Guest guest Posted May 24, 1999 Report Share Posted May 24, 1999 , When I started the combo I took off 2 weeks to adjust. I ended up going back to work after 1 week. The first shot is always the hardest on you. Make sure you drink 1 gallon of water a day, the more water you drink the better you will feel. I am still working 40-50 hours a week and I am in my fourth month. Hopefully you will not have problems with anemia. That is what drains your energy. Good luck on your treatment. Hugs, Judy M Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 24, 1999 Report Share Posted May 24, 1999 Thanks for the info, Marie. I got the most wonderful news today and I just want to tell the world. If anyone remembers when I first joined this list we were having problems getting my husband on the medication and got turned down for financial assistance. (I have insurance. He doesn't.) Well, I called the drug company this morning and they said that we definitely qualify for the Commitment To Care program and after I get all the information to them he can start on the combo. I am so happy because he is so sick and tired all the time. He hardly ever feels like leaving the couch! Now, I know we still have a long way to go and there's a chance this might not work but I'm not even going to think about one thing negative. Things are finally working out for the best and I was beginning to think I might as well just give up. So, now I'll have tons more questions! One is, how many of yall and your spouse are both taking medication for Hep C? (if any) The guy at the drug co. that I talked to today said that alot of times in that situation the doctors recommend that you stagger your dose and one take it a few months before the other one starts. Thanks for listening to my story. I hope everyones has a GREAT day. Ray Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 24, 1999 Report Share Posted May 24, 1999 that is great news......And something I needed to hear for a friend out in California that is worried about the lack of insurance and HCV.....for the life of me I can't see waiting to get started but maybe it had to do with both of you going through the depression at the same time. But it sounds like he is there right now and maybe getting him started would help his energy level after the negative newness wears off. That being so sick you are planted on the couch is exactly what condition I was in. My house was an absolute wreck, and so was I. I am so much better now sometimes it just seems like being so sick was a dream.. Have a great day... Rowena Ray wrote: > From: jabsgirl@... ( Ray) > > Thanks for the info, Marie. I got the most wonderful news today and I > just want to tell the world. If anyone remembers when I first joined > this list we were having problems getting my husband on the medication > and got turned down for financial assistance. (I have insurance. He > doesn't.) Well, I called the drug company this morning and they said > that we definitely qualify for the Commitment To Care program and after > I get all the information to them he can start on the combo. I am so > happy because he is so sick and tired all the time. He hardly ever > feels like leaving the couch! Now, I know we still have a long way to > go and there's a chance this might not work but I'm not even going to > think about one thing negative. Things are finally working out for the > best and I was beginning to think I might as well just give up. So, > now I'll have tons more questions! One is, how many of yall and your > spouse are both taking medication for Hep C? (if any) The guy at the > drug co. that I talked to today said that alot of times in that > situation the doctors recommend that you stagger your dose and one take > it a few months before the other one starts. > Thanks for listening to my story. I hope everyones has a GREAT > day. > > Ray > > ------------------------------------------------------------------------ > ONElist: where real people with real interests get connected. > > Join a new list today! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 24, 1999 Report Share Posted May 24, 1999 Hi , The effects of the treatment are as individual as the people taking it. I have talked to people who experienced almost no side effects and were able to maintain their current lifestyle, to those who had such severe reactions that they had to quit. I think most people fall somewhere in the middle of this continuum. My brother Terry has been on combo treatment for a little over 4 weeks. He tried to work, but was not able to. Luckily, he has disablilty leave and is taking a couple of months off. The worst thing for him consistently is the unrelenting fatique. This has improved some, and from everything we hear, the symptoms typically ease up as the treatments continue. Good luck to you. Sandy Horne Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 24, 1999 Report Share Posted May 24, 1999 Ray, Congratulations, I'm so glad it worked out for you. I am waiting to hear if my insurance will okay a second opinion because the first specialist I saw is afraid to put me on the interferon because I was really depressed about a year ago. (I was drinking heavily at the time) I think I'll be able to handle the depression but then again you really don't know. It's a hard decision to make, I'm taking all the steps but leaving it in God's hands. I am very happy for you and I hope all goes well! