Re: Does anyone have a child with both autism and diabetes?

June 7, 2006

Hi Debbie,

I have never heard of autism and diabetes going together, but according to the heavy metal theory I suppose mercury could attack the pancreas as well as other organs.

I just wanted to say I am sorry for both of your recent very anxiety-filled events, the hospitalization and your losses. Better days ahead and I will keep my ears open for any information that may be of help for you.

----- Original Message -----

From: ddzlaw

Sent: Tuesday, June 06, 2006 8:47 PM

Subject: [ ] Does anyone have a child with both autism and diabetes?

Well, just when I thought I had somewhat of a handle on the autism, something new came along.What I thought was a simple bladder infection, turned out to be acute onset type 1 diabetes. My son's sugar reading was 557 (normal is between 80 and 120). We just got out of the hospital after an overnight stay to stabilize his sugar and learn how to administer the testing and the insulin injections.We are having such a difficult time testing his sugar and giving him the injections. He fights us so hard. It takes 3 to 4 people to hold him down (testing is 4 times per day and injections are 2 times per day). Most of this resistance stems from his fear of needles and the fact that I have taught him not to play with needles - they are not safe. Of course, this is the exception to the rule (we all know how our kids handle exceptions to rules -- not well).I was wondering if anyone on the list knew of someone who had a child who is both autistic and diabetic. I think it would be helpful for me to talk to someone who maybe able to give me more ideas.I am taking him to see a behavioral psychologist tomorrow. I'm hoping she can help. However, I would really like to talk to someone who has a child with both autism and diabetes.To complicate things even further, my husband's father passed away early this morning (his grandmother passed away last week and we buried her last weekend). As such, I may not be able to monitor the list as often as I usually do (at least until after this weekend). I would appreciate any suggestions.Thanks.Debbie Z.

June 7, 2006

Debbie,

I am so sorry that you are going through all of this. I wish there

was something that I could do to make life a little easier while you

are trying to cope...

I don't know anyone personally with both autism and diabetes, but

because both involve immune disorders, I can't say that I am

terribly surprised. Do you have a DAN! pracitioner? If you do, I

would ask him or her about boosting the immune system... getting the

immune levels (TH1 and TH2) to work together at an optimal level.

C. and I discussed this issue in some recent posts. Transfer

Factor and LDN (Low Dose Naltrexone) are 2 different supplements

that address this issue. If you don't have a DAN!, my suggestion is

to find one and make an appointment. Talk about what's going on. A

good DAN! will work hand in hand with you to search for answers...

and there's GOT to be a better way. Heavy metal toxicity could be

playing a huge role in this onset of diabetes. If mercury can

trigger autism, then why not diabetes???

If you are interested in finding a good DAN!, let me know. We go

to Dr. DeMio. I love this guy!! There are others in the area such as

Dr. Lonsdale and Sherry Tennpenny... all three have spoken at

Conferences all over the Country. If you are interested in going

this route, I will be happy to talk more with you. If you want, you

can contact me off-list.

You and your family are in my prayers.

-Trish

>

> Well, just when I thought I had somewhat of a handle on the

autism,

> something new came along.

>

> What I thought was a simple bladder infection, turned out to be

acute

> onset type 1 diabetes. My son's sugar reading was 557 (normal is

> between 80 and 120). We just got out of the hospital after an

> overnight stay to stabilize his sugar and learn how to administer

the

> testing and the insulin injections.

>

> We are having such a difficult time testing his sugar and giving

him

> the injections. He fights us so hard. It takes 3 to 4 people to

> hold him down (testing is 4 times per day and injections are 2

times

> per day). Most of this resistance stems from his fear of needles

and

> the fact that I have taught him not to play with needles - they

are

> not safe. Of course, this is the exception to the rule (we all

know

> how our kids handle exceptions to rules -- not well).

>

> I was wondering if anyone on the list knew of someone who had a

child

> who is both autistic and diabetic. I think it would be helpful

for

> me to talk to someone who maybe able to give me more ideas.

>

> I am taking him to see a behavioral psychologist tomorrow. I'm

> hoping she can help. However, I would really like to talk to

someone

> who has a child with both autism and diabetes.

>

> To complicate things even further, my husband's father passed away

> early this morning (his grandmother passed away last week and we

> buried her last weekend). As such, I may not be able to monitor

the

> list as often as I usually do (at least until after this

weekend).

>

> I would appreciate any suggestions.

>

> Thanks.

> Debbie Z.

>

June 7, 2006

In a message dated 6/6/2006 8:52:35 PM Eastern Standard Time, zielinski@... writes:

To complicate things even further, my husband's father passed away early this morning (his grandmother passed away last week and we buried her last weekend). As such, I may not be able to monitor the list as often as I usually do (at least until after this weekend). I would appreciate any suggestions.Thanks.Debbie Z.

No suggestions for diabetes but I bet the behavioral person will have some. I am so sorry to hear about your family's recent losses. And so close together too! That is surely very difficult for all of you. Please take care!

Roxanna

kneeleee@...

June 7, 2006

We haven't seen our DAN doctor in a few years (Dr. Beth in Canfield).

Because of the onset of the diabetes, I'm thinking perhaps we should

revisit the DAN doctor again (probably Dr. DeMio since he is closer

than the Canfield doctor). I think some further testing may be in

order.

When we stopped seeing Dr. Beth, Collin was in pretty good shape.

Now things are changing again.

This has been a very trying time for our whole family. We are

thankful for everyone's support.

Debbie

> >

> > Well, just when I thought I had somewhat of a handle on the

> autism,

> > something new came along.

> >

> > What I thought was a simple bladder infection, turned out to be

> acute

> > onset type 1 diabetes. My son's sugar reading was 557 (normal is

> > between 80 and 120). We just got out of the hospital after an

> > overnight stay to stabilize his sugar and learn how to administer

> the

> > testing and the insulin injections.

> >

> > We are having such a difficult time testing his sugar and giving

> him

> > the injections. He fights us so hard. It takes 3 to 4 people to

> > hold him down (testing is 4 times per day and injections are 2

> times

> > per day). Most of this resistance stems from his fear of needles

> and

> > the fact that I have taught him not to play with needles - they

> are

> > not safe. Of course, this is the exception to the rule (we all

> know

> > how our kids handle exceptions to rules -- not well).

> >

> > I was wondering if anyone on the list knew of someone who had a

> child

> > who is both autistic and diabetic. I think it would be helpful

> for

> > me to talk to someone who maybe able to give me more ideas.

> >

> > I am taking him to see a behavioral psychologist tomorrow. I'm

> > hoping she can help. However, I would really like to talk to

> someone

> > who has a child with both autism and diabetes.

> >

> > To complicate things even further, my husband's father passed

away

> > early this morning (his grandmother passed away last week and we

> > buried her last weekend). As such, I may not be able to monitor

> the

> > list as often as I usually do (at least until after this

> weekend).

> >

> > I would appreciate any suggestions.

> >

> > Thanks.

> > Debbie Z.

> >

>

June 7, 2006

Hi Debbie,

I've heard that diabetes is common with autistic children. Was he also tested for thyroid? Diabetes is also conected with hypothyroidism. You need to get some sensitive testing for thyroid. With an improved thyroid function there will be less stress on the matabolism process. Please write to Williss Langford who wrote a paper on Mastering Autism. This is a very extrordinarily detailed biomedical informative paper written exclusively for autism related biochemistry. You can ask Williss any question and he has good answers.

Yours,

n

In a message dated 6/6/06 8:52:10 PM Eastern Daylight Time, zielinski@... writes:

Well, just when I thought I had somewhat of a handle on the autism, something new came along.

What I thought was a simple bladder infection, turned out to be acute onset type 1 diabetes. My son's sugar reading was 557 (normal is between 80 and 120). We just got out of the hospital after an overnight stay to stabilize his sugar and learn how to administer the testing and the insulin injections.

We are having such a difficult time testing his sugar and giving him the injections. He fights us so hard. It takes 3 to 4 people to hold him down (testing is 4 times per day and injections are 2 times per day). Most of this resistance stems from his fear of needles and the fact that I have taught him not to play with needles - they are not safe. Of course, this is the exception to the rule (we all know how our kids handle exceptions to rules -- not well).

