Guest guest Posted September 29, 2005 Report Share Posted September 29, 2005 Hi Anu, It's been 8 years since I've been diagnosed with RA. I have tried a couple of elimination diets thinking that if I eliminate some type of food I may get better, but they have not worked for me atleast. There may be certain foods that make one feel worse so you must avoid those. And perhaps that's what your rheumatologist is saying. Unlike ayuveda, which identifies and lays great stress what you must stay away from, I think when you start with allopathy you will have to identify what suits you and what doesn't. And believe me that's a relief. I've tried ayurveda too, but well it didn't work for me. Allopathic drugs are proven and researched disease modifying drugs and they to certain extent arrest joint damage. Allopathy, so long as it's non-steroidal works well for me and most people I've known with RA. I'd suggest you give allopathy a chance. Take care, a Subha N <subhapradav@...> wrote: folks, how much of a benefit has a gluten free diet given all of you. i'm just diagnosed with RA and what i read on the internet is in contrast to what my rheumy says....he says diet has just 10% significance.... am yet to start RA medications...on ayurveda right now which is giving me definite benefits, thanks Anu Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 29, 2005 Report Share Posted September 29, 2005 hi anu my naturopath has put me on a diet that is wheat free caffeine free occasional dairy minimal meat lots of fresh fruit and veg water only or fresh juice fish every day if possible also natural anti inflammatories and fish oils i have never felt healthier and my inflammation has definantly improved - now i'm not sure if that's because the 'flare' has finished or if the diet and tabs are working. i figure that the diet will help my general health anyway and so i am very glad to follow it i'm not on any other ra meds as yet as i haven't seen my rheumatologist (not til november) good luck and any q's just ask mel [ ] Gluten free diet folks, how much of a benefit has a gluten free diet given all of you. i'm just diagnosed with RA and what i read on the internet is in contrast to what my rheumy says....he says diet has just 10% significance.... am yet to start RA medications...on ayurveda right now which is giving me definite benefits, thanks Anu Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 29, 2005 Report Share Posted September 29, 2005 Hi Anu. I tried a gluten free diet with no improvement. Gluten intolerance has many of the same symptoms as RA and a small number of people diagnosed with RA may have been misdiagnosed. When they go on a gluten free diet and get better, they believe that RA can be cured by diet. It may be a good idea if everyone diagnosed with RA try eliminating gluten. 10% is a LOT of people. This list has over 1000 members, so that means 100 people on this list may benefit from diet modifications. There is a lot of bad information on the internet. I am very cautious of any site that has something to sell. Some unscrupulous people will make any claims just to sell their snake oil. a On Sep 29, 2005, at 12:20 PM, Subha N wrote: > folks, > > how much of a benefit has a gluten free diet given all of you. i'm > just diagnosed with RA and what i read on the internet is in > contrast to what my rheumy says....he says diet has just 10% > significance.... > am yet to start RA medications...on ayurveda right now which is > giving me definite benefits, thanks > Anu > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 29, 2005 Report Share Posted September 29, 2005 Mel, It's great that you see improvements. I feel the same way, it's healthier and I enjoy eating healthy. I believe in the body's ability to heal itself so I try to eat a close to natural as I can. Eliminating meat has been the most helpful to me. There are many foods that help fight inflammation, so I try to add them to my diet. a On Sep 29, 2005, at 7:20 PM, P Wheeler wrote: > hi anu > my naturopath has put me on a diet that is > wheat free > caffeine free > occasional dairy > minimal meat > lots of fresh fruit and veg > water only or fresh juice > fish every day if possible > > also natural anti inflammatories and fish oils > > i have never felt healthier and my inflammation has definantly > improved - now i'm not sure if that's because the 'flare' has > finished or if the diet and tabs are working. i figure that the > diet will help my general health anyway and so i am very glad to > follow it > i'm not on any other ra meds as yet as i haven't seen my > rheumatologist (not til november) > > good luck and any q's just ask > mel Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 27, 2005 Report Share Posted December 27, 2005 There are several for this subject that are excellent. Do a search and you can find one that best suits your needs. I would study it carefully before implementing and consult a qualified homeopathic doctor who has attended at least one DAN! conf. " He who has a 'why' to live can bear with almost any 'how'. " Nietzsche ----Original Message Follows---- From: " vero19090 " <vero19090@...