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 25, 2009 Report Share Posted January 25, 2009 I'm due to go in for an operation in march to remove the cholesteatoma. I was wondering what i should expact after....will there be pain.....blood loss any horrible side affects? Ive had my cholesteatoma for 3 years, as anyone else had it for the same amount of time. Thank you if you can answer my question. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 25, 2009 Report Share Posted January 25, 2009 Hi! After my surgery to remove my cholesteatoma I did not have any pain that required pain pills - you will have drainage from your ear for several weeks - my jaw was very sore when it came to eating so I ate small bites and slowly - however, everyone is different. I am curious as to why you have waited 3 years before getting it removed? The longer a cholesteatoma stays in your ear the more damage it is performing. Best wishes for a smooth operation and recovery - mine was much better than I had expected. From: sim s <simonesmith@...>cholesteatoma Sent: Sunday, January 25, 2009 9:58:03 AMSubject: What should i expect? I'm due to go in for an operation in march to remove the cholesteatoma. I was wondering what i should expact after....will there be pain.....blood loss any horrible side affects?Ive had my cholesteatoma for 3 years, as anyone else had it for the same amount of time.Thank you if you can answer my question. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 25, 2009 Report Share Posted January 25, 2009 well, I've had five surgeries over the years and it was minimal pain. In fact, I usually only take one to two of the narcotics they give me after the surgery. I was a little dizzy, but it wasn't that bad for me on any of the occasions. I think the biggest problem was having to sleep on the good ear side. (I'm a side sleeper) But calm your worries. I had my first surgery in 2001 with 14 years in the military. I was able to stay healthy for the next seven years and retire. I was able to pass all my fitness exams and never had any more problem than the minimal dizziness. Unfortunately, I've never quite gotten over the dizziness. I have my sixth surgery this Tuesday. I think the most disturbing experience I had was after my first surgery. They removed a small portion of my mastoid. When I came to after the surgery, I remember someone leading over with their mask over their face saying, " It was a lot bigger than we thought. " I remember falling asleep thinking what do you mean....BIGGER. When I finally woke up I remember reaching for the side of my head and feeling the large packing around my left ear. Once the packing came off, I could feel where he drilled away the mastoid. It felt like a crater. But don't worry, after all these years it has mostly grown back. My Cholest.... was probably around for more than 3 years. It had wrapped around my hearing bones and as a result, I lost them. I have great conductivity hearing, which means that I can hear well with an aid. I will close with this bit of wisdom shared to me from my physician. Put your situation in perspective. A cholesteatoma could be a life threatening situation. They have found it and will remove it. They are going to give you a healthy ear again. You may lose hearing, but they will deal with that once they get you healthy. I hope this helps. > > I'm due to go in for an operation in march to remove the > cholesteatoma. I was wondering what i should expact after....will there > be pain.....blood loss any horrible side affects? > Ive had my cholesteatoma for 3 years, as anyone else had it for the > same amount of time. > Thank you if you can answer my question. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 26, 2009 Report Share Posted January 26, 2009 This will be my first surgery (hopefully the last) and i am 30. But it seems on here people have had more than one. How much hair do they shave off? It doesn't bother me too much but it's rather cold here and think is it worth buying a new hat? > > > > I'm due to go in for an operation in march to remove the > > cholesteatoma. I was wondering what i should expact after....will > there > > be pain.....blood loss any horrible side affects? > > Ive had my cholesteatoma for 3 years, as anyone else had it for the > > same amount of time. > > Thank you if you can answer my question. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 26, 2009 Report Share Posted January 26, 2009 They don't (didn't, for me) shave any hair off at all. They cut behind your ear lobeand it doesn't show much once it heals.Don't worry about the surgery...Not bad at all. I'll be having my 2nd surgery, but I'm comfortable facing it now compared to my first surgery, since I didn't know what to expect during the first one. Not much pain, I didn't take the vicodine theygave me after the first day. Extra strength tylenol was enough. Here is what you will experience:- They would advice you not to eat or drink for 12 hours pre-surgery- they'll give you anesthesia, through IV. They were asking me questions, the last I remember was answering some question. - You come out of the anesthesia.. just like coming out of sleep. ( I was scared of this part, since I have never experienced this, but it is not bad )- Might feel like vomiting, with some bitter taste in the throat, because of the anesthesia. But they gave me medications for that in the IV itself, and it subsided.