RE: [SPAM] congenital c-tomas

January 8, 2009

I have to think that my son’s c-toma is congenital.

I’ve been told and read that c-toma is usually found in people with

chronic ear infection history. His first ear infection was at age five,

and was so bad it blew a hole in his eardrum. It was through that hole

that the Dr. noticed the growth and then we went forward with a CT, etc.

However, after surgery the Dr. said that the growth “did not present

itself as being congenital.” So we are just not sure how he got

this thing. All I can say is that we’ve been dealing with it for

four years and he will have his fifth surgery next week.

A good way to take a survey of the group might be

SurveyMonkey.com. You can set up surveys for free and those who complete

it don’t have to give out any personal info or anything.

e

[mailto:cholesteatoma ] On Behalf Of bethsdragon

Sent: Thursday, January 08, 2009 8:54 AM

Subject: [sPAM] congenital c-tomas

I'd like to hear from everyone who has a child

whos c-toma is

congenital (or anyone now grown that had one as a kid).

I was reading stories and noticed alot of people stating that thier

child had a lot of earwax. My son always had to have his ears cleared

when we went for dr visits. Not flushed just scraped out. (never

impacted that I know if)

So now I am wondering....can we consider this a symptom? If nothing

else it seems to be a common thing. Lets see how many had this before

they were diagnosed.

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