Re: Are acquired cholesteatomas fast growing?

[Guest guest]

Shelli <scott_sh> a écrit :

My husband and I are in a dilema and am hoping to get advice from this group. Our 6 yr old daughter was recently diagnosed with two acquired cholesteatoma's in her left ear. The surgeon said her need for surgery was not "emergent" but surgery would need to be scheduled. We have a 6 month waiting period through our insurance company before they will pay for the surgery. The Dr. described the wait as "low risk" to our daughter. She has a mild - moderate conductive hearing loss right now. We have been dealing with this ear problem for over two years. We had several pediatricians and ENT's simply clean her ears and put her on antibiotics. We finally took her to Oregon Health and Sciences Universtity and received a diagnosis of cholesteatoma. Does anyone have any advice on how rapidly these can grow? In your opinion would it be a bad idea to wait 6 months for the insurance company to cover the surgery or better to take care of it

ASAP?

dear SHELLI

ICAN SAY IT IS DEPENDING HOW FAR IS THE SPREAD OF THE CHOLOSTEATOM.THE MAIN FEARING IS TO REACH THE EDGE OF THE BRAIN AND THIS COULD LEAD TO PARALYSIS FACE AND AS WELL INFECTIOUS SICKENESS LIKE MENINGITE .SO AS LONG AS THERE IS NO SURGERY NO HAD BEEN DONE TO CHECK OUT THE STATE OF THE EAR NO ONE CAN ADVISE.

BEST TO DO IN MY OPINION IS TO GET THE OPERATION DONE ASAP OTHERWISE IF ANYTHING BAD HAPPEN THIS WOULD STAY IN YOU CONSCIENCE AND MIND ALL YOUR LIFE.WHAT IS MORE THE MONEY COULD BE RECOVRED BUT HEALTH NOT.

IF REALLY TALKING ABOUT FINANCIAL MATTER YOU CAN NOT DO IT AS THE AMOUNT IS HUGE YOU CAN CHOICE ONE OF COUNTRY IN ALGERIA OR TUNISIA THEY CAN DO THE SUREGERY HERE THE SURGERY IS CHEAP AND THE DOCTOR HAVE VERY HIGH SKILL.IF YOU DO NEED TO PERFORM IN THESES TWO COUNTRIES JUST ADVISE I WILL HELP

GOOD LUCK

MOURAD

[Guest guest]

Hi Shelli

"Low risk" is probably right. Ctoma is a slow disease and it usually takes many years before very serious symptoms develop. Having said that, it is a disease which will only get worse and you could never know when it might reach a point when those symptoms might appear. Once discovered, it's usually the best policy to remove the ctoma as soon as is reasonably possible. It's almost never an urgent problem and waiting a few weeks or a couple of months is fairly standard. To my mind a six month is a little more worrying if only because you may have to put up with the anxiety of not knowing what the disease is up to for that much longer. If you do have to wait that long for the insurance to come through then it be good to make sure the doctor will be monitoring the disease every month or so to see that it remains stable.

That's just my opinion, I'd also be interested to know what others think of waiting up to six months once the disease has been diagnosed.

Phil

My husband and I are in a dilema and am hoping to get advice from this group. Our 6 yr old daughter was recently diagnosed with two acquired cholesteatoma's in her left ear. The surgeon said her need for surgery was not "emergent" but surgery would need to be scheduled. We have a 6 month waiting period through our insurance company before they will pay for the surgery. The Dr. described the wait as "low risk" to our daughter. She has a mild - moderate conductive hearing loss right now. We have been dealing with this ear problem for over two years. We had several pediatricians and ENT's simply clean her ears and put her on antibiotics. We finally took her to Oregon Health and Sciences Universtity and received a diagnosis of cholesteatoma. Does anyone have any advice on how rapidly these can grow? In your opinion would it be a bad idea to wait 6 months for the insurance company to cover the surgery or better to take care of it ASAP?

[Guest guest]

Mourad:

Thank you for your response to my posting. I appreciate the advice. It really does seem as if there are too many unknowns in waiting.

Kind Regards,

Shelli

RE: Are acquired cholesteatomas fast growing?

Shelli <scott_sh> a écrit :

My husband and I are in a dilema and am hoping to get advice from this group. Our 6 yr old daughter was recently diagnosed with two acquired cholesteatoma's in her left ear. The surgeon said her need for surgery was not "emergent" but surgery would need to be scheduled. We have a 6 month waiting period through our insurance company before they will pay for the surgery. The Dr. described the wait as "low risk" to our daughter. She has a mild - moderate conductive hearing loss right now. We have been dealing with this ear problem for over two years. We had several pediatricians and ENT's simply clean her ears and put her on antibiotics. We finally took her to Oregon Health and Sciences Universtity and received a diagnosis of cholesteatoma. Does anyone have any advice on how rapidly these can grow? In your opinion would it be a bad idea to wait 6 months for the insurance company to cover the surgery or better to take care of it ASAP?

dear SHELLI

ICAN SAY IT IS DEPENDING HOW FAR IS THE SPREAD OF THE CHOLOSTEATOM.THE MAIN FEARING IS TO REACH THE EDGE OF THE BRAIN AND THIS COULD LEAD TO PARALYSIS FACE AND AS WELL INFECTIOUS SICKENESS LIKE MENINGITE .SO AS LONG AS THERE IS NO SURGERY NO HAD BEEN DONE TO CHECK OUT THE STATE OF THE EAR NO ONE CAN ADVISE.

