Question and update

[Guest guest]

Hello to you all,

Just wanted to let you all know that things are going quite well here

(So far anyway) and that I got my results back from my bone scan. There

was only one joint damage so far and the doc has told me that we have to

get moving on a treatment so that it will stay this way. The one joint

is in my right foot and she said that it will only get worse if I don't

hurry up on a treatment. She is not into the Antibiotic Therapy and

wants to put me on planquil? Is that how it is spelled? Anyway, she

told me that if I couldn't handle the Minocycline (700mg) right off the

bat, that it will not work for me... So far I have adjusted it myself

(which she gave me crap over) I worked myself up to 200mg per week

(kind of scared to go to 300mg) but will continue slowly upwards. I

told her that I wanted to give it time to work, but she told me that if

in 2 months from now, I can't handle the 700mg's that I really should

consider another way. I want to continue with the Minocycline and I am

not sure what to do. Is this enough of a time frame for the Minocycline

to work? Should I give it a bit longer? Should I find a Doctor that

understands this a bit better? Any feed back would be appreciated. So

far my joint soreness etc is not too bad. I take 200mg of Naproxen a

day, around 2000mg of Tylenol extra strength and this seems to be

sufficient. I do feel achy even with that, but it is bearable at this

point. Another thing she told me that I also suffer from Fibromyalgia.

Yipee!!! A double whammy!!! I take only Flexerall for this at this

point. Seems to help for now. Will let you know more later.

Another question that I have, to all of you out there with Psoratic

Arthritis, A friend of mine was diagnosed awhile ago with this, and she

refused to believe that it could become very painful. She is finding

now that her hip area is getting extremely sore and fingers and half way

up her arm are numb. Could this be part of the PA? I have told her of

the AP, and she has read some info that I have gotten on here, but still

doesn't believe that it could become worse. Any feed back here would be

greatly appreciated as well.

Well I do hope that this finds you all well, and hanging in there. I

enjoy reading everything that is sent ( the encouraging letters, etc.)

and all the information. I am glad I happened to find this group.

Makes me feel much better knowing there is someone that I can talk to

that has or is going through this.

Take care to you all, and I am here if anyone wants to chat. God bless

you all,

Kerry

[Guest guest]

Kerry wrote:

>

> Another question that I have, to all of you out there with Psoratic

> Arthritis, A friend of mine was diagnosed awhile ago with this, and she

> refused to believe that it could become very painful. She is finding

> now that her hip area is getting extremely sore and fingers and half way

> up her arm are numb. Could this be part of the PA? I have told her of

> the AP, and she has read some info that I have gotten on here, but still

> doesn't believe that it could become worse.

Hi Kerry,

If your friend doesn't want to believe that the PA can become worse,

there isn't much more you can do to convince her, I guess :-), but of

course it _can_ become worse. I have it, though fortunately only in my

hands (right now, with what would be crossed fingers if I could do that

anymore!). Others on here have it far worse, and I'm sure they'll be

joining in to say so ... as for the " worse " part: PA can erode your

bones in the joints just as RA can. I think maybe why your friend

doesn't want to believe it (and I know I didn't, when I first received

the PA diagnosis several years ago -- I was in complete denial!) is that

PA can be very sneaky. You get one little knuckle involved; it can swell

up, get red and painful, but then the pain and swelling go away after a

couple months and leave you with an enlarged -- but painfree -- knuckle.

So you think " this can't be arthritis " . Then another knuckle will behave

like that, maybe a year or more later. It can be really gradual, which

is how I had experienced it up till about a year ago, or it can come on

like a ton of bricks.

But I wouldn't want to speculate about the numbness your friend is

experiencing; can't say if that's PA or not, so she should definitely

get it checked out as it might be something else. The sooner she knows,

the sooner she can get it treated.

I'm on the AP for the PA, by the way; it's been 4 months. Not much in

the way of improvement yet, but no worse either (and up till I'd started

the AP last June I was experiencing what I'd call rapid deterioration in

some of my fingers).