I was wondering if anyone on the list knew of someone who had a child who is both autistic and diabetic. I think it would be helpful for me to talk to someone who maybe able to give me more ideas.

I am taking him to see a behavioral

June 7, 2006

Debbie,

Sorry to hear of your husband's father and grandmother passing. My condolences to your family.

Yours Truly,

n

In a message dated 6/7/06 8:55:59 AM Eastern Daylight Time, kneeleee@... writes:

To complicate things even further, my husband's father passed away early this morning (his grandmother passed away last week and we buried her last weekend). As such, I may not be able to monitor the list as often as I usually do (at least until after this weekend).

I would appreciate any suggestions.

Thanks.

June 7, 2006

Debbie,

I am so sorry for all that you and your family have

been through. It must be very stressful. I just

spoke with Dr. DeMio the other day regarding some test

results for my son and several tests point to an

autoimmune problem. Basically, he said that his

immune system is out of whack and the body is

attacking itself. Anyways, he wants to put him on a

medication to help the immune system and that

medication is normally marketed for diabetes patients.

He told me that it works to wake up the immune

system. He said that it has helped kids with

autism/autoimmune disorders. I hope this helps. The

medication is called Actose.

Laurie

--- ddzlaw <zielinski@...> wrote:

> We haven't seen our DAN doctor in a few years (Dr.

> Beth in Canfield).

>

> Because of the onset of the diabetes, I'm thinking

> perhaps we should

> revisit the DAN doctor again (probably Dr. DeMio

> since he is closer

> than the Canfield doctor). I think some further

> testing may be in

> order.

>

> When we stopped seeing Dr. Beth, Collin was in

> pretty good shape.

> Now things are changing again.

>

> This has been a very trying time for our whole

> family. We are

> thankful for everyone's support.

>

> Debbie

>

> > >

> > > Well, just when I thought I had somewhat of a

> handle on the

> > autism,

> > > something new came along.

> > >

> > > What I thought was a simple bladder infection,

> turned out to be

> > acute

> > > onset type 1 diabetes. My son's sugar reading

> was 557 (normal is

> > > between 80 and 120). We just got out of the

> hospital after an

> > > overnight stay to stabilize his sugar and learn

> how to administer

> > the

> > > testing and the insulin injections.

> > >

> > > We are having such a difficult time testing his

> sugar and giving

> > him

> > > the injections. He fights us so hard. It takes

> 3 to 4 people to

> > > hold him down (testing is 4 times per day and

> injections are 2

> > times

> > > per day). Most of this resistance stems from

> his fear of needles

> > and

> > > the fact that I have taught him not to play with

> needles - they

> > are

> > > not safe. Of course, this is the exception to

> the rule (we all

> > know

> > > how our kids handle exceptions to rules -- not

> well).

> > >

> > > I was wondering if anyone on the list knew of

> someone who had a

> > child

> > > who is both autistic and diabetic. I think it

> would be helpful

> > for

> > > me to talk to someone who maybe able to give me

> more ideas.

> > >

> > > I am taking him to see a behavioral psychologist

> tomorrow. I'm

> > > hoping she can help. However, I would really

> like to talk to

> > someone

> > > who has a child with both autism and diabetes.

> > >

> > > To complicate things even further, my husband's

> father passed

> away

> > > early this morning (his grandmother passed away

> last week and we

> > > buried her last weekend). As such, I may not be

> able to monitor

> > the

> > > list as often as I usually do (at least until

> after this

> > weekend).

> > >

> > > I would appreciate any suggestions.

> > >

> > > Thanks.

> > > Debbie Z.

> > >

> >

>

June 8, 2006

Well, ours did have hypothyroidism. Her adrenals were just shot early on and when we corrected that, the thyroid just went.

It is said that 80% of ASD kids are hypothyroid. Suspect hypothyroidism particularly if you have a slow growing, passive child, but we are not either (95% for height, here) and the only symptoms we had were dry skin and lower than normal body temperatures. Other symptoms are thinning hair, not true for us either.

A Free T3 and Free T4 and Tsh are needed and the correct reference ranges need to be applied as the ones the labs give you are for adults and children need much higher levels of T3 for appropriate brain development.

Ours had a lowish T3, takes Armour--natural thyroid hormone, and it did make a big difference in her attention.

----- Original Message -----

From: DMHelmick1@...

Sent: Wednesday, June 07, 2006 1:39 PM

Subject: Re: [ ] Does anyone have a child with both autism and diabetes?

Hi Debbie, I've heard that diabetes is common with autistic children. Was he also tested for thyroid? Diabetes is also conected with hypothyroidism. You need to get some sensitive testing for thyroid. With an improved thyroid function there will be less stress on the matabolism process. Please write to Williss Langford who wrote a paper on Mastering Autism. This is a very extrordinarily detailed biomedical informative paper written exclusively for autism related biochemistry. You can ask Williss any question and he has good answers. Yours, n In a message dated 6/6/06 8:52:10 PM Eastern Daylight Time, zielinski@... writes:

Well, just when I thought I had somewhat of a handle on the autism, something new came along. What I thought was a simple bladder infection, turned out to be acute onset type 1 diabetes. My son's sugar reading was 557 (normal is between 80 and 120). We just got out of the hospital after an overnight stay to stabilize his sugar and learn how to administer the testing and the insulin injections. We are having such a difficult time testing his sugar and giving him the injections. He fights us so hard. It takes 3 to 4 people to hold him down (testing is 4 times per day and injections are 2 times per day). Most of this resistance stems from his fear of needles and the fact that I have taught him not to play with needles - they are not safe. Of course, this is the exception to the rule (we all know how our kids handle exceptions to rules -- not well). I was wondering if anyone on the list knew of someone who had a child who is both autistic and diabetic. I think it would be helpful for me to talk to someone who maybe able to give me more ideas. I am taking him to see a behavioral

June 8, 2006

Laurie,

I am sure you will research the Actos very thoroughly before you use it, but just wanted to report that I was talking with a dr just this past Monday who said that Actos was very hard on the liver.

Did you ask Dr. Demio why Actos and why not LDN or something else?

----- Original Message -----

From: Laurie Kowalski

Sent: Wednesday, June 07, 2006 3:22 PM

Subject: Re: [ ] Re: Does anyone have a child with both autism and diabetes?

Debbie, I am so sorry for all that you and your family havebeen through. It must be very stressful. I justspoke with Dr. DeMio the other day regarding some testresults for my son and several tests point to anautoimmune problem. Basically, he said that hisimmune system is out of whack and the body isattacking itself. Anyways, he wants to put him on amedication to help the immune system and thatmedication is normally marketed for diabetes patients.He told me that it works to wake up the immunesystem. He said that it has helped kids withautism/autoimmune disorders. I hope this helps. Themedication is called Actose. Laurie--- ddzlaw <zielinskibucklaw> wrote:> We haven't seen our DAN doctor in a few years (Dr.> Beth in Canfield). > > Because of the onset of the diabetes, I'm thinking> perhaps we should > revisit the DAN doctor again (probably Dr. DeMio> since he is closer > than the Canfield doctor). I think some further> testing may be in > order.> > When we stopped seeing Dr. Beth, Collin was in> pretty good shape. > Now things are changing again.> > This has been a very trying time for our whole> family. We are > thankful for everyone's support.> > Debbie> > > > > >> > > Well, just when I thought I had somewhat of a> handle on the > > autism, > > > something new came along.> > > > > > What I thought was a simple bladder infection,> turned out to be > > acute > > > onset type 1 diabetes. My son's sugar reading> was 557 (normal is > > > between 80 and 120). We just got out of the> hospital after an > > > overnight stay to stabilize his sugar and learn> how to administer > > the > > > testing and the insulin injections.> > > > > > We are having such a difficult time testing his> sugar and giving > > him > > > the injections. He fights us so hard. It takes> 3 to 4 people to > > > hold him down (testing is 4 times per day and> injections are 2 > > times > > > per day). Most of this resistance stems from> his fear of needles > > and > > > the fact that I have taught him not to play with> needles - they > > are > > > not safe. Of course, this is the exception to> the rule (we all > > know > > > how our kids handle exceptions to rules -- not> well).> > > > > > I was wondering if anyone on the list knew of> someone who had a > > child > > > who is both autistic and diabetic. I think it> would be helpful > > for > > > me to talk to someone who maybe able to give me> more ideas.> > > > > > I am taking him to see a behavioral psychologist> tomorrow. I'm > > > hoping she can help. However, I would really> like to talk to > > someone > > > who has a child with both autism and diabetes.> > > > > > To complicate things even further, my husband's> father passed > away > > > early this morning (his grandmother passed away> last week and we > > > buried her last weekend). As such, I may not be> able to monitor > > the > > > list as often as I usually do (at least until> after this > > weekend). > > > > > > I would appreciate any suggestions.> > > > > > Thanks.> > > Debbie Z.> > >> >> > > > > >

June 8, 2006

thanks for the info----I had no idea. I will

definitely ask him about it.

