Guest guest Posted July 22, 2001 Report Share Posted July 22, 2001 Well, I must tell you that I DO NOT believe in letting things run there course. I believe there are answers. This whole thing for me has strenghtened my belief that there is a God and He has a plan for me. It has also shown me that He is not the author to dis-ease. I have had lots of prayer. I give the Glory to God for the good results I have had. I actually weigh over 200 lbs now. My doctors are not worried about malnutrition. There are ALOT of options, at least in the US. I have had good results with few problems. I believe that God has lead me to the doctors and surgeons I have had. Let me give you a tip. Get some bricks or can of cement and elevate the head of your bed about 6 inches. Then you can lay flat and be much more comfortable and I believe the choking will be less. Also find some way to get water even if its sucking on ice. Don't get too dehydrated. That could cause more problems then the Achalashia I can tell you from experience that even though the docs can not tell you the cause of this disease, they have some effective treatments. In the mean time I will be praying for you. JC --- Ailigin <eldertree@...> wrote: > Oh they made an appoint with a gastro guy in town > back > in Feb when I was just diagnosed. Its coming up soon > My first consultation is on the 31st and then I am > scheduled for tests in mid aug. This is canada so > waiting is always a relative thing. My symtoms have > gotten worse since my waiting started. Alot worse > and > rapidly. I was about 189 pounds in late march now I > am > 153. I havent dared to drink water, in several > months. > I find if I dont eat I have less discomfort. I sleep > on 6 pillows and I still choke. but even so THe > hardest thing I am going through is being trapped in > my body with a disease and my own inability to > relate > to myself as a person with a disease. Some times I > really think what I aught to be doing is letting > this > disease run its course and if I die of malnutrition > or > dehydration then thats what is supposed to happen > either that Or My mind better get my bodies defences > in gear and do something about this. If cancer can > be > cured by the mind I dont see why this couldnt. > I hope this makes sence. > Aili > --- JC <jc_elder@...> wrote: > > Ailigin, > > I must tell you that I HATE doctors. I have never > > liked them, NEVER, > > but, I have one piece of advice for you. Don's > wait > > to see a > > doctor. The longer you wait the less they can do > to > > help you. > > Because my doctor would not refer me to a Gastro > in > > the beginning > > (22yrs ago) I only had one option when I did see > the > > doc and that was > > surgery. There are all kinds of new options and > > procedures to help > > you. If you continue to throw up alot, that could > > lead to many many > > other problems. Take it from someone who waited > to > > long, talk to > > your doctor! If you need help with referals in > your > > area let me > > know. > > > > JC > > > > > ===== > Beannachd Mhath Duibh > > Ailigin Chaimbeul > > http://eldertree.ca > http://gaelicwitch.ca > > __________________________________________________ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 22, 2001 Report Share Posted July 22, 2001 I owe you an apology. Im afraid I let the frustration about having this override anything I possess in the way of good manners. You offered care and I should have just said thank you. Aili --- " J.C. " <jc_elder@...> wrote: > Well, I must tell you that I DO NOT believe in > letting > things run there course. I believe there are > answers. > This whole thing for me has strenghtened my belief > that there is a God and He has a plan for me. It > has > also shown me that He is not the author to dis-ease. > > I have had lots of prayer. I give the Glory to God > for > the good results I have had. I actually weigh over > 200 lbs now. My doctors are not worried about > malnutrition. There are ALOT of options, at least > in > the US. I have had good results with few problems. > I > believe that God has lead me to the doctors and > surgeons I have had. > > Let me give you a tip. Get some bricks or can of > cement and elevate the head of your bed about 6 > inches. Then you can lay flat and be much more > comfortable and I believe the choking will be less. > Also find some way to get water even if its sucking > on > ice. Don't get too dehydrated. That could cause > more > problems then the Achalashia I can tell you from > experience that even though the docs can not tell > you > the cause of this disease, they have some effective > treatments. > > In the mean time I will be praying for you. > > JC > --- Ailigin <eldertree@...> wrote: > > Oh they made an appoint with a gastro guy in town > > back > > in Feb when I was just diagnosed. Its coming up > soon > > My first consultation is on the 31st and then I am > > scheduled for tests in mid aug. This is canada so > > waiting is always a relative thing. My symtoms > have > > gotten worse since my waiting started. Alot worse > > and > > rapidly. I was about 189 pounds in late march now > I > > am > > 153. I havent dared to drink water, in several > > months. > > I find if I dont eat I have less discomfort. I > sleep > > on 6 pillows and I still choke. but even so THe > > hardest thing I am going through is being trapped > in > > my body with a disease and my own inability to > > relate > > to myself as a person with a disease. Some times I > > really think what I aught to be doing is letting > > this > > disease run its course and if I die of > malnutrition > > or > > dehydration then thats what is supposed to happen > > either that Or My mind better get my bodies > defences > > in gear and do something about this. If cancer can > > be > > cured by the mind I dont see why this couldnt. > > I hope this makes sence. > > Aili > > --- JC <jc_elder@...