Hope this helps?

--Louise

[Guest guest]

Louise,

Proper nutrition is extremely important for people with PA and should be

followed along with the AP for optimal results. Some foods need to be

eliminated entirely. Look for a nutritionist experienced in this area .

Ethel

Re: rheumatic Re: Question and Update

>

>

> Kerry wrote:

> >

> > Another question that I have, to all of you out there with Psoratic

> > Arthritis, A friend of mine was diagnosed awhile ago with this, and she

> > refused to believe that it could become very painful. She is finding

> > now that her hip area is getting extremely sore and fingers and half way

> > up her arm are numb. Could this be part of the PA? I have told her of

> > the AP, and she has read some info that I have gotten on here, but still

> > doesn't believe that it could become worse.

>

> Hi Kerry,

>

> If your friend doesn't want to believe that the PA can become worse,

> there isn't much more you can do to convince her, I guess :-), but of

> course it _can_ become worse. I have it, though fortunately only in my

> hands (right now, with what would be crossed fingers if I could do that

> anymore!). Others on here have it far worse, and I'm sure they'll be

> joining in to say so ... as for the " worse " part: PA can erode your

> bones in the joints just as RA can. I think maybe why your friend

> doesn't want to believe it (and I know I didn't, when I first received

> the PA diagnosis several years ago -- I was in complete denial!) is that

> PA can be very sneaky. You get one little knuckle involved; it can swell

> up, get red and painful, but then the pain and swelling go away after a

> couple months and leave you with an enlarged -- but painfree -- knuckle.

> So you think " this can't be arthritis " . Then another knuckle will behave

> like that, maybe a year or more later. It can be really gradual, which

> is how I had experienced it up till about a year ago, or it can come on

> like a ton of bricks.

>

> But I wouldn't want to speculate about the numbness your friend is

> experiencing; can't say if that's PA or not, so she should definitely

> get it checked out as it might be something else. The sooner she knows,

> the sooner she can get it treated.

>

> I'm on the AP for the PA, by the way; it's been 4 months. Not much in

> the way of improvement yet, but no worse either (and up till I'd started

> the AP last June I was experiencing what I'd call rapid deterioration in

> some of my fingers).

>

> Hope this helps?

> --Louise

>

>

> To unsubscribe, email: rheumatic-unsubscribeegroups

>

>

>

[Guest guest]

Hi Kerry,

I always try and consult my own gut (feeling) when I am in a confusing

situation such as yours. I would especially listen to my intuition if I

had a doctor such as you have mentioned who seems to be bullying

me into a corner. My gut told me from the beginning that the usual

round of RA drugs would harm and not heal me. But it's difficult

to stay away from them when the doc insists and you hurt all over.

When the doctor wrote out the prescription for methotrexate I was totally

in fear, from what I had read this was bad stuff, ( I never filled that

Rx, but still have it, I sometimes wonder if I should burn it - or have

it framed) my husband urged me to find a "support group" on the Internet

- which I did -discovering this group and the AP treatment. Again - on

gut instinct and intuition I was convinced this AP treatment was right

for me. Did you read all of the case histories on the web site? For me

that was incredible because I shared symptoms with so many of those people

-- and then after 8 months I began to share recovery. The whole way

through the pain I was reassured by those stories of how the months beginning

the AP would be. Major Ouch! This last month I have really healed dramatically.

I am convinced that the addition of drugs like plaqunil, sulfasalazine,

methotrexate and the rest would have inhibited my recovery.

I think maybe you should seek out a doctor who will give you the help

you need. Many of us on the AP are living proof that it works - though

it may take a near a year (in my case) or more in others I've read of.

the best to you,

Doxycycline 100mg everyday

Acidophilus

Water - lots

Kerry wrote:

Hello to you all,

Just wanted to let you all know that things are going quite well

here

(So far anyway) and that I got my results back from my bone scan.

There

was only one joint damage so far and the doc has told me that we

have to

get moving on a treatment so that it will stay this way.