Laurie

--- Cochran <Ladyshrink111@...>

wrote:

> Laurie,

>

> I am sure you will research the Actos very

> thoroughly before you use it, but just wanted to

> report that I was talking with a dr just this past

> Monday who said that Actos was very hard on the

> liver.

>

> Did you ask Dr. Demio why Actos and why not LDN or

> something else?

>

> ----- Original Message -----

> From: Laurie Kowalski

>

> Sent: Wednesday, June 07, 2006 3:22 PM

> Subject: Re: [ ] Re: Does anyone have a

> child with both autism and diabetes?

>

> Debbie,

> I am so sorry for all that you and your family

> have

> been through. It must be very stressful. I just

> spoke with Dr. DeMio the other day regarding some

> test

> results for my son and several tests point to an

> autoimmune problem. Basically, he said that his

> immune system is out of whack and the body is

> attacking itself. Anyways, he wants to put him on

> a

> medication to help the immune system and that

> medication is normally marketed for diabetes

> patients.

> He told me that it works to wake up the immune

> system. He said that it has helped kids with

> autism/autoimmune disorders. I hope this helps.

> The

> medication is called Actose.

> Laurie

>

> --- ddzlaw <zielinski@...> wrote:

>

> > We haven't seen our DAN doctor in a few years

> (Dr.

> > Beth in Canfield).

> >

> > Because of the onset of the diabetes, I'm

> thinking

> > perhaps we should

> > revisit the DAN doctor again (probably Dr. DeMio

> > since he is closer

> > than the Canfield doctor). I think some further

> > testing may be in

> > order.

> >

> > When we stopped seeing Dr. Beth, Collin was in

> > pretty good shape.

> > Now things are changing again.

> >

> > This has been a very trying time for our whole

> > family. We are

> > thankful for everyone's support.

> >

> > Debbie

> >

> > > >

> > > > Well, just when I thought I had somewhat of

> a

> > handle on the

> > > autism,

> > > > something new came along.

> > > >

> > > > What I thought was a simple bladder

> infection,

> > turned out to be

> > > acute

> > > > onset type 1 diabetes. My son's sugar

> reading

> > was 557 (normal is

> > > > between 80 and 120). We just got out of the

> > hospital after an

> > > > overnight stay to stabilize his sugar and

> learn

> > how to administer

> > > the

> > > > testing and the insulin injections.

> > > >

> > > > We are having such a difficult time testing

> his

> > sugar and giving

> > > him

> > > > the injections. He fights us so hard. It

> takes

> > 3 to 4 people to

> > > > hold him down (testing is 4 times per day

> and

> > injections are 2

> > > times

> > > > per day). Most of this resistance stems from

> > his fear of needles

> > > and

> > > > the fact that I have taught him not to play

> with

> > needles - they

> > > are

> > > > not safe. Of course, this is the exception

> to

> > the rule (we all

> > > know

> > > > how our kids handle exceptions to rules --

> not

> > well).

> > > >

> > > > I was wondering if anyone on the list knew

> of

> > someone who had a

> > > child

> > > > who is both autistic and diabetic. I think

> it

> > would be helpful

> > > for

> > > > me to talk to someone who maybe able to give

> me

> > more ideas.

> > > >

> > > > I am taking him to see a behavioral

> psychologist

> > tomorrow. I'm

> > > > hoping she can help. However, I would really

> > like to talk to

> > > someone

> > > > who has a child with both autism and

> diabetes.

>

=== message truncated ===

June 8, 2006

Laurie, just wanted to add that the same dr who told me that does also not use LDN for two reasons; he said he just didn't notice any improvement with it, and it causes sleep problems, which is something no parent wants.

He uses Transfer Factor as a first line product, says he gets much better results with that. We also use TF and have found it is a good product. Nothing is ever simple, is it?

----- Original Message -----

From: Laurie Kowalski

Sent: Thursday, June 08, 2006 8:45 AM

Subject: Re: [ ] Re: Does anyone have a child with both autism and diabetes?

thanks for the info----I had no idea. I willdefinitely ask him about it. Laurie--- Cochran <Ladyshrink111peoplepc>wrote:> Laurie,> > I am sure you will research the Actos very> thoroughly before you use it, but just wanted to> report that I was talking with a dr just this past> Monday who said that Actos was very hard on the> liver.> > Did you ask Dr. Demio why Actos and why not LDN or> something else?> > > ----- Original Message ----- > From: Laurie Kowalski > > Sent: Wednesday, June 07, 2006 3:22 PM> Subject: Re: [ ] Re: Does anyone have a> child with both autism and diabetes?> > > Debbie, > I am so sorry for all that you and your family> have> been through. It must be very stressful. I just> spoke with Dr. DeMio the other day regarding some> test> results for my son and several tests point to an> autoimmune problem. Basically, he said that his> immune system is out of whack and the body is> attacking itself. Anyways, he wants to put him on> a> medication to help the immune system and that> medication is normally marketed for diabetes> patients.> He told me that it works to wake up the immune> system. He said that it has helped kids with> autism/autoimmune disorders. I hope this helps.> The> medication is called Actose. > Laurie> > --- ddzlaw <zielinskibucklaw> wrote:> > > We haven't seen our DAN doctor in a few years> (Dr.> > Beth in Canfield). > > > > Because of the onset of the diabetes, I'm> thinking> > perhaps we should > > revisit the DAN doctor again (probably Dr. DeMio> > since he is closer > > than the Canfield doctor). I think some further> > testing may be in > > order.> > > > When we stopped seeing Dr. Beth, Collin was in> > pretty good shape. > > Now things are changing again.> > > > This has been a very trying time for our whole> > family. We are > > thankful for everyone's support.> > > > Debbie> > > > > > > > > >> > > > Well, just when I thought I had somewhat of> a> > handle on the > > > autism, > > > > something new came along.> > > > > > > > What I thought was a simple bladder> infection,> > turned out to be > > > acute > > > > onset type 1 diabetes. My son's sugar> reading> > was 557 (normal is > > > > between 80 and 120). We just got out of the> > hospital after an > > > > overnight stay to stabilize his sugar and> learn> > how to administer > > > the > > > > testing and the insulin injections.> > > > > > > > We are having such a difficult time testing> his> > sugar and giving > > > him > > > > the injections. He fights us so hard. It> takes> > 3 to 4 people to > > > > hold him down (testing is 4 times per day> and> > injections are 2 > > > times > > > > per day). Most of this resistance stems from> > his fear of needles > > > and > > > > the fact that I have taught him not to play> with> > needles - they > > > are > > > > not safe. Of course, this is the exception> to> > the rule (we all > > > know > > > > how our kids handle exceptions to rules --> not> > well).> > > > > > > > I was wondering if anyone on the list knew> of> > someone who had a > > > child > > > > who is both autistic and diabetic. I think> it> > would be helpful > > > for > > > > me to talk to someone who maybe able to give> me> > more ideas.> > > > > > > > I am taking him to see a behavioral> psychologist> > tomorrow. I'm > > > > hoping she can help. However, I would really> > like to talk to > > > someone > > > > who has a child with both autism and> diabetes.> === message truncated ===

June 8, 2006

Dear ,

I have been looking at your recommendation on the autism treatment

board also for Transfer Factor for a few days now, and found some

info, and I thought I would post here for those who are

interested... and I also have a question for you, if you don't mind.

