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congenital c-tomas

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I couldn't agree more. I watch my Katy struggling and I would give ANYTHING to trade places with her. I wouldn't care how bad it hurts me but to watch a 4 year old that you love more then you love yourself kills me. I agree that it affects those with it and those watching loved ones go thorugh it and nobodys role should be looked at as diminished as neither side can put themselves in the others place.

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Tom, I am just wondering why the hell you feel you have the right to speak so damn ugly to people. She is obviously having a hard time dealing with this or she wouldn't be ion this forum. You, once again are being very inappropriately ugly and owe her an apology!>> From: emsguy54aol (DOT) com <emsguy54aol (DOT) com>> Subject: Re: congenital c-tomas> cholesteatoma> Date: Thursday, January 8, 2009, 1:54 PM>> My daughter had PE tubes at 10 months and then again at 2 years.> She never had a

ear infection after that till age 8 then we found> the C-toma we just scheduled our 4th surgery for next month and> will see how it goes. So not sure how it came up of if it is> congenital.>>>> ------------ --------- --------- --------- --------- --------- -> *A Good Credit Score is 700 or Above. See yours in just 2 easy> steps!> <http://pr.atwola. com/promoclk/ 100000075x121504 7751x1200957972/ aol?redir= http://www. freecreditreport .com/pm/default. aspx?sc=668072% 26hmpgID= 62%26bcd= DecemailfooterNO 62>*>>>

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I guess you like suger coated ceral as well......let me ask you since you decided to take your comments public in order to shame me. Have you personally had C-toma? I have........don't think you have by reading your posts, but you like to protray it like you and many others as you know it all........there will be no apology as the truth can be ugly....

Tom Hansen>> From: emsguy54aol (DOT) com <emsguy54aol (DOT) com>> Subject: Re: congenital c-tomas> cholesteatoma> Date: Thursday, January 8, 2009, 1:54 PM>> My daughter had PE tubes at 10 months and then again at 2 years.> She never had a

ear infection after that till age 8 then we found> the C-toma we just scheduled our 4th surgery for next month and> will see how it goes. So not sure how it came up of if it is> congenital.>>>> ------------ --------- --------- --------- --------- --------- -> *A Good Credit Score is 700 or Above. See yours in just 2 easy> steps!> <http://pr.atwola. com/promoclk/ 100000075x121504 7751x1200957972/ aol?redir= http://www. freecreditreport .com/pm/default. aspx?sc=668072% 26hmpgID= 62%26bcd= DecemailfooterNO 62>*>>>

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Hey Tom, I am very sorry you are so angry about what you have had to go through. Yes, I love sugar coated cereal! No, I do not have a ctoma, but my 9 year old daughter has had 4 surgeries(2 mastoidectomies), so I am here for me as she is just a child. this forum is not for only people with ctomas, but for anyone affected by one. I will not for one second claim to know your physical pain, and I said I was educated, not that I knew it all. You need psychological help and I will not be a part of this forum as long as someone as sick as you are allowed to be here. Good luck to all and I will always think of you, my friends. >> From: emsguy54aol (DOT) com <emsguy54aol (DOT) com>> Subject: Re: congenital c-tomas> cholesteatoma> Date: Thursday, January 8, 2009, 1:54 PM>> My daughter had PE tubes at 10 months and then again at 2 years.> She never had a

ear infection after that till age 8 then we found> the C-toma we just scheduled our 4th surgery for next month and> will see how it goes. So not sure how it came up of if it is> congenital.>>>> ------------ --------- --------- --------- --------- --------- -> *A Good Credit Score is 700 or Above. See yours in just 2 easy> steps!> <http://pr.atwola. com/promoclk/ 100000075x121504 7751x1200957972/ aol?redir= http://www. freecreditreport .com/pm/default. aspx?sc=668072% 26hmpgID= 62%26bcd= DecemailfooterNO 62>*>>>

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APOLOGY ACCEPTED! May I suggest a Vitamin B -12 complex that may help

to deal with the stress and anger of having to deal with the lifelong

pain that C-tomas cause. It may help to chilax! (Chill out and relax

as my teenager says)

& others - thanks for the support! Peace, Judy

Tom Hansen wrote:

>

> I guess you like suger coated ceral as well......let me ask you since

> you decided to take your comments public in order to shame me. Have

> you personally had C-toma? I have........don't think you have by

> reading your posts, but you like to protray it like you and many

> others as you know it all........there will be no apology as the truth

> can be ugly....

