Confusing Prognosis.......Help!!!

December 15, 2003

First off I have just caught up on all the posts & I want to wish

everyone who has had or are scheduled for surgery a speedy recovery!!

I went to the surgeon last week & was informed of a confusing

prognosis & was wondering if anyone has any thoughts or ideas.

I have had 20 plus surgeries for c-toma & reconstructions over the

past 30 years.I have repeated recurrances of c-toma in both ears. My

last surgery was in October of this year. Since then I have had

extreme dizziness,constant foul drainage,{ now in both ears },alot

of fatigue, & my eyesight has started to have bouts of bluriness. My

surgeon again suctioned the left ear { most recent surgery }, the

right ear was to raw & inflamed so he spared me the pain of

suctioning it.

After the treatment he sat down & explained to me what to expect

from here on out. He said I had no eustachian tubes on either side.

Both eardrums are totally retracted.I was told that because of the

repeated surgeries & lots of scar tissue that there was absolutley

no room to have new tubes inserted. This presents the problem of no

control of pressure & drainage of both ears. So there is no way to

pop my ears either. W/ all this my chances of the c-toma returning

are really great & expected. I was told I could expect all my

symptoms to just be w/ me from here on out. He said he could take my

money & do minor surgeries to relieve the pain, & etc. but he would

just be putting me thru something that would not benefit me

whatsoever & he refuses to do that. He said I could expect alot more

dizziness & these feelings of spaciness as things progressed. The

only surgery he will do on me is for any more recurrances of the c-

toma. Outside of that we just manage it as best we can.

I am still on the Cipro drops, now in both ears. He also gave me

nasal spray to help the sinuses because of the drainage factor. He

said this kind was not addicting.

I would like to ask if anybody has any knowledge of all this or any

ideas. Right now I am just really confused. I have been thru so much

for so long w/ my ears that I am starting to get a tad depressed.

Its not the end of the world I know. My hearing is way down again

but I have no way of knowing if its because of all the backup of

drainage & infection or if the bones are starting to erode AGAIN.

Thanks for listening & any info would be so much appreciated.

I wish you all a Safe & Happy Holiday Season!!

kimi

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