Guest guest Posted July 21, 2004 Report Share Posted July 21, 2004 Hi Ben, Yes, as far as I'm aware, Provacol is a Statin too. Apparently, it has less side effects. My Dad never tried the Lipitor, after the research that he read. So far, no major problems w/ the Provacol though. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 1, 2005 Report Share Posted March 1, 2005 Hi Everyone, I have been trying for the last 6 months to find a drug to help lower my cholesterol. I have tried, Crestor, Lipitor, Zocor, Novastatin,Provachal. They have all caused me major pain and weakness. Even on the lowest dosages. I have taken a break from trying anymore. I am tired of feeling sick and in more pain. I have told the lipid specialist about my CMT and he said there are so many drugs out there to keep trying. He just doesn't seem to get it that statins hurt me. I am seeing a new doctor this week in hopes she will listen to me. My cholesterol is severe. It's hereditary. I would love to hear from anyone who has succeeded on a drug to help cholesterol. I watch my diet and exercise when CMT allows me too. Thanks, Carol Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 2, 2005 Report Share Posted March 2, 2005 Carol, There are Nutritional Products that one can take for lowering cholesterol and have no side effects. If you would like more information please write me privately and I can share with you what has worked for me and others. Thanks, Jay Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 2, 2005 Report Share Posted March 2, 2005 Hi everyone, statins can cause your muscle enzymes to go out of out of wack. Once this happens you get weaker and lose more muscle, not good for us. Please have your doctor keep am eye on you blood for enzymes. I started lipitor and like all statins it negitivly effected my enzymes. I tried taking q10 but it did not help at all. Once off them everything went back to normal. I have changed my diet now and it is helping somewhat. My specialist told about a new drug that is not a statin but a fibrate. Please keep an eye on your enzymes, I cannot stress this enough. Last time I went to my nero for this he stated that he had a patient or had knowledge of a patient (with cmt) that had been on lipitor and it cause him to become so weak that it is going to be very hard for him to recover. This is the same doctor that a year before stated that taking lipitor was OK. Please be careful. Remember you know your body best and if something does not feel right then you are always the best " doctor " . ---------- No virus found in this outgoing message. Checked by AVG Anti-Virus. Version: 7.0.300 / Virus Database: 266.5.5 - Release Date: 3/1/2005 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 27, 2006 Report Share Posted February 27, 2006 Thanks to those who posted about statins. My DH is on one and he has been loosing his memory, getting hand tremors and drooling. I read him the post and he is so relieved. He thought he was just falling apart. I printed it out to give to his dr and he is going to stop taking them. Little by little I have gotten him on fresh veggies and fruit, better all around diet. When I met him, he did not recognize salad as food! Now he craves them, thank goodness!!! Our DIL was over today and he was telling her about the statins. Her father is also on statins.....the list goes on! This is a lifesaver! Gayla Always Enough RanchAcampo, Californiahttp://bouncinghoofs.com/alwaysenough.htmlA day without Bill Barnhill is like a day without sunshine!goatclearing@... Dial Broadband has arrived Nationwide! Up to 5 times faster than traditional dialup connections from $13.33/month! See the demo for yourself at www.BigValley.net Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 9, 2007 Report Share Posted June 9, 2007 Hi Carl, Yes, we have known for quite a while that Statin medications used in lowering cholesterol may cause problems for persons with CMT. You may be interested in the Statins article in our Files about Statins and Neuromuscular Disease. You may also use the archives to find past posts regarding this subject. Perhaps you can lower your cholesterol through dietary changes and/or exercise. ~ Gretchen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 18, 2007 Report Share Posted October 18, 2007 Ruth, I don't take them, or need to, but know that " statins " like Lipitor, Crestor, Zocor and others can cause more muscle fatigue and weakness in persons with CMT. I think there's a 2007 alert on this in our Files. You might also want to check the Archives for past posts on this topic. Also FYI: from http://www.medicinenet.com/statins/page2.htm What are the side effects of statins? Statins have few important side effects. The most common side effects are headache, nausea, vomiting, constipation, diarrhea, headache, rash, weakness, and muscle pain. The most serious (but fortunately rare) side effects are liver failure and rhabdomyolysis. Rhabdomyolysis is a serious side effect in which there is damage to muscles. Rhabdomyolysis often begins as muscle pain and can progress to loss of muscle cells, kidney failure, and death. It occurs more often when statins are used in combination with other drugs that themselves cause rhabdomyolysis or with drugs that prevent the elimination of statins and raise the levels of statins in the blood. Since rhabdomyolysis may be fatal, unexplained joint or muscle pain that occurs while taking statins should be brought to the attention of a healthcare provider for evaluation. Gretchen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 18, 2007 Report Share Posted October 18, 2007 Ruth, I have a very successful history with taking statins to reduce cholesterol, although that was prior to my CMT diagnosis. At the time of my CMT diagnosis, my cholesterol was the least of my worries and I stopped taking anything to control it. Now my doctor wants me to start taking them again, though this time in combination with Co-Enzyme Q-10. I told him I'd give it a try. The statin I take is a natural supplement called Red Rice Yeast Extract, sometimes also called Red Yeast Extract. I purchase it at the health food stores. I also take an omega 3 fish oil supplement. In the past that combination did an excellent job of bringing my cholesterol down into an acceptable range. O Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 18, 2007 Report Share Posted October 18, 2007 Kay, Some Doctor's are nuts. They just don't understand that we might know what is best for us. I did the same thing with my Doctor. She looked at me like I was nuts but I was not taking them any longer. It was as simple as that. I too had much pain from taking Lipitor. I had to stop it was casuing me to much pain. Thanks Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 24, 2007 Report Share Posted October 24, 2007 I appreciate this information. I had no idea that I was taking something that could be damaging my muscles further. Does anyone know about dilantin? something else I am on that I think can cause problems. I am on 400 mgs a day TIA Lenore in TN Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 27, 2007 Report Share Posted December 27, 2007 http://tinyurl.com/23y6hxThis article is an excellent read and worth passing along to anyone you know who is still convinced that Statins are the answer to their problems. Regards, Carol Ann ~ The only thing that is different is how you think..http://antwrp.gsfc.nasa.gov/apod/archivepix.html Looking for last minute shopping deals? Find them fast with Search. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 27, 2007 Report Share Posted December 27, 2007 On Dec 26, 2007, at 6:43 PM, Carol Ann wrote:http://tinyurl.com/23y6hxThis article is an excellent read and worth passing along to anyone you know who is still convinced that Statins are the answer to their problems. Thanks, Carol Ann!I know lots of people like that and they need to hear it from someone else besides me. :-) They already think I'm a nut.... Quote Link to comment Share on other sites More sharing options...
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