Attn: Sallie Re: post op appt; look see necessary?

[Guest guest]

> Candy, How old is your daughter?>

> ________________________________________________________________

She is 9 was diagnosed at age 7. She is also an extremely active

girl -- soccer, cheerleading, softball, skating, swimming, etc.

This has not really slowed her down. After 2 surgeries she is ready

for this to be over. She is scheduled for another surgery on April

2 to remove her eardrum (only has 20% of an eardrum due to a post op

perforation), build a new one, and possibly put in a fake bone to

replace her malleous bone. The good thing about the large

perforation in her eardrum is that they have been able to monitor

whether the ctoma has returned. She has never shown any symptoms --

no infections, pain, drainage, hearing loss so it has been difficult

to monitor her. Thankfully her hearing is still very good in that

ear -- only a 20 decibel loss.

Hope this helps.

Candy

[Guest guest]

Hi you may not of heard of me but im new to this site (c-toma). but this is the same thing that has happend to me. i have aprox. 10% hearing in my left ear. (thats the ear that the c-toma started) I got diganosed when i was about 6-10 and i am now 17, i have had 5-6 operations and noe i have nothing in my ear so i get sick really easy and i have to be more careful of that than all of my other friends, because of me equillibrium. i dont know if this will give you a heads up for in the future. nicknkate20705 <candy.fosta@...> wrote:

> Candy, How old is your daughter?> > ________________________________________________________________She is 9 was diagnosed at age 7. She is also an extremely active girl -- soccer, cheerleading, softball, skating, swimming, etc. This has not really slowed her down. After 2 surgeries she is ready for this to be over. She is scheduled for another surgery on April 2 to remove her eardrum (only has 20% of an eardrum due to a post op perforation), build a new one, and possibly put in a fake bone to replace her malleous bone. The good thing about the large perforation in her eardrum is that they have been able to monitor whether the ctoma has returned. She has never shown any symptoms -- no infections,

pain, drainage, hearing loss so it has been difficult to monitor her. Thankfully her hearing is still very good in that ear -- only a 20 decibel loss.Hope this helps.Candy