Re: Re: SB49 - campaign contributions

[Guest guest]

In a message dated 7/31/2006 8:43:35 A.M. Eastern Standard Time, marottafamily@... writes:

Roxanne - Is the workbook you are going to order Tony Atwood's cognitive behavior therapy books, one on Anxiety and the other on Anger? If so, we bought them. I started one last year, but thought it was just a little abstract for my son and postponed using it. I think he's ready now (he's 7 y.o.), but I betchya if I had continued with it last year, he would have understand everything. He surprised me this summer with how much he knows! Chris

No but I saw Tony Atwood in a conference and he was talking about his upcoming books and his ideas were really interesting. Do you like them? A friend has them and I could probably borrow them but if they are worthwhile, I would want my own since we "love" our books here.

I am ordering, "My Book Full of Feelings: How to Control and React to the Size of Your Emotions " It is an "interactive workbook." So I thought that would be interesting as it covers the actual problem. I already have a book for him that is titled, "When my Autism gets too big" so I will probably be reading that with him more than a few times as well.

Roxanna ö¿öAutism Happens

[Guest guest]

This could explain why ours sang whole songs at 9 months, but didn't speak in whole sentences until she was 2.10 months, three word sentences, that is. Her first words were also parts of songs. I have always noticed her proclivity for music, always, even when 2, sang on tune, now a proficient piano player at age 5.

On another list I was on there was lots of worries from parents of Asperger's kids re: would chelation dull their gifts? Didn't seem to happen here.

Also thinking the auditory processing was a huge problem here, early on and could explain why she is so visual. We took her to the fair when she was almost 3 and when we got home she draw a picture of a man with a belt with the letters G-A-P on the belt buckle, from memory. Must be how she compensated.

----- Original Message -----

From: The Marotta Family

Sent: Monday, July 31, 2006 8:23 AM

Subject: [ ] Re: SB49 - campaign contributions

>Not just where autism and vaccines are concerned, but all around.Honestly, I have NO confidence in the health care/pharm industry, NOR do I believe the FDA can protect the consumer since the drug companies pay the salaries of so many of their inspectors. And I have worked for a pharm company for more than 10 years! Does anyone wonder why I might be looking for another job?>Unless you doubt that an autism epidemic exists, there has got to be some >environmental insult. >There is no such thing as a genetic epidemic. In the >meantime, I can't afford to sit on my hands >while they conduct their >studies. I, like all of us here am doing my best to help my son. I may be > >way off the mark by doing diets, enzymes, and supplements. Who knows? I >guess you could say, >I'm conducting my own study and so far, I'm happy >with the results.On another list I am on, the topic of genetics came up, and my position was genes determine suspectibility and an environmental insult is the cause (sort of like I have the genes for diabetes, but if I exercise and eat right I can postpone the onset of the disease - maybe even avoid it altogether.)>helps to do sing-songy question and answer with him. Maybe b/c it is >rythmic???A SLP once said my son has an auditory processing issue - it's hard for him to process what he hears and we should give him time to process questions/etc. In other words, don't expect an immediate answer. However, the of the brain that processes spoken words is different than that which processes music. When I use sing-songy language, my son uses a different part of his brain to process it, and apparently, that part of the brain doesn't have the same issues. Esp. when he was younger, his response time to sing-song type of language was quicker than regular spoken words.Chris

[Guest guest]

I had my practice housed in a dr's office for about 6 years and saw just how the pharmaceutical companies operate, first hand. Somehow they knew just how many scripts our drs had written for their various drugs.

Sure opened my eyes as to how things work. At lunch one day (on the pharm company) at a very nice, expensive restaurant, I was listening to a drup rep give a pitch for a new drug. I turned to the dr and asked what was the mechanism for how the drug worked and the dr said he didn't know (slightly uncomfortably) , ask the drug rep.

Well, the drug rep didn't know (drug rep very uncomfortable) either and on the way back to the office, in the car, I asked (always in trouble with the questions, story of my whole entire life from as far back as I can remember) the dr how he knew which people might benefit from the new drug and he told me that he just tries it on people and notes their reactions.

For sure this is not what I expected to have happen when I go to the dr. I had no idea patients were used as some kind of experiment, did any of you? I was naive enough to think the dr had some idea of what the drug was or what it did or what it could do to you. I now ask at any dr's how long a drug has been out and what problems they have noted with it.

I guess if you get sick or die on a new drug, the dr considers it not to be a good one?

