Guest guest Posted January 30, 2001 Report Share Posted January 30, 2001 HI : WW (wonderful ) is also from Ontario but a bit away from you in Nepean. She does travel to Toronto for fun weekends though, right !! She can advise you about m.h. clinics in Ontario as she has been through the wringer with them. In the meantime you can prepare the family by educating them about OCD and its treatment. That way when you do get access to skilled professionals you will be able to make sure they are providing the correct treatment. It took us over a year to get the right professionals for our son Steve. I am sure if I was told at first 4-6 months it would seem like an eternity. If you have found someone good, the wait will be well worth it. Good luck, take care, aloha, Kathy (h) kathyh@... At 01:51 PM 01/30/2001 +0000, you wrote: >Hi, again. Yes I do live in Canada, in Ontario, just north of >Toronto. I just got a call from the mental health clinic where we live >and they told me that we would be put on a waiting list for about 4 to >6 months! Thats going to be a long and tough wait. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 21, 2009 Report Share Posted July 21, 2009 right. His ears have been dry for ages-no infections, no problems. dr. said OK to swimming with plugs and head band-son is used to this for last few years. No diving or pressure changes so son more or less keeps head pretty much above water. The surgery will change all that-good thing he has his summer to enjoy before surgery. Little guy is sad about the possibility of limited/perhaps no swimming in the future. He loves to swim and waterski and go "tubing" and was looking forward to learning to scubadive with his Dad in the future. I don't swim too much these days but was training for olympics in '76 so we're all water babies here! This "water" issue of one of dozens I was concerned about when worrying about the surgery. Denna Poulos From: kfoskett5 <kfoskett5@...>cholesteatoma Sent: Tuesday, July 21, 2009 4:58:18 PMSubject: Re: Denna Denna,I think you should check with your doctor to see if you son should be swimming. Water can in the ear can make things worse. After the doctors found mine it was no water in the ear until the surgery then no water until it healed. Kathy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 21, 2009 Report Share Posted July 21, 2009 Hi Denna, I think I'd have to agree with your doctor. I spent six years in the Navy nuclear power program. Although I don't have kids, if I did I'd never want them to unnecessarily get zapped with radiation that would produce dubious scan results at best. Children's bodies are growing rapidly and that is simply not a good point for people to be exposed to radiation. So, to me, that seems like one smart doctor. Matt Denna Poulos wrote: > > Hi Kathy, > > dr. won't do new CT scan-says they are pretty useless for determining > scope of c-toma. Says " I won't radiate him again. " Said " I don't > require one " . What do you do with statements like that? Effectively > we've been painted into a corner, and, as you know, a corner is a > difficult place to maneuver from! However, I am very comfortable with > this doctor. He's one of only a couple that do this surgery around > here and he's come from the UK to practice at the Hospital for Sick > Children in Toronto, Ontario, Canada-a world renowned hospital. We are > fortunate to live 1/2 hour north of the hospital so we can't do better > in my estimation. He's not big on sharing info and because his > hospital practice services so many he is quite rushed. The waiting > room is always a zoo and the wait a lengthy one. So, basically, we > have had to have faith in his reputation, which is amazing, and his > experience, which is vast and varied. When we talked about the risk of > facial paralysis he gave us the odds of about 1 in 1000. He then said > that none of his patients has ever experienced that. This hospital has > all the best equipment and staff and it's a children's hospital that > people from all over the world come to when things are tough. So I > really have no qualms in that department!!!!! > *Denna Poulos * > > ------------------------------------------------------------------------ > > > ------------------------------------------------------------------------ > *From:* kfoskett5 <kfoskett5@...> > *To:* cholesteatoma > *Sent:* Tuesday, July 21, 2009 4:45:25 PM > *Subject:* Re: Denna > > > > > Denna, > > If the doctor isn't sure if there C-TOMA maybe it's time to get a new > CT. I read in one of your other post that his last one was four years > old. It might help put your mind at ease. > > I also get the feeling you are not very comfortable with this doctor > you might want to look for someone else, because this surgery does > require a lot of follow up care so you are going to be seeing the guy > again. > > Kathy > > -- Quote Link to comment Share on other sites More sharing options...
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