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c-toma at 37

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i am 37 and they just found my tumor it is black and he thinks it is

the size of a golf ball and i am in very bad pain, in my ear and

behind on the bone and there is tremedice pressure in my ear i cant

bend over and cant sleep i have to set up half the time to sleep cause

of this pressure when the pain gets so bad in my head i have to put

ice on it..my dr cant figure out why im in so much pain im on two pain

meds cause of this. does anyone know why this is happening?? i am

schedeled for surgery on the 27 of this month.. any help would greatly

appreciated..

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  • 2 weeks later...

Has nobody replied to you yet? This business regarding a certain

thread has apparently buried your post. I feel for " Tom " ... I didn't

think his words were that ugly or mean ... I can relate. I've been

known to post messages that were 'upsetting' to others as well. But

enough of that ...

Your symptoms are all a part of the c-toma. It can reek havok on your

balance center. Besides ear infections, I presented next with

headaches, dizziness, and vertigo. It took a long time before I could

see a specialist. It's great that you're going in soon for your

surgery. Just hang in there. I hope things get better for you

afterwards.

I have no advise to give about dealing with the torchous pain. It's

enough to drive a person over the edge. Pain killers and a high fiber

diet is all I can suggest.

Colleen

>

> i am 37 and they just found my tumor it is black and he thinks it is

> the size of a golf ball and i am in very bad pain, in my ear and

> behind on the bone and there is tremedice pressure in my ear i cant

> bend over and cant sleep i have to set up half the time to sleep

cause

> of this pressure when the pain gets so bad in my head i have to put

> ice on it..my dr cant figure out why im in so much pain im on two

pain

> meds cause of this. does anyone know why this is happening?? i am

> schedeled for surgery on the 27 of this month.. any help would

greatly

> appreciated..

>

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thanks colleen for writing me back it helps to know im not the only 1 with these symptoms..

SANDY SMALL

From: Colleen <mah_skarra@...>Subject: Re: c-toma at 37cholesteatoma Date: Saturday, January 17, 2009, 6:48 PM

Has nobody replied to you yet? This business regarding a certain thread has apparently buried your post. I feel for "Tom" ... I didn't think his words were that ugly or mean ... I can relate. I've been known to post messages that were 'upsetting' to others as well. But enough of that ... Your symptoms are all a part of the c-toma. It can reek havok on your balance center. Besides ear infections, I presented next with headaches, dizziness, and vertigo. It took a long time before I could see a specialist. It's great that you're going in soon for your surgery. Just hang in there. I hope things get better for you afterwards. I have no advise to give about dealing with the torchous pain. It's enough to drive a person over the edge. Pain killers and a high fiber diet is all I can suggest.

Colleen>> i am 37 and they just found my tumor it is black and he thinks it is > the size of a golf ball and i am in very bad pain, in my ear and > behind on the bone and there is tremedice pressure in my ear i cant > bend over and cant sleep i have to set up half the time to sleep cause > of this pressure when the pain gets so bad in my head i have to put > ice on it..my dr cant figure out why im in so much pain im on two pain > meds cause of this. does anyone know why this is happening?? i am > schedeled for surgery on the 27 of this month.. any help would greatly >

appreciated..>------------------------------------

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