Re: Looking for BAHA information

[Guest guest]

Hi Marie

I am a BAHA user and have no problems with it, but then my view may be far different than that of a parent enquiring on behalf of their child, and different also than that of the child.

I would suggest you go over to the BAHA_PPL group here on and ask there, or go to the BUSK (BAHA Users Support founded in Kent) site - http://www.baha-users-support.com - and ask there for information and so on. This site, which offers worldwide support, is run by BUSK - a UK-based charity, set up for and by BAHA users and there are several parents in that group that may be able to help you. And there's the manufacturer's website too: www.entific.com - you can see how it would look on one of their pages there.

Good luck in your quest for information; I hope you find the answer that's right for you.

Kazzy

xx

Looking for BAHA information

Hi All,I'd like to talk to somebody out there who had BAHA experience. I'vebeen asking parents of HOH children how to deal with all the issuethat keep Curtis from wearing his aid (ear canal infections, ear wax,and on and on). Last year, he was probably unable to wear his aidabout 50% of the time. And this is really not enough for a child whois still in the learning phase of their life. So, a few times the BAHAhas been brought up... I understand that it is now FDA approved forchildren as young as 6 years old. But I am getting mixed messages...One ENT raised the issue in a very tentative way, and let me know thatour insurance now covers BAHA. When I asked our SCOE (Sonoma CountyOffice of Education) Deaf & Hard of Hearing services rep, she was verynegative about it. Said she's only seen it on children who weremissing an external ear to hang an aid off of, etc... So, I sent anemail to another group I am on, which is for parents of deaf/hohchildren, asking for info from a parent with a kid who has a BAHA...and the silence has been deafening! So, what's the story with the BAHA? On the surface, it seems like agood solution; leaves the ear open, better sound, etc... but there'sbut I'm clearly getting the feeling that there is a downside for kids.Can you tell me what it is? I understand the surgery is minor toinstall. Is it awful having it attached to your skin? What is the skinlike around where the implant is? (I knew a guy who broke his neck andhad a metal cage around his head for some time. It was attached to hisschool and the skin was just kind of open, he had to put vaseline typestuff on there to keep it from adhering to the metal. It WASaesthetically a little disturbing...)Any parents of kids with BAHAs out there? or adults with BAHAs whocare to speculate on a kid perspective, I'd love to hear from you.Marie

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[Guest guest]

Hey,

you've probably already seen this, but i thought i'd forward it anyway since it has information for children specifically: http://en.wikipedia.org/wiki/Bone_Anchored_Hearing_Aid#Surgical_Procedure

Good luckJasleen

From: "kazzy" <kazzy@...>Reply-cholesteatoma To: <cholesteatoma >Subject: Re: Looking for BAHA informationDate: Sat, 22 Sep 2007 08:03:56 +0100

Hi Marie

I am a BAHA user and have no problems with it, but then my view may be far different than that of a parent enquiring on behalf of their child, and different also than that of the child.

I would suggest you go over to the BAHA_PPL group here on and ask there, or go to the BUSK (BAHA Users Support founded in Kent) site - http://www.baha-users-support.com - and ask there for information and so on. This site, which offers worldwide support, is run by BUSK - a UK-based charity, set up for and by BAHA users and there are several parents in that group that may be able to help you. And there's the manufacturer's website too: www.entific.com - you can see how it would look on one of their pages there.

Good luck in your quest for information; I hope you find the answer that's right for you.

Kazzy

xx

Looking for BAHA information

Hi All,I'd like to talk to somebody out there who had BAHA experience. I'vebeen asking parents of HOH children how to deal with all the issuethat keep Curtis from wearing his aid (ear canal infections, ear wax,and on and on). Last year, he was probably unable to wear his aidabout 50% of the time. And this is really not enough for a child whois still in the learning phase of their life. So, a few times the BAHAhas been brought up... I understand that it is now FDA approved forchildren as young as 6 years old. But I am getting mixed messages...One ENT raised the issue in a very tentative way, and let me know thatour insurance now covers BAHA. When I asked our SCOE (Sonoma CountyOffice of Education) Deaf & Hard of Hearing services rep, she was verynegative about it. Said she's only seen it on children who weremissing an external ear to hang an aid off of, etc... So, I sent anemail to another group I am on, which is for parents of deaf/hohchildren, asking for info from a parent with a kid who has a BAHA...and the silence has been deafening! So, what's the story with the BAHA? On the surface, it seems like agood solution; leaves the ear open, better sound, etc... but there'sbut I'm clearly getting the feeling that there is a downside for kids.Can you tell me what it is? I understand the surgery is minor toinstall. Is it awful having it attached to your skin? What is the skinlike around where the implant is? (I knew a guy who broke his neck andhad a metal cage around his head for some time. It was attached to hisschool and the skin was just kind of open, he had to put vaseline typestuff on there to keep it from adhering to the metal. It WASaesthetically a little disturbing...)Any parents of kids with BAHAs out there? or adults with BAHAs whocare to speculate on a kid perspective, I'd love to hear from you.Marie--

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[Guest guest]

Thanks! I had not seen it. I am just beginning my research on this. It

was very helpful and I appreciate it.

Yours,

Marie