Re: 2 weeks Post OP - Reconstruction

[Guest guest]

>

> Hi,

> I went to the Dr yesterday and had the packing removed from my ear.

This

> past surgery was done my Dr Thedinger. Before surgery I was having

Facial

> Nerve Problems, extreme ear pain, heachaches, dizziness,

Vertigo,etc. I am

> now 2 weeks Post op and all I have is balance problems if I move to

fast and

> a sore ear. The first week after surgery was the most painful of

the 3

> surgeries I have had in my left ear this year.

>

> This was the first surgery performed on me by Dr Thedinger. I ended

up

> having the work the previous Dr had done completely removed and

done over.

>

> Here is what my knew Dr found and corrected after being inside my

ear for

> the first time.

>

> A man made prosthesis was removed that was shaped like a

straight

> bar had been positioned in the extreme left side of my ear with

only one end

> attached. The other end was flopping around in my ear and resting

on my

> facial nerve most of the time. This was supposed to be some type of

> prosthesis. Dr Thedinger had no clue what the previous Dr's

intention were

> for it, because of it's location.

>

> My outer ear canal was too narrow and curved, not allowing

the canal

> to dry out as it should. Dr Thedinger widened the outer ear canal

and I

> cannot remember the name he called it.

>

> My eardrum that was just built in January was severely

retracted and

> was very thick and infected. There was only a quarter of the

eardrum that

> was visible. He removed the infection and most of the eardrum and

built a

> new eardrum.

>

> The was no air space on my middle ear at all. He had to

remove scar

> tissue to get more airspace.

>

> After all this was done he placed a TORP in my ear and used

some

> cartalige from outside my ear to hold it in place.

>

> I have Gel packing inside of my ear, so I cannot hear from it at

all. In

> the past the only reason that I was hearing was because of Scar

Tissue and

> the previous Cholesteatoma acting as conduit to the inner ear. I

should not

> having been hearing out of that ear at all as I had no Ossicles, no

Stapes

> Footplate and airspace and canal problems.

>

> Dr said that he really had no idea how much of my hearing he could

restore,

> as I also have some sensineural hearing loss. The packing should

dissolve

> within 4-6 weeks and I guess we will find out then.

>

> I already know that no matter what the results are that I will need

Hearing

> Aids in both of my ears. I have sensineural hearing loss in my

right ear

> also.

>

> I just want the infections and surgeries to stop ! 3 ear surgeries

and all

> of the ear pain that I used to have has really taken a toll on me.

>

> I have forgotten what it was like to not walk around in pain all of

the time

> and having the facial problems that I was having.

>

> Thanks for all of your support.

>

> Ingrid

[Guest guest]

Hi Ingrid, I do hope you will feel much better with this new

surgery. I know how it feels to have the ear pain, truly a horrible

hurt. My ear problems started at birth. Many years of surgeries, and

I still have some dizzyness, and a ear that wont dry. So I will ask

my Doc when I go today about the air flow in my mastoid ear. I have a

huge hole so I dont know if my problem is air flow, but it wont hurt

to ask. I think I am having fungus problems beings it is sore and

drains and itches. I do hope your recovery goes well and you feel

much better soon. Hang in there! And get well soon!

>

> Hi,

> I went to the Dr yesterday and had the packing removed from my ear.

This

> past surgery was done my Dr Thedinger. Before surgery I was having

Facial

> Nerve Problems, extreme ear pain, heachaches, dizziness,

Vertigo,etc. I am

> now 2 weeks Post op and all I have is balance problems if I move to

fast and

> a sore ear. The first week after surgery was the most painful of

the 3

> surgeries I have had in my left ear this year.

>

> This was the first surgery performed on me by Dr Thedinger. I ended

up

> having the work the previous Dr had done completely removed and

done over.

>

> Here is what my knew Dr found and corrected after being inside my

ear for

> the first time.

>

> A man made prosthesis was removed that was shaped like a

straight

> bar had been positioned in the extreme left side of my ear with

only one end

> attached. The other end was flopping around in my ear and resting

on my

> facial nerve most of the time. This was supposed to be some type of

> prosthesis. Dr Thedinger had no clue what the previous Dr's

intention were

> for it, because of it's location.

>

> My outer ear canal was too narrow and curved, not allowing

the canal

> to dry out as it should. Dr Thedinger widened the outer ear canal

and I

> cannot remember the name he called it.

>

> My eardrum that was just built in January was severely

retracted and

> was very thick and infected. There was only a quarter of the

eardrum that

> was visible. He removed the infection and most of the eardrum and

built a

> new eardrum.

>

> The was no air space on my middle ear at all. He had to

remove scar

> tissue to get more airspace.

