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How far are you from 's Hopkins in Baltimore, MD? I had my c-toma removed by them in April, and thus far have no reoccurence in followup visits. Next visit is not until Nov.

update on Dizziness

Hi all,About a months ago I wrote the group that I was experiencing dizzeness. Well, after all this time, I'm doing not much better. I 'm being referred to a ENT surgeon about 3 hours from here at the University of WV at town.The regular ENT told me that the mastoid cavity needs to be cleaned out surgically and tissue grafted. My appointment is on the 27th of this month for the first visit in town.- I'm feeling terrible. My head is under a lot of pressure and I constantly feel like I"m going out. I have a bloody , wet discharge form my ear. There is numbness in my face, especially across the nose and the jaw area.- What can I do until the 27th to eleviate the symptoms? I'm barely functional . I have tried everything to move the appointment up to an earlier date but the 27th is the best they can do.In the meantime I had a pacemaker put in the regulate my heartbeat. It was beating too

slow. ..I have no history of heart problem, even though my heart rate has always been on the slow rate, but not in an unhealthy way. All my bloodtests come out perfect ( cholesterol, etc..) for some reason the electrical part of my heart is not functioning properly. The doctors say they don't know what caused it. But I'm wondering if pressure on my head ( or nerves) from the ear could have caused myheart problems??? I'm 52 and my heart should not be "old" and just stop working:-(If anybody can help, or comment I would really appreaciate it. Thanks in advance.Elke

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You are very fortunate, , s Hopkins is rated #1 on the US News & World

Report

Best Hospitals 2007 list in the Ear Nose & Throat Category! Here's the link:

http://health.usnews.com/usnews/health/best-hospitals/search.php?spec=ihqotol &

The sidebar on this US News page has a Search By State option also that is

helpful.

I'm new to this group and to c-tomas, I was just diagnosed last week with one in

my left

ear. I'm very thankful for this group and all the excellent advice!

Elke, I don't know your situation because I just joined and picked up your

message thread

today. Have you had a CT scan of your ear and audiology test yet? That will

save time if

you have that done before your appointment with the ear surgeon. It might also

help the

doctor see if there's anything going on with a carotid artery while they're

evaluating your

middle ear. I'm not a doctor but I believe the carotid artery runs through the

middle ear

cavity and provides blood flow to the middle ear, brain and heart. I'd be

checking that out

with the cardiologist who implanted your pacemaker and also with the ear

surgeon. Does

your regular ENT have you on antibiotics for the ear discharge or are they

normally

prescribed for c-tomas or is that not a good idea with a pacemaker... I've much

to learn.

You're absolutely right, your heart should not be considered " old " at 52! With

the dizziness

and facial numbness you described, I'd be calling other hospitals & describing

the

symptoms. Ask your cardiologist to fast-track a referral for you if possible.

Also, I'm told that otologists/neurotologists are the most knowledgeable about

cholesteatomas, usually more than ENT docs or otolaryngologists, since

otologists focus

only on treatment of diseases of the ear. Best of luck to you!

Blessed weekend to everyone!

Marie

>

> How far are you from 's Hopkins in Baltimore, MD? I had my c-toma removed

by

them in April, and thus far have no reoccurence in followup visits. Next visit

is not until

Nov.

>

>

> update on Dizziness

>

> Hi all,

> About a months ago I wrote the group that I was experiencing dizzeness.

> Well, after all this time, I'm doing not much better. I 'm being

> referred to a ENT surgeon about 3 hours from here at the University of

> WV at town.The regular ENT told me that the mastoid cavity needs

> to be cleaned out surgically and tissue grafted. My appointment is on

> the 27th of this month for the first visit in town.- I'm feeling

> terrible. My head is under a lot of pressure and I constantly feel like

> I " m going out. I have a bloody , wet discharge form my ear. There is

> numbness in my face, especially across the nose and the jaw area.- What

> can I do until the 27th to eleviate the symptoms? I'm barely functional

> . I have tried everything to move the appointment up to an earlier date

> but the 27th is the best they can do.

> In the meantime I had a pacemaker put in the regulate my heartbeat. It

> was beating too slow. ..I have no history of heart problem, even though

> my heart rate has always been on the slow rate, but not in an unhealthy

> way. All my bloodtests come out perfect ( cholesterol, etc..) for some

> reason the electrical part of my heart is not functioning properly. The

> doctors say they don't know what caused it. But I'm wondering if

> pressure on my head ( or nerves) from the ear could have caused myheart

> problems??? I'm 52 and my heart should not be " old " and just stop working:-(

> If anybody can help, or comment I would really appreaciate it. Thanks in

> advance.