Which formula, you think, would be a good start for a 4 yo with

autism? And what about children/adults that are sensitive to Casein?

Here's what I found on it on a distributor's website on 4Life

Transfer Factor Plus Advanced Formula, providing an over 400% boost

to the immune system:

Far-Reaching Immune System Support

Inside your body there is an amazing protection mechanism called the

immune system. It is designed to defend you against a variety of

unfavorable elements that would love to invade your body and

compromise your health. For this reason, it is easy to understand

that maintaining a healthy immune system means living a healthier

life. 4Life Transfer Factor Plus Advanced Formula provides far-

reaching immune support. It combines the synergistic power of 4Life

Transfer Factor Advanced Formula with the proprietary Cordyvant

blend to support overall good health. Recent scientific studies

report that this Advanced Formula boosts immune system activity 437

percent above normal immune response.

Amount Per Serving DV%

Zinc (as monomethionine) 3.3 mg 22%

Transfer Factor E-XF?150 mg **

A patented concentrate of transfer factors and other natural

components from cow colostrum and egg yolk.

Cordyvant?Proprietary 440 mg **

Polysaccharide Complex

IP-6 (Inositol hexaphosphate)

Soya bean Extract (phytosterols)

Cordyceps sinensis (7% cordyceptic acids)

Beta-Glucan (from baker? yeast)(Saacharomyces cerevisiae)

Beta-Glucan (from Oat)(Avena sativa)

Agaricus blazeii Extract

Mannans (from Aloe vera)(leaf)

Olive Leaf Extract (Olea europaea)

Maitake Mushroom (Grifola frondosa)(whole plant)

Shiitake Mushroom (Lentinus edodes)(whole plant)(5:1extract)

**Daily Value (DV) not established

Other Ingredients: gelatin capsule, lemon peel.

DIRECTIONS: Take two (2) capsules daily with 8 oz of fluid.

Serving Size: One (1) Capsules

Servings Per Container: 60

Supplement Facts

Key Points

Transfer factors: Transfer factors are tiny molecules that transfer

immunity information from one entity to another, such as between a

mother and her infant who she breastfeeds. Transfer factors educate

your immune system, thus supporting the recognition phase of an

infection. This provides the necessary support for the immune system

to be able to remember healthy immune function.

Developed exclusively by 4Life using patented and patent-pending

technology, the Transfer Factor E-XF proprietary blend used in our

Advanced Formula calls upon the knowledge of two sources, providing

an enhanced combined effect of transfer factors from both cow

colostrum and egg yolks. Research shows that the immune-supporting

effects of this transfer factor blend are more potent than that of

colostrum or egg sources alone.

Cordyvant: Cordyvant contains ingredients that support the innate

immune system, your first and instinctive response when your body is

threatened.

This blend contains known immune system nutrients, including:

Maitake and Shiitake Mushrooms?ong known to support T-Cell (immune

system) and other health functions.

Cordyceps?ich in polysaccharides, which help support immune system

response.

Inositol Hexaphosphate?aining attention for its preventative immune

power.

Beta Glucans?n important immune cell stimulator. They are the ?ake-

up call to white blood cells.

Soya Bean Extract? phytosterol that has been shown to help activate

immune system response.

Olive Leaf Extract?ay be instrumental in supporting healthy cell

duplication.

Scientifically Studied: 4Life researchers and scientists developed

this Advanced Formula in an effort to further maximize immune system

support using transfer factor molecules. Results of an independent

study conducted at the Russian Academy of Medical Science

conclusively showed the ability of 4Life Transfer

Factor Plus Advanced Formula to propel Natural Killer (NK) cell

activity to a remarkable 437 percent above normal immune response

Thanks,

> > > > >

> > > > > Well, just when I thought I had somewhat of

> > a

> > > handle on the

> > > > autism,

> > > > > something new came along.

> > > > >

> > > > > What I thought was a simple bladder

> > infection,

> > > turned out to be

> > > > acute

> > > > > onset type 1 diabetes. My son's sugar

> > reading

> > > was 557 (normal is

> > > > > between 80 and 120). We just got out of the

> > > hospital after an

> > > > > overnight stay to stabilize his sugar and

> > learn

> > > how to administer

> > > > the

> > > > > testing and the insulin injections.

> > > > >

> > > > > We are having such a difficult time testing

> > his

> > > sugar and giving

> > > > him

> > > > > the injections. He fights us so hard. It

> > takes

> > > 3 to 4 people to

> > > > > hold him down (testing is 4 times per day

> > and

> > > injections are 2

> > > > times

> > > > > per day). Most of this resistance stems from

> > > his fear of needles

> > > > and

> > > > > the fact that I have taught him not to play

> > with

> > > needles - they

> > > > are

> > > > > not safe. Of course, this is the exception

> > to

> > > the rule (we all

> > > > know

> > > > > how our kids handle exceptions to rules --

> > not

> > > well).

> > > > >

> > > > > I was wondering if anyone on the list knew

> > of

> > > someone who had a

> > > > child

> > > > > who is both autistic and diabetic. I think

> > it

> > > would be helpful

> > > > for

> > > > > me to talk to someone who maybe able to give

> > me

> > > more ideas.

> > > > >

> > > > > I am taking him to see a behavioral

> > psychologist

> > > tomorrow. I'm

> > > > > hoping she can help. However, I would really

> > > like to talk to

> > > > someone

> > > > > who has a child with both autism and

> > diabetes.

> >

> === message truncated ===

>

June 8, 2006

Hi ,

We did not use the Plus formula, just the TF, advanced formula, due to a recommendation by someone else who said many kids have problems with the extra ingredients in the Plus formula.

So, just the advanced formula which comes in both chewables and capsules.

I don't know about the c/f thing, we are not c/f, did terrible on the c/f diet, probably the only kid to develop allergies when she went on the c/f diet. I do know that many people use TF with kids who are cf/gf. There is also another product called IGG-2000, I think that is guaranteed free of casein, but you have to have a license to order it, I was thinking about using that, have heard good things about it.

The dr we visited in Philly told me that TF is an excellent product and based on the improvements we noticed he suggested upping the dosage to 3 capsules a day.

I hope this helps, if not, ask again,

----- Original Message -----

From: aedape4

Sent: Thursday, June 08, 2006 10:24 AM

Subject: [ ] Re: Does anyone have a child with both autism and diabetes?