BEST TO DO IN MY OPINION IS TO GET THE OPERATION DONE ASAP OTHERWISE IF ANYTHING BAD HAPPEN THIS WOULD STAY IN YOU CONSCIENCE AND MIND ALL YOUR LIFE.WHAT IS MORE THE MONEY COULD BE RECOVRED BUT HEALTH NOT.

IF REALLY TALKING ABOUT FINANCIAL MATTER YOU CAN NOT DO IT AS THE AMOUNT IS HUGE YOU CAN CHOICE ONE OF COUNTRY IN ALGERIA OR TUNISIA THEY CAN DO THE SUREGERY HERE THE SURGERY IS CHEAP AND THE DOCTOR HAVE VERY HIGH SKILL.IF YOU DO NEED TO PERFORM IN THESES TWO COUNTRIES JUST ADVISE I WILL HELP

GOOD LUCK

MOURAD

[Guest guest]

> My husband and I are in a dilema and am hoping to get advice from this

> group. Our 6 yr old daughter was recently diagnosed with two acquired

> cholesteatoma's in her left ear. The surgeon said her need for surgery

> was not " emergent " but surgery would need to be scheduled. We have a 6

> month waiting period through our insurance company before they will pay

> for the surgery. The Dr. described the wait as " low risk " to our

> daughter. She has a mild - moderate conductive hearing loss right

> now. We have been dealing with this ear problem for over two years.

> We had several pediatricians and ENT's simply clean her ears and put

> her on antibiotics. We finally took her to Oregon Health and Sciences

> Universtity and received a diagnosis of cholesteatoma. Does anyone

> have any advice on how rapidly these can grow? In your opinion would

> it be a bad idea to wait 6 months for the insurance company to cover

> the surgery or better to take care of it ASAP?

>

>

>

>

>

>

>

>

[Guest guest]

ROBERT SHELLI PETERS <scott_sh> a écrit :

Mourad:

Thank you for your response to my posting. I appreciate the advice. It really does seem as if there are too many unknowns in waiting.

Kind Regards,

Shelli

DEAR SHELLI

REALLY 6 MONTHS IS TOO LONG FOR SOMEONE WITH EVOLUTIVE SICKNESS

KINDLY

MOURAD

RE: Are acquired cholesteatomas fast growing?

Shelli <scott_sh> a écrit :

My husband and I are in a dilema and am hoping to get advice from this group. Our 6 yr old daughter was recently diagnosed with two acquired cholesteatoma's in her left ear. The surgeon said her need for surgery was not "emergent" but surgery would need to be scheduled. We have a 6 month waiting period through our insurance company before they will pay for the surgery. The Dr. described the wait as "low risk" to our daughter. She has a mild - moderate conductive hearing loss right now. We have been dealing with this ear problem for over two years. We had several pediatricians and ENT's simply clean her ears and put her on antibiotics. We finally took her to Oregon Health and Sciences Universtity and received a diagnosis of cholesteatoma. Does anyone have any advice on how rapidly these can grow? In your opinion would it be a bad idea to wait 6 months for the insurance company to cover the surgery or better to take care of it

ASAP?

dear SHELLI

ICAN SAY IT IS DEPENDING HOW FAR IS THE SPREAD OF THE CHOLOSTEATOM.THE MAIN FEARING IS TO REACH THE EDGE OF THE BRAIN AND THIS COULD LEAD TO PARALYSIS FACE AND AS WELL INFECTIOUS SICKENESS LIKE MENINGITE .SO AS LONG AS THERE IS NO SURGERY NO HAD BEEN DONE TO CHECK OUT THE STATE OF THE EAR NO ONE CAN ADVISE.

BEST TO DO IN MY OPINION IS TO GET THE OPERATION DONE ASAP OTHERWISE IF ANYTHING BAD HAPPEN THIS WOULD STAY IN YOU CONSCIENCE AND MIND ALL YOUR LIFE.WHAT IS MORE THE MONEY COULD BE RECOVRED BUT HEALTH NOT.