> Subject: [ ] Gluten free diet Date: Mon, 26 Dec 2005 15:16:55 -0000 Hi, I was wondering if anyone has any information on how to get started on the special diet (gluten/casein free) I have heard sooo much about it but I am not even sure where to start. I will greatly appreciate it any information you may have (Doctors, websites, names of books, etc. etc.) I am planing on getting started in January with my 2 (3 and 4 children diagnosed with ASD) **For Doctors info we live in Willow Grove, PA 19090*** Thank you very much for the infortmation! Please contact me at bobjones6591@... Have a wonderful NEW YEAR EVERYONE!!!! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 23, 2006 Report Share Posted October 23, 2006 Hi Eileen, There is so much stuff out there on this. I just punched in GFCF research in my search engine and signed up to be a member of the GFCFKids group. One of the messages there is from a mom asking for explanations about allergy testing results (ELISA). I went with the thread and learned a lot about this stuff! You can try to do the same, browse on the board and find links of interest. I can, later this week, post some book titles you may want to order. Often, you just have to go with your gut with these issues. I had my son on the diet for 1 year when he was 2 and 1/2 through 3 and 1/2 and did not see a breakthrough. He did have GI issues that improved greatly. He got calmer, and was quite social, but I wanted to see more to be convinced the diet was helping him. At that time, honestly, I did not think the diet was the reason for his gains as I wanted to see a CURE (OK, that was a while ago. Today I take anything I can get...) So anyhow, after a year of him not being "cured" on the diet (but definitely improved) I stopped it once my son started a behavioral intervention program - I though that would be the "cure" instead. Well, his learning rates have not been anything great, and his constipation returned paired with anxiety, lots of new behaviors such as OCDs, increased stimming, not sleeping....it would be hard to say for sure if it was caused by other things such as intensive and exhausting ABA therapy, side effects of other treatments or our departure from sensory strategies ... they all may have contributed to many of these issues....but listen to this: finally, 4 months ago I re-started the diet and WOW WOW WOW!!!!! My son started sleeping through the night!! His toilet training has picked up so well that now he is on a 2 hr schedule at school - this was an area that has progressed very slowly forhim before the diet. His learning across all of his programs and goals has been picking up at school also. It seems that things are improving for him greatly. But pls find the research, follow the links, and I will give you some titles to read later this week - the beginning of the week is always crazy for me :-) Hope you find what you are looking for! Best wishes, Can anyone tell me in a nutshell why I should try a gluten and/or dairy free diet with my son (age 2 1/2, moderate autism)? He does not appear to have any food allergies and besides for being a picky eater (consistent with his age), he eats well and has no digestive issues. Is the special diet designed to help only those ASD kids with digestive problems or is there reason to believe (research) that shows the special diet can help all ASD kids? If it's the latter, where can I find such research? Thanks, Eileen How low will we go? Check out Messenger’s low PC-to-Phone call rates. Messenger with Voice. Make PC-to-Phone Calls to the US (and 30+ countries) for 2¢/min or less. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 23, 2006 Report Share Posted October 23, 2006 Hi, Eileen -- I have two sons on the Spectrum. We tried the GFCF diet for both. One improved, the other showed no difference. For the one who showed no difference, we didn't continue the diet. Factors to keep in mind for the one it didn't help: he had no major GI issues, did not limit his diet to only bread products and dairy (ate a variety of foods), did not seem to be showing any discomfort after mealtimes, no trouble sleeping. The other son was quite different. He had chronic loose stools, would survive on bread products if we let him, seemed to be in pain (although he's non-verbal and couldn't express that), and screamed and cried for two hours before finally falling asleep. He was grumpy, crabby, and generally unhappy -- opposite of what he was as a baby -- and would often gag and throw up on certain foods. We tried the GFCF diet and noticed HUGE improvements for him in all the above areas. So, three months later, we did a "gluten challenge" -- we added gluten back into his diet. MISTAKE!!! He freaked out! Constant screaming, crying, bad mood, tantrums, inability to sleep -- all that. Then, he came up to me, grabbed my hands, looked me square in the eye and started pressing on his stomach. That's when the experiment ended. He was in pain. So, we told the doc (regular pediatrician) about it. She said we should test him for Celiac Disease, which is a gluten intolerance. The kicker was, we had to keep him on gluten. We used digestive enzymes, which did take the edge off a little, to get him