> Elke

>

>

>

>

>

>

>

________________________________________________________________________________\

____

> Looking for a deal? Find great prices on flights and hotels with

FareChase.

> http://farechase./

>

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*Hi Elke,

This doctor at WVU has pretty impressive credentials:

J Wetmore MD

Hopefully he'll be involved with your care - either directly or

assisting a younger doctor (he is the department chair). He did

additional study at the same place where Dr. Hirsch in Pittsburgh (my

otologist/neurotologist) did.

I hope that the coming week passes quickly for you. Perhaps you should

touch base with your family doctor and ask them to give the folks at

WVU a patient history.

Matt

*

Wann wrote:

> How far are you from 's Hopkins in Baltimore, MD? I had my c-toma

> removed by them in April, and thus far have no reoccurence in followup

> visits. Next visit is not until Nov.

>

> update on Dizziness

>

> Hi all,

> About a months ago I wrote the group that I was experiencing dizzeness.

> Well, after all this time, I'm doing not much better. I 'm being

> referred to a ENT surgeon about 3 hours from here at the University of

> WV at town.The regular ENT told me that the mastoid cavity needs

> to be cleaned out surgically and tissue grafted. My appointment is on

> the 27th of this month for the first visit in town.- I'm feeling

> terrible. My head is under a lot of pressure and I constantly feel like

> I " m going out. I have a bloody , wet discharge form my ear. There is

> numbness in my face, especially across the nose and the jaw area.- What

> can I do until the 27th to eleviate the symptoms? I'm barely functional

> . I have tried everything to move the appointment up to an earlier date

> but the 27th is the best they can do.

> In the meantime I had a pacemaker put in the regulate my heartbeat. It

> was beating too slow. ..I have no history of heart problem, even though

> my heart rate has always been on the slow rate, but not in an unhealthy

> way. All my bloodtests come out perfect ( cholesterol, etc..) for some

> reason the electrical part of my heart is not functioning properly. The

> doctors say they don't know what caused it. But I'm wondering if

> pressure on my head ( or nerves) from the ear could have caused myheart

> problems??? I'm 52 and my heart should not be " old " and just stop

> working:-(

> If anybody can help, or comment I would really appreaciate it. Thanks in

> advance.

> Elke

>

>

>

> ------------------------------------------------------------------------

> Fussy? Opinionated? Impossible to please? Perfect. Join 's user

> panel

>

<http://us.rd./evt=48516/*http://surveylink./gmrs/_panel_\

invite.asp?a=7%20>

> and lay it on us.

>

--

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Hi Elke I hope you end up feeling much better. I had some of the same things as far as the bleeding from the ear and not quite the facial numbness, but the whole right side of my face hurt very very bad 2 years ago on Chrstmas Eve. I went to the emergency room got on meds and they set up an appointment to see a specialist I was told that I had c-toma and the surgeon said if I don't have the surgery there is a possibility of the eardrum bursting. I was very dizzy for me it was only a month but that is still a very long time to have the dizziness. I am from the west coast though in Portland, Oregon. The surgeon that did the surgery on my ear is Mrs. Cleland Zumudio I believe that is the correct spellilng. I am not sure what her number is just yet but if anyone reading this would lke her number for surgery then send me an email at BCTIGUY3@... I hope you feel better very

soon Elke and definately take it easy and get the surgery it will help out a lot. adsatlanta <mariehicks@...> wrote: You are very fortunate, , s Hopkins is rated #1 on the US News & World Report Best Hospitals 2007 list in the Ear Nose & Throat Category! Here's the link:http://health.usnews.com/usnews/health/best-hospitals/search.php?spec=ihqotol & The sidebar on this US News page has a Search By State option also that is helpful. I'm new to this group and to c-tomas, I was just diagnosed last week with one in my left ear. I'm very thankful for this group and all the excellent advice!Elke, I don't know your situation because I just joined and picked up your message thread today. Have you had a CT scan of your ear and audiology test yet? That will save time if you have that done before your appointment with the ear surgeon. It might also help the doctor see if there's anything going on with a carotid artery while they're evaluating your middle ear. I'm not a doctor but I believe the carotid artery runs through the middle ear cavity and provides blood flow to the middle ear,