>

> After all this was done he placed a TORP in my ear and used

some

> cartalige from outside my ear to hold it in place.

>

> I have Gel packing inside of my ear, so I cannot hear from it at

all. In

> the past the only reason that I was hearing was because of Scar

Tissue and

> the previous Cholesteatoma acting as conduit to the inner ear. I

should not

> having been hearing out of that ear at all as I had no Ossicles, no

Stapes

> Footplate and airspace and canal problems.

>

> Dr said that he really had no idea how much of my hearing he could

restore,

> as I also have some sensineural hearing loss. The packing should

dissolve

> within 4-6 weeks and I guess we will find out then.

>

> I already know that no matter what the results are that I will need

Hearing

> Aids in both of my ears. I have sensineural hearing loss in my

right ear

> also.

>

> I just want the infections and surgeries to stop ! 3 ear surgeries

and all

> of the ear pain that I used to have has really taken a toll on me.

>

> I have forgotten what it was like to not walk around in pain all of

the time

> and having the facial problems that I was having.

>

> Thanks for all of your support.

>

> Ingrid

[Guest guest]

Quoting Ingrid Jannetta <ing@...>:

> This was the first surgery performed on me by Dr Thedinger. I ended up

> having the work the previous Dr had done completely removed and done

> over.

>

> Here is what my knew Dr found and corrected after being inside my ear

> for the first time.

>

> A man made prosthesis was removed that was shaped like a straight

> bar had been positioned in the extreme left side of my ear with only one

> end attached. The other end was flopping around in my ear and resting on

> my facial nerve most of the time. This was supposed to be some type of

> prosthesis. Dr Thedinger had no clue what the previous Dr's intention

> were

> for it, because of it's location.

>

> My outer ear canal was too narrow and curved, not allowing the canal

> to dry out as it should. Dr Thedinger widened the outer ear canal and I

> cannot remember the name he called it.

Meatoplasty, pronounced mee ate oh plas tee--it means surgery on an opening

to the body

> My eardrum that was just built in January was severely retracted and

> was very thick and infected. There was only a quarter of the eardrum

> that was visible. He removed the infection and most of the eardrum and

> built a new eardrum.

>

> The was no air space on my middle ear at all. He had to remove scar

> tissue to get more airspace.

>

> After all this was done he placed a TORP in my ear and used some

> cartalige from outside my ear to hold it in place.

Congrats, it sounds as though you found a competent surgeon!

> I have Gel packing inside of my ear, so I cannot hear from it at all.

> In the past the only reason that I was hearing was because of Scar Tissue

> and the previous Cholesteatoma acting as conduit to the inner ear. I

> should not having been hearing out of that ear at all as I had no

> Ossicles, no Stapes Footplate and airspace and canal problems.

This seems to be fairly common. If you were hearing with all of this going

on, maybe there is a good chance you will hear better with the TORP?

> Dr said that he really had no idea how much of my hearing he could

> restore, as I also have some sensineural hearing loss. The packing should

> dissolve within 4-6 weeks and I guess we will find out then.

Here's to hoping that you'll get a LOT of your hearing back.

> I already know that no matter what the results are that I will need

> Hearing Aids in both of my ears. I have sensineural hearing loss in my

> right ear also.

>

> I just want the infections and surgeries to stop ! 3 ear surgeries and

> all of the ear pain that I used to have has really taken a toll on me.

Maybe with this last surgery, he'll have fixed everything that has been

bothering you. No wonder you felt bad, with your facial nerve getting

hammered by that misplaced TORP every time you moved! Hope you are healed

and feeling better very, very soon.

Diane Brunet

http://www.sassysuds.com

[Guest guest]

Hi Ingrid

It's good to hear that you've had some useful treatment. I hope you've now started on that new chapter. Good luck with the recovery.

Phil

[Guest guest]

I had two prosthetic hearing bones placed in my right ear in July of 03. This past Wednesday I had a Cat Scan done to see if they had come out of place. Is this similiar to what happen to you? I'm sick of all this and have been worring alot. I don't go back to the doctor till next Wednesday for the results. Do you know of anyone that this has happen to so soon after surgery? Thanks, Donna Re: 2 weeks Post OP - Reconstruction