Dear ,I have been looking at your recommendation on the autism treatment board also for Transfer Factor for a few days now, and found some info, and I thought I would post here for those who are interested... and I also have a question for you, if you don't mind. Which formula, you think, would be a good start for a 4 yo with autism? And what about children/adults that are sensitive to Casein? Here's what I found on it on a distributor's website on 4Life Transfer Factor Plus Advanced Formula, providing an over 400% boost to the immune system:Far-Reaching Immune System SupportInside your body there is an amazing protection mechanism called the immune system. It is designed to defend you against a variety of unfavorable elements that would love to invade your body and compromise your health. For this reason, it is easy to understand that maintaining a healthy immune system means living a healthier life. 4Life Transfer Factor Plus Advanced Formula provides far-reaching immune support. It combines the synergistic power of 4Life Transfer Factor Advanced Formula with the proprietary Cordyvant blend to support overall good health. Recent scientific studies report that this Advanced Formula boosts immune system activity 437 percent above normal immune response.Amount Per Serving DV%Zinc (as monomethionine) 3.3 mg 22%Transfer Factor E-XF?150 mg **A patented concentrate of transfer factors and other natural components from cow colostrum and egg yolk.Cordyvant?Proprietary 440 mg **Polysaccharide ComplexIP-6 (Inositol hexaphosphate)Soya bean Extract (phytosterols)Cordyceps sinensis (7% cordyceptic acids)Beta-Glucan (from baker? yeast)(Saacharomyces cerevisiae)Beta-Glucan (from Oat)(Avena sativa)Agaricus blazeii ExtractMannans (from Aloe vera)(leaf)Olive Leaf Extract (Olea europaea)Maitake Mushroom (Grifola frondosa)(whole plant)Shiitake Mushroom (Lentinus edodes)(whole plant)(5:1extract)**Daily Value (DV) not establishedOther Ingredients: gelatin capsule, lemon peel.DIRECTIONS: Take two (2) capsules daily with 8 oz of fluid.Serving Size: One (1) CapsulesServings Per Container: 60Supplement FactsKey PointsTransfer factors: Transfer factors are tiny molecules that transfer immunity information from one entity to another, such as between a mother and her infant who she breastfeeds. Transfer factors educate your immune system, thus supporting the recognition phase of an infection. This provides the necessary support for the immune system to be able to remember healthy immune function. Developed exclusively by 4Life using patented and patent-pending technology, the Transfer Factor E-XF proprietary blend used in our Advanced Formula calls upon the knowledge of two sources, providingan enhanced combined effect of transfer factors from both cow colostrum and egg yolks. Research shows that the immune-supporting effects of this transfer factor blend are more potent than that of colostrum or egg sources alone.Cordyvant: Cordyvant contains ingredients that support the innate immune system, your first and instinctive response when your body is threatened. This blend contains known immune system nutrients, including:Maitake and Shiitake Mushrooms?ong known to support T-Cell (immune system) and other health functions.Cordyceps?ich in polysaccharides, which help support immune system response.Inositol Hexaphosphate?aining attention for its preventative immune power.Beta Glucans?n important immune cell stimulator. They are the ?ake-up call to white blood cells.Soya Bean Extract? phytosterol that has been shown to help activate immune system response.Olive Leaf Extract?ay be instrumental in supporting healthy cell duplication.Scientifically Studied: 4Life researchers and scientists developed this Advanced Formula in an effort to further maximize immune system support using transfer factor molecules. Results of an independentstudy conducted at the Russian Academy of Medical Science conclusively showed the ability of 4Life TransferFactor Plus Advanced Formula to propel Natural Killer (NK) cell activity to a remarkable 437 percent above normal immune responseThanks,> > > > >> > > > > Well, just when I thought I had somewhat of> > a> > > handle on the > > > > autism, > > > > > something new came along.> > > > > > > > > > What I thought was a simple bladder> > infection,> > > turned out to be > > > > acute > > > > > onset type 1 diabetes. My son's sugar> > reading> > > was 557 (normal is > > > > > between 80 and 120). We just got out of the> > > hospital after an > > > > > overnight stay to stabilize his sugar and> > learn> > > how to administer > > > > the > > > > > testing and the insulin injections.> > > > > > > > > > We are having such a difficult time testing> > his> > > sugar and giving > > > > him > > > > > the injections. He fights us so hard. It> > takes> > > 3 to 4 people to > > > > > hold him down (testing is 4 times per day> > and> > > injections are 2 > > > > times > > > > > per day). Most of this resistance stems from> > > his fear of needles > > > > and > > > > > the fact that I have taught him not to play> > with> > > needles - they > > > > are > > > > > not safe. Of course, this is the exception> > to> > > the rule (we all > > > > know > > > > > how our kids handle exceptions to rules --> > not> > > well).> > > > > > > > > > I was wondering if anyone on the list knew> > of> > > someone who had a > > > > child > > > > > who is both autistic and diabetic. I think> > it> > > would be helpful > > > > for > > > > > me to talk to someone who maybe able to give> > me> > > more ideas.> > > > > > > > > > I am taking him to see a behavioral> > psychologist> > > tomorrow. I'm > > > > > hoping she can help. However, I would really> > > like to talk to > > > > someone > > > > > who has a child with both autism and> > diabetes.> > > === message truncated ===>

June 8, 2006

,

This was very helpful, thank you. I do remember your post about IGG

2000, and maybe will ask the new doctor we are going to see to look

into it for us. We are not CF yet but will test soon and see if we

have to be. I also read your post about your girl's reaction to the

GFCF diet, made sense to discontinue it, IMO.... Regarding our

allergies and sensitivities, I have been actually almost completely

removing casein again to see what happens. And again, I am making

the same mistakes over and over, which means that I am changing more

than one variable at one time... so we have reduced casein,

significantly, over the past 2 weeks, although have not eliminated

it yet. I also started Evan on a good Vit E supplement 5 days ago,

and 2 days ago slowly started him on B complex. And we chelated last

weekend, so.....

But all this stuff seems to be helping because he is doing great in

school, getting more verbals and eye contact, better attention and

more spontaneous for sure. Yeast related behaviors are down down

down, which is so good to see.

This thing with the immune booster interests me, even though no test

results indicate the need, only my observations regarding him coming

down with colds and stomach bugs a lot, especially on those

weekends. Also, he has a ton of environmental and food allergies,

which is a heavy load on the immune system also. So I was thinking

about transfer factor. Perhaps I can give it to him with digestive

enzymes....?

May I ask whom you have seen in Philly? Someone, a while ago gave me

a name there that was recommended by Andy Cutler also, but I can't

find that email, unfortunately. Maybe if I see the name I will

recall... memory problems here also!!

What a lesson learnt over and over again, though, regarding having

to do reasearch about everything that is recommended by a doctor

even, cause nobody is as conscientious, really, as a parent spending

most of their waking hours making sure that their child (or

grandchild) are well and getting better....

Thanks again,

> > > > > >

> > > > > > Well, just when I thought I had somewhat of

> > > a

> > > > handle on the

> > > > > autism,

> > > > > > something new came along.

> > > > > >

> > > > > > What I thought was a simple bladder

> > > infection,

> > > > turned out to be

> > > > > acute

> > > > > > onset type 1 diabetes. My son's sugar

> > > reading

> > > > was 557 (normal is

> > > > > > between 80 and 120). We just got out of the

> > > > hospital after an

> > > > > > overnight stay to stabilize his sugar and

> > > learn

> > > > how to administer

> > > > > the

> > > > > > testing and the insulin injections.

> > > > > >

> > > > > > We are having such a difficult time testing

> > > his

> > > > sugar and giving

> > > > > him

> > > > > > the injections. He fights us so hard. It

> > > takes

> > > > 3 to 4 people to

> > > > > > hold him down (testing is 4 times per day

> > > and

> > > > injections are 2

> > > > > times

> > > > > > per day). Most of this resistance stems from

> > > > his fear of needles

> > > > > and

> > > > > > the fact that I have taught him not to play

> > > with

> > > > needles - they

> > > > > are

> > > > > > not safe. Of course, this is the exception

> > > to

> > > > the rule (we all

> > > > > know

> > > > > > how our kids handle exceptions to rules --

> > > not

> > > > well).

> > > > > >

> > > > > > I was wondering if anyone on the list knew

> > > of

> > > > someone who had a

> > > > > child

> > > > > > who is both autistic and diabetic. I think

> > > it

> > > > would be helpful

> > > > > for

> > > > > > me to talk to someone who maybe able to give

> > > me

> > > > more ideas.

> > > > > >

> > > > > > I am taking him to see a behavioral

> > > psychologist

> > > > tomorrow. I'm

> > > > > > hoping she can help. However, I would really

> > > > like to talk to

> > > > > someone

> > > > > > who has a child with both autism and

> > > diabetes.

> > >

> > === message truncated ===

> >

>

June 8, 2006

Hi ,

I strongly recommend doing only one type of treatment at a time and when all is well begin the next. Chelating IMO should be done last after having your child on the gfcf diet and supplements for at least 6 months. You want to get your child's immune system healthy before inducing forced chelation which can put alot of stress on your child's internal organs, also, if you are doing so many things at one time you won't know what is causing certain behaviors. We all naturally chelate metals but our children have impaired systems that need that help. I don't know for sure which is more beneficial to chelate before gfcf and this will bring healing to the system or gfcf first? But doing one at a time I think is best and less stressful on a body.

