea patch behind my good ear and I assume that's helping me from tossing my cookies. I'll update again as I recover more....thanks everybody! Bridget > > Hi everybody, > > My surgery is tomorrow - everybody think healthy, successful, c-toma free, > hearing restoring thoughts for me. :0) I'll send a message once I'm feeling up > for it to let you all know how it went. > > Thanks! > Bridget > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 7, 2011 Report Share Posted September 7, 2011 That's Great!! Good Luck tomorrow, I had mine last week! I have had some spasms, one really bad one, and this morning, my scrambled eggs got 'stuck' and needless to say, they did not go down, hopefully that it is not a sign of things not working! Best of Luck tomorrow!! Jen ________________________________ From: kimellenbailey <kimellenbailey@...> achalasia Sent: Wednesday, September 7, 2011 2:47 PM Subject: surgery tomorrow  wanted to give you guys the DL (down low) on the Cialis.. (yes i am a woman, and it has no benefits, I.E. " side effects " for women) i started by taking the 36 hour one , taking it along with my bentyl and also donatal..it did lower my already low blood pressure but not too badly (under my Doctors supervision-Dear Husband) then i took a low dosage Cialis like the 5mg - one 2x a day.. morning and evening.. Now what you have to know is that before that i was taking 2 bags (large bags) of saline IV every week because i could not even drink--muchless eat. this really really helped! the LES opened up and i was able to eat several things this past weekend and week. and DRINK! wow! it made a huge difference.Piggy Sister really got to eat! i then ran out of the cialis samples so i went to viagra a couple days, that did good too. i was able to not even worry about having my spit cup with me on the veranda.. wow. that was huge.. but i am having a myotomy tomorrow morning. so i will let you know how that goes. SOOOOOO.. for the record, for me, the cialas and viagra worked very well. and considering how far i was coming from-- absolutely NOTHING going down, it really helped. Quote Link to comment Share on other sites More sharing options...
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