Guest guest Posted February 10, 2010 Report Share Posted February 10, 2010 Hi Did Chloe have canal wall down surgery? I've read your posts because they are always so informative & unfortunately for you, you have become an expert. But I can't remember what type of surgeries Chloe has had. Joe's (6yo) ctoma grew back within 6 months & it seems to be worse. I'm seeing a new surgeon tomorrow who wants to try canal wall up again, but I'm thinking that it will just regrow quickly again. I spoke to a highly qualified surgeon(Prof) here & he feels the same & suggests the only option is canal wall down. He has to be able to swim though ThanksDonna From: s <thequeen.christine@...>cholesteatoma Sent: Wed, 10 February, 2010 11:53:55 PMSubject: Re: Re: Its been 9 months since my surgery... Have some questions? I have been told children have faster ctoma growth, but chloe's hasgrown back several times in the six months between surgery, and oncewhen she had a terrible infection, it grew back five weeks aftersurgery. That was extremely uncommon, though, and the whole team cameout looking shocked. I wouldn't panic, but I would pursue it. Do youhave a plan for a second look, or at least a CT?On 2/8/10, Xa <soderstroms> wrote:> REgarding ear drum hole: I had 2 surgeries on right ear for ctoma. After the> 2nd, the ear drum graft just wouldn't stay because of the negative pressure> in the ear, I didn't have ctoma reoccurring. so my surgeon went back in and> gave me a cartilage ear drum because that wouldn't pop a hole. So it doesn't> HAVE to mean it's ctoma again. But it should definitely be checked out.>> The pain/ache at the mastoid bone, i think is normal post op. I've noticed> different pains after each surgery (ive had 5), but I think it's just the> body healing. after my first surgery, eating hot foods gave me a shooting> pain from my mouth into my ear. After awhile that went away. After my 3rd> and 4th surgeries, wearing headphones hurt my head (mastoid areas), that> went away.>> So, it'll probably just take some time before the pain subsides.>>>> >>>> Â>> >I had a Tympanoplasty and Mastoidectomy about 9 months ago... My>> > cholesteatoma wasnt in just one place, My ENT found it spread all over>> > the place, he said he has never seen it like that before... Sometimes I>> > get a dull ache where the mastiod is and around that area... It doesnt>> > so much hurt but just gets annoying from time to time... Does this seem>> > normal? I go back to the ENT this week, I know when I went back in sept,>> > he seen a small hole in my newly repaired ear drum... I am just worried>> > that the Cholesteatoma is growing back, he said to expect it to cause of>> > the places they found it in, but would it be this soon?>> >>> >>>>>>>> ------------ --------- --------- ------>> Quote Link to comment Share on other sites More sharing options...
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