- You go home- You will be feeling very sleepy, which is good for you...- May not be able to open your mouth wide. So, have some light soup, some crackers, etc. - You'll have a bandage around the ear, which can be removed the day after the surgery.- Some antibiotic packing will the there inside the ear canal, which will be removed during the post-op visit. It doesn't show out.. I went to work with this packing. - Just follow doctor's instructions after thatHope this helps,--kavithaOn Mon, Jan 26, 2009 at 6:19 AM, sim s <simonesmith@...> wrote: This will be my first surgery (hopefully the last) and i am 30. But it seems on here people have had more than one. How much hair do they shave off? It doesn't bother me too much but it's rather cold here and think is it worth buying a new hat? > > > > I'm due to go in for an operation in march to remove the > > cholesteatoma. I was wondering what i should expact after....will > there > > be pain.....blood loss any horrible side affects? > > Ive had my cholesteatoma for 3 years, as anyone else had it for the > > same amount of time. > > Thank you if you can answer my question. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 26, 2009 Report Share Posted January 26, 2009 Chloe's never had any hair shaved. I just put it in two french braids, and she comes back that way. I know in children, at least, the mastoid bone can grow back. On Mon, Jan 26, 2009 at 9:19 AM, sim s <simonesmith@...> wrote: This will be my first surgery (hopefully the last) and i am 30. Butit seems on here people have had more than one. How much hair do they shave off? It doesn't bother me too much butit's rather cold here and think is it worth buying a new hat?> >> > I'm due to go in for an operation in march to remove the> > cholesteatoma. I was wondering what i should expact after....will> there> > be pain.....blood loss any horrible side affects? > > Ive had my cholesteatoma for 3 years, as anyone else had it forthe> > same amount of time.> > Thank you if you can answer my question.> >>------------------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 26, 2009 Report Share Posted January 26, 2009 I think it varies by surgeon/hospital. My first doctor didn't warn me about the hair so I was shocked to find quite a bit missing when I took off the bandage. I just had my 3rd surgery with a different surgeon, and they hardly took any this time. My hair is shoulder length and you can't even tell unless I pull it up. But a good hat couldn't hurt in the winter cholesteatoma From: simonesmith@...Date: Mon, 26 Jan 2009 14:19:02 +0000Subject: Re: What should i expect? This will be my first surgery (hopefully the last) and i am 30. But it seems on here people have had more than one. How much hair do they shave off? It doesn't bother me too much but it's rather cold here and think is it worth buying a new hat?> >> > I'm due to go in for an operation in march to remove the > > cholesteatoma. I was wondering what i should expact after....will > there > > be pain.....blood loss any horrible side affects?> > Ive had my cholesteatoma for 3 years, as anyone else had it for the > > same amount of time.> > Thank you if you can answer my question.> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 26, 2009 Report Share Posted January 26, 2009 They cut a very small amount of hair behind my ear for the surgery - no one could tell it was such a small amount. I am 42 and have had one surgery but will have one more to make sure there is no more cholesteatoma (the doctor feels that he removed all of it but still wants to take a look and double check. Yes, people on this internet site have had a lot of surgery but if you notice they are small children - maybe it's the way children vs adults acquired their cholesteatomas(?) - not sure - but it is interesting. I feel like you - I am not a fan of surgery on a regular basis. I was a nervous wreck before I had my first and only surgery, so far, because I couldn't find any adults with a cholesteatoma - I did end up finding a few people - so I decided to take some pictures of myself before and after surgery so that other adults would have some idea of what others experience - below is the link to my you tube video if you want to see what I looked like before surgery and the next few hours after surgery. 1 Take Care! From: sim s <simonesmith@...>cholesteatoma Sent: Monday, January 26, 2009 8:19:02 AMSubject: Re: What should i expect? This will be my first surgery (hopefully the last) and i am 30. But it seems on here people have had more than one. How much hair do they shave off? It doesn't bother me too much but it's rather cold here and think is it worth buying a new hat?> >> > I'm due to go in for an operation in march to remove the > > cholesteatoma. I was wondering what i should expact after....will > there > > be pain.....blood loss any horrible side affects?