Guest guest Posted January 17, 2001 Report Share Posted January 17, 2001 In a message dated 1/17/01 7:44:20 AM Eastern Standard Time, okieleah@... writes: << lisa, there is a test call PEP-R, its a test used to see autistic characteristics and autism in itself.....it's easy to test and it can be used on nonverbal kids with some creativity...you could request your school to admininster this test and if they say no then you could ask for an IEE....indivual education evaluation...you can pick the person who tests your child...the school may put a limit on the amount they will pay, but you can almost have the freedom to your choice.....hope this helps... >> Really Leah? Ummm, you really need to move to Elmira! Do you know if your child is homeschooled, can you get a 1-on-1 aide? I think that is the direction we are headed with Seth. Seems to me if he needs one in school, he needs one at home too. :-) Gail Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 17, 2001 Report Share Posted January 17, 2001 gail, i may be crazy but i am not nuts...you couldnt pay me zillions of dollars to move to elmira...sure i would to be near friends, but the schools suck and everyone gets cancer....IF AND WHEN i move, it will be to somewhere that already has successfull schools and community involvement....IF AND WHEN these programs and priorities exist, i will be the first to move...but since no place like that exist except in the brains and dreams of all of us. i am stuck in stafford sucks county va....lmao but if your serious about an aide at home, let me know..... >From: smilinggail@... >Reply-egroups >egroups >Subject: Re: lisa >Date: Wed, 17 Jan 2001 08:06:03 EST > >In a message dated 1/17/01 7:44:20 AM Eastern Standard Time, >okieleah@... writes: > ><< lisa, > there is a test call PEP-R, its a test used to see autistic >characteristics > and autism in itself.....it's easy to test and it can be used on >nonverbal > kids with some creativity...you could request your school to admininster > this test and if they say no then you could ask for an IEE....indivual > education evaluation...you can pick the person who tests your child...the > school may put a limit on the amount they will pay, but you can almost >have > the freedom to your choice.....hope this helps... > >> >Really Leah? Ummm, you really need to move to Elmira! Do you know if your >child is homeschooled, can you get a 1-on-1 aide? I think that is the >direction we are headed with Seth. Seems to me if he needs one in school, >he >needs one at home too. :-) >Gail _________________________________________________________________ Get your FREE download of MSN Explorer at http://explorer.msn.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 17, 2001 Report Share Posted January 17, 2001 Leah, what do the letters pep-r stand for and is it a school given test? by that is it a test a school should be aware of? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 17, 2001 Report Share Posted January 17, 2001 okay doug, i am stupid on this one...i dont know for sure, i will dig up ashtons papers and get back to you...this is a test that teachers familiar with autism should know about, although we understand there are backwardsazzed educators in every state in every school!!! the school ashton attends is a public school and her teacher is very familiar with the pep-r///it has many different testing components and requires time...but its not a sit down pencil to paper type test...it allows flexibility and some creativity... i would recommend asking your school is they are pep-r trained... ashtons teacher went to a two week training and now is certified to train other teachers.... hope this helps... >From: Doug <doug.smith@...> >Reply-egroups >egroups >Subject: Re: lisa >Date: Wed, 17 Jan 2001 09:52:35 -0500 > >Leah, what do the letters pep-r stand for and is it a school given test? >by that is it a test a school should be aware of? > _________________________________________________________________ Get your FREE download of MSN Explorer at http://explorer.msn.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 25, 2001 Report Share Posted April 25, 2001 Hi Gee, it's been about a month sinced we've talked to each other. How have you been? I just wanted to respond to your email regarding where you thought maybe that the coconut oil in the white M & P is what made it white. 'Tis not so....it's titanium dioxide that makes it white. Titanium dioxide is what's used in most cosmetics as a whitener. Don't ask me what exactly that stuff is because I've never bothered to research it. Just thought I'd let you know because if you ever label your soaps and use the white base, you'll need to list that as an ingredient. Talk to you later. M Ilion Thank you, Colleen! Dear Colleen,>>They both lather really well, but the white lathers more (don't know why).As for suspension base, they also have it, but I've never used it.<<OK, cool! Thanks so much! I might make an order tomorrow. I wonder if thecoconut oil in the white base is what makes it lather more? Isn't thecoconut what makes it white? I don't know. :-)>>G.