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New but old to Cholesteatoma

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Although I had an MRI done in 2005 that diagnosed me with this condition I was

Never told I had it; or about it's severity. I initially went into the office

for diziness that I had had for 9 years. I was given a bunch of pills for

possible 'seizers' even after the MRI.

I no longer have the same insurance; I haven't had insurance for 3 years and

Just read my records and did my own investigation on Cholesteatoma and realized

what it is...

I wish there was a way to figure out Why I wasn't treated becuase I definetly

can't afford surgery now.

Just wanting to share my story and read others with stories!!

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