----- Original Message -----

From: The Marotta Family

Sent: Monday, July 31, 2006 8:23 AM

Subject: [ ] Re: SB49 - campaign contributions

>Not just where autism and vaccines are concerned, but all around.Honestly, I have NO confidence in the health care/pharm industry, NOR do I believe the FDA can protect the consumer since the drug companies pay the salaries of so many of their inspectors. And I have worked for a pharm company for more than 10 years! Does anyone wonder why I might be looking for another job?>Unless you doubt that an autism epidemic exists, there has got to be some >environmental insult. >There is no such thing as a genetic epidemic. In the >meantime, I can't afford to sit on my hands >while they conduct their >studies. I, like all of us here am doing my best to help my son. I may be > >way off the mark by doing diets, enzymes, and supplements. Who knows? I >guess you could say, >I'm conducting my own study and so far, I'm happy >with the results.On another list I am on, the topic of genetics came up, and my position was genes determine suspectibility and an environmental insult is the cause (sort of like I have the genes for diabetes, but if I exercise and eat right I can postpone the onset of the disease - maybe even avoid it altogether.)>helps to do sing-songy question and answer with him. Maybe b/c it is >rythmic???A SLP once said my son has an auditory processing issue - it's hard for him to process what he hears and we should give him time to process questions/etc. In other words, don't expect an immediate answer. However, the of the brain that processes spoken words is different than that which processes music. When I use sing-songy language, my son uses a different part of his brain to process it, and apparently, that part of the brain doesn't have the same issues. Esp. when he was younger, his response time to sing-song type of language was quicker than regular spoken words.Chris

[Guest guest]

<<

I guess if you get sick or die on a new drug, the dr considers it not to be a good one?>>

Not necessarily, especially if it has the potential to make BIG money for them. They will hire an army of lawyers and experts to show how the dearly deceased actually had other conditions that contributed to their demise. The widow will be painted as a money hungry letigious assult on our overburdened justice system. And the drug rep will drive off into the sunset in his Lexus.

----- Original Message -----

From: Cochran

Sent: 7/31/2006 9:16:50 AM

Subject: Re: [ ] Re: SB49 - campaign contributions

I had my practice housed in a dr's office for about 6 years and saw just how the pharmaceutical companies operate, first hand. Somehow they knew just how many scripts our drs had written for their various drugs.

Sure opened my eyes as to how things work. At lunch one day (on the pharm company) at a very nice, expensive restaurant, I was listening to a drup rep give a pitch for a new drug. I turned to the dr and asked what was the mechanism for how the drug worked and the dr said he didn't know (slightly uncomfortably) , ask the drug rep.

Well, the drug rep didn't know (drug rep very uncomfortable) either and on the way back to the office, in the car, I asked (always in trouble with the questions, story of my whole entire life from as far back as I can remember) the dr how he knew which people might benefit from the new drug and he told me that he just tries it on people and notes their reactions.

For sure this is not what I expected to have happen when I go to the dr. I had no idea patients were used as some kind of experiment, did any of you? I was naive enough to think the dr had some idea of what the drug was or what it did or what it could do to you. I now ask at any dr's how long a drug has been out and what problems they have noted with it.

I guess if you get sick or die on a new drug, the dr considers it not to be a good one?

----- Original Message -----

From: The Marotta Family

Sent: Monday, July 31, 2006 8:23 AM

Subject: [ ] Re: SB49 - campaign contributions

>Not just where autism and vaccines are concerned, but all around.Honestly, I have NO confidence in the health care/pharm industry, NOR do I believe the FDA can protect the consumer since the drug companies pay the salaries of so many of their inspectors. And I have worked for a pharm company for more than 10 years! Does anyone wonder why I might be looking for another job?>Unless you doubt that an autism epidemic exists, there has got to be some >environmental insult. >There is no such thing as a genetic epidemic. In the >meantime, I can't afford to sit on my hands >while they conduct their >studies. I, like all of us here am doing my best to help my son. I may be > >way off the mark by doing diets, enzymes, and supplements. Who knows? I >guess you could say, >I'm conducting my own study and so far, I'm happy >with the results.On another list I am on, the topic of genetics came up, and my position was genes determine suspectibility and an environmental insult is the cause (sort of like I have the genes for diabetes, but if I exercise and eat right I can postpone the onset of the disease - maybe even avoid it altogether.)>helps to do sing-songy question and answer with him. Maybe b/c it is >rythmic???A SLP once said my son has an auditory processing issue - it's hard for him to process what he hears and we should give him time to process questions/etc. In other words, don't expect an immediate answer. However, the of the brain that processes spoken words is different than that which processes music. When I use sing-songy language, my son uses a different part of his brain to process it, and apparently, that part of the brain doesn't have the same issues. Esp. when he was younger, his response time to sing-song type of language was quicker than regular spoken words.Chris