Re: need help finding a neurologist who has expertise with E.E.G.&autism

[Guest guest]

Margie - Sounds like you are in the Cleveland area, but wanted to put

a plug in for a ped. neurologist at Akron Children's. Dr. Margaret

McBride spent a long time explaining my son's EEG to me and answered

all my questions. When I left, it was so late, all the office staff

had left. She really took a long time with me making sure I

understood everything.

And BTW, my son's developmental ped was the one who prescribed the

EEG. If you already have a phys for your child that you like,

perhaps s/he could refer you to neurologist. Chris

--- In , " Margie " <margie.taylor2@...>

wrote:

>

> Hello,

>

> My name is Margie and I have a soon to be 4 year old on the

spectrum...there may be the possibility that she is experiencing

petite mal seizures...does anyone know of a neurologist who

specializes with autism and administering E.E.G's?? Our insurance

covers The Cleveland Clinic not U.H.

>

> Thank you so much for your help!

>

> Sincerely,

> Margie

>

> Margie.taylor2@...

>

[Guest guest]

Our insurance is typically Cleveland Clinic based (Medical Mutal),

however it was accepted without any problems at Akron Childrens.

As for seeing Dr. Demio...I know the group is very pro-Demio, and I'm

not bashing him...but if a child is having seizures and needs an EEG,

she truly needs to see a Neurologist for evaluation,diagnosis, and

testing....perhaps I am wrong, but I didn't think Dr. Demio was board

certified in neurology.

[Guest guest]

Margie,

Dr. Irwin s out of Fairview Hospital (Cleveland Clinic System)

is a neurologist. He had an EEG performed on our son when his was

young to rule out seizures.

Thanks.

Debbie

>

> Hello,

>

> My name is Margie and I have a soon to be 4 year old on the

spectrum...there may be the possibility that she is experiencing

petite mal seizures...does anyone know of a neurologist who

specializes with autism and administering E.E.G's?? Our insurance

covers The Cleveland Clinic not U.H.

>

> Thank you so much for your help!

>

> Sincerely,

> Margie

>

> Margie.taylor2@...

>

[Guest guest]

-

My daughter sees Dr Kotagal at the Cleveland Clinic. He specializes

in Pediatric epilepsy and sleep disorders. He is excellent!! He is

very thorough and listens to my concerns. We have done a VEEG at

the clinic and also numerous EEG's. I have been very happy with

them.

Right now my daughter has been seizure free for 6 months-Thank God.

His phone # is 216-444-9083.

Dianne

-- In , " Margie "

<margie.taylor2@...wrote:

>

> Hello,

>

> My name is Margie and I have a soon to be 4 year old on the

spectrum...there may be the possibility that she is experiencing

petite mal seizures...does anyone know of a neurologist who

specializes with autism and administering E.E.G's?? Our insurance

covers The Cleveland Clinic not U.H.

>

> Thank you so much for your help!

>

> Sincerely,

> Margie

>

> Margie.taylor2@...

>

[Guest guest]

I am so grateful to all who responded to my call for help/input...what a wonderful resource the Autism NE is!!

We will be going to the Cleveland Clinic for the EEG...Dr. Kotagal will be reviewing the results... The Clinic's Center for Autism uses him as well... my best to all and special thoughts to Diane and your child...6-months free from seizure activity,so very happy for you.

BY the way does anyone know how many electrodes are placed on a small child's head? I'm going to write a social story to help prepare my daughter for the procedure and was just wondering...( I could call the EEG/neurology dept.).

Take care all,

Margie

----- Original Message -----

From: bobdifaith

Sent: Wednesday, October 04, 2006 10:11 AM

Subject: [ ] Re: need help finding a neurologist who has expertise with E.E.G. & autism

-My daughter sees Dr Kotagal at the Cleveland Clinic. He specializes in Pediatric epilepsy and sleep disorders. He is excellent!! He is very thorough and listens to my concerns. We have done a VEEG at the clinic and also numerous EEG's. I have been very happy with them. Right now my daughter has been seizure free for 6 months-Thank God. His phone # is 216-444-9083. Dianne-- In , "Margie " <margie.taylor2@...wrote:>> Hello, > > My name is Margie and I have a soon to be 4 year old on the spectrum...there may be the possibility that she is experiencing petite mal seizures...does anyone know of a neurologist who specializes with autism and administering E.E.G's?? Our insurance covers The Cleveland Clinic not U.H. > > Thank you so much for your help!> > Sincerely,> Margie> > Margie.taylor2@...>