>

> Tom Hansen

>

>

> >

> > From: emsguy54aol (DOT) com <mailto:emsguy54%40aol.com>

> <emsguy54aol (DOT) com <mailto:emsguy54%40aol.com>>

> > Subject: Re: congenital c-tomas

> > cholesteatoma

> <mailto:cholesteatoma%40>

> > Date: Thursday, January 8, 2009, 1:54 PM

> >

> > My daughter had PE tubes at 10 months and then again at

> 2 years.

> > She never had a ear infection after that till age 8 then

> we found

> > the C-toma we just scheduled our 4th surgery for next

> month and

> > will see how it goes. So not sure how it came up of if it is

> > congenital.

> >

> >

> >

> > ------------ --------- --------- --------- ---------

> --------- -

> > *A Good Credit Score is 700 or Above. See yours in just

> 2 easy

> > steps!

> > <http://pr.atwola. com/promoclk/ 100000075x121504

> 7751x1200957972/ aol?redir= http://www. freecreditreport

> .com/pm/default. aspx?sc=668072% 26hmpgID= 62%26bcd=

> DecemailfooterNO 62

>

<http://pr.atwola.com/promoclk/100000075x1215047751x1200957972/aol?redir=http://\

www.freecreditreport.com/pm/default.aspx?sc=668072%26hmpgID=62%26bcd=Decemailfoo\

terNO62>>*

> >

> >

> >

>

>

>

>

>

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I'm not angry, your very mistaken and incorrect by your statement. I'm a realiest not a cool aid drinker.....There is nothing in my comments that are out of line, but harshly truthful and blunt....

Tom Hansen >> From: emsguy54aol (DOT) com <emsguy54aol (DOT) com>> Subject: Re: congenital c-tomas> cholesteatoma> Date: Thursday, January 8, 2009, 1:54 PM>> My daughter had PE tubes at 10 months and then again at 2 years.> She never had a

ear infection after that till age 8 then we found> the C-toma we just scheduled our 4th surgery for next month and> will see how it goes. So not sure how it came up of if it is> congenital.>>>> ------------ --------- --------- --------- --------- --------- -> *A Good Credit Score is 700 or Above. See yours in just 2 easy> steps!> <http://pr.atwola. com/promoclk/ 100000075x121504 7751x1200957972/ aol?redir= http://www. freecreditreport .com/pm/default. aspx?sc=668072% 26hmpgID= 62%26bcd= DecemailfooterNO 62>*>>>

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,

It is a shame that you would leave this group as I enjoy learning from your posts along with all of the others. There are always going to be those who are not "mentally healthy" put their 2 cents in and try to ruin your day. Try not to take this personally.

Hugs,

Re: congenital c-tomas> cholesteatoma> Date: Thursday, January 8, 2009, 1:54 PM>> My daughter had PE tubes at 10 months and then again at 2 years.> She never had a ear infection after that till age 8 then we found> the C-toma we just scheduled our 4th surgery for next month and> will see how it goes. So not sure how it came up of if it is> congenital.>>>> ------------ --------- --------- --------- --------- --------- -> *A Good Credit Score is 700 or Above. See yours in just 2 easy> steps!> <http://pr.atwola. com/promoclk/ 100000075x121504 7751x1200957972/ aol?redir= http://www. freecreditreport .com/pm/default. aspx?sc=668072% 26hmpgID= 62%26bcd= DecemailfooterNO 62>*>>>

