Guest guest Posted August 7, 2001 Report Share Posted August 7, 2001 Imagine the look on Jon's face!!!!! Re: Jon <<Jon, Well, there is only one thing left to do, when we see each other at the picnic, we'll have to suck face and then Lori can show you her new boobs, .............well that's how we make up in Joisey!!!!!!!!>>> That's it. I'm bound and determined to be there. THIS I have to see!!! Cheryl Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 7, 2001 Report Share Posted August 7, 2001 what exit? Re: Jon Deal!!! BTW, did you know that I'm a Joisey Guy? Grew up in Teaneck! > > > > Lori, just some food for thought.....If you are going to have > > > excess skin > > > > removed from your abdomen, hips, and thighs wouldn't it better > to > > > have it > > > > done in one surgery versus multiple surgeries? > > > > > > > > When I have gotten down enough for excess skin removal, I am > > prefer > > > to have > > > > the least amount of surgeries as possible. > > > > > > > > I do agree that it is wise to be in the best of shape when > > > preparing for > > > > surgery. I too am doing a lot of weight lifting. When I > decided > > > the only way > > > > I could lose weight was WLS, I knew and even more believe today > > > that WLS is > > > > only a tool, not a cure! A total commitment to a change in > life > > > style > > > > ranging from diet, exercise, social,....you name it, what ever > > > needs to be > > > > changed so that I can be healthy. > > > > > > > > As a Christian, I believe my body is the temple for the Holy > > Spirit > > > and God > > > > reaches out to others, both believers and nonbelievers, through > > us. > > > I could > > > > no longer do the things that I believe God purposed in my life > > due > > > to health > > > > problems resulting from my obesity. As a Christian, it has > been > > > regretful > > > > feeling knowing that I could not fully complete my purpose in > > life. > > > God > > > > forgives, but He also can perform the miraculous. > > > > > > > > WLS with Dr. Rutledge has been miraculous! I praise God each > day > > > for Dr. R. > > > > and his commitment to the obese. > > > > > > > > I look forward to reading about your progress. > > > > > > > > Debra Washburn, RN, Tulsa > > > > surgery 03/14/01 at 320/200 and dropping! > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 7, 2001 Report Share Posted August 7, 2001 <<Jon, Well, there is only one thing left to do, when we see each other at the picnic, we'll have to suck face and then Lori can show you her new boobs, .............well that's how we make up in Joisey!!!!!!!!>>> That's it. I'm bound and determined to be there. THIS I have to see!!! Cheryl Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 7, 2001 Report Share Posted August 7, 2001 , it is so. He's all but accentless. manda > > > jon, not many people know this, but i am going to confess..... > > > > > > even though i am a real southern gal, i have to tell you, i > > > like " yankee men " i mean i REALLY like them! i married a good > > > souther fella, but there is just something about that accent... > > lord > > > i blush just thinking about it! > > > > > > Cant wait to hear...uhhh i mean see you at the picnic! LOL! > > > > > > S in VA > > > (whose grandmother is spinning in her grave at this moment) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 8, 2001 Report Share Posted August 8, 2001 well, DAMN! oops.....(did i say that?) S in VA (red faced) > > > > jon, not many people know this, but i am going to confess..... > > > > > > > > even though i am a real southern gal, i have to tell you, i > > > > like " yankee men " i mean i REALLY like them! i married a good > > > > souther fella, but there is just something about that > accent... > > > lord > > > > i blush just thinking about it! > > > > > > > > Cant wait to hear...uhhh i mean see you at the picnic! LOL! > > > > > > > > S in VA > > > > (whose grandmother is spinning in her grave at this moment) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 10, 2001 Report Share Posted August 10, 2001 The organization is called Claims Management Inc. Their web address is http://www.fixmyclaim.com. They have sent a letter to my insurance company requesting that they cover my MGB. I'm still waiting to hear back from CMI. All corespondence goes through CMI now, I do not have to deal with my insurance company at all. Bonded by our experience, strength and hope Rhonda MGB - 11/30/00 279/203/1?? - In @y..., jsb@j... wrote: > Rhonda, > > What's that website you mentioned? > > Best, > > Jon in Tuscaloosa > MGB 11/22/00 > 263/170(?)/150 > > > > > My friend, , who will be coming to the picnic with us, needs > > some > > > positive prayers sent her way. > > > > > > She has been fighting her insurance company for this surgery for > > months now. > > > She has been denied and put together an appeal packet that should > > have > > > insured ANY company would cover her, but her husband's company is > > self > > > insured and just said " If it is NOT life threatening, it isn't > > covered " . No > > > matter what she has done to prove that obesity in itself is life > > threatening, > > > they counter with " nope not life threatening still " . She has a > > terrible, > > > terrible ankle which she's has surgery on that hurts her whenever > > she stands > > > too long or walks on it, high blood pressure, hypertension and a > > knee that > > > also gives her great pain and that she has also had surgery on > > after an > > > accident. None of this matters to them. She is 317 and in great > > pain and > > > they will not help her. > > > > > > Please pray for her. She is very down after having a terrible > day > > and then > > > hearing that they still are refusing her. > > > > > > She is actually in the position that she can pay for the surgery > > herself with > > > some money that