[Guest guest]

I don't remember how many electrodes my son had (maybe 8?), BUT

please have the social story include a smelly and cold-to-the-touch

alcohol based cleanser for after the EEG to clean the adhesive

used. That's the one part of the procedure that I was unaware of,

what was missing from our social story, and what freaked my son

out. Chris

>

> I am so grateful to all who responded to my call for

help/input...what a wonderful resource the Autism NE is!!

>

> We will be going to the Cleveland Clinic for the EEG...Dr. Kotagal

will be reviewing the results... The Clinic's Center for Autism uses

him as well... my best to all and special thoughts to Diane and your

child...6-months free from seizure activity,so very happy for you.

>

> BY the way does anyone know how many electrodes are placed on a

small child's head? I'm going to write a social story to help

prepare my daughter for the procedure and was just wondering...( I

could call the EEG/neurology dept.).

>

> Take care all,

> Margie

> ----- Original Message -----

> From: bobdifaith

>

> Sent: Wednesday, October 04, 2006 10:11 AM

> Subject: [ ] Re: need help finding a neurologist who has

expertise with E.E.G. & autism

>

>

> -

>

> My daughter sees Dr Kotagal at the Cleveland Clinic. He

specializes

> in Pediatric epilepsy and sleep disorders. He is excellent!! He

is

> very thorough and listens to my concerns. We have done a VEEG at

> the clinic and also numerous EEG's. I have been very happy with

> them.

>

> Right now my daughter has been seizure free for 6 months-Thank

God.

>

> His phone # is 216-444-9083.

>

> Dianne

>

> -- In , " Margie "

> <margie.taylor2@...:

> >

> > Hello,

> >

> > My name is Margie and I have a soon to be 4 year old on the

> spectrum...there may be the possibility that she is experiencing

> petite mal seizures...does anyone know of a neurologist who

> specializes with autism and administering E.E.G's?? Our

insurance

> covers The Cleveland Clinic not U.H.

> >

> > Thank you so much for your help!

> >

> > Sincerely,

> > Margie

> >

> > Margie.taylor2@

> >

>

[Guest guest]

As I recall they used more than 20 for my daughter. They aren't painful. But she has a lot of hair and it took a couple of weeks for all the adhesive to come out.

-----Original Message----- From: Marotta Sent: Oct 8, 2006 7:28 PM Subject: [ ] Re: need help finding a neurologist who has expertise with E.E.G. & autism

I don't remember how many electrodes my son had (maybe 8?), BUT please have the social story include a smelly and cold-to-the-touch alcohol based cleanser for after the EEG to clean the adhesive used. That's the one part of the procedure that I was unaware of, what was missing from our social story, and what freaked my son out. Chris>> I am so grateful to all who responded to my call for help/input...what a wonderful resource the Autism NE is!!> > We will be going to the Cleveland Clinic for the EEG...Dr. Kotagal will be reviewing the results... The Clinic's Center for Autism uses him as well... my best to all and special thoughts to Diane and your child...6-months free from seizure activity,so very happy for you.> > BY the way does anyone know how many electrodes are placed on a small child's head? I'm going to write a social story to help prepare my daughter for the procedure and was just wondering...( I could call the EEG/neurology dept.).> > Take care all,> Margie> ----- Original Message ----- > From: bobdifaith > > Sent: Wednesday, October 04, 2006 10:11 AM> Subject: [ ] Re: need help finding a neurologist who has expertise with E.E.G. & autism> > > -> > My daughter sees Dr Kotagal at the Cleveland Clinic. He specializes > in Pediatric epilepsy and sleep disorders. He is excellent!! He is > very thorough and listens to my concerns. We have done a VEEG at > the clinic and also numerous EEG's. I have been very happy with > them. > > Right now my daughter has been seizure free for 6 months-Thank God. > > His phone # is 216-444-9083. > > Dianne> > -- In , "Margie " > <margie.taylor2@...:> >> > Hello, > > > > My name is Margie and I have a soon to be 4 year old on the > spectrum...there may be the possibility that she is experiencing > petite mal seizures...does anyone know of a neurologist who > specializes with autism and administering E.E.G's?? Our insurance > covers The Cleveland Clinic not U.H. > > > > Thank you so much for your help!> > > > Sincerely,> > Margie> > > > Margie.taylor2@> >>

[Guest guest]

Thank you for the reply...I called the EEG this a.m. and they informed me that they'll be using 24 electrodes...their summation of the procedure was that it would be cold,smelly and a lot of rubbing ...thanks again.