brain and heart. I'd be checking that out with the cardiologist who implanted your pacemaker and also with the ear surgeon. Does your regular ENT have you on antibiotics for the ear discharge or are they normally prescribed for c-tomas or is that not a good idea with a pacemaker... I've much to learn.You're absolutely right, your heart should not be considered "old" at 52! With the dizziness and facial numbness you described, I'd be calling other hospitals & describing the symptoms. Ask your cardiologist to fast-track a referral for you if possible.Also, I'm told that otologists/neurotologists are the most knowledgeable about cholesteatomas, usually more than ENT docs or otolaryngologists, since otologists focus only on treatment of diseases of the ear. Best of luck to you!Blessed weekend to everyone!Marie>> How far are you from 's Hopkins in Baltimore, MD? I had my c-toma removed by them in April, and thus far have no reoccurence in followup visits. Next visit is not until Nov.> > > update on Dizziness> > Hi all,> About a months ago I wrote the group that I was experiencing dizzeness. > Well, after all this time, I'm doing not much better. I 'm being > referred to a ENT surgeon about 3 hours from here at the University of > WV at town.The regular ENT told me that the mastoid cavity needs

> to be cleaned out surgically and tissue grafted. My appointment is on > the 27th of this month for the first visit in town.- I'm feeling > terrible. My head is under a lot of pressure and I constantly feel like > I"m going out. I have a bloody , wet discharge form my ear. There is > numbness in my face, especially across the nose and the jaw area.- What > can I do until the 27th to eleviate the symptoms? I'm barely functional > . I have tried everything to move the appointment up to an earlier date > but the 27th is the best they can do.> In the meantime I had a pacemaker put in the regulate my heartbeat. It > was beating too slow. ..I have no history of heart problem, even though > my heart rate has always been on the slow rate, but not in an unhealthy > way. All my bloodtests come out perfect ( cholesterol, etc..) for some > reason the electrical part of my heart is not

functioning properly. The > doctors say they don't know what caused it. But I'm wondering if > pressure on my head ( or nerves) from the ear could have caused myheart > problems??? I'm 52 and my heart should not be "old" and just stop working:-(> If anybody can help, or comment I would really appreaciate it. Thanks in > advance.> Elke> > > > > > > __________________________________________________________> Looking for a deal? Find great prices on flights and hotels with FareChase.> http://farechase./>

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Hi Matt,

Yes-my appointment is with Dr. Wetmore himself !! I have not even had

the energy to look up his credentials, so thank you ! I will call

tomorrow morning to see if anyone cancelled an appointment , perhaps

I'm able to move it up further.

Last Friday I ended up in the emergency room again. Neither my ENT nor

my family doctor could figure out if my symptoms were caused by the ear

or the heart-I asked the emergency physician to call dr. Wetmore's

office to see if I could be seen earlier, but they just want . :-( But

I was given a prescription of "Antivert" which seems to help a little

bit. Is it ok to take for a week or so?

-land is too far from us. It would be at least a 10 hour

ride. We have pets and livestock to take care of and I have not been

able to find someone to do the chores for us if we leave for long

periods of time. I'm not willing to give the animals up at this point.

We already sold most of them over the last few months-what's left is

considered "family" :-)

Elke

Matt Marsteller wrote:

*Hi Elke,

This doctor at WVU has pretty impressive credentials:

J Wetmore MD

Hopefully he'll be involved with your care - either directly or

assisting a younger doctor (he is the department chair). He did

additional study at the same place where Dr. Hirsch in Pittsburgh (my

otologist/neurotologist) did.

I hope that the coming week passes quickly for you. Perhaps you should

touch base with your family doctor and ask them to give the folks at

WVU a patient history.

Matt

*

Wann wrote:

> How far are you from 's Hopkins in Baltimore, MD? I had my

c-toma

> removed by them in April, and thus far have no reoccurence in

followup

> visits. Next visit is not until Nov.

>

> update on Dizziness

>

> Hi all,

> About a months ago I wrote the group that I was experiencing

dizzeness.

> Well, after all this time, I'm doing not much better. I 'm being

> referred to a ENT surgeon about 3 hours from here at the

University of

> WV at town.The regular ENT told me that the mastoid cavity

needs

> to be cleaned out surgically and tissue grafted. My appointment is

on

> the 27th of this month for the first visit in town.- I'm

feeling

> terrible. My head is under a lot of pressure and I constantly feel

like

> I"m going out. I have a bloody , wet discharge form my ear. There

is

> numbness in my face, especially across the nose and the jaw area.-

What

> can I do until the 27th to eleviate the symptoms? I'm barely

functional

> . I have tried everything to move the appointment up to an earlier

date

> but the 27th is the best they can do.

