Guest guest Posted April 28, 2005 Report Share Posted April 28, 2005 Hi, If you would tell us your location, I'm sure someone in the group could give you a recommedation for a doctor. Please ask any questions you have. This group is a wonderful source of information. Also, look at past messages and you might find answers to your questions there as well. Ilonajlynalderete <jlynalderete@...> wrote: Hi,i need to see if anyone can give me some advice on finding a good doctor to operate on cholesteatoma.I also would like to talk to someone about having cholesteatoma,I am scared and confused. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 28, 2005 Report Share Posted April 28, 2005 Hi, I live in Granbury,Texas. How long after you are diagnosed with cholesteatoma do you have the surgery?? How do you afford the surgery once you get the appointment?? How dangerous is it?? Ilona Branum <ibranum@...> wrote: Hi, If you would tell us your location, I'm sure someone in the group could give you a recommedation for a doctor. Please ask any questions you have. This group is a wonderful source of information. Also, look at past messages and you might find answers to your questions there as well. Ilonajlynalderete <jlynalderete@...> wrote: Hi,i need to see if anyone can give me some advice on finding a good doctor to operate on cholesteatoma.I also would like to talk to someone about having cholesteatoma,I am scared and confused. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 28, 2005 Report Share Posted April 28, 2005 If in the United States, try the Michigan Ear Institute: http://www.michiganear.com/index_real.html --- jlynalderete <jlynalderete@...> wrote: > Hi,i need to see if anyone can give me some advice > on finding a good > doctor to operate on cholesteatoma.I also would like > to talk to > someone about having cholesteatoma,I am scared and > confused. > > > > > > > > > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 28, 2005 Report Share Posted April 28, 2005 In Arizona, Dr. Mark Syms, Arizona Ear Center (Phoenix)jlynalderete <jlynalderete@...> wrote: Hi,i need to see if anyone can give me some advice on finding a good doctor to operate on cholesteatoma.I also would like to talk to someone about having cholesteatoma,I am scared and confused. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 28, 2005 Report Share Posted April 28, 2005 Hi , I live in Mesquite, Texas and I would highly recommend Dr. Owens in Dallas. He is associated with Baylor Hospital and I believe he also has an office in Plano. He is a neurotologist and is very experienced in Cholesteatoma. I have had c-toma in both ears. Ideally, you should have surgery as soon as possible after being diagnosed. That is because typically, the c-toma has been there for quite some time before being found. I have medical insurance so that is how my surgeries have been paid for, all I have been out is the deductible and the co-pay. Please let me know if you would like the phone number and address for Dr. Owens. As far as how dangerous the surgery is, well, I suppose that varies with each person but surgery is the only way to get rid of c-toma. I have had no complications from my surgeries and usually was off work a week or less. I hope this helps. Ilona jennifer alderete <jlynalderete@...> wrote: Hi, I live in Granbury,Texas. How long after you are diagnosed with cholesteatoma do you have the surgery?? How do you afford the surgery once you get the appointment?? How dangerous is it?? Ilona Branum <ibranum@...> wrote: Hi, If you would tell us your location, I'm sure someone in the group could give you a recommedation for a doctor. Please ask any questions you have. This group is a wonderful source of information. Also, look at past messages and you might find answers to your questions there as well. Ilonajlynalderete <jlynalderete@...> wrote: Hi,i need to see if anyone can give me some advice on finding a good doctor to operate on cholesteatoma.I also would like to talk to someone about having cholesteatoma,I am scared and confused. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 28, 2005 Report Share Posted April 28, 2005 Hi , I also live in Texas and Dr. Owens removed my c-toma and I highly recommend him, too. My surgery was in 2001. I was able to return to work after one week with no problems. Ilona Branum <ibranum@...> wrote: Hi , I live in Mesquite, Texas and I would highly recommend Dr. Owens in Dallas. He is associated with Baylor Hospital and I believe he also has an office in Plano. He is a neurotologist and is very experienced in Cholesteatoma. I have had c-toma in both ears. Ideally, you should have surgery as soon as possible after being diagnosed. That is because typically, the c-toma has been there for quite some time before being found. I have medical insurance so that is how my surgeries have been paid for, all I have been out is the deductible and the co-pay. Please let me know if you would like the phone number and address for Dr. Owens. As far as how dangerous the surgery is, well, I suppose that varies with each person but surgery is the only way to get rid of c-toma. I have had no complications from my surgeries and usually was off work a week or less. I hope this helps. Ilona jennifer alderete <jlynalderete@...> wrote: Hi, I live in Granbury,Texas. How long after you are diagnosed with cholesteatoma do you have the surgery?? How do you afford the surgery once you get the appointment?? How dangerous is it?? Ilona Branum <ibranum@...> wrote: Hi, If you would tell us your location, I'm sure someone in the group could give you a recommedation for a doctor. Please ask any questions you have. This group is a wonderful source of information. Also, look at past messages and you might find answers to your questions there as well. Ilonajlynalderete <jlynalderete@...> wrote: Hi,i need to see if anyone can give me some advice on finding a good doctor to operate on cholesteatoma.I also would like to talk to someone about having cholesteatoma,I am scared and confused. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 3, 2008 Report Share Posted April 3, 2008 My pleasure...by the way, I think I may have the name of the Clearbrook Case Manager wrong...It may be Lucy... Ellen Ellen Garber Bronfeld egskb@... Need Help!!!!!! > > > Hi Fellow listmates. I am very sadly having to leave Little Friends > In- Home Support Program (because they are having to shut their doors > for in-home respite only), given the changes in the way the state > handles the child waiver program. A REALLY BIG QUESTION: > > 1) Does anyone use Clearbrook agency out of Arlington Heights (they > service many surrounding counties- DuPage being the one I reside > in)? Any positives or negatives would be VERY MUCH APPRECIATED (I > really should be making a determination within a few days. I turn to > you all for support- as I have been with Little Friends for about 10 > years and am now a born again rookie at these decisions. > > I realize many on this list are using the adult waiver- but I am > mainly wondering at this point- my son is 15 yo, about goods and bads > with this agency only, and in regards to the childrens In-Home > support state waiver. > > Diane S. > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 3, 2008 Report Share Posted April 3, 2008 Yes, Carl LaMell has done some very creative things at Clearbrook, under his leadership. There is a great resale shop that employs people with disabilities and a coffee shop. The partnership with The Hope Foundation to develop homes for people with autism and epilepsy actually is not the first creative collaboration. The Pals Program for more physically and cognitively challenged young adults came before it, some years ago. Ellen Ellen Garber Bronfeld egskb@... Need Help!!!!!! > > > > > > Hi Fellow listmates. I am very sadly having to leave Little > Friends > > In- Home Support Program (because they are having to shut their > doors > > for in-home respite only), given the changes in the way the state > > handles the child waiver program. A REALLY BIG QUESTION: > > > > 1) Does anyone use Clearbrook agency out of Arlington Heights > (they > > service many surrounding counties- DuPage being the one I reside > > in)? Any positives or negatives would be VERY MUCH APPRECIATED (I > > really should be making a determination within a few days. I turn > to > > you all for support- as I have been with Little Friends for about > 10 > > years and am now a born again rookie at these decisions. > > > > I realize many on this list are using the adult waiver- but I am > > mainly wondering at this point- my son is 15 yo, about goods and > bads > > with this agency only, and in regards to the childrens In-Home > > support state waiver. > > > > Diane S. > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
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