The one joint

is in my right foot and she said that it will only get worse if

I don't

hurry up on a treatment. She is not into the Antibiotic Therapy

and

wants to put me on planquil? Is that how it is spelled?

Anyway, she

told me that if I couldn't handle the Minocycline (700mg) right

off the

bat, that it will not work for me... So far I have adjusted

it myself

(which she gave me crap over) I worked myself up to 200mg

per week

(kind of scared to go to 300mg) but will continue slowly

upwards. I

told her that I wanted to give it time to work, but she told me

that if

in 2 months from now, I can't handle the 700mg's that I really

should

consider another way. I want to continue with the Minocycline

and I am

not sure what to do. Is this enough of a time frame for the

Minocycline

to work? Should I give it a bit longer? Should I find

a Doctor that

understands this a bit better? Any feed back would be appreciated.

So

far my joint soreness etc is not too bad. I take 200mg of

Naproxen a

day, around 2000mg of Tylenol extra strength and this seems to

be

sufficient. I do feel achy even with that, but it is bearable

at this

point. Another thing she told me that I also suffer from

Fibromyalgia.

Yipee!!! A double whammy!!! I take only Flexerall for this

at this

point. Seems to help for now. Will let you know more

later.

Another question that I have, to all of you out there with Psoratic

Arthritis, A friend of mine was diagnosed awhile ago with

this, and she

refused to believe that it could become very painful. She

is finding

now that her hip area is getting extremely sore and fingers and

half way

up her arm are numb. Could this be part of the PA?

I have told her of

the AP, and she has read some info that I have gotten on here,

but still

doesn't believe that it could become worse. Any feed back

here would be

greatly appreciated as well.

Well I do hope that this finds you all well, and hanging in there.

I

enjoy reading everything that is sent ( the encouraging letters,

etc.)

and all the information. I am glad I happened to find this

group.

Makes me feel much better knowing there is someone that I can talk

to

that has or is going through this.

Take care to you all, and I am here if anyone wants to chat.

God bless

you all,

Kerry

To unsubscribe, email: rheumatic-unsubscribeegroups

[Guest guest]

Hi Kerry,

> told me that if I couldn't handle the Minocycline (700mg) right off the

> bat, that it will not work for me... So far I have adjusted it myself

> (which she gave me crap over) I worked myself up to 200mg per week

> (kind of scared to go to 300mg) but will continue slowly upwards. I

> told her that I wanted to give it time to work, but she told me that if

> in 2 months from now, I can't handle the 700mg's that I really should

> consider another way. I want to continue with the Minocycline and I am

> not sure what to do. Is this enough of a time frame for the Minocycline

> to work? Should I give it a bit longer? Should I find a Doctor that

> understands this a bit better? Any feed back would be appreciated. So

You are correct and this doctor is wrong. Some people here have only been

able to tolerate 50mg per week to start with and 50mg Mon Wed and Fri as a

maximum and they still slowly recovered. And, no it's not long enough. You

should continue to slowly work up the dose until you feel that you are

taking as much as you can tolerate and then stay on that dose long-term.

I'll send you our doctors' list by separate email and hopefully there may

be a doctor there who will help you more.

Chris.

[Guest guest]

Hey all, I'm still alive. Hey Suzanne I finally moved out! I'm back in college at 30 finishing my el ed degree. (I'm nuts!) So to the question. Two Wednesdays ago burnt his arm pretty bad on pot. (Can you believe he is 8 now?) I have kept it covered w/ salve and it's healing very well considering. The old skin is drying and flaking off now and he is breaking out from the bandages.. When do I stop covering it? And do I keep doing a first aid salve or do I need to switch to something else? Thanks Becky

Bring words and photos together (easily) with PhotoMail - it's free and works with .