-don't know where you get yours, but that's a good one too. (We'veused her soap.)<<I've used her soap, too! And I like it! I have a bar of her "1,001 Nights"soap! :-)Thanks,nne :-) (Albany)Our members maphttp://.homestead.com/locations.htmlOur Message Boardhttp://www.voy.com/21568/Special Invite for membershttp://soapwerks.com/martinrectangle.htmAll posts to this list are copyrighted by post author. They may NOT be forwarded, copied, or used in anyway without the permission of the post author with the exception of answering posts to this list. Posts are personal opinions only. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 2, 2001 Report Share Posted October 2, 2001 > I also recommend the links Kathy posted. I'm not familiar with the CARS test as was diagnosed by interviewing us and Prof Howlin observing him. Interesting that you set up your own group, I thought the DSA had a Liverpool branch. I have found over the last year that the local Autistic society support group is much more useful to me as we're struggling with the same issues. The NAS runs a group called Earlybird for newly diagnosed families which by all accounts is wonderful, very practical. Maybe you could enquire about it even if you don't have an official diagnosis. I'm trying to think of what I would have liked to have known 2 years ago! > If you (or Lesley) want to call me my number is 0208 348 1474 > Kayte > > >Hi Kayte how are you and ? I have just put to bed hopefully for the full night. I am a member of the SDSA which I have found useless,I am interested in finding out about a UK support group,send any details. s teachers are reading the Disability Soloutions and seem very interested. [Non-text portions of this message have been removed] Lesley,(10). Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 10, 2002 Report Share Posted June 10, 2002 Please don't do anything crazy right now you are just going what I am going through and trust me there may seem no help and there is nothing to be done but give them a day progress changes so much in one day they might have something for you. Please don't give up on me now and put up a fight. Remember Youve got to stand for something or youll fall for anything. Stand up for your life and don't let anyone tell you when you are going to live and when you are going to die. You tell them they may only give you an amounted time but you will be here until you are good and ready to leave. And do that don't just say it. Write back Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 11, 2002 Report Share Posted June 11, 2002 , please look out for delivery of a million buckets and sponges to help with the bailing. I have also ordered you syphon pump to help with the overflow. I would give you mine but I ned it to often myself. so just keep bailing and treading water girlfriend. You are not getting out of the Prom this easy, Sharon Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 11, 2002 Report Share Posted June 11, 2002 PLEASE REMOVE MY E-MAIL NAME FROM THE MAILING LIST. THANK YOU. judynolen@... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 7, 2004 Report Share Posted May 7, 2004 Joni, I hope not! <smile> I almost didn't indicate my blindness on the CI application because I thought the implant team would count it against me. However, I changed my mind after my audi told me the same thing you did -- that my blindness may help persuade them that a CI would be an excellent option for me. I'm glad to hear you say that they may go on hearing aid history instead. I've worn super power aids since I was 15 and really don't see the need to continue trying HAs that don't work. In your case, it must have been frustrating (if not amusing) because of your deafness. That's like putting glasses on me and expecting that I'll see. LOL!! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 12, 2004 Report Share Posted June 12, 2004 Joni, When the CI audi told me the good news, I couldn't believe it!! When I finally was able to grasp the reality of what was happening and she started talking about what I could expect from a CI, I couldn't think about anything else. <smile> Yesterday was definitely a day to remember!! In fact, Friday, June 11th is the first entry of the CI journal I started writing this morning. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 12, 2004 Report Share Posted June 12, 2004 Congrats , Hope the time between evaluation and surgery is a short one and that everything goes smoothly. It is exciting to begin thinking in terms of hearing again isn't it? Hoping for all the best for you. Hugs, Silly MI > Joni, > > When the CI audi told me the good news, I couldn't believe it!! When I > finally was able to grasp the reality of what was happening and she started > talking about what I could expect from a CI, I couldn't think about anything > else. <smile> Yesterday was definitely a day to remember!! In fact, Friday, > June 11th is the first entry of the CI journal I started writing this > morning. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 12, 2004 Report Share Posted June 12, 2004 , I was on " cloud 9 " yesterday and couldn't think about anything else once the CI audi told me that I was a candidate. It's such a relief knowing that the first (and hardest) step is behind me. Now it's time to enjoy the rest of the journey...and look forward to better days to come! <smile> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 25, 2004 Report Share Posted June 25, 2004 Hi Joni, I haven't seen the surgeon yet. I'm scheduled for an ABR next month and more speech/hearing tests in August. My CI audi is trying to find out why my left ear fluctuates between severe to profound loss and profound loss. After these tests, I will be scheduled to see the surgeon and have a CT scan. When I see my audi next month, will ask her about bilateral CIs -- especially since the hearing in my right ear has dropped significantly. If my CI team thinks a bilateral CI is appropriate for me, I will defintely do it! As someone who is totally blind, a bilateral CI will help tremendously with sound localization and street crossings. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 24, 2004 Report Share Posted December 24, 2004 Debby-- I think the reason that any one has not been post messages is that they are trying to get ready for Christmas Eve and Day. They may have family over for some special and fine times. is doing very well after her surgery and is now at home; enjoying the opportunity to be pampered. So Everyone On have a wonderful holidays and enjoy yourselves!!! Snoopy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 6, 2007 Report Share Posted January 6, 2007 lisatigani wrote: >Now if I could just myself motivated to > work out I might be able to incorporate some of your ideas. lisa, you are just going to have to force yourself to do it.... once you get going, it will seem more appealing. you dont have to do a long workout, or a hard one. and you dont have to do exactly what the instructor is doing or do anything that you dont want to do. just do something, anything! then you will feel proud and happy with yourself each day instead of feeling down on yourself for not trying. believe me, i know how it goes and i know that it gets to be a vicious circle of self-defeat. i hate to see you falling into that trap. i know that you can do this... really, it is mind over body. :*carolyn. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 6, 2007 Report Share Posted January 6, 2007 In a message dated 1/6/2007 9:49:40 P.M. US Eastern Standard Time, pvisser@... writes: lisa, you are just going to have to force yourself to do it.... once you get going, it will seem more appealing. , I agree with everything Carolyn said. Once you really make yourself do it, it will become easier and you'll want to do it. I think the key is enjoying what you're doing. Find something that is fun, but challenging, and once you get through that challenge you will be proud of yourself and look forward to doing it again. Good luck to you! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 24, 2007 Report Share Posted January 24, 2007 Hi again, Please e-mail me privately at heather@... with the address where the dvd was to be sent, and I'll double check with my office... Thanks, HRH Re: Why not cast? > > > I agree with what Shellie said. But also wanted to > add that many parents are not as dedicated to the > treatment options like casting that everyone here is. > Many parents want a one-time fix. If they have to do > anything with the treatment at home, they'd rather > not, especially if the doc is not supportive of the > treatment either. When you have a wishy-washy doc who > doesn't believe in this 100% and parents who don't > want to " hinder " or " restrict " their child's body for > any reason, then you have people voting against serial > casting. This works with parents of kids who have > clubfoot issues. Surgery is seen as a one-time fix. > Serial casting and years of leg braces to " fix " the > problem are seen as delaying the child's development > and as " torture " to the child (and parent). Braydon's > own ortho is not a supporter of casting for very many > cases because of this situation - he knows parents > won't take it seriously or that the child will be too > restricted in development. I'm just stating my > observation from over the years... one treatment > option is not right for everyone. That's the benefit > of having choices. What works for one may not work > for someone else. > > Carmell > > Mom to Kara, idiopathic scoliosis and hypothyroidism, Blake 16, GERD, and Braydon 11, VACTERL-congenital scoliosis (fusion surgery 5/96), VEPTR patient #137 (implant 8/01), Thoracic Insufficiency Syndrome (TIS), rib anomalies, missing coccyx, fatty filum/TC (released 4/99 & 12/06), anal stenosis, chronic constipation, horseshoe (cross-fused) kidney, dbl ureter in left kidney, ureterocele (excized 6/95), kidney reflux (reimplant surgery 1/97), neurogenic bladder, dysplastic right leg w/right clubfoot with 8 toes (repaired 2/96, 3/96, 1/97, 3/04), tibial torsion, 4cm length discrepancy-wears 3cm lift, pes