> In the meantime I had a pacemaker put in the regulate my

heartbeat. It

> was beating too slow. ..I have no history of heart problem, even

though

> my heart rate has always been on the slow rate, but not in an

unhealthy

> way. All my bloodtests come out perfect ( cholesterol, etc..) for

some

> reason the electrical part of my heart is not functioning

properly. The

> doctors say they don't know what caused it. But I'm wondering if

> pressure on my head ( or nerves) from the ear could have caused

myheart

> problems??? I'm 52 and my heart should not be "old" and just stop

> working:-(

> If anybody can help, or comment I would really appreaciate it.

Thanks in

> advance.

> Elke

>

>

>

> ----------------------------------------------------------

> Fussy? Opinionated? Impossible to please? Perfect. Join 's

user

> panel

> <http://us.rd./evt=48516/*http://surveylink./gmrs/_panel_invite.asp?a=7%20>

> and lay it on us.

>

--

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Hi Elke,

It sounds like they've put you in good hands. I guess the Antivert is

to help with your nausea - it's often given for motion sickness. It

might make you a little sleepy, a little thirsty, and your vision might

be a little blurrier than normal because of taking it. I think you're

just going to have to trust the doctors to do the prescribing. I'm just

a cholesteatoma patient like yourself - even though I'm head of a couple

of science libraries, I'd never heard of cholesteatoma until wham - I

was diagnosed.

Then I started reading all I could about it until I drove everyone nuts

.... they started hiding the medical encyclopedias ... my wife wouldn't

let me go on any medical web sites, etc. My advice is to consider a

nice stretch of Classic Movies or something like that while you

wait. It will help take your mind off of things. There's nothing like

dusk to dawn Steve McQueen movies to pass the time.

Matt

Elke wrote:

>

> Hi Matt,

> Yes-my appointment is with Dr. Wetmore himself !! I have not even had

> the energy to look up his credentials, so thank you ! I will call

> tomorrow morning to see if anyone cancelled an appointment , perhaps

> I'm able to move it up further.

> Last Friday I ended up in the emergency room again. Neither my ENT nor

> my family doctor could figure out if my symptoms were caused by the

> ear or the heart-I asked the emergency physician to call dr. Wetmore's

> office to see if I could be seen earlier, but they just want . :-( But

> I was given a prescription of " Antivert " which seems to help a little

> bit. Is it ok to take for a week or so?

> -land is too far from us. It would be at least a 10 hour

> ride. We have pets and livestock to take care of and I have not been

> able to find someone to do the chores for us if we leave for long

> periods of time. I'm not willing to give the animals up at this point.

> We already sold most of them over the last few months-what's left is

> considered " family " :-)

> Elke

>

> Matt Marsteller wrote:

>

>> *Hi Elke,

>>

>> This doctor at WVU has pretty impressive credentials:

>>

>> J Wetmore MD

>>

>> Hopefully he'll be involved with your care - either directly or

>> assisting a younger doctor (he is the department chair). He did

>> additional study at the same place where Dr. Hirsch in Pittsburgh (my

>> otologist/neurotologist) did.

>>

>> I hope that the coming week passes quickly for you. Perhaps you should

>> touch base with your family doctor and ask them to give the folks at

>> WVU a patient history.

>>

>> Matt

>> *

>>

>> Wann wrote:

>> > How far are you from 's Hopkins in Baltimore, MD? I had my c-toma

>> > removed by them in April, and thus far have no reoccurence in followup

>> > visits. Next visit is not until Nov.

>> >

>> > update on Dizziness

>> >

>> > Hi all,

>> > About a months ago I wrote the group that I was experiencing dizzeness.

>> > Well, after all this time, I'm doing not much better. I 'm being

>> > referred to a ENT surgeon about 3 hours from here at the University of

>> > WV at town.The regular ENT told me that the mastoid cavity needs

>> > to be cleaned out surgically and tissue grafted. My appointment is on

>> > the 27th of this month for the first visit in town.- I'm feeling

>> > terrible. My head is under a lot of pressure and I constantly feel like

>> > I " m going out. I have a bloody , wet discharge form my ear. There is

>> > numbness in my face, especially across the nose and the jaw area.- What

>> > can I do until the 27th to eleviate the symptoms? I'm barely functional

>> > . I have tried everything to move the appointment up to an earlier date

>> > but the 27th is the best they can do.

>> > In the meantime I had a pacemaker put in the regulate my heartbeat. It

>> > was beating too slow. ..I have no history of heart problem, even though

>> > my heart rate has always been on the slow rate, but not in an unhealthy

>> > way. All my bloodtests come out perfect ( cholesterol, etc..) for some

>> > reason the electrical part of my heart is not functioning properly. The

>> > doctors say they don't know what caused it. But I'm wondering if

>> > pressure on my head ( or nerves) from the ear could have caused myheart

>> > problems??? I'm 52 and my heart should not be " old " and just stop

>> > working:-(

>> > If anybody can help, or comment I would really appreaciate it.