IF REALLY TALKING ABOUT FINANCIAL MATTER YOU CAN NOT DO IT AS THE AMOUNT IS HUGE YOU CAN CHOICE ONE OF COUNTRY IN ALGERIA OR TUNISIA THEY CAN DO THE SUREGERY HERE THE SURGERY IS CHEAP AND THE DOCTOR HAVE VERY HIGH SKILL.IF YOU DO NEED TO PERFORM IN THESES TWO COUNTRIES JUST ADVISE I WILL HELP

GOOD LUCK

MOURAD

[Guest guest]

Hi Shelli,

I totally agree with Phil. According to my sons doctor, some ctomas are fast growing and some are not. Monitoring it might be the best thing to do while you wait. You could also try to find out from doctor how big they are. My son just went thru a ctoma removal and tympanoplasty last week. We had actually waited three months to do the surgery just so we could do in the summer holidays (because missing school and baseball would have made him a more sad boy). We waited only because my son's doc said that it could really wait.

good luck

Phil <psmorris@...> wrote:

Hi Shelli

"Low risk" is probably right. Ctoma is a slow disease and it usually takes many years before very serious symptoms develop. Having said that, it is a disease which will only get worse and you could never know when it might reach a point when those symptoms might appear. Once discovered, it's usually the best policy to remove the ctoma as soon as is reasonably possible. It's almost never an urgent problem and waiting a few weeks or a couple of months is fairly standard. To my mind a six month is a little more worrying if only because you may have to put up with the anxiety of not knowing what the disease is up to for that much longer. If you do have to wait that long for the insurance to come through then it be good to make sure the doctor will be monitoring the disease every month or so to see that it remains stable.

That's just my opinion, I'd also be interested to know what others think of waiting up to six months once the disease has been diagnosed.

Phil

My husband and I are in a dilema and am hoping to get advice from this group. Our 6 yr old daughter was recently diagnosed with two acquired cholesteatoma's in her left ear. The surgeon said her need for surgery was not "emergent" but surgery would need to be scheduled. We have a 6 month waiting period through our insurance company before they will pay for the surgery. The Dr. described the wait as "low risk" to our daughter. She has a mild - moderate conductive hearing loss right now. We have been dealing with this ear problem for over two years. We had several pediatricians and ENT's simply clean her ears and put her on antibiotics. We finally took her to Oregon Health and Sciences Universtity and received a diagnosis of cholesteatoma. Does anyone have any

advice on how rapidly these can grow? In your opinion would it be a bad idea to wait 6 months for the insurance company to cover the surgery or better to take care of it ASAP?

[Guest guest]

Hi Shelli,

I have had three c-toma sugeries as an adult so I'm not sure my experience is completely relevent in your daughters case. However, as Phil stated, some c-tomas are fast growing (I know first hand). I would push the insurance company to have it removed as soon as possible. If that is not an option, have it checked often by your surgeon. I wish I had caught mine earlier.

Regards,

Rich

From: cholesteatoma [mailto:cholesteatoma ] On Behalf Of Jaya ParvathalaSent: Thursday, July 14, 2005 4:42 PMcholesteatoma Subject: Re: Are acquired cholesteatomas fast growing?

Hi Shelli,

I totally agree with Phil. According to my sons doctor, some ctomas are fast growing and some are not. Monitoring it might be the best thing to do while you wait. You could also try to find out from doctor how big they are. My son just went thru a ctoma removal and tympanoplasty last week. We had actually waited three months to do the surgery just so we could do in the summer holidays (because missing school and baseball would have made him a more sad boy). We waited only because my son's doc said that it could really wait.

good luck

Phil <psmorris@...> wrote:

Hi Shelli

"Low risk" is probably right. Ctoma is a slow disease and it usually takes many years before very serious symptoms develop. Having said that, it is a disease which will only get worse and you could never know when it might reach a point when those symptoms might appear. Once discovered, it's usually the best policy to remove the ctoma as soon as is reasonably possible. It's almost never an urgent problem and waiting a few weeks or a couple of months is fairly standard. To my mind a six month is a little more worrying if only because you may have to put up with the anxiety of not knowing what the disease is up to for that much longer. If you do have to wait that long for the insurance to come through then it be good to make sure the doctor will be monitoring the disease every month or so to see that it remains stable.

That's just my opinion, I'd also be interested to know what others think of waiting up to six months once the disease has been diagnosed.

Phil

My husband and I are in a dilema and am hoping to get advice from this group. Our 6 yr old daughter was recently diagnosed with two acquired cholesteatoma's in her left ear. The surgeon said her need for surgery was not "emergent" but surgery would need to be scheduled. We have a 6 month waiting period through our insurance company before they will pay for the surgery. The Dr. described the wait as "low risk" to our daughter. She has a mild - moderate conductive hearing loss right now. We have been dealing with this ear problem for over two years. We had several pediatricians and ENT's simply clean her ears and put her on antibiotics. We finally took her to Oregon Health and Sciences Universtity and received a diagnosis of cholesteatoma. Does anyone have any advice on how rapidly these can grow? In your opinion would it be a bad idea to wait 6 months for the insurance company to cover the surgery or better to take care of it ASAP?