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Thank you, . You are right. I just hope others aren't hurt by him. I also enjoy many of you in this forum. The support has been awesome. I can choose to ignore Tom, as he is not in my face. And, I am a realist AND like cool aid!!!! LAUREN>> From: emsguy54aol (DOT) com <emsguy54aol (DOT) com>> Subject: Re: congenital c-tomas> cholesteatoma> Date: Thursday, January 8, 2009, 1:54 PM>> My daughter had PE tubes at 10 months and then again at 2 years.> She never had a

ear infection after that till age 8 then we found> the C-toma we just scheduled our 4th surgery for next month and> will see how it goes. So not sure how it came up of if it is> congenital.>>>> ------------ --------- --------- --------- --------- --------- -> *A Good Credit Score is 700 or Above. See yours in just 2 easy> steps!> <http://pr.atwola. com/promoclk/ 100000075x121504 7751x1200957972/ aol?redir= http://www. freecreditreport .com/pm/default. aspx?sc=668072% 26hmpgID= 62%26bcd= DecemailfooterNO 62>*>>>

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I've never been in your face, I rarely say anything to begin with. If you leave it's because of you and no one else........

Tom Hansen>> From: emsguy54aol (DOT) com <emsguy54aol (DOT) com>> Subject: Re: congenital c-tomas> cholesteatoma> Date: Thursday, January 8, 2009, 1:54 PM>> My daughter had PE tubes at 10 months and then again at 2 years.> She never had a

ear infection after that till age 8 then we found> the C-toma we just scheduled our 4th surgery for next month and> will see how it goes. So not sure how it came up of if it is> congenital.>>>> ------------ --------- --------- --------- --------- --------- -> *A Good Credit Score is 700 or Above. See yours in just 2 easy> steps!> <http://pr.atwola. com/promoclk/ 100000075x121504 7751x1200957972/ aol?redir= http://www. freecreditreport .com/pm/default. aspx?sc=668072% 26hmpgID= 62%26bcd= DecemailfooterNO 62>*>>>

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That's my girl!!!!

Re: congenital c-tomas> cholesteatoma> Date: Thursday, January 8, 2009, 1:54 PM>> My daughter had PE tubes at 10 months and then again at 2 years.> She never had a ear infection after that till age 8 then we found> the C-toma we just scheduled our 4th surgery for next month and> will see how it goes. So not sure how it came up of if it is> congenital.>>>> ------------ --------- --------- --------- --------- --------- -> *A Good Credit Score is 700 or Above. See yours in just 2 easy> steps!> <http://pr.atwola. com/promoclk/ 100000075x121504 7751x1200957972/ aol?redir= http://www. freecreditreport .com/pm/default. aspx?sc=668072% 26hmpgID= 62%26bcd= DecemailfooterNO 62>*>>>

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Cholesteatoma wrote :-

>Tom, I am just wondering why the hell you feel you have the right

>to speak so damn ugly to people. She is obviously having a hard

>time dealing with this or she wouldn't be ion this forum. You, once

>again are being very inappropriately ugly and owe her an apology!

,

Don't take it to heart ! Every forum has its rottweiler, Tom is ours. He

also talks a lot of good sense, from a position of experience. A bit of

plain speaking helps counteract the specious waffle we get from (some of)

the medical profession, not to mention the pseudoscience that some of our

participants occasionally like to take refuge in.

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>

> Cholesteatoma wrote :-

>

> >Tom, I am just wondering why the hell you feel you have the right

> >to speak so damn ugly to people. She is obviously having a hard

> >time dealing with this or she wouldn't be ion this forum. You,

once

> >again are being very inappropriately ugly and owe her an apology!

>

> ,

>

> Don't take it to heart ! Every forum has its rottweiler, Tom is

ours. He

> also talks a lot of good sense, from a position of experience. A

bit of

> plain speaking helps counteract the specious waffle we get from

(some of)

> the medical profession, not to mention the pseudoscience that some

of our

> participants occasionally like to take refuge in.

>

>

>

Come on - now don't start giving Rottis a bad name (LOL) - but

very good advise to all. I have rode this out through 14 operations

and 30 years - but this long strange trip isn't over yet.