Have a good day!

Margie

----- Original Message -----

From: TM McKenna

Sent: Monday, October 09, 2006 7:52 AM

Subject: Re: [ ] Re: need help finding a neurologist who has expertise with E.E.G. & autism

As I recall they used more than 20 for my daughter. They aren't painful. But she has a lot of hair and it took a couple of weeks for all the adhesive to come out.

-----Original Message----- From: Marotta Sent: Oct 8, 2006 7:28 PM Subject: [ ] Re: need help finding a neurologist who has expertise with E.E.G. & autism

I don't remember how many electrodes my son had (maybe 8?), BUT please have the social story include a smelly and cold-to-the-touch alcohol based cleanser for after the EEG to clean the adhesive used. That's the one part of the procedure that I was unaware of, what was missing from our social story, and what freaked my son out. Chris>> I am so grateful to all who responded to my call for help/input...what a wonderful resource the Autism NE is!!> > We will be going to the Cleveland Clinic for the EEG...Dr. Kotagal will be reviewing the results... The Clinic's Center for Autism uses him as well... my best to all and special thoughts to Diane and your child...6-months free from seizure activity,so very happy for you.> > BY the way does anyone know how many electrodes are placed on a small child's head? I'm going to write a social story to help prepare my daughter for the procedure and was just wondering...( I could call the EEG/neurology dept.).> > Take care all,> Margie> ----- Original Message ----- > From: bobdifaith > > Sent: Wednesday, October 04, 2006 10:11 AM> Subject: [ ] Re: need help finding a neurologist who has expertise with E.E.G. & autism> > > -> > My daughter sees Dr Kotagal at the Cleveland Clinic. He specializes > in Pediatric epilepsy and sleep disorders. He is excellent!! He is > very thorough and listens to my concerns. We have done a VEEG at > the clinic and also numerous EEG's. I have been very happy with > them. > > Right now my daughter has been seizure free for 6 months-Thank God. > > His phone # is 216-444-9083. > > Dianne> > -- In , "Margie " > <margie.taylor2@...:> >> > Hello, > > > > My name is Margie and I have a soon to be 4 year old on the > spectrum...there may be the possibility that she is experiencing > petite mal seizures...does anyone know of a neurologist who > specializes with autism and administering E.E.G's?? Our insurance > covers The Cleveland Clinic not U.H. > > > > Thank you so much for your help!> > > > Sincerely,> > Margie> > > > Margie.taylor2@> >>

[Guest guest]

Thanks Chris!

I know this procedure will be difficult for my daughter as she has major sensory issues especially with her hair/head but your info./support has helped! Have a great day!

Margie

----- Original Message -----

From: Marotta

Sent: Sunday, October 08, 2006 7:28 PM

Subject: [ ] Re: need help finding a neurologist who has expertise with E.E.G. & autism