> wrote: > > > Ailigin, > > > I must tell you that I HATE doctors. I have > never > > > liked them, NEVER, > > > but, I have one piece of advice for you. Don's > > wait > > > to see a > > > doctor. The longer you wait the less they can > do > > to > > > help you. > > > Because my doctor would not refer me to a Gastro > > in > > > the beginning > > > (22yrs ago) I only had one option when I did see > > the > > > doc and that was > > > surgery. There are all kinds of new options and > > > procedures to help > > > you. If you continue to throw up alot, that > could > > > lead to many many > > > other problems. Take it from someone who waited > > to > > > long, talk to > > > your doctor! If you need help with referals in > > your > > > area let me > > > know. > > > > > > JC > > > > > > > > > ===== > > Beannachd Mhath Duibh > > > > Ailigin Chaimbeul > > > > http://eldertree.ca > > http://gaelicwitch.ca > > > > __________________________________________________ > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 28, 2001 Report Share Posted July 28, 2001 I understand your situation and the need to vent sometimes is so over powering that often we don't realize we "ranted and raved" until the deed is done. I'm also not going to say you don't need to apologize but I believe that this group understands where you're coming from. Maybe this is the place to speak what you feel and the frustrations you're attempting to hurdle over. Rest assured many, if not all of us, know how you feel. Just keep telling yourself to keep your chin up (shoot I do that sometimes just to eat easier *smile*) and know there is a place for you to come to. . Re: Re: Don't Wait I owe you an apology. Im afraid I let the frustrationabout having this override anything I possess in theway of good manners. You offered care and I shouldhave just said thank you. Aili--- "J.C." <jc_elder@...> wrote:> Well, I must tell you that I DO NOT believe in> letting> things run there course. I believe there are> answers.> This whole thing for me has strenghtened my belief> that there is a God and He has a plan for me. It> has> also shown me that He is not the author to dis-ease.> > I have had lots of prayer. I give the Glory to God> for> the good results I have had. I actually weigh over> 200 lbs now. My doctors are not worried about> malnutrition. There are ALOT of options, at least> in> the US. I have had good results with few problems. > I> believe that God has lead me to the doctors and> surgeons I have had. > > Let me give you a tip. Get some bricks or can of> cement and elevate the head of your bed about 6> inches. Then you can lay flat and be much more> comfortable and I believe the choking will be less. > Also find some way to get water even if its sucking> on> ice. Don't get too dehydrated. That could cause> more> problems then the Achalashia I can tell you from> experience that even though the docs can not tell> you> the cause of this disease, they have some effective> treatments.> > In the mean time I will be praying for you.> > JC> --- Ailigin <eldertree@...> wrote:> > Oh they made an appoint with a gastro guy in town> > back> > in Feb when I was just diagnosed. Its coming up> soon> > My first consultation is on the 31st and then I am> > scheduled for tests in mid aug. This is canada so> > waiting is always a relative thing. My symtoms> have> > gotten worse since my waiting started. Alot worse> > and> > rapidly. I was about 189 pounds in late march now> I> > am> > 153. I havent dared to drink water, in several> > months.> > I find if I dont eat I have less discomfort. I> sleep> > on 6 pillows and I still choke. but even so THe> > hardest thing I am going through is being trapped> in> > my body with a disease and my own inability to> > relate> > to myself as a person with a disease. Some times I> > really think what I aught to be doing is letting> > this> > disease run its course and if I die of> malnutrition> > or> > dehydration then thats what is supposed to happen> > either that Or My mind better get my bodies> defences> > in gear and do something about this. If cancer can> > be> > cured by the mind I dont see why this couldnt.> > I hope this makes sence.> > Aili> > --- JC <jc_elder@...> wrote:> > > Ailigin,> > > I must tell you that I HATE doctors. I have> never> > > liked them, NEVER, > > > but, I have one piece of advice for you. Don's> > wait> > > to see a > > > doctor. The longer you wait the less they can> do> > to> > > help you. > > > Because my doctor would not refer me to a Gastro> > in> > > the beginning > > > (22yrs ago) I only had one option when I did see> > the> > > doc and that was > > > surgery. There are all kinds of new options and> > > procedures to help > > > you. If you continue to throw up alot, that> could> > > lead to many many > > > other problems. Take it from someone who waited> > to> > > long, talk to > > > your doctor! If you need help with referals in> > your> > > area let me > > > know. > > > > > > JC> > > > > > > > > =====> > Beannachd Mhath Duibh> > > > Ailigin Chaimbeul> > > > http://eldertree.ca> > http://gaelicwitch.ca> > > > __________________________________________________> > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 26, 2009 Report Share Posted June 26, 2009 After observing and cleaning out for some time. Decided to operate. Cholesteatoma had grown to surround facial nerve, erode hearing and mastoid bones. Cholesteatoma was also infected. Quote Link to comment Share on other sites More sharing options...
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