> > Ive had my cholesteatoma for 3 years, as anyone else had it for the > > same amount of time.> > Thank you if you can answer my question.> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 26, 2009 Report Share Posted January 26, 2009 For me, it was probably an area of about 1 " x 2 " . It wasn't much and it grew back quickly. > From: sim s <simonesmith@...> > Subject: Re: What should i expect? > cholesteatoma > Date: Monday, January 26, 2009, 8:19 AM > This will be my first surgery (hopefully the last) and i am > 30. But > it seems on here people have had more than one. > How much hair do they shave off? It doesn't bother me > too much but > it's rather cold here and think is it worth buying a > new hat? > > > > > > > > > I'm due to go in for an operation in march to > remove the > > > cholesteatoma. I was wondering what i should > expact after....will > > there > > > be pain.....blood loss any horrible side affects? > > > Ive had my cholesteatoma for 3 years, as anyone > else had it for > the > > > same amount of time. > > > Thank you if you can answer my question. > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 26, 2009 Report Share Posted January 26, 2009 , I was 38 when I had my first surgery. In the last seven years is has filled in somewhat. It is the bone that grows. You can still feel the indentation, but it is nothing like after the surgery. Take care, Todd > From: Captain Definder <captaindefinder@...> > Subject: Re: Re: What should i expect? > cholesteatoma > Date: Monday, January 26, 2009, 7:58 AM > Todd, > > How old were you when you had your first surgery? I have > a small crater behind my ear where I have assumed the doctor > did his drilling from my surgery in Sept. 08 - I thought it > would always stay that way (no one can tell but me because > you can't see it) - I am kinda snickering to myself > wondering what is going to fill this crater in? Does it > just reshape itself? > > Have a great day! > > > > > > > ________________________________ > From: Toddinkorea <toddinkorea2007@...> > cholesteatoma > Sent: Sunday, January 25, 2009 1:56:32 PM > Subject: Re: What should i expect? > > > well, I've had five surgeries over the years and it was > minimal pain. > In fact, I usually only take one to two of the narcotics > they give me > after the surgery. I was a little dizzy, but it wasn't > that bad for > me on any of the occasions. I think the biggest problem was > having to > sleep on the good ear side. (I'm a side sleeper) > > But calm your worries. I had my first surgery in 2001 with > 14 years > in the military. I was able to stay healthy for the next > seven years > and retire. I was able to pass all my fitness exams and > never had any > more problem than the minimal dizziness. Unfortunately, > I've never > quite gotten over the dizziness. I have my sixth surgery > this > Tuesday. > > I think the most disturbing experience I had was after my > first > surgery. They removed a small portion of my mastoid. When I > came to > after the surgery, I remember someone leading over with > their mask > over their face saying, " It was a lot bigger than we > thought. " I > remember falling asleep thinking what do you > mean....BIGGER. When I > finally woke up I remember reaching for the side of my head > and > feeling the large packing around my left ear. > > Once the packing came off, I could feel where he drilled > away the > mastoid. It felt like a crater. But don't worry, after > all these > years it has mostly grown back. > > My Cholest.... was probably around for more than 3 years. > It had > wrapped around my hearing bones and as a result, I lost > them. I have > great conductivity hearing, which means that I can hear > well with an > aid. > > I will close with this bit of wisdom shared to me from my > physician. > Put your situation in perspective. A cholesteatoma could be > a life > threatening situation. They have found it and will remove > it. They > are going to give you a healthy ear again. You may lose > hearing, but > they will deal with that once they get you healthy. I hope > this > helps. > > > > > I'm due to go in for an operation in march to > remove the > > cholesteatoma. I was wondering what i should expact > after....will > there > > be pain.....blood loss any horrible side affects? > > Ive had my cholesteatoma for 3 years, as anyone else > had it for the > > same amount of time. > > Thank you if you can answer my question. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 26, 2009 Report Share Posted January 26, 2009 As for the number of surgeries, it really depends on your experience. I had one to clean out the cholesteatoma and six months later they added a prosthesis. A few years later I had it removed because it had moved and was causing me dizziness. A few years later I had a doctor recommend a tube. I had it installed and it fell out. After that I had a doctor talk me into another prosthesis. The dizziness returned and I had it removed a year ago. Unfortunately, my ear drum developed a hole in it and is curling the tissue back into the ear. So, tomorrow I get the pleasure of undergoing another procedure to fix the eardrum, rebuild the ear canal and anything else the surgeon believes should be repaired. Not fun, but it's necessary. If I could skip them I would. I will never have another prosthesis installed!!! > > > > > > I'm due to go in for an operation in march to remove the > > > cholesteatoma. I was wondering what i should expact after....will > > there > > > be pain.....blood loss any horrible side affects? > > > Ive had my cholesteatoma for 3 years, as anyone else had it for > the > > > same amount of time. > > > Thank you if you can answer my question. > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 26, 2009 Report Share Posted January 26, 2009 As for the number of surgeries, it really depends on your experience. I had one to clean out the cholesteatoma and six months later they added a prosthesis. A few years later I had it removed because it had moved and was causing me dizziness. A few years later I had a doctor recommend a tube. I had it installed and it fell out. After that I had a doctor talk me into another prosthesis. The dizziness returned and I had it removed a year ago. Unfortunately, my ear drum developed a hole in it and is curling the tissue back into the ear. So, tomorrow I get the pleasure of undergoing another procedure to fix the eardrum, rebuild the ear canal and anything else the surgeon believes should be repaired. Not fun, but it's necessary. If I could skip them I would. I will never have another prosthesis installed!!! > > > > > > I'm due to go in for an operation in march to remove the > > > cholesteatoma. I was wondering what i should expact after....will > > there > > > be pain.....blood loss any horrible side affects? > > > Ive had my cholesteatoma for 3 years, as anyone else had it for > the > > > same amount of time. > > > Thank you if you can answer my question. > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 26, 2009 Report Share Posted January 26, 2009 Thanks for the info on the prosthesis. My doctor wants to put a prosthesis in at the next surgery but I am going for a hearing aid instead. I have had lots of problem with disequalibrium since July 2008 and do not needed anything that could add to it. From: Toddinkorea <toddinkorea2007@...>cholesteatoma Sent: Monday, January 26, 2009 7:30:43 PMSubject: Re: What should i expect? As for the number of surgeries, it really depends on your experience. I had one to clean out the cholesteatoma and six months later they added a prosthesis. A few years later I had it removed because it had moved and was causing me dizziness. A few years later I had a doctor recommend a tube. I had it installed and it fell out. After that I had a doctor talk me into another prosthesis. The dizziness returned and I had it removed a year ago. Unfortunately, my ear drum developed a hole in it and is curling the tissue back into the ear. So, tomorrow I get the pleasure of undergoing another procedure to fix the eardrum, rebuild the ear canal and anything else the surgeon believes should be repaired. Not fun, but it's necessary. If I could skip them I would. I will never have another prosthesis installed!!!> > >> > > I'm due to go in for an operation in march to remove the > > > cholesteatoma. I was wondering what i should expact after....will > > there > > > be pain.....blood loss any horrible side affects?> > > Ive had my cholesteatoma for 3 years, as anyone else had it for > the > > > same amount of time.> > > Thank you if you can answer my question.> > >> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 26, 2009 Report Share Posted January 26, 2009 -- - In cholesteatoma , " sim s " <simonesmith@...> wrote: >Hi, I've had 2 surgeries now, the first one the doctor went in thru the front of the ear, the second he drilled thru the bone behind the ear. You really can't see any scarring. I don't have any bone loss behind the ear at all, and he never shaved any hair. You may want to ask your doctor about how he's planning on doing the surgery first, as I've heard that sometimes they do shave behind the ear. Perhaps it depends on the doctors preference. After surgery you can expect some pain (not severe) and some dizziness. You might have a sore jaw for a while, but I only had that with the first surgery. The worst thing was the bandage around my head, the drainage from the ear, and the itching in the ear canal. After the packing is removed it feels much better! Some doctors use a dissolvable packing, mine doesn't. When the packing is removed it may be painful, so be prepared for that and take your painkillers beforehand. If you have any hearing in your cholesteatoma ear, expect not to hear anything following surgery, especially while the ear is full of packing. You may also experience ringing in your ear and a kind of echoing sound. I found this got better after packing removal. Hope this helps. Good luck with your surgery. Jackie > I'm due to go in for an operation in march to remove the > cholesteatoma. I was wondering what i should expact after....will there > be pain.....blood loss any horrible side affects? > Ive had my cholesteatoma for 3 years, as anyone else had it for the > same amount of time. > Thank you if you can answer my question. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 27, 2009 Report Share Posted January 27, 2009 Well, I'm sitting here in my home after having my surgery today. I can report a good appetite, minor dizziness and little to know pain. It does not ache, just occasional pain. I don't want to say anything to anyone, but it seems like the dizziness might actually be better. WOW!!! It was a 2 1/2 hour surgery and unfortunately they did find some more cholesteatoma. All in all, I feel the surgery was a success. Keep your head up and don't worry too much. BTW...they did install a prosthesis. I wasn't too happy about it, but honestly, I think the dizziness is better, so maybe the doctor knows best. I also have a new ear drum. I'm glad it is over. Take care and best wishes!!! > From: Captain Definder <captaindefinder@...> > Subject: Re: Re: What should i expect? > cholesteatoma > Date: Monday, January 26, 2009, 8:13 PM > Thanks for the info on the prosthesis. My doctor wants to > put a prosthesis in at the next surgery but I am going for a > hearing aid instead. I have had lots of problem with > disequalibrium since July 2008 and do not needed anything > that could add to it. > > > > > ________________________________ > From: Toddinkorea <toddinkorea2007@...> > cholesteatoma > Sent: Monday, January 26, 2009 7:30:43 PM > Subject: Re: What should i expect? > > > As for the number of surgeries, it really depends on your > experience. > I had one to clean out the cholesteatoma and six months > later they > added a prosthesis. A few years later I had it removed > because it had > moved and was causing me dizziness. A few years later I had > a doctor > recommend a tube. I had it installed and it fell out. After > that I > had a doctor talk me into another prosthesis. The dizziness > returned > and I had it removed a year ago. Unfortunately, my ear drum > developed > a hole in it and is curling the tissue back into the ear. > So, > tomorrow I get the pleasure of undergoing another procedure > to fix the > eardrum, rebuild the ear canal and anything else the > surgeon believes > should be repaired. Not fun, but it's necessary. If I > could skip > them I would. I will never have another prosthesis > installed!!! > > > > > > > > > I'm due to go in for an operation in > march to remove the > > > > cholesteatoma. I was wondering what i should > expact > after....will > > > there > > > > be pain.....blood loss any horrible side > affects? > > > > Ive had my cholesteatoma for 3 years, as > anyone else had it for > > the > > > > same amount of time. > > > > Thank you if you can answer my question. > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 27, 2009 Report Share Posted January 27, 2009 Todd, There are quite a few of us that have a prosthesis and things are just fine. It's very important to remember that each case can be very different. What works for one patient will not for another. Your dizziness may be a little like mine was. The more I walked (strolled .... no hurry), the better I felt. Just be careful not to get dehydrated or you'll start to feel really crummy (and dizzy too). Try an 8 ounce drink for every hour you're awake. You'll need to go to the bathroom a lot, but that only helps to work out the anesthetic. All the best, Matt Todd1 Underwood wrote: > > Well, I'm sitting here in my home after having my surgery today. I can > report a good appetite, minor dizziness and little to know pain. It > does not ache, just occasional pain. I don't want to say anything to > anyone, but it seems like the dizziness might actually be better. WOW!!! > > It was a 2 1/2 hour surgery and unfortunately they did find some more > cholesteatoma. All in all, I feel the surgery was a success. Keep your > head up and don't worry too much. BTW...they did install a prosthesis. > I wasn't too happy about it, but honestly, I think the dizziness is > better, so maybe the doctor knows best. > > I also have a new ear drum. I'm glad it is over. Take care and best > wishes!!! > > > > > From: Captain Definder <captaindefinder@... > <mailto:captaindefinder%40>> > > Subject: Re: Re: What should i expect? > > cholesteatoma > <mailto:cholesteatoma%40> > > Date: Monday, January 26, 2009, 8:13 PM > > Thanks for the info on the prosthesis. My doctor wants to > > put a prosthesis in at the next surgery but I am going for a > > hearing aid instead. I have had lots of problem with > > disequalibrium since July 2008 and do not needed anything > > that could add to it. > > > > > > > > > > ________________________________ > > From: Toddinkorea <toddinkorea2007@... > <mailto:toddinkorea2007%40>> > > cholesteatoma > <mailto:cholesteatoma%40> > > Sent: Monday, January 26, 2009 7:30:43 PM > > Subject: Re: What should i expect? > > > > > > As for the number of surgeries, it really depends on your > > experience. > > I had one to clean out the cholesteatoma and six months > > later they > > added a prosthesis. A few years later I had it removed > > because it had > > moved and was causing me dizziness. A few years later I had > > a doctor > > recommend a tube. I had it installed and it fell out. After > > that I > > had a doctor talk me into another prosthesis. The dizziness > > returned > > and I had it removed a year ago. Unfortunately, my