through about two months back on gluten. We did the test, and Bingo -- positive for Celiac Disease. We kept dairy, but had to go lactose free for a while, as many Celiacs have lactose intolerance. But, we have to keep him off gluten forever for him because of the Celiac. So, in our case, it did work, but there was another underlying medical cause. --Suzanne -----Original Message----- From: esullivan.home@... Sent: Sun, 22 Oct 2006 8:44 PM Subject: [ ] gluten free diet Can anyone tell me in a nutshell why I should try a gluten and/or dairy free diet with my son (age 2 1/2, moderate autism)? He does not appear to have any food allergies and besides for being a picky eater (consistent with his age), he eats well and has no digestive issues. Is the special diet designed to help only those ASD kids with digestive problems or is there reason to believe (research) that shows the special diet can help all ASD kids? If it's the latter, where can I find such research? Thanks, Eileen How low will we go? Check out Messenger’s low PC-to-Phone call rates. newaol" target="_blank"> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 24, 2006 Report Share Posted October 24, 2006 >Constant screaming, crying, bad mood, tantrums, inability to sleep -- all that.< Suzanne - Bobby was very similar when we did a gluten challenge! He was lieing on the floor in pain, crying. We won't be giving him gluten ever again! Chris Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 7, 2006 Report Share Posted November 7, 2006 Hi Eileen, My son has been GFCF for about 4 years now. It has greatly helped with his temperament and behaviors. He's calmer and became verbal about 4 weeks after implementing the diet. He is also able to learn now where it was seemingly impossible to teach him anything before. We've moved onto the SCD diet about 2 years ago and still remain gfcf. It's worth it to us for all that he has been able to achieve. The diet I believe has also been a benefactor to his having no cavities...because by the time I was his age 7-(at his last dental appointment) I had quite a few cavities myself! Yours, n In a message dated 10/22/06 7:48:53 PM Eastern Standard Time, esullivan.home@... writes: Can anyone tell me in a nutshell why I should try a gluten and/or dairy free diet with my son (age 2 1/2, moderate autism)? He does not appear to have any food allergies and besides for being a picky eater (consistent with his age), he eats well and has no digestive issues. Is the special diet designed to help only those ASD kids with digestive problems or is there reason to believe (research) that shows the special diet can help all ASD kids? If it's the latter, where can I find such research? Thanks, Eileen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 15, 2007 Report Share Posted September 15, 2007 My son would not have made any of the successes this past year had we not eliminated casien from our lives. Period. He did 9 years of therapy with little improvement; we eliminated the milk and he is almost better after one year. Albeit we have done an intensive home program along with this. But one sip of the 'white stuff' and all of his dyspraxic qualities return so I know that milk is a HUGE part of his troubles. The only way to know if your child is a responder is to ditch the milk and anything with casien in it for 3 weeks and then to have a milk day and really observe your child. We all found out this way and it is the only true way to know for sure whether this is indeed an issue for your child. If it is, then you have discovered a HUGE key to defeating your sons issues. Janice [ ] gluten free diet Have many of you found the gluten free diet to help speech?? I have a 3 1/2 year old son with severe apraxia, sensory issues, and auditory processing difficulties. He is putting some 2-3 word phrases together with a struggle. My pediatrician just completed some bloodwork, and it showed that he had a gluten intolerance. The number was a 42. It was shown as a red flag on the report, but not sure if this is a high intolerance. Hence, he suggested the diet. Only gluten free thought, not casein free. Anyway, we have been at the diet for about 3 weeks. Not sure if we see any difference, and it is difficult Any thoughts would be greatly appreciated. Thanks, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 16, 2007 Report Share Posted October 16, 2007 Does anyone know of any good web sites or places to get gluten free bagels? All of the bagels I have found are small and hard as a rock??? ************************************** See what's new at http://www.aol.