I don't remember how many electrodes my son had (maybe 8?), BUT please have the social story include a smelly and cold-to-the-touch alcohol based cleanser for after the EEG to clean the adhesive used. That's the one part of the procedure that I was unaware of, what was missing from our social story, and what freaked my son out. Chris>> I am so grateful to all who responded to my call for help/input...what a wonderful resource the Autism NE is!!> > We will be going to the Cleveland Clinic for the EEG...Dr. Kotagal will be reviewing the results... The Clinic's Center for Autism uses him as well... my best to all and special thoughts to Diane and your child...6-months free from seizure activity,so very happy for you.> > BY the way does anyone know how many electrodes are placed on a small child's head? I'm going to write a social story to help prepare my daughter for the procedure and was just wondering...( I could call the EEG/neurology dept.).> > Take care all,> Margie> ----- Original Message ----- > From: bobdifaith > > Sent: Wednesday, October 04, 2006 10:11 AM> Subject: [ ] Re: need help finding a neurologist who has expertise with E.E.G. & autism> > > -> > My daughter sees Dr Kotagal at the Cleveland Clinic. He specializes > in Pediatric epilepsy and sleep disorders. He is excellent!! He is > very thorough and listens to my concerns. We have done a VEEG at > the clinic and also numerous EEG's. I have been very happy with > them. > > Right now my daughter has been seizure free for 6 months-Thank God. > > His phone # is 216-444-9083. > > Dianne> > -- In , "Margie " > <margie.taylor2@...:> >> > Hello, > > > > My name is Margie and I have a soon to be 4 year old on the > spectrum...there may be the possibility that she is experiencing > petite mal seizures...does anyone know of a neurologist who > specializes with autism and administering E.E.G's?? Our insurance > covers The Cleveland Clinic not U.H. > > > > Thank you so much for your help!> > > > Sincerely,> > Margie> > > > Margie.taylor2@> >>

[Guest guest]

Margie, You could also perhaps try to play around with your daughter's head a lot/gradually before the precedure to desensitize her to it a bit. I have similar issues with my son's hair being washed, so I am trying to get his hair wet a LOT while we are bathing, even though I am not washing his hair. It gets easier each time. I often wash my hair with him so that he can see it's OK. The doll-thingy they did for n's son is a GREAT idea, too. Have your child paly with a doll and pretend to do the procedure with the doll and with your child. Thank God we did not have to go through this EEG thing yet. I dread it. Because of the sleep deprivation mainly. I hope I will never have to do this with Evan. But I will be praying for you, too, so that things go well during the preocedure and with the reading. Take care, Margie

<margie.taylor2@...> wrote: Thanks Chris! I know this procedure will be difficult for my daughter as she has major sensory issues especially with her hair/head but your info./support has helped! Have a great day! Margie ----- Original Message ----- From: Marotta Sent: Sunday, October 08, 2006 7:28 PM Subject: [ ] Re: need help finding a neurologist who has expertise with E.E.G. & autism I don't remember how many electrodes my son had (maybe 8?), BUT please have the social story include a smelly and cold-to-the-touch alcohol based cleanser for after the EEG to clean the adhesive used. That's the one part of the procedure that I was unaware of, what was missing from our social story, and what freaked my son out. Chris>> I am so grateful to all who responded to my call for help/input...what a wonderful resource the Autism NE is!!> > We will be going to the Cleveland Clinic for the EEG...Dr. Kotagal will be reviewing the results... The Clinic's Center for Autism uses him as well... my best to all and special thoughts to Diane and your child...6-months free from seizure activity,so very happy for you.> > BY the way does anyone know how many electrodes are placed on a small child's head? I'm going to write a social story to help prepare my daughter for the procedure and was just wondering...( I could call the EEG/neurology dept.).> > Take care all,> Margie> ----- Original Message ----- > From: bobdifaith > > Sent: Wednesday, October 04, 2006 10:11 AM> Subject: [ ] Re: need help finding a neurologist who has expertise with E.E.G. & autism> > > -> > My daughter sees Dr Kotagal at the Cleveland Clinic. He specializes > in Pediatric epilepsy and sleep disorders. He is excellent!! He is > very thorough and listens to my concerns. We have done a VEEG at > the clinic and also numerous EEG's. I have been very happy with > them. > > Right now my daughter has been seizure free for 6 months-Thank God. > > His phone # is 216-444-9083. > > Dianne> > -- In , "Margie " > <margie.taylor2@...:> >> > Hello, > > > > My name is

Margie and I have a soon to be 4 year old on the > spectrum...there may be the possibility that she is experiencing > petite mal seizures...does anyone know of a neurologist who > specializes with autism and administering E.E.G's?? Our insurance > covers The Cleveland Clinic not U.H. > > > > Thank you so much for your help!> > > > Sincerely,> > Margie> > > > Margie.taylor2@> >>

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[Guest guest]

What we did for the sleep deprived part was my husband stayed up

late, and then put our son to sleep. I woke up early. It wasn't bad

for either my husband or me, and Bobby fell asleep right away at the

hospital. Chris

> >

> > I am so grateful to all who responded to my call for

> help/input...what a wonderful resource the Autism NE is!!