was left to her by her father upon his death last > > year, but > > > she had earmarked those funds for her son's education and to also > > help the > > > other son and his wife. She really doesn't want to take the > money > > from them > > > for herself, though I told her she is definately worth it. > > > > > > So please pray for her. Pray that the company will change their > > minds or > > > that the road will be clear to her as to should she or shouldn't > > she self > > > pay. She is also afraid that if she self pays and something goes > > wrong, it > > > would ruin the family financially. > > > > > > Thanks > > > in Ark > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 10, 2001 Report Share Posted August 10, 2001 Thanks, Rhonda! I'll check it out. Best, Jon > > > > My friend, , who will be coming to the picnic with us, > needs > > > some > > > > positive prayers sent her way. > > > > > > > > She has been fighting her insurance company for this surgery > for > > > months now. > > > > She has been denied and put together an appeal packet that > should > > > have > > > > insured ANY company would cover her, but her husband's company > is > > > self > > > > insured and just said " If it is NOT life threatening, it isn't > > > covered " . No > > > > matter what she has done to prove that obesity in itself is > life > > > threatening, > > > > they counter with " nope not life threatening still " . She has a > > > terrible, > > > > terrible ankle which she's has surgery on that hurts her > whenever > > > she stands > > > > too long or walks on it, high blood pressure, hypertension and > a > > > knee that > > > > also gives her great pain and that she has also had surgery on > > > after an > > > > accident. None of this matters to them. She is 317 and in > great > > > pain and > > > > they will not help her. > > > > > > > > Please pray for her. She is very down after having a terrible > > day > > > and then > > > > hearing that they still are refusing her. > > > > > > > > She is actually in the position that she can pay for the > surgery > > > herself with > > > > some money that was left to her by her father upon his death > last > > > year, but > > > > she had earmarked those funds for her son's education and to > also > > > help the > > > > other son and his wife. She really doesn't want to take the > > money > > > from them > > > > for herself, though I told her she is definately worth it. > > > > > > > > So please pray for her. Pray that the company will change > their > > > minds or > > > > that the road will be clear to her as to should she or > shouldn't > > > she self > > > > pay. She is also afraid that if she self pays and something > goes > > > wrong, it > > > > would ruin the family financially. > > > > > > > > Thanks > > > > in Ark > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 7, 2001 Report Share Posted September 7, 2001 HEY !! What that Jersey accent stuff TommyB Re: Jon > > > > > > Hi Jon > > This is worse, I say fittin to, instead of fixing too. Around > here, we also > > > > " carry " people somewhere. ( I suppose it would be easier to let > them ride in > > > > the car ! ) > > Carla > > The southern kid who needs more proper English lessons. > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 7, 2001 Report Share Posted September 7, 2001 that's Joisey to you tommy!!!! You got a problem wid dat? Re: Re: Jon HEY !! What that Jersey accent stuff TommyB Re: Jon > > > > > > Hi Jon > > This is worse, I say fittin to, instead of fixing too. Around > here, we also > > > > " carry " people somewhere. ( I suppose it would be easier to let > them ride in > > > > the car ! ) > > Carla > > The southern kid who needs more proper English lessons. > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 25, 2001 Report Share Posted September 25, 2001 Great weight loss Jon!! You really are close to goal!! On Mon, 24 Sep 2001 17:45:53 -0000 jsb@... writes: > Hey gang, > > Saturday was my 10 mo. anniversary; I'm down 96 lbs, from 263 to > 167, > and feeling great! No problems of any kind! > > I look forward to seeing all of you at the picnic! > > Jon in Tuscaloosa > MGB 11/22/00 > 263/167/150 > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 6, 2001 Report Share Posted October 6, 2001 Welcome & Jon , Struggling and in your heart , we can all totally relate . Glad you've joined our group of friends . Hope by now you gotten a chance to read other messages and found what you've mentioned about Jon is like writing about our kids . A parent always knows best for their child , so always listen and follow your heart . Glad your not alone with this challenging dual dignosis and you're doing something about it and hope WE all could be of some help and comfort . Take care . Irma , 13,DS/ASD. > ---------- Original Message ---------------------------------- > >Hi! > > I'm , Mom to Jon age 9/DS. He is a great kid and we adore him, but > we've been dealing with many behavioral issues for some time and are > wondering if we've been missing something. This brings me to the list. > I'm thinking that maybe we should be looking at something other than Down > Syndrome to understand his behaviors and perhaps it is Autism Spectrum > Disorder. I've read some things about this and think this might be worth > checking into further. Can you give me any/all information about how the > diagnosis was made, what symptoms, and what meds you have tried? > > I would really appreciate any information/insight you can offer. We are > really struggling and I know in my heart that there is something out there > that can help Jon. > > Thanks much, > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 6, 2001 Report Share Posted October 6, 2001 Hi jamie, well my nathan now 10 is doing great now, but we have been doing behavior management since age 3 and med trial and error since