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 17, 2007 Report Share Posted October 17, 2007 haven't tried them but glutino makes some. We use a lot of their products and my daughter doesn't complain (much) about their foods. Kris The Knitting Wannabe http://knittingwannabe.typepad.com Sonny & Shear: The I’ve Got Ewe, Babe Yarn Shop http://www.sonnyandshear.com On Oct 16, 2007, at 10:18 PM, jennyjudy@... wrote: > > Does anyone know of any good web sites or places to get gluten free > bagels? > > All of the bagels I have found are small and hard as a rock??? > > ************************************** See what's new at http:// > www.aol.com > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 17, 2007 Report Share Posted October 17, 2007 My daughter loves their cookies. Their cookies was our " bribe " for potty training. I actually tried one (I'm pretty picky) and I thought they tasted just like an oreo. I'm getting ready to try their donuts. Kris The Knitting Wannabe http://knittingwannabe.typepad.com Sonny & Shear: The I’ve Got Ewe, Babe Yarn Shop http://www.sonnyandshear.com On Oct 17, 2007, at 8:29 AM, DJvirtual@... wrote: > > kinnikinnick is a great brand that my son does well with. It is the > only > > brand of gf bagel he can tolerate. They are all hard and you take > one out at a > time and thaw it in the fridge overnight and then cut it up and > toast it... I > usually cut it in bite size pieces for him. If they are still too > hard for > your liking, try English muffins. > > > ************************************** See what's new at http:// > www.aol.com > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 17, 2007 Report Share Posted October 17, 2007 We just reintroduced gluteno pretzela and daughter got hiccups...any thoughts? > > > > > Does anyone know of any good web sites or places to get gluten free > > bagels? > > > > All of the bagels I have found are small and hard as a rock??? > > > > ************************************** See what's new at http:// > > www.aol.com > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 10, 2008 Report Share Posted February 10, 2008 If you doubt the diet is working, go ahead and reintroduce the gluten products back into his diet and I'll bet you'll see a return of things you hadn't attributed to his diet. It's hard to see exactly how the diet is working unlessyou take awesome data before and after, otherwise letting them off for 3 days generally lets you know you were on the right track with the diet. If my son has a large infraction, it's like someone else has taken him over. good luck! CeCelia > > Have many of you found the gluten free diet to help speech?? I have a 3 > 1/2 year old son with severe apraxia, sensory issues, and auditory > processing difficulties. He is putting some 2-3 word phrases together > with a struggle. > > My pediatrician just completed some bloodwork, and it showed that he > had a gluten intolerance. The number was a 42. It was shown as a red > flag on the report, but not sure if this is a high intolerance. Hence, > he suggested the diet. Only gluten free thought, not casein free. > Anyway, we have been at the diet for about 3 weeks. Not sure if we see > any difference, and it is difficult > > Any thoughts would be greatly appreciated. > > Thanks, > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 10, 2008 Report Share Posted February 10, 2008 If you haven't read through this link before starting the GFCF diet, you might want to take a look at it and see if it can help you slowly change his diet. http://gfcf-diet.talkaboutcuringautism.org/gfcf-in-10-weeks.htm There is also a folder called GFCF diet in the link section. You might want to take a look at them and see if you can find some recipes for his favorite foods and other good information to help you get started. /links HTH, Tina > > What can you do if your child does not like most of the gluten free foods, I > feel so bad, I know my son wont starve but he doesn't like the bagels, pizza, > ice cream cones that are gluten free. When they are hungry enough I guess > they will eat. My son does have an appointment with a DAN Dr in our area but > not until June. Is there anyway that a child can be on a semi gluten free > diet and still see results or does it have to be completely gluten free???? That > may sound dumb but I have heard how sometimes later these or some of these > foods can be re introduced. > > > > **************Biggest Grammy Award surprises of all time on AOL Music. > (http://music.aol.com/grammys/pictures/never-won-a-grammy? NCID=aolcmp003000000025 > 48) > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 10, 2008 Report Share Posted February 10, 2008 I'm a GF/CF wimp - little by little we are adding new foods as we find appropriate ones...so we are changing little by little. casein was easiest and this past week he discover grilled cheese and as I work for a better " fake " cheese he got lots of regular cheese and I got LOTS of hyperactivity (and when you can focus - you can work harder at learning to talk...). So I know that the casein removal has been helpful...It takes time to find what works sometimes...hang in. > > What can you do if your child does not like most of the gluten free foods, I > feel so bad, I know my son wont starve but he doesn't like the bagels, pizza, > ice cream cones that are gluten free. When they are hungry enough I guess > they will eat. My son does have an appointment with a DAN Dr in our area but > not until June. Is there anyway that a child can be on a semi gluten free > diet and still see results or does it have to be completely gluten free???? That > may sound dumb but I have heard how sometimes later these or some of these > foods can be re introduced. > > > > **************Biggest