Yours,

n

In a message dated 6/8/06 12:10:30 PM Eastern Daylight Time, aedape4@... writes:

removing casein again to see what happens. And again, I am making the same mistakes over and over, which means that I am changing more than one variable at one time... so we have reduced casein, significantly, over the past 2 weeks, although have not eliminated it yet. I also started Evan on a good Vit E supplement 5 days ago, and 2 days ago slowly started him on B complex. And we chelated last weekend, so.....

June 8, 2006

Is Dr. Larry in Lansdale Pa, just about 1/2 hour before Philly. I loved him, great guy, knew his stuff, practices the low/frequent dosing that I so firmly believe in.

Our girl is almost done, we just needed some answers to when we are done, and some residual health issues e.g. immune system and thyroid, and we got them. I would not hesitate to recommend him to anyone. If we lived closer, I would go to him, as he is also a family dr, has a subspeciality in add, adhd, asd, as he has an asd child.

He's very agreeable, and, so cute, hugged us all when we left :-). Yep, pretty true, have to do all the research for sure, there is barely enough time in a day to do the research for you own child, can't imagine how a dr wades through all of it.

Yes, you can give with enzymes, or anything.

Good luck, ,

----- Original Message -----

From: aedape4

Sent: Thursday, June 08, 2006 12:01 PM

Subject: [ ] Re: Does anyone have a child with both autism and diabetes?

,This was very helpful, thank you. I do remember your post about IGG 2000, and maybe will ask the new doctor we are going to see to look into it for us. We are not CF yet but will test soon and see if we have to be. I also read your post about your girl's reaction to the GFCF diet, made sense to discontinue it, IMO.... Regarding our allergies and sensitivities, I have been actually almost completely removing casein again to see what happens. And again, I am making the same mistakes over and over, which means that I am changing more than one variable at one time... so we have reduced casein, significantly, over the past 2 weeks, although have not eliminated it yet. I also started Evan on a good Vit E supplement 5 days ago, and 2 days ago slowly started him on B complex. And we chelated last weekend, so.....But all this stuff seems to be helping because he is doing great in school, getting more verbals and eye contact, better attention and more spontaneous for sure. Yeast related behaviors are down down down, which is so good to see. This thing with the immune booster interests me, even though no test results indicate the need, only my observations regarding him coming down with colds and stomach bugs a lot, especially on those weekends. Also, he has a ton of environmental and food allergies, which is a heavy load on the immune system also. So I was thinking about transfer factor. Perhaps I can give it to him with digestive enzymes....? May I ask whom you have seen in Philly? Someone, a while ago gave me a name there that was recommended by Andy Cutler also, but I can't find that email, unfortunately. Maybe if I see the name I will recall... memory problems here also!! What a lesson learnt over and over again, though, regarding having to do reasearch about everything that is recommended by a doctor even, cause nobody is as conscientious, really, as a parent spending most of their waking hours making sure that their child (or grandchild) are well and getting better....Thanks again, > > > > > >> > > > > > Well, just when I thought I had somewhat of> > > a> > > > handle on the > > > > > autism, > > > > > > something new came along.> > > > > > > > > > > > What I thought was a simple bladder> > > infection,> > > > turned out to be > > > > > acute > > > > > > onset type 1 diabetes. My son's sugar> > > reading> > > > was 557 (normal is > > > > > > between 80 and 120). We just got out of the> > > > hospital after an > > > > > > overnight stay to stabilize his sugar and> > > learn> > > > how to administer > > > > > the > > > > > > testing and the insulin injections.> > > > > > > > > > > > We are having such a difficult time testing> > > his> > > > sugar and giving > > > > > him > > > > > > the injections. He fights us so hard. It> > > takes> > > > 3 to 4 people to > > > > > > hold him down (testing is 4 times per day> > > and> > > > injections are 2 > > > > > times > > > > > > per day). Most of this resistance stems from> > > > his fear of needles > > > > > and > > > > > > the fact that I have taught him not to play> > > with> > > > needles - they > > > > > are > > > > > > not safe. Of course, this is the exception> > > to> > > > the rule (we all > > > > > know > > > > > > how our kids handle exceptions to rules --> > > not> > > > well).> > > > > > > > > > > > I was wondering if anyone on the list knew> > > of> > > > someone who had a > > > > > child > > > > > > who is both autistic and diabetic. I think> > > it> > > > would be helpful > > > > > for > > > > > > me to talk to someone who maybe able to give> > > me> > > > more ideas.> > > > > > > > > > > > I am taking him to see a behavioral> > > psychologist> > > > tomorrow. I'm > > > > > > hoping she can help. However, I would really> > > > like to talk to > > > > > someone > > > > > > who has a child with both autism and> > > diabetes.> > > > > === message truncated ===> >>

June 8, 2006

This is really great advice, to only do one thing at a time, but I admit, I have a hard time following it.

The recommendation I have heard before starting chelation is just one month, the thinking being that that the immune system or gut health will never be completely healed until chelation.

Another reason not to wait is that while there are exceptions to the rule, chelation is most successful in children, 5 and under although strides are being made with the older kids.

We do have a dr in our area who appears to wait an extraordinary long time before beginning chelation. Perhaps that was the wisdom a few years ago, but now enough data and information are known that make this a most unwise practice.

----- Original Message -----

From: DMHelmick1@...

Sent: Thursday, June 08, 2006 5:01 PM

Subject: Re: [ ] Re: Does anyone have a child with both autism and diabetes?

Hi , I strongly recommend doing only one type of treatment at a time and when all is well begin the next. Chelating IMO should be done last after having your child on the gfcf diet and supplements for at least 6 months. You want to get your child's immune system healthy before inducing forced chelation which can put alot of stress on your child's internal organs, also, if you are doing so many things at one time you won't know what is causing certain behaviors. We all naturally chelate metals but our children have impaired systems that need that help. I don't know for sure which is more beneficial to chelate before gfcf and this will bring healing to the system or gfcf first? But doing one at a time I think is best and less stressful on a body. Yours, n In a message dated 6/8/06 12:10:30 PM Eastern Daylight Time, aedape4@... writes:

removing casein again to see what happens. And again, I am making the same mistakes over and over, which means that I am changing more than one variable at one time... so we have reduced casein, significantly, over the past 2 weeks, although have not eliminated it yet. I also started Evan on a good Vit E supplement 5 days ago, and 2 days ago slowly started him on B complex. And we chelated last weekend, so.....

June 8, 2006

Hi n,

Thanks for your suggestions! The truth is, every child has a

slightly different path to getting better and a slightly different

answer to their issues as they are all so different, poisoned by

different amounts of mercury, arsenic, antimony, lead, bismouth, and

so on, just to mention a few, before or after birth, from one source

or another... Their autistic symptoms are different, and so their

immune system responses and functioning will be just as different as

their biological and genetic make up.

I have to say I agree with strongly about the fact that

waiting too long is a mistake. My own experience is in support of

this statement as we have been waiting for over two years for signs

of improvement, basing our treatment on a recommendation of one DAN

physician. I beat myself up over this every day because I should

have known better and I should have researched more before doing

someone's protocol blindly.

My son was under 2 yo when we went through the allergy ellimination,

for example, and now he is over 4. At 4, he is more autistic than

when he was 2. While there were some good things with allergy

treatments (one thing at a time, right?) for example, they did not

cause a breakthrough. And they took about 6 months because honestly,

who can afford to pay for it all at once?

The GFCF we did diligently for over a year....with no significant,

observable behavior changes either. Helped with BMs though. That's

why I am thinking about doing it again, although I am seeing nice

results in increased awareness with digestive enzymes also.

Prior to using the enzymes I have not observed any benefits from the

use of the doctor's recommended supplements either, as they were

malabsorbed. I had to find out about the enzymes myself as my old

DAN doctor had not emphasized their use extensively, really. And she

has not really given me much information on the pros or cons of her

treatment protocol either...

Needless to say, I am not seeing this doctor any more.

I am finally taking things a step forward, moving on slowly, looking

for a new doctor and talking a lot with parents who are the most

involved and most with great results.

The recent positive changes I can only explain by either the

chelation or the Vitamin E. More likely, chelation, done in low

doses, is helping my son. We ensure safety through testing for liver

functioning every 4 months and through the supplementation with

certain minerals and vitamins, in the correct form, in the correct

dosage, with digestive enzymes.

So n, as you can see, we have been down that route before and

have done it all.... and we feel that now it's time to get movin'

with what's been most beneficial for us. Again, it may NOT work for

another kid on the spectrum, or not exactly the way or order in

which we are doing biomed, but finally it's beginning to help our

son in combination with intensive ABA therapy.

My son is now 4 and the clock is ticking. I have a good idea about

what supplements help certain behaviors, and I am happy to see

improvements overall.

Thanks,

>

> This is really great advice, to only do one thing at a time, but I

admit, I have a hard time following it.

>

> The recommendation I have heard before starting chelation is just

one month, the thinking being that that the immune system or gut

health will never be completely healed until chelation.

>

> Another reason not to wait is that while there are exceptions to

the rule, chelation is most successful in children, 5 and under

although strides are being made with the older kids.

>

> We do have a dr in our area who appears to wait an extraordinary

long time before beginning chelation. Perhaps that was the wisdom a

few years ago, but now enough data and information are known that

make this a most unwise practice.

>

> ----- Original Message -----

> From: DMHelmick1@...

>

> Sent: Thursday, June 08, 2006 5:01 PM

> Subject: Re: [ ] Re: Does anyone have a child with both

autism and diabetes?

>

> Hi ,

>

> I strongly recommend doing only one type of treatment at a time

and when all is well begin the next. Chelating IMO should be done

last after having your child on the gfcf diet and supplements for at

least 6 months. You want to get your child's immune system healthy

before inducing forced chelation which can put alot of stress on

your child's internal organs, also, if you are doing so many things

at one time you won't know what is causing certain behaviors. We

all naturally chelate metals but our children have impaired systems

that need that help. I don't know for sure which is more beneficial

to chelate before gfcf and this will bring healing to the system or

gfcf first? But doing one at a time I think is best and less

stressful on a body.

>

> Yours,

>

> n

>

> In a message dated 6/8/06 12:10:30 PM Eastern Daylight Time,

aedape4@... writes:

>

> removing casein again to see what happens. And again, I am

making

> the same mistakes over and over, which means that I am

changing more

> than one variable at one time... so we have reduced casein,

> significantly, over the past 2 weeks, although have not

eliminated

> it yet. I also started Evan on a good Vit E supplement 5 days

ago,

> and 2 days ago slowly started him on B complex. And we

chelated last

> weekend, so.....

>

June 9, 2006

I took nine months to research the chelation portion of treatment (slow learner, no medical/science proclivity, at all) All the time I felt like you did , the clock was ticking, as she reached her fourth birthday, but I just couldn't risk starting anything before I had thoroughly researched it.

I have heard of other people who after two years were still waiting to begin chelation, with the doctor/clinic we are speaking of. There is really no excuse for this. I hate to think that treatment is being drug out for financial reasons, but that is the only thing I can come up with, terrible.

Lucky for us, four was not too late. You do the best you know, at the time, , that is all you can do, but I seriously regret the lack of appropriate, affordable biomedical care in this area.

----- Original Message -----

From: aedape4

Sent: Thursday, June 08, 2006 6:43 PM

Subject: [ ] Re: Does anyone have a child with both autism and diabetes?

Hi n,Thanks for your suggestions! The truth is, every child has a slightly different path to getting better and a slightly different answer to their issues as they are all so different, poisoned by different amounts of mercury, arsenic, antimony, lead, bismouth, and so on, just to mention a few, before or after birth, from one source or another... Their autistic symptoms are different, and so their immune system responses and functioning will be just as different as their biological and genetic make up. I have to say I agree with strongly about the fact that waiting too long is a mistake. My own experience is in support of this statement as we have been waiting for over two years for signs of improvement, basing our treatment on a recommendation of one DAN physician. I beat myself up over this every day because I should have known better and I should have researched more before doing someone's protocol blindly. My son was under 2 yo when we went through the allergy ellimination, for example, and now he is over 4. At 4, he is more autistic than when he was 2. While there were some good things with allergy treatments (one thing at a time, right?) for example, they did not cause a breakthrough. And they took about 6 months because honestly, who can afford to pay for it all at once? The GFCF we did diligently for over a year....with no significant, observable behavior changes either. Helped with BMs though. That's why I am thinking about doing it again, although I am seeing nice results in increased awareness with digestive enzymes also. Prior to using the enzymes I have not observed any benefits from the use of the doctor's recommended supplements either, as they were malabsorbed. I had to find out about the enzymes myself as my old DAN doctor had not emphasized their use extensively, really. And she has not really given me much information on the pros or cons of her treatment protocol either... Needless to say, I am not seeing this doctor any more. I am finally taking things a step forward, moving on slowly, looking for a new doctor and talking a lot with parents who are the most involved and most with great results. The recent positive changes I can only explain by either the chelation or the Vitamin E. More likely, chelation, done in low doses, is helping my son. We ensure safety through testing for liver functioning every 4 months and through the supplementation with certain minerals and vitamins, in the correct form, in the correct dosage, with digestive enzymes.So n, as you can see, we have been down that route before and have done it all.... and we feel that now it's time to get movin' with what's been most beneficial for us. Again, it may NOT work for another kid on the spectrum, or not exactly the way or order in which we are doing biomed, but finally it's beginning to help our son in combination with intensive ABA therapy.My son is now 4 and the clock is ticking. I have a good idea about what supplements help certain behaviors, and I am happy to see improvements overall. Thanks,>> This is really great advice, to only do one thing at a time, but I admit, I have a hard time following it.> > The recommendation I have heard before starting chelation is just one month, the thinking being that that the immune system or gut health will never be completely healed until chelation. > > Another reason not to wait is that while there are exceptions to the rule, chelation is most successful in children, 5 and under although strides are being made with the older kids.> > We do have a dr in our area who appears to wait an extraordinary long time before beginning chelation. Perhaps that was the wisdom a few years ago, but now enough data and information are known that make this a most unwise practice.> > > > > ----- Original Message ----- > From: DMHelmick1@... > > Sent: Thursday, June 08, 2006 5:01 PM> Subject: Re: [ ] Re: Does anyone have a child with both autism and diabetes?> > > Hi , > > I strongly recommend doing only one type of treatment at a time and when all is well begin the next. Chelating IMO should be done last after having your child on the gfcf diet and supplements for at least 6 months. You want to get your child's immune system healthy before inducing forced chelation which can put alot of stress on your child's internal organs, also, if you are doing so many things at one time you won't know what is causing certain behaviors. We all naturally chelate metals but our children have impaired systems that need that help. I don't know for sure which is more beneficial to chelate before gfcf and this will bring healing to the system or gfcf first? But doing one at a time I think is best and less stressful on a body. > > Yours, > > n > > In a message dated 6/8/06 12:10:30 PM Eastern Daylight Time, aedape4@... writes: > > > removing casein again to see what happens. And again, I am making > the same mistakes over and over, which means that I am changing more > than one variable at one time... so we have reduced casein, > significantly, over the past 2 weeks, although have not eliminated > it yet. I also started Evan on a good Vit E supplement 5 days ago, > and 2 days ago slowly started him on B complex. And we chelated last > weekend, so.....>

June 11, 2006

,

How do you get the product that you're using?

Ann

----- Original Message -----

From: " aedape4 " <aedape4@...>

< >

Sent: Thursday, June 08, 2006 10:24 AM

Subject: [ ] Re: Does anyone have a child with both autism and

diabetes?

> Dear ,

>

> I have been looking at your recommendation on the autism treatment

> board also for Transfer Factor for a few days now, and found some

> info, and I thought I would post here for those who are

> interested... and I also have a question for you, if you don't mind.

> Which formula, you think, would be a good start for a 4 yo with

> autism? And what about children/adults that are sensitive to Casein?

>

> Here's what I found on it on a distributor's website on 4Life

> Transfer Factor Plus Advanced Formula, providing an over 400% boost

> to the immune system:

>

> Far-Reaching Immune System Support

> Inside your body there is an amazing protection mechanism called the

> immune system. It is designed to defend you against a variety of

> unfavorable elements that would love to invade your body and

> compromise your health. For this reason, it is easy to understand

> that maintaining a healthy immune system means living a healthier

> life. 4Life Transfer Factor Plus Advanced Formula provides far-

> reaching immune support. It combines the synergistic power of 4Life

> Transfer Factor Advanced Formula with the proprietary Cordyvant

> blend to support overall good health. Recent scientific studies

> report that this Advanced Formula boosts immune system activity 437

> percent above normal immune response.

>

> Amount Per Serving DV%

> Zinc (as monomethionine) 3.3 mg 22%

> Transfer Factor E-XF?150 mg **

> A patented concentrate of transfer factors and other natural

> components from cow colostrum and egg yolk.

> Cordyvant?Proprietary 440 mg **

> Polysaccharide Complex

> IP-6 (Inositol hexaphosphate)

> Soya bean Extract (phytosterols)

> Cordyceps sinensis (7% cordyceptic acids)

> Beta-Glucan (from baker? yeast)(Saacharomyces cerevisiae)

> Beta-Glucan (from Oat)(Avena sativa)

> Agaricus blazeii Extract

> Mannans (from Aloe vera)(leaf)

> Olive Leaf Extract (Olea europaea)

> Maitake Mushroom (Grifola frondosa)(whole plant)

> Shiitake Mushroom (Lentinus edodes)(whole plant)(5:1extract)

> **Daily Value (DV) not established

> Other Ingredients: gelatin capsule, lemon peel.

>

> DIRECTIONS: Take two (2) capsules daily with 8 oz of fluid.

> Serving Size: One (1) Capsules

> Servings Per Container: 60

>

> Supplement Facts

> Key Points

>

> Transfer factors: Transfer factors are tiny molecules that transfer

> immunity information from one entity to another, such as between a

> mother and her infant who she breastfeeds. Transfer factors educate

> your immune system, thus supporting the recognition phase of an

> infection. This provides the necessary support for the immune system

> to be able to remember healthy immune function.

>

> Developed exclusively by 4Life using patented and patent-pending

> technology, the Transfer Factor E-XF proprietary blend used in our

> Advanced Formula calls upon the knowledge of two sources, providing

> an enhanced combined effect of transfer factors from both cow

> colostrum and egg yolks. Research shows that the immune-supporting

> effects of this transfer factor blend are more potent than that of

> colostrum or egg sources alone.

>

> Cordyvant: Cordyvant contains ingredients that support the innate

> immune system, your first and instinctive response when your body is

> threatened.

>

> This blend contains known immune system nutrients, including:

> Maitake and Shiitake Mushrooms?ong known to support T-Cell (immune

> system) and other health functions.

>

> Cordyceps?ich in polysaccharides, which help support immune system

> response.

>

> Inositol Hexaphosphate?aining attention for its preventative immune

> power.

>

> Beta Glucans?n important immune cell stimulator. They are the ?ake-

> up call to white blood cells.

>

> Soya Bean Extract? phytosterol that has been shown to help activate

> immune system response.

>

> Olive Leaf Extract?ay be instrumental in supporting healthy cell

> duplication.

>

> Scientifically Studied: 4Life researchers and scientists developed

> this Advanced Formula in an effort to further maximize immune system

> support using transfer factor molecules. Results of an independent

> study conducted at the Russian Academy of Medical Science

> conclusively showed the ability of 4Life Transfer

> Factor Plus Advanced Formula to propel Natural Killer (NK) cell

> activity to a remarkable 437 percent above normal immune response

>

> Thanks,

>

> > > > > >

> > > > > > Well, just when I thought I had somewhat of

> > > a

> > > > handle on the

> > > > > autism,

> > > > > > something new came along.

> > > > > >

> > > > > > What I thought was a simple bladder

> > > infection,

> > > > turned out to be

> > > > > acute

> > > > > > onset type 1 diabetes. My son's sugar

> > > reading

> > > > was 557 (normal is

> > > > > > between 80 and 120). We just got out of the

> > > > hospital after an

> > > > > > overnight stay to stabilize his sugar and

> > > learn

> > > > how to administer

> > > > > the

> > > > > > testing and the insulin injections.

> > > > > >

> > > > > > We are having such a difficult time testing

> > > his

> > > > sugar and giving

> > > > > him

> > > > > > the injections. He fights us so hard. It

> > > takes

> > > > 3 to 4 people to

> > > > > > hold him down (testing is 4 times per day

> > > and

> > > > injections are 2

> > > > > times

> > > > > > per day). Most of this resistance stems from

> > > > his fear of needles

> > > > > and

> > > > > > the fact that I have taught him not to play

> > > with

> > > > needles - they

> > > > > are

> > > > > > not safe. Of course, this is the exception

> > > to

> > > > the rule (we all

> > > > > know

> > > > > > how our kids handle exceptions to rules --

> > > not

> > > > well).

> > > > > >

> > > > > > I was wondering if anyone on the list knew

> > > of

> > > > someone who had a

> > > > > child

> > > > > > who is both autistic and diabetic. I think

> > > it

> > > > would be helpful

> > > > > for

> > > > > > me to talk to someone who maybe able to give

> > > me

> > > > more ideas.

> > > > > >

> > > > > > I am taking him to see a behavioral

> > > psychologist

> > > > tomorrow. I'm

> > > > > > hoping she can help. However, I would really

> > > > like to talk to

> > > > > someone

> > > > > > who has a child with both autism and

> > > diabetes.

> > >

> > === message truncated ===

> >

>

> *Just Some Group Notes:

>

> ~~~ ~~~ ~~~ ~~~ ~~~ ~~~ ~~~ ~~~

>

> We can help raise money for ASO (Autism Society of Ohio). Just by using a

charity based search engine. Search for anything you need info on. 2

steps: Just click on the link then type in Autism Society of Ohio and hit

verify. Then type in your search word. heres the link:

http://www.goodsearch.com

>

> ~~~ ~~~ ~~~ ~~~ ~~~ ~~~ ~~~ ~~~

>

> When Adding to your email address book, don't forget to include

the s in groups. Here is the complete address:

>

> ~~~ ~~~ ~~~ ~~~ ~~~ ~~~ ~~~ ~~~

>

> Our Parent Contact list - see a printable list or add your contact info:

>

> See the printable list:

/database?method=reportRows & tbl

=2 & sortBy=1 & sortDir=down & startAt= & prntRpt=1

>

> Add your contact info here:

/database?method=addRecord & tbl=

2

>

> ~~~ ~~~ ~~~ ~~~ ~~~ ~~~ ~~~ ~~~

>

> Would you like to invite a friend to our group?

> Would you like to handout information about our group to your area

meeting?

> Just print out some handouts from this link:

>

http://f4.grp.fs.com/v1/AIN0RLAa_M73oRrFIxpAYAoyKhpUQjhAQwLZyn-aHudv5wB

Io5CIDOYwMaYSuKIwsAQHkU2a2WBN2D3h6hU6ig/ -Handout.doc

>

> ~~~ ~~~ ~~~ ~~~ ~~~ ~~~ ~~~ ~~~

>

> See our group photo albums or Add your family photo album here:

> http://health.ph./group/ /photos

>

> ~~~ ~~~ ~~~ ~~~ ~~~ ~~~ ~~~ ~~~

>

> is a networking and support group

> of " Parent to Parent for Autism " .

> Website: http://hometown.aol.com/parentschat/homepage.html

>

> ~~~ ~~~ ~~~ ~~~ ~~~ ~~~ ~~~ ~~~

>

June 11, 2006

You can find Transfer Factor at

www.4LifeCenter.com

We used the product in the middle, the TF advanced, not the classic or the TF advanced plus. I think it would be good to get the TF advanced plus as it has some beneficial mushrooms in it, but it also has inositol and we don't do well with inositol.

Good luck,

----- Original Message -----

From: Ann Salisbury

Sent: Sunday, June 11, 2006 6:00 AM

Subject: Re: [ ] Re: Does anyone have a child with both autism and diabetes?

,How do you get the product that you're using? Ann----- Original Message -----From: "aedape4" <aedape4 >< >Sent: Thursday, June 08, 2006 10:24 AMSubject: [ ] Re