New here....

[Guest guest]

Hello, I am new here as the subject suggests. My son Brady is now 2

1/2 and was just told yesterday that he has a cholesteatome in his

left ear. A little background on Brady...he was born with a double

aortic arch which he had surgery on at 7 days old, because of this

defect he has tracheamalacia, lung damage, and asthma. He was also

born with one kidney and dandy walk malformation (a brain birth

defect). He gets severe colitis from taking any and all

antibiotics. He had a cold for about the last month (usual for him)

but this time we were told he had two major ear infections which he

had no fever or pain from. Started on the antibiotics, but due to

the colitis and dehydration we stopped them. Three weeks later we go

to check on the ears (and everything else) and the ped. discovers

this cholesteatoma. I mentioned that the special school district

tested his hearing and thought there was loss in his left ear...I

just thought it was because he was sick at the time. We are now

waiting 3 weeks to see if the thing will disappear a bit on its own

and if not we are headed to the ENT...thank goodness we are an

established patient in this clinic otherwise we might have to wait an

extended period to get seen. Brady doesn't do well with intubations

and anesthsia so I am hoping that this all goes away....has that ever

really happened?

I am in so many support groups online for his many defects and they

have been such a blessing....I am so glad I found this one!

Thanks

Stefanie