probably 4-5yrs of age, behaviors were a nightmare, but we are doing great this year, very little or short lived lowed tempered moments so knock on wood, im waiting for you know what to hit the fan, uuuugh! behaviors included, stereotypie, no verbalizations except echolalia, lack of eye contact, hand flapping, rocking, horrible drop down tantrums, biting himself and others, head banging, self stimualtions--usually with dangly type things like strings, lining up things around the house---still does---mostly toys, light swith flipping repetivetly, door slamming, very little need of sleep, more delayed learning then usual ds child, delay in potty training compared to usual ds child, parallel playing, sensory issues, and still major food and texture issues. I think i got them all, but like soo many here, nathan has done soo and learned to stop soo much that i might of missed something. As for the meds, we have tried many, i am against antipsychotics, i know they help many on the list, just my personal feelings, to many extra peramital sid effects one cant stop with long term use. We did try risperdal once but had horrible side effects against that was it for those, ritalin has hleped calm down intensity of nathan's behaviors well, he has been taking concerta 54mg a good 6months i think and its even better than ritalin, no more moodiness ups and downs. Many of the meds we tried nathanhad bad side iffects to, one even made his skin peel off everywhere, was awful, we have found the lower the dose the better too, he also now takes 25mg of luvox to help with his OCD, it helps here a little but really helps nathan's mood is also an antidepressant, and over the past year on it nathan has even got quite a vocabualary, still mostly one word things, and lots of pointing, he doesnt understand where or how questions and even refers to himslef in third person, eg: " nathan's house " when he wants to go home, he has never liked crowds or to be gone for more than a few moments even to grandparents. shawna. --- " Gold-Naylor, " <jmedlen@...> wrote: > ---------- Original Message > ---------------------------------- > >Hi! > > I'm , Mom to Jon age 9/DS. He is a great kid > and we adore him, but > we've been dealing with many behavioral issues for > some time and are > wondering if we've been missing something. This > brings me to the list. > I'm thinking that maybe we should be looking at > something other than Down > Syndrome to understand his behaviors and perhaps it > is Autism Spectrum > Disorder. I've read some things about this and > think this might be worth > checking into further. Can you give me any/all > information about how the > diagnosis was made, what symptoms, and what meds you > have tried? > > I would really appreciate any information/insight > you can offer. We are > really struggling and I know in my heart that there > is something out there > that can help Jon. > > Thanks much, > > > > > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 29, 2001 Report Share Posted November 29, 2001 Jon believe me he blatantly asked for what he wanted, I am sure you aren't that way Re: vellucci's dating disasters > > WHAT A SICK-O and what a question to ask!!! I mean, to each his own > with > their sexual preference but what do you suppose made him even ask such a > > thing?! Move on, Honey and don't look back! You don't need him! > > in OK > > In a message dated 11/27/2001 2:16:06 PM Pacific Standard Time, > LINDA.VELLUCCI@M... writes: > > << > >do you guys have the patience to listen to one more horror story?????? > Well > >this very nice guy was writing to me and said he was interested in > meeting > >me. We emailed each other for THREE DAYS, today he said he would call > me > at > >home tonight and we would get together tomorrow night. Then he asks > me if > I > >was bisexual, I said no, what ever gave you that idea. Well he writes > back > >that it is what he is looking for!!!!!!!!!!!!!! Wasted three > days!!!!!!!! > >I am sooooooo disappointed now, what the hell else is going to > happen?! > >Then this other guy writes asking if when he got back from his trip > that > >evening if I could make him dinner. I wrote back, " NO " . I should have > told > >him " sure, after you change the oil in my car " !!!!!!!! Somebody help > me!!!! > > >> > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 16, 2005 Report Share Posted February 16, 2005 He speaks (types, whatever)! Good to hear from you Jon! De Faith is the ability to not panic. -----Original Message-----From: Jon [mailto:newtonkrebanski@...] Sent: Wednesday, February 16, 2005 7:01 PMHepatitis CSupportGroupForDummies Subject: Re: Hello ,I would be pleased to answer any of your questions about TP, and other concerns you may have about this whole process. Deb, , Kathy, and myself have "been there and done that". We are here to give you any help you may need. The "list" can be a hard thing to deal with as you're waiting. Whatwver we can do to help ease your stresses, Just ask. Regards, Jon. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 16, 2005 Report Share Posted February 16, 2005 And how are you doing Jon??? Find a new place..Thought I'd ask while it is still there in my mind..Kathy -----Original Message-----From: Jon [mailto:newtonkrebanski@...] Sent: Wednesday, February 16, 2005 7:01 PMHepatitis CSupportGroupForDummies Subject: Re: Hello ,I would be pleased to answer any of your questions about TP, and other concerns you may have about this whole process. Deb, , Kathy, and myself have "been there and done that". We are here to give you any help you may need. The "list" can be a hard thing to deal with as you're waiting. Whatwver we can do to help ease your stresses, Just ask. Regards, Jon. Quote Link to comment Share on other sites More sharing options...
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