Quoting Ingrid Jannetta <ing@...>:> This was the first surgery performed on me by Dr Thedinger. I ended up> having the work the previous Dr had done completely removed and done> over. > > Here is what my knew Dr found and corrected after being inside my ear> for the first time.> > A man made prosthesis was removed that was shaped like a straight> bar had been positioned in the extreme left side of my ear with only one> end attached. The other end was flopping around in my ear and resting on > my facial nerve most of the time. This was supposed to be some type of> prosthesis. Dr Thedinger had no clue what the previous Dr's intention> were> for it, because of it's location. > > My outer ear canal was too narrow and curved, not allowing the canal> to dry out as it should. Dr Thedinger widened the outer ear canal and I> cannot remember the name he called it. Meatoplasty, pronounced mee ate oh plas tee--it means surgery on an opening to the body> My eardrum that was just built in January was severely retracted and> was very thick and infected. There was only a quarter of the eardrum> that was visible. He removed the infection and most of the eardrum and > built a new eardrum.> > The was no air space on my middle ear at all. He had to remove scar> tissue to get more airspace.> > After all this was done he placed a TORP in my ear and used some> cartalige from outside my ear to hold it in place.Congrats, it sounds as though you found a competent surgeon! > I have Gel packing inside of my ear, so I cannot hear from it at all. > In the past the only reason that I was hearing was because of Scar Tissue> and the previous Cholesteatoma acting as conduit to the inner ear. I > should not having been hearing out of that ear at all as I had no > Ossicles, no Stapes Footplate and airspace and canal problems.This seems to be fairly common. If you were hearing with all of this going on, maybe there is a good chance you will hear better with the TORP?> Dr said that he really had no idea how much of my hearing he could> restore, as I also have some sensineural hearing loss. The packing should> dissolve within 4-6 weeks and I guess we will find out then. Here's to hoping that you'll get a LOT of your hearing back. > I already know that no matter what the results are that I will need> Hearing Aids in both of my ears. I have sensineural hearing loss in my > right ear also. > > I just want the infections and surgeries to stop ! 3 ear surgeries and> all of the ear pain that I used to have has really taken a toll on me. Maybe with this last surgery, he'll have fixed everything that has been bothering you. No wonder you felt bad, with your facial nerve getting hammered by that misplaced TORP every time you moved! Hope you are healed and feeling better very, very soon.Diane Brunethttp://www.sassysuds.com

[Guest guest]

Hi Donna, I did not have this trouble. But I would like you to know

I am pulling for you to get through the waiting, till your

appointment day. I know it is hard not knowing what the heck is

going to happen next. So I hope the next several days fly by you, so

you can get the results from your test. You just hang in there! Its

way hard to do I know. I hope things go ok for you. Seems like when

we want time to fly it doesnt. I am kind of concerned if I might have

to have more surgery myself, as I have a place that recent surgery

isnt healing. So far I am still on meds, waiting 2 more weeks to find

out what there going to do next. I am concerned because I dont want

to get another surgery. And Doc isnt real thrilled about this. I will

do surgery IF that is what is to be, but geezo enough all ready! Till

then I am trying to just be positive even though things arent going

the way there suppose to. I have not been told there will be another

surgery, but I also know how Doc reacts, so we shall see. Maybe a

bit more time on meds will do the trick, dont know. Just keeping my

fingers crossed! I am in the waiting mode to. I just get on here

most every day, and talk to the others. It helps me to have an outlet

with people who are going through the same thing. So let us know how

your doing ok. Good luck to you Donna.

> I had two prosthetic hearing bones placed in my right ear in July

of 03. This past Wednesday I had a Cat Scan done to see if they had

come out of place. Is this similiar to what happen to you? I'm sick

of all this and have been worring alot. I don't go back to the

doctor till next Wednesday for the results. Do you know of anyone

that this has happen to so soon after surgery? Thanks, Donna-----

Original Message -----

> From: Diane Brunet

> cholesteatoma

> Sent: Thursday, December 11, 2003 2:22 PM

> Subject: Re: 2 weeks Post OP - Reconstruction

>

>

> Quoting Ingrid Jannetta <ing@j...>:

>

> > This was the first surgery performed on me by Dr Thedinger. I

ended up

> > having the work the previous Dr had done completely removed and

done

> > over.

> >

> > Here is what my knew Dr found and corrected after being inside

my ear

> > for the first time.

> >

> > A man made prosthesis was removed that was shaped like a

straight

> > bar had been positioned in the extreme left side of my ear with

only one

> > end attached. The other end was flopping around in my ear and

resting on

> > my facial nerve most of the time. This was supposed to be some

type of

> > prosthesis. Dr Thedinger had no clue what the previous Dr's

intention

> > were

> > for it, because of it's location.

> >

> > My outer ear canal was too narrow and curved, not

allowing the canal

> > to dry out as it should. Dr Thedinger widened the outer ear

canal and I

> > cannot remember the name he called it.

>

> Meatoplasty, pronounced mee ate oh plas tee--it means surgery on

an opening

> to the body

>

> > My eardrum that was just built in January was severely

retracted and

> > was very thick and infected. There was only a quarter of the

eardrum

> > that was visible. He removed the infection and most of the

eardrum and

> > built a new eardrum.

