Guest guest Posted February 27, 2010 Report Share Posted February 27, 2010 Hi, everyone. I wonder if there is someone out there who can throw some light on balance. I've had 4 operations for cholesteatoma, latest one in October last year. Since my first operation on the right ear 8 years ago I have been left with an ongoing balance problem. I was sent for physiotherapy and acupuncture, MRI to see if it had something to do with the brain stem. Went back to see consultant who had me stand and walk on the spot with eyes closed to see what happened. I fell backwards and to the left. Told that it was nothing he had done as I hadn't fell to the right. MRI result said nothing abnormal and to try excercises. This was all 8 years ago. I have repeatedly said to consultant about balance and am made to feel I am imagining it or being told it will settle down, surely after 8 years it would be settled by now???? Any thoughts or advice on what to do or to find out what is actually the matter would be greatly appreciated as surgeon/consultant takes no responsibilty for it. Thank you, hope someone can throw some light on this as I am completely baffled having believed that it was a consequence of the surgeries and disease involved. Again, thanks. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 1, 2010 Report Share Posted March 1, 2010 Just wanted to update how I got on with consultant today. Spoke to him about my balance issues that I have had for the last 8 years since my first surgery on my right ear. Done a couple of head excercises and said it had nothing to do with my ears. Tried to stress its not dizziness as in things are spinning, its me on my feet, eyes can be unfocused and have difficulty tracking something I'm watching. I also have a lot of headaches and loud noises are very sensitive on ears......so end result he thinks it could be migraine based????? For 8 years???? Wants to put me on beta blockers and go see a neurologist. He also hays he obviously hasn't been asking me the right questions all these years (take it to establish what is wrong and to eliminate other things that it may not be) Anyway it looks to be an ongoing process. Will keep you posted as the saga continues...... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 1, 2010 Report Share Posted March 1, 2010 The main explanation I have been given is that the cholesteatoma was wrapped around my facial nerve and that some hearing bones were affected, and it was the surgeries that caused my balance issues. Quote Link to comment Share on other sites More sharing options...
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