Grammy Award surprises of all time on AOL Music. > (http://music.aol.com/grammys/pictures/never-won-a-grammy? NCID=aolcmp003000000025 > 48) > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 10, 2008 Report Share Posted February 10, 2008 Feast w/o yeast and some of the cookbooks may help you. The packaged stuff started new problems for us. Rice and soy in the gluten replacements caused issues for one or the other kid and also aluminum in the packaged stuff may have been part of it. We had hyperactivity on the GF waffles which had aluminum in them. Constipation and crying on the GFCF pizza (rice and soy respectively. > > > > What can you do if your child does not like most of the gluten free > foods, I > > feel so bad, I know my son wont starve but he doesn't like the > bagels, pizza, > > ice cream cones that are gluten free. When they are hungry enough > I guess > > they will eat. My son does have an appointment with a DAN Dr in > our area but > > not until June. Is there anyway that a child can be on a semi > gluten free > > diet and still see results or does it have to be completely gluten > free???? That > > may sound dumb but I have heard how sometimes later these or some > of these > > foods can be re introduced. > > > > > > > > **************Biggest Grammy Award surprises of all time on AOL > Music. > > (http://music.aol.com/grammys/pictures/never-won-a-grammy? > NCID=aolcmp003000000025 > > 48) > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 10, 2008 Report Share Posted February 10, 2008 I hate hearing folks say things like GFCF wimp. Look, we are all doing what we can if we address diet. Compliance issues on the part of the child, the reasons the diet is being tried, and the available support you get vary. We are all just moms, caregivers, etc. doing the best we can. > > > > What can you do if your child does not like most of the gluten free > foods, I > > feel so bad, I know my son wont starve but he doesn't like the > bagels, pizza, > > ice cream cones that are gluten free. When they are hungry enough > I guess > > they will eat. My son does have an appointment with a DAN Dr in > our area but > > not until June. Is there anyway that a child can be on a semi > gluten free > > diet and still see results or does it have to be completely gluten > free???? That > > may sound dumb but I have heard how sometimes later these or some > of these > > foods can be re introduced. > > > > > > > > **************Biggest Grammy Award surprises of all time on AOL > Music. > > (http://music.aol.com/grammys/pictures/never-won-a-grammy? > NCID=aolcmp003000000025 > > 48) > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 10, 2008 Report Share Posted February 10, 2008 I think it depends on the kid. Some kids do well with less, and some with none. I think we are ALL out of balance these days -- too many carbs, too much sugar, etc. And it does take time to adjust to new foods and diets. Personally, I think all the GF foods are gross, although my kids do like some of them. I think if you try to give him more meat, eggs, beans, nuts, fruits, and vegetables, that would go a long way. You can live without all those grains, GF or otherwise. You get plenty of vitamins and fiber from the other foods. in NJ > > What can you do if your child does not like most of the gluten free foods, I > feel so bad, I know my son wont starve but he doesn't like the bagels, pizza, > ice cream cones that are gluten free. When they are hungry enough I guess > they will eat. My son does have an appointment with a DAN Dr in our area but > not until June. Is there anyway that a child can be on a semi gluten free > diet and still see results or does it have to be completely gluten free???? That > may sound dumb but I have heard how sometimes later these or some of these > foods can be re introduced. > > > > **************Biggest Grammy Award surprises of all time on AOL Music. > (http://music.aol.com/grammys/pictures/never-won-a-grammy? NCID=aolcmp003000000025 > 48) > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 11, 2008 Report Share Posted February 11, 2008 Confused -- how do you know the GF waffles have aluminum in them? Surely it doesn't say it on the package! in NJ > > > > > > What can you do if your child does not like most of the gluten > free > > foods, I > > > feel so bad, I know my son wont starve but he doesn't like the > > bagels, pizza, > > > ice cream cones that are gluten free. When they are hungry > enough > > I guess > > > they will eat. My son does have an appointment with a DAN Dr in > > our area but > > > not until June. Is there anyway that a child can be on a semi > > gluten free > > > diet and still see results or does it have to be completely > gluten > > free???? That > > > may sound dumb but I have heard how sometimes later these or > some > > of these > > > foods can be re introduced. > > > > > > > > > > > > **************Biggest Grammy Award surprises of all time on AOL > > Music. > > > (http://music.aol.com/grammys/pictures/never-won-a-grammy? > > NCID=aolcmp003000000025 > > > 48) > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
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