great ENT surgeouns for congenital cholesteatoma

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Hi, My name is Janet and my 3 year old son Bradley was also just dx with congenital cholesteatoma. We live in the Atlanta area and have to stay in Georgia to have surgery. Our story: Bradley does not have a history of chronic ear infections, drainage or hearing loss. If anything, he used to get strep throat a lot and reactive airway disease (asthma). So when he gets an upper respiratory infection, he is usually on a nebulizer. He has been really healthy this past year. A month ago- he started to get a cold so I took him into see his Dr to make sure he wasn't wheezing and that's when his Dr saw something behind his right ear drum. I made an apt with the first ENT that I could see - not realizing that he might have to have surgery. So now I have another apt in Feb with Dr Thomsen of Pediatric Ear Nose and Throat of Atlanta.

I haven't heard that he is an awesome Dr for cholesteatoma surgery, but just a good ENT in general. I am very nervous about the whole situation- waiting to see how far advance the disease has spread. I personally had chronic ear infections, tubes and typmanaplastys as a child. So I was very disappointed to hear that he would have to go through this. So- if anyone out there has heard any good/bad things about Pediatric Ear Nose and Throat of Atlanta, please let me know.JanetFrom: sethnu <sethnu@...>Subject: great ENT surgeouns for congenital cholesteatomacholesteatoma Date: Tuesday, January 12, 2010, 12:43 PM

Our 3 year old daughter was diagnosed with congenital cholesteatoma. We are fortunate to have good health insurance and can go any where to have the surgery done. Any ideas on what doctor you would go see if you could go anywhere east of the mississippi? Also when you are interviewing surgeons given the rare nature of the condition what's a common number of these surgeries for an expert in the area to do in a month. Many thanks!