ear drum > > developed > > a hole in it and is curling the tissue back into the ear. > > So, > > tomorrow I get the pleasure of undergoing another procedure > > to fix the > > eardrum, rebuild the ear canal and anything else the > > surgeon believes > > should be repaired. Not fun, but it's necessary. If I > > could skip > > them I would. I will never have another prosthesis > > installed!!! > > > > > > > > > > > > I'm due to go in for an operation in > > march to remove the > > > > > cholesteatoma. I was wondering what i should > > expact > > after....will > > > > there > > > > > be pain.....blood loss any horrible side > > affects? > > > > > Ive had my cholesteatoma for 3 years, as > > anyone else had it for > > > the > > > > > same amount of time. > > > > > Thank you if you can answer my question. > > > > > > > > > > > > > > -- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 28, 2009 Report Share Posted January 28, 2009 Glad to hear you are doing well. Get lots of rest and take care. From: Todd1 Underwood <toddinkorea2007@...>cholesteatoma Sent: Tuesday, January 27, 2009 10:24:05 PMSubject: Re: Re: What should i expect? Well, I'm sitting here in my home after having my surgery today. I can report a good appetite, minor dizziness and little to know pain. It does not ache, just occasional pain. I don't want to say anything to anyone, but it seems like the dizziness might actually be better. WOW!!!It was a 2 1/2 hour surgery and unfortunately they did find some more cholesteatoma. All in all, I feel the surgery was a success. Keep your head up and don't worry too much. BTW...they did install a prosthesis. I wasn't too happy about it, but honestly, I think the dizziness is better, so maybe the doctor knows best.I also have a new ear drum. I'm glad it is over. Take care and best wishes!!!> From: Captain Definder <captaindefinder>> Subject: Re: Re: What should i expect?> cholesteatoma> Date: Monday, January 26, 2009, 8:13 PM> Thanks for the info on the prosthesis. My doctor wants to> put a prosthesis in at the next surgery but I am going for a> hearing aid instead. I have had lots of problem with> disequalibrium since July 2008 and do not needed anything> that could add to it.> > > > > ____________ _________ _________ __> From: Toddinkorea <toddinkorea2007>> cholesteatoma> Sent: Monday, January 26, 2009 7:30:43 PM> Subject: Re: What should i expect?> > > As for the number of surgeries, it really depends on your> experience. > I had one to clean out the cholesteatoma and six months> later they > added a prosthesis. A few years later I had it removed> because it had > moved and was causing me dizziness. A few years later I had> a doctor > recommend a tube. I had it installed and it fell out. After> that I > had a doctor talk me into another prosthesis. The dizziness> returned > and I had it removed a year ago. Unfortunately, my ear drum> developed > a hole in it and is curling the tissue back into the ear.> So, > tomorrow I get the pleasure of undergoing another procedure> to fix the > eardrum, rebuild the ear canal and anything else the> surgeon believes > should be repaired. Not fun, but it's necessary. If I> could skip > them I would. I will never have another prosthesis> installed!!!> > > > >> > > > I'm due to go in for an operation in> march to remove the > > > > cholesteatoma. I was wondering what i should> expact > after....will > > > there > > > > be pain.....blood loss any horrible side> affects?> > > > Ive had my cholesteatoma for 3 years, as> anyone else had it for > > the > > > > same amount of time.> > > > Thank you if you can answer my question.> > > >> > >> > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 28, 2009 Report Share Posted January 28, 2009 Thanks Matt, I appreciate the guidance. This was my sixth surgery and third prosthesis. --- On Wed, 1/28/09, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 30, 2009 Report Share Posted January 30, 2009 In my case, they didn't shave, they just buzzed it down a bit around the ear so it wouldn't get in the way. You'll be glad they did if they use glue rather than stitches. I recommend the glue. I did have it separate once and required steri-strips, but no major problems. With the glue, you might get a spot that the glue kept the skin separated a bit from going in the wound, but it sorts itself out. Trust me. Five surgeries and you can't even see the scars. Whether it will be your last will depend mostly on the damage the c- toma has cause. If you save your bones...major kudos to you. You may require another to make sure no further growth has occurred. If you lose your bones then that is a whole different story. Ossicular Reconstruction could require multiple depending on success or fail. > > > > > > I'm due to go in for an operation in march to remove the > > > cholesteatoma. I was wondering what i should expact after....will > > there > > > be pain.....blood loss any horrible side affects? > > > Ive had my cholesteatoma for 3 years, as anyone else had it for > the > > > same amount of time. > > > Thank you if you can answer my question. > > > > > > Quote Link to comment Share on other sites More sharing options...
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