Thanks for the level head,

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She created the drama not me, go back about 10 posts and read forward. I wouldn't hold your breath on a apology from me......

Tom Hansen

From: <biffo1963@...>Subject: Re: Congenital C-tomascholesteatoma Date: Wednesday, January 14, 2009, 7:49 AM

Cholesteatoma wrote :->Tom, I am just wondering why the hell you feel you have the right>to speak so damn ugly to people. She is obviously having a hard>time dealing with this or she wouldn't be ion this forum. You, once>again are being very inappropriately ugly and owe her an apology!,Don't take it to heart ! Every forum has its rottweiler, Tom is ours. He also talks a lot of good sense, from a position of experience. A bit of plain speaking helps counteract the specious waffle we get from (some of) the medical profession, not to mention the pseudoscience that some of our participants occasionally like to take refuge in.

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Tom has been dealing with cholesteatomas for a very long time so his state of mind is not the same as some of us that are newer at this - I enjoy reading everyones post - I am thankful we have the internet to communicate all the different situations/issues we have. Please to everyone don't take any post personally.

From: <biffo1963@...>cholesteatoma Sent: Wednesday, January 14, 2009 7:49:23 AMSubject: Re: Congenital C-tomas

Cholesteatoma wrote :->Tom, I am just wondering why the hell you feel you have the right>to speak so damn ugly to people. She is obviously having a hard>time dealing with this or she wouldn't be ion this forum. You, once>again are being very inappropriately ugly and owe her an apology!,Don't take it to heart ! Every forum has its rottweiler, Tom is ours. He also talks a lot of good sense, from a position of experience. A bit of plain speaking helps counteract the specious waffle we get from (some of) the medical profession, not to mention the pseudoscience that some of our participants occasionally like to take refuge in.

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I have been dealing with c-toma for 44+ years and yet I don't get abusive.

We all have a hard road, we shouldn't try to make it harder for everyone

else.

Walter Clayton

Savannah, GA

Remember: If you light a man a fire, you warm him for the night.

If you light a man ON fire, you warm him for the rest of his life.

Captain Definder wrote:

> Tom has been dealing with cholesteatomas for a very long time so his

> state of mind is not the same as some of us that are newer at this - I

> enjoy reading everyones post - I am thankful we have the internet to

> communicate all the different situations/issues we have. Please to

> everyone don't take any post personally.

>

> ------------------------------------------------------------------------

> *From:* <biffo1963@...>

> *To:* cholesteatoma

> *Sent:* Wednesday, January 14, 2009 7:49:23 AM

> *Subject:* Re: Congenital C-tomas

>

> Cholesteatoma wrote :-

>

> >Tom, I am just wondering why the hell you feel you have the right

> >to speak so damn ugly to people. She is obviously having a hard

> >time dealing with this or she wouldn't be ion this forum. You, once

> >again are being very inappropriately ugly and owe her an apology!

>

> ,

>

> Don't take it to heart ! Every forum has its rottweiler, Tom is ours. He

> also talks a lot of good sense, from a position of experience. A bit of

> plain speaking helps counteract the specious waffle we get from (some of)

> the medical profession, not to mention the pseudoscience that some of our

> participants occasionally like to take refuge in.

>

>

>

>

>

>

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This topic is closed unless you would actually like to discuss the

topic which is congenital c-tomas. Also, I am sorry some of you don't

like how Tom posts. Tom tends to tell it like it is. I used to wish

Tom would phrase things differently but he doesn't and I wouldn't have

it any other way. If you don't want the truth, don't read Tom's post.

I can't think of a time when I disagreed with what he had to say. He

may be blunt, but he is very knowledgeable. Bottom line, if you don't

like what Tom has to say or how he says it, don't read his posts.

THIS TOPIC IS OVER! I HAVE TO GO TO WORK AND I SINCERELY HOPE THAT IF

I SEE THIS TOPIC AGAIN, THAT IT TRULY BE ABOUT CONGENITAL C-TOMA. IF

NOT, I JUST MIGHT EXPLODE.

Michele, Group Moderator

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