> >

> > The was no air space on my middle ear at all. He had to

remove scar

> > tissue to get more airspace.

> >

> > After all this was done he placed a TORP in my ear and

used some

> > cartalige from outside my ear to hold it in place.

>

> Congrats, it sounds as though you found a competent surgeon!

>

> > I have Gel packing inside of my ear, so I cannot hear from it

at all.

> > In the past the only reason that I was hearing was because of

Scar Tissue

> > and the previous Cholesteatoma acting as conduit to the inner

ear. I

> > should not having been hearing out of that ear at all as I had

no

> > Ossicles, no Stapes Footplate and airspace and canal problems.

>

> This seems to be fairly common. If you were hearing with all of

this going

> on, maybe there is a good chance you will hear better with the

TORP?

>

> > Dr said that he really had no idea how much of my hearing he

could

> > restore, as I also have some sensineural hearing loss. The

packing should

> > dissolve within 4-6 weeks and I guess we will find out then.

>

> Here's to hoping that you'll get a LOT of your hearing back.

>

> > I already know that no matter what the results are that I will

need

> > Hearing Aids in both of my ears. I have sensineural hearing

loss in my

> > right ear also.

> >

> > I just want the infections and surgeries to stop ! 3 ear

surgeries and

> > all of the ear pain that I used to have has really taken a toll

on me.

>

> Maybe with this last surgery, he'll have fixed everything that

has been

> bothering you. No wonder you felt bad, with your facial nerve

getting

> hammered by that misplaced TORP every time you moved! Hope you

are healed

> and feeling better very, very soon.

>

> Diane Brunet

> http://www.sassysuds.com

>

>

[Guest guest]

What a relief just to hear someone say they understand. I went Friday to pick up my CT Scan for my doctor's appt. on Wed. and they had a note that I needed to have them back by Wed. afternoon so another Radiologist can read them and when I asked who requested that they said the person who wrote that note had already gone. I think I will call the doctor's office tomorrow and see if they will tell me something over the phone. I did tell myself if it was something real bad someone would have called me. I really wasn't prepared for this not to be over after the surgs. Thanks for your support. I hope things heal for you soon.

Re: 2 weeks Post OP - Reconstruction> > > Quoting Ingrid Jannetta <ing@j...>:> > > This was the first surgery performed on me by Dr Thedinger. I ended up> > having the work the previous Dr had done completely removed and done> > over. > > > > Here is what my knew Dr found and corrected after being inside my ear> > for the first time.> > > > A man made prosthesis was removed that was shaped like a straight> > bar had been positioned in the extreme left side of my ear with only one> > end attached. The other end was flopping around in my ear and resting on > > my facial nerve most of the time. This was supposed to be some type of> > prosthesis. Dr Thedinger had no clue what the previous Dr's intention> > were> > for it, because of it's location. > > > > My outer ear canal was too narrow and curved, not allowing the canal> > to dry out as it should. Dr Thedinger widened the outer ear canal and I> > cannot remember the name he called it. > > Meatoplasty, pronounced mee ate oh plas tee--it means surgery on an opening > to the body> > > My eardrum that was just built in January was severely retracted and> > was very thick and infected. There was only a quarter of the eardrum> > that was visible. He removed the infection and most of the eardrum and > > built a new eardrum.> > > > The was no air space on my middle ear at all. He had to remove scar> > tissue to get more airspace.> > > > After all this was done he placed a TORP in my ear and used some> > cartalige from outside my ear to hold it in place.> > Congrats, it sounds as though you found a competent surgeon! > > > I have Gel packing inside of my ear, so I cannot hear from it at all. > > In the past the only reason that I was hearing was because of Scar Tissue> > and the previous Cholesteatoma acting as conduit to the inner ear. I > > should not having been hearing out of that ear at all as I had no > > Ossicles, no Stapes Footplate and airspace and canal problems.> > This seems to be fairly common. If you were hearing with all of this going > on, maybe there is a good chance you will hear better with the TORP?> > > Dr said that he really had no idea how much of my hearing he could> > restore, as I also have some sensineural hearing loss. The packing should> > dissolve within 4-6 weeks and I guess we will find out then. > > Here's to hoping that you'll get a LOT of your hearing back. > > > I already know that no matter what the results are that I will need> > Hearing Aids in both of my ears. I have sensineural hearing loss in my > > right ear also. > > > > I just want the infections and surgeries to stop ! 3 ear surgeries and> > all of the ear pain that I used to have has really taken a toll on me. > > Maybe with this last surgery, he'll have fixed everything that has been > bothering you. No wonder you felt bad, with your facial nerve getting > hammered by that misplaced TORP every time you moved! Hope you are healed > and feeling better very, very soon.> > Diane Brunet> http://www.sassysuds.com> >