cavus, SUA, GERD, Gastroparesis, etc. http://carmellb-ivil.tripod.com/myfamily/ > > Congenital scoliosis support group > CongenitalScoliosisSupport/ > > __________________________________________________________ > Be a PS3 game guru. > Get your game face on with the latest PS3 news and previews at Games. > http://videogames./platform?platform=120121 > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 14, 2007 Report Share Posted September 14, 2007 Stuparyk wrote: > Thanks, Carolyn! You've probably read where I been cleared to walk, at > least a little. yes! im so glad to hear that, lisa! the time that you are taking to rest is working! > We are heading out of town overnight this weekend, to tour my mother around > a bit, cool! where are you going? have fun! > I'll be picking my HRM up on Friday, too. so, it took them 3 weeks to put in a new battery? thats a long time for me to go without my HRM... i hope that i dont need to send mine away any time soon. did you have to mail it to the USA or is there a place in Canada? :*carolyn. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 14, 2007 Report Share Posted September 14, 2007 oh! lisa, i meant to ask you... do you have a 'winners' store near you? we are getting one in the local mall, and im wondering if they sell workout dvds cheap. :*carolyn. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 16, 2007 Report Share Posted September 16, 2007 Sorry, Carolyn. The closest one is London, I think. And I've never even been in one! So you'll have to check it out and report back. On our road trip we went down to St. and Port Stanley. My mother lived there during the war (I hope I'm not repeating myself), and wanted to see her old houses and haunts. We found both houses, plus the statue of Jumbo (killed in St. by a train in 1885 - on the SAME DAY WE WERE THERE!! <insert creepy music here>. We walked along the beach at Port Stanley for about a half-hour - perfect sand for walking because it had been packed by rain, but still had some give. Bought some fruit wine from a nearby winery , explored a corn maze,(both new experiences for us), found an orchard with juicy apples, plums, and pears, and had a lovely supper in St. 's. Beautiful day, the kids were good, and we all felt refreshed by being out and about. in chilly Ontario Re: lisa oh! lisa, i meant to ask you... do you have a 'winners' store near you? we are getting one in the local mall, and im wondering if they sell workout dvds cheap. :*carolyn. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 16, 2007 Report Share Posted September 16, 2007 Oh, missed this part before - we took my hrm back to SportChek where we bought it, and they were SO good - they sent it out without any fuss. I don't know where, though I expect it was the States. It didn't really take a full 3 weeks either - several days of that was just us not being able to get down to London. They didn't find anything wrong with it, but replaced the battery just in case. Didn't cost me a thing, which was a nice surprise. so, it took them 3 weeks to put in a new battery? thats a long time for me to go without my HRM... i hope that i dont need to send mine away any time soon. did you have to mail it to the USA or is there a place in Canada? :*carolyn. No virus found in this outgoing message. Checked by AVG Free Edition. Version: 7.5.487 / Virus Database: 269.13.21/1010 - Release Date: 9/15/2007 7:54 PM Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 16, 2007 Report Share Posted September 16, 2007 Stuparyk wrote: > On our road trip we went down to St. and Port Stanley. hi lisa - i am originally from st thomas... my parents and one of my brothers still live there. i miss going to port stanley, i have fond childhood memories of that beach. and my kids love seeing the big jumbo statue and trying to climb up his legs...lol. and, gee, if you were in st mary's, you were quite close to where i live now (around 25 mins away). sounds like you had a really nice day... im glad that your mom got to see her old home town. :*carolyn. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 6, 2008 Report Share Posted September 6, 2008 Hi Kathy  No im not home yet.. and wont be back with him...im here right now to pick up a couple things... No hon I dont have your # and see see an e-mail from ya with it... Thanks so much for all the prayers and support... you and the whole group mean so much to me.... thanks.... oh by the way... my cell # is 419-30 2-7064... just in case you would like to chat thanks,, well gotta get out of here... have a grea tday... let everyone know im ok...                             soft hugs  lisa --- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 8, 2008 Report Share Posted September 8, 2008 Hi Everyone !!! Well im not home yet,, but im doing so much better all ready.. im fine and safe.. just wanted to check in... im sorry MIke.. i wont be able to join chat quite yet...but hopefully soon Hope ya all's doing good.. i miss ya all... soft hugs T Quote Link to comment Share on other sites More sharing options...
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