> >

> > We will be going to the Cleveland Clinic for the EEG...Dr.

Kotagal

> will be reviewing the results... The Clinic's Center for Autism

uses

> him as well... my best to all and special thoughts to Diane and

your

> child...6-months free from seizure activity,so very happy for you.

> >

> > BY the way does anyone know how many electrodes are placed on a

> small child's head? I'm going to write a social story to help

> prepare my daughter for the procedure and was just wondering...( I

> could call the EEG/neurology dept.).

> >

> > Take care all,

> > Margie

> > ----- Original Message -----

> > From: bobdifaith

> >

> > Sent: Wednesday, October 04, 2006 10:11 AM

> > Subject: [ ] Re: need help finding a neurologist who has

> expertise with E.E.G. & autism

> >

> >

> > -

> >

> > My daughter sees Dr Kotagal at the Cleveland Clinic. He

> specializes

> > in Pediatric epilepsy and sleep disorders. He is excellent!! He

> is

> > very thorough and listens to my concerns. We have done a VEEG at

> > the clinic and also numerous EEG's. I have been very happy with

> > them.

> >

> > Right now my daughter has been seizure free for 6 months-Thank

> God.

> >

> > His phone # is 216-444-9083.

> >

> > Dianne

> >

> > -- In , " Margie "

> > <margie.taylor2@:

> > >

> > > Hello,

> > >

> > > My name is Margie and I have a soon to be 4 year old on the

> > spectrum...there may be the possibility that she is experiencing

> > petite mal seizures...does anyone know of a neurologist who

> > specializes with autism and administering E.E.G's?? Our

> insurance

> > covers The Cleveland Clinic not U.H.

> > >

> > > Thank you so much for your help!

> > >

> > > Sincerely,

> > > Margie

> > >

> > > Margie.taylor2@

> > >

> >

>

>

>

>

>

>

>

>

> ---------------------------------

> Get your email and more, right on the new .com

>

[Guest guest]

Thank you Chris...it sounds like our plan. Have a good evening.

Margie

----- Original Message -----

From: Marotta

Sent: Monday, October 09, 2006 2:39 PM

Subject: [ ] Re: need help finding a neurologist who has expertise with E.E.G. & autism

What we did for the sleep deprived part was my husband stayed up late, and then put our son to sleep. I woke up early. It wasn't bad for either my husband or me, and Bobby fell asleep right away at the hospital. Chris> >> > I am so grateful to all who responded to my call for > help/input...what a wonderful resource the Autism NE is!!> > > > We will be going to the Cleveland Clinic for the EEG...Dr. Kotagal > will be reviewing the results... The Clinic's Center for Autism uses > him as well... my best to all and special thoughts to Diane and your > child...6-months free from seizure activity,so very happy for you.> > > > BY the way does anyone know how many electrodes are placed on a > small child's head? I'm going to write a social story to help > prepare my daughter for the procedure and was just wondering...( I > could call the EEG/neurology dept.).> > > > Take care all,> > Margie> > ----- Original Message ----- > > From: bobdifaith > > > > Sent: Wednesday, October 04, 2006 10:11 AM> > Subject: [ ] Re: need help finding a neurologist who has > expertise with E.E.G. & autism> > > > > > -> > > > My daughter sees Dr Kotagal at the Cleveland Clinic. He > specializes > > in Pediatric epilepsy and sleep disorders. He is excellent!! He > is > > very thorough and listens to my concerns. We have done a VEEG at > > the clinic and also numerous EEG's. I have been very happy with > > them. > > > > Right now my daughter has been seizure free for 6 months-Thank > God. > > > > His phone # is 216-444-9083. > > > > Dianne> > > > -- In , "Margie " > > <margie.taylor2@:> > >> > > Hello, > > > > > > My name is Margie and I have a soon to be 4 year old on the > > spectrum...there may be the possibility that she is experiencing > > petite mal seizures...does anyone know of a neurologist who > > specializes with autism and administering E.E.G's?? Our > insurance > > covers The Cleveland Clinic not U.H. > > > > > > Thank you so much for your help!> > > > > > Sincerely,> > > Margie> > > > > > Margie.taylor2@> > >> >> > > > > > > > > ---------------------------------> Get your email and more, right on the new .com>