[Guest guest]

ok, from experience I can tell you it was first to second... (don't ask... it was a stupid thing I did when I was much younger)... After two weeks you should be able to leave the bandages off - you'll be able to tell by looking at it.. I would still apply salve until the healing looks good... but I would leave out the oils and substitute vit e oil or wheat germ oil. If need be just apply it at nite, cover lightly so as not to make a big mess, then remove during the day.. In case you need something for future (which I hope not) here is one for you. Dr. 's Burn Paste take Equal parts of raw honey and wheat germ oil (slowly heat the honey in a double boiler to soften) and put in a blender or food processor with the wheat germ oil. I add freshly picked comfrey leaves while the processor is

on. add as much comfrey as you can. It looks like fresh green manure. Cover the burned area of the body as thick as you can. You can cover that with Saran Wrap to keep the mess to a minimum. Put on the bed an old swimming towel and cover yourself or whoever, with an old sheet.Reapply over top of what was already there as needed. If you can do this for 12 -24 hours you will be amazed at how it heals. This also works well for bruises, but then just use Olive Oil as a base. doodlebugboodles <doodlebugboodles@...> wrote: It's an a recipe I got from another group. It has olive oil infused with arnica, comphery, calandula, and marshmellow root combine with tea tree and peppermint oils. I need to make another batch here soon. It

was a second degree burn, possibly the deeper variety, but he did have pain, so I don't know, lol. Becky

[Guest guest]

doodle bug wrote:

> Hey all,

> I'm still alive. Hey Suzanne I finally moved out! I'm back in

> college at 30 finishing my el ed degree. (I'm nuts!)

> So to the question. Two Wednesdays ago burnt his arm pretty

> bad on pot. (Can you believe he is 8 now?) I have kept it covered w/

> salve and it's healing very well considering. The old skin is drying

> and flaking off now and he is breaking out from the bandages.. When do

> I stop covering it? And do I keep doing a first aid salve or do I

> need to switch to something else?

> Thanks

> Becky

>

> ------------------------------------------------------------------------

==============================

Personally, Becky, I would just allow it to air out. No salve and no

bandage. Do allow some sun to get to it though. Congrats on getting on

your own and going back to school.

--

Peace be with you, Becky.

Don " Quai " Eitner

" Spirit sleeps in the mineral, breathes in the vegetable, dreams in the animal

and wakes in man. "

Nearly all men die of their remedies, and not of their illnesses. ~Jean

Baptiste Molière, Le Malade Imaginaire

The obstacle is the path. ~Zen Proverb

[Guest guest]

Becky, Good job on finishing your degree!! I have some questions. What kind of first aid salve are you using? Are you letting the burn air out at all for extended periods of time? How bad was the burn? Blisters? Charred flesh? My first inclination is to let it air out as much as possible, keep the salve on it (depending on the type), and only cover it when you feel it might be bumped or hurt. Hope he feels better!! Peace, love, laughter "joy is a much sought after quality of life....Joy comes with giving away - losing, not gaining."doodle bug <doodlebugboodles@...> wrote: Hey all, I'm still alive. Hey Suzanne I finally moved out! I'm back in college at 30 finishing my el ed degree. (I'm nuts!) So to the question. Two Wednesdays ago burnt his arm pretty bad on pot. (Can you believe he is 8 now?) I have kept it covered w/ salve and it's healing very well considering. The old skin is drying and flaking off now and he is breaking out from the bandages.. When do I stop covering it? And do I keep doing a first aid salve or do I need to switch to something else? Thanks Becky__________________________________________________

[Guest guest]

**Definitely** herbal arnica should not be used on open sores. It's poisonous in the bloodstream. Plus, it doesn't work on open wounds, just on bruises or shocks/trauma to the system. So there's no reason to.

Rather put calendula in a burn/wound salve rather than arnica. Arnica should go into a salve for bruising.

Sharyn

From: health [mailto:health ] On Behalf Of

The salve recipe sounds quite good. Mine is very similar, but with a touch of beeswax in it for body. I heard that arnica should not be used on open sores, but don't remember if it is true or not. I have it in my salve too.

--

No virus found in this outgoing message.

Checked by AVG Free Edition.

Version: 7.1.375 / Virus Database: 267.14.23/243 - Release Date: 1/27/2006