Guest guest Posted April 22, 2005 Report Share Posted April 22, 2005 is this an invitation extended to everyone?? if it is then just let us know what you all decide and maybe us Canadian Bums can work our way down south too............... Tonikka, Lynden and Hunter -----Original Message-----From: blepharophimosis [mailto:blepharophimosis ]On Behalf Of Andy Bowles & Shireen MohandesSent: April 21, 2005 4:16 PMblepharophimosis Subject: RE: blepharophimosis Meeting Hi Just thought I would mention that if you go into the the Group, the section near the photos, and click on "database", then look for the database of members, click on "state", you will see the list sorted by state. This may help you with getting people together and finding a central location to meet up. About 7 years ago, 8 families met up in St Louis (this was before the days of the group). Two of the families were represented by three generations. It was a great weekend. St Louis turned out to be easy to get to, flights were inexpensive in November, and a few of us stayed in an inexpensive hotel, one person sorted out a good room rate for us. Shireen From: blepharophimosis [mailto:blepharophimosis ] On Behalf Of BallSent: 21 April 2005 20:28blepharophimosis Subject: Re: blepharophimosis Meeting I think that would be a great idea I know I cried when i found out that other people have my same condtions and I think it would be a great idea for the kids to see other people too lets set it upCarla Howell <carlahwll@...> wrote: I would love to have a meeting.Can we all plan something? <maryelisabethball@...> wrote: Hey i was wondering if there are any families who would like to arrange a meeting in a central location I know i would enjoy meeting people . Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 22, 2005 Report Share Posted April 22, 2005 Yeah, I think it would b great for kids to see eachother .. etc: or even the parents.. to see one another... Anyone In the Las Vegas Nevada area.. email me ~ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 22, 2005 Report Share Posted April 22, 2005 Dear all, Meeting the group would be very nice but unfortunately Holland is a couple of bridges too far from the USA. So if you all meet please use your digi-camera and we'll enjoy the meeting that way. regards, Dolph RE: blepharophimosis Meeting is this an invitation extended to everyone?? if it is then just let us know what you all decide and maybe us Canadian Bums can work our way down south too............... Tonikka, Lynden and Hunter -----Original Message-----From: blepharophimosis [mailto:blepharophimosis ]On Behalf Of Andy Bowles & Shireen MohandesSent: April 21, 2005 4:16 PMblepharophimosis Subject: RE: blepharophimosis Meeting Hi Just thought I would mention that if you go into the the Group, the section near the photos, and click on "database", then look for the database of members, click on "state", you will see the list sorted by state. This may help you with getting people together and finding a central location to meet up. About 7 years ago, 8 families met up in St Louis (this was before the days of the group). Two of the families were represented by three generations. It was a great weekend. St Louis turned out to be easy to get to, flights were inexpensive in November, and a few of us stayed in an inexpensive hotel, one person sorted out a good room rate for us. Shireen From: blepharophimosis [mailto:blepharophimosis ] On Behalf Of BallSent: 21 April 2005 20:28blepharophimosis Subject: Re: blepharophimosis Meeting I think that would be a great idea I know I cried when i found out that other people have my same condtions and I think it would be a great idea for the kids to see other people too lets set it upCarla Howell <carlahwll@...> wrote: I would love to have a meeting.Can we all plan something? <maryelisabethball@...> wrote: Hey i was wondering if there are any families who would like to arrange a meeting in a central location I know i would enjoy meeting people . Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 3, 2006 Report Share Posted October 3, 2006 I would like to go to the meeting tomorrow but I can never figure out who to contact so that I can bring my children. Is there a number that I can call? I was at one meeting a few months ago, I happened to have someone who could watch them on that night ... that doesn't happen often. Thanks, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 3, 2006 Report Share Posted October 3, 2006 You can also call Rory and leave a message on his voice mail: 216.556.4937 Please bring your children to the meeting even if you don't receive a reply from Rory. Yours, n In a message dated 10/3/06 2:33:59 PM Eastern Daylight Time, jarkat2002@... writes: I would like to go to the meeting tomorrow but I can never figure out who to contact so that I can bring my children. Is there a number that I can call? I was at one meeting a few months ago, I happened to have someone who could watch them on that night ... that doesn't happen often. Thanks, Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.