>> Thanks in

>> > advance.

>> > Elke

>> >

>> >

>> >

>> > ----------------------------------------------------------

>> > Fussy? Opinionated? Impossible to please? Perfect. Join 's user

>> > panel

>> >

>>

<http://us.rd./evt=48516/*http://surveylink./gmrs/_panel_\

invite.asp?a=7%20

>>

<http://us.rd./evt=48516/*http://surveylink./gmrs/_panel_\

invite.asp?a=7%20>>

>>

>> > and lay it on us.

>> >

>>

>> --

>>

>>

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Hi Elke,

I, too, had a lot of pressure in my head - in fact that was why I

finally went to the doctor - non-stop headache pain. He was able to

use a suction tool to remove as much liquid and c'toma as he could

reach through my ear canal - It immediately relieved the pressure in

my head and cured my headache. Don't know if this would help you but

thought I'd mention it...

Ginger

>

> Hi all,

> About a months ago I wrote the group that I was experiencing

dizzeness.

> Well, after all this time, I'm doing not much better. I 'm being

> referred to a ENT surgeon about 3 hours from here at the University

of

> WV at town.The regular ENT told me that the mastoid cavity

needs

> to be cleaned out surgically and tissue grafted. My appointment is

on

> the 27th of this month for the first visit in town.-I'm

feeling

> terrible. My head is under a lot of pressure and I constantly feel

like

> I " m going out. I have a bloody , wet discharge form my ear. There

is

> numbness in my face, especially across the nose and the jaw area.-

What

> can I do until the 27th to eleviate the symptoms? I'm barely

functional

> . I have tried everything to move the appointment up to an earlier

date

> but the 27th is the best they can do.

> In the meantime I had a pacemaker put in the regulate my heartbeat.

It

> was beating too slow. ..I have no history of heart problem, even

though

> my heart rate has always been on the slow rate, but not in an

unhealthy

> way. All my bloodtests come out perfect ( cholesterol, etc..) for

some

> reason the electrical part of my heart is not functioning properly.

The

> doctors say they don't know what caused it. But I'm wondering if

> pressure on my head ( or nerves) from the ear could have caused

myheart

> problems??? I'm 52 and my heart should not be " old " and just stop

working:-(

> If anybody can help, or comment I would really appreaciate it.

Thanks in

> advance.

> Elke

>

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Hi Ginger.

thanks for your post. I did have my ear cleaned out with the suction 4

times the last month, as recently as last Tuesday, that is less than a

week ago. I will try to perhaps have my ENT do it again before my

appointment in town. I do feel better after the cleaning, but

only for a day or so.

Ginger wrote:

Hi Elke,

I, too, had a lot of pressure in my head - in fact that was why I

finally went to the doctor - non-stop headache pain. He was able to

use a suction tool to remove as much liquid and c'toma as he could

reach through my ear canal - It immediately relieved the pressure in

my head and cured my headache. Don't know if this would help you but

thought I'd mention it...

Ginger

>

> Hi all,

> About a months ago I wrote the group that I was experiencing

dizzeness.

> Well, after all this time, I'm doing not much better. I 'm being

> referred to a ENT surgeon about 3 hours from here at the

University

of

> WV at town.The regular ENT told me that the mastoid cavity

needs

> to be cleaned out surgically and tissue grafted. My appointment is

on

> the 27th of this month for the first visit in town.-I'm

feeling

> terrible. My head is under a lot of pressure and I constantly feel

like

> I"m going out. I have a bloody , wet discharge form my ear. There

is

> numbness in my face, especially across the nose and the jaw area.-

What

> can I do until the 27th to eleviate the symptoms? I'm barely

functional

> . I have tried everything to move the appointment up to an earlier

date

> but the 27th is the best they can do.

> In the meantime I had a pacemaker put in the regulate my

heartbeat.

It

> was beating too slow. ..I have no history of heart problem, even

though

> my heart rate has always been on the slow rate, but not in an

unhealthy

> way. All my bloodtests come out perfect ( cholesterol, etc..) for

some

> reason the electrical part of my heart is not functioning

properly.

The

> doctors say they don't know what caused it. But I'm wondering if

> pressure on my head ( or nerves) from the ear could have caused

myheart

> problems??? I'm 52 and my heart should not be "old" and just stop

working:-(

> If anybody can help, or comment I would really appreaciate it.

Thanks in

> advance.

> Elke

>

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