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Puredakota,

I'm so glad to hear that you're starting to recover from your

surgery! It sounds like you had quite an adventure, with 8 days in

the hospital! Take it easy and take the time you need to recover! I

hope your mom and aunt are doing well while you are healing. Some of

us (nothing against the guys, but I think it's mostly women) feel we

need to take care of everyone in our lives. Sometimes, we just need

to take care of ourselves first. I try to remind myself of that,

after helping with my mom's care (who passed away last fall) and

helping to cope with his DES and get the best care he can for

it. Wishing you a smooth recovery and happy swallowing!

in Michigan

>

> Hi Everyone--

>

> I got home yesterday from my open Toupet fundoplication. I was in

the hospital for 8

> days, and now am supposed to be off work for at least another 3 weeks.

>

> This has been quite an adventure, especially since it was an open

surgery rather than a

> lap.

>

> But my husband and daughter have been super supportive, and even

though I am on a

> restricted post-surgery diet, I have already been able to eat a few

bites of some foods I

> have been able to eat in years!

>

> I'm still pretty wobbly, but I feel like I am moving in the right

direction.

>

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Guest guest

welcome home!!! please remember that even though the first little

while at home can be a bit rough, there is so much light at the end

of the tunnel. i wish you all the best. just take it easy and lean

on your family if you can. my mom was here for 10 days, and that was

so great.

:)

giselle

>

> Hi Everyone--

>

> I got home yesterday from my open Toupet fundoplication. I was in

the hospital for 8

> days, and now am supposed to be off work for at least another 3

weeks.

>

> This has been quite an adventure, especially since it was an open

surgery rather than a

> lap.

>

> But my husband and daughter have been super supportive, and even

though I am on a

> restricted post-surgery diet, I have already been able to eat a few

bites of some foods I

> have been able to eat in years!

>

> I'm still pretty wobbly, but I feel like I am moving in the right

direction.

>

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Dakota-

Welcome back! Why did the surgeon do an open procedure? I am glad

you are able to eat, but take it slow. keep us posted on your

recovery.

Jo

>

> Hi Everyone--

>

> I got home yesterday from my open Toupet fundoplication. I was in

the hospital for 8

> days, and now am supposed to be off work for at least another 3

weeks.

>

> This has been quite an adventure, especially since it was an open

surgery rather than a

> lap.

>

> But my husband and daughter have been super supportive, and even

though I am on a

> restricted post-surgery diet, I have already been able to eat a

few bites of some foods I

> have been able to eat in years!

>

> I'm still pretty wobbly, but I feel like I am moving in the right

direction.

>

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  • 10 months later...
Guest guest

thanks so much to everyone who gave me advice for my daughter's

surgery day. the button-down pajamas suggestion was really brilliant!

she has been home for about an hour now and is sound asleep. she did

really well and woke up confused but not too upset. she had a lot of

pain when she first woke up but her recovery nurse gave her some

morphine and that took the edge off the pain.

her doctor said that all the stuff on the CT scan around the little

bones in the ear that he thought was the chlostetoma was actually scar

tissue from previous ear drum ruptures, tubes, and infections. the

tube, while not helping to prevent infections, did protect those

little bones. the c-toma grew along the tube and then was diverted

from the little bones and grew up the mastoid instead.

he ended up having to do a lot of drilling on the mastoid bone and

said her skull behind her ear will look bumpy and mis-shapen for now.

however, that can be fixed later once this is resolved. he said that

he got all that he could see but of course you never know for sure so

she'll have a second-look surgery in six months. he did take some of

the chewing muscle to graft a new ear drum too.

the whole thing took about 4 hours and her doc was even good enough to

have an OR nurse call the waiting room halfway through to update us.

he also took a lot of pictures to show us what he found and what he

did. he handles a lot of c-toma pediatric cases, so thats good too.

while she's not very happy with all this right now, i think things

went well so far and hopefully recovery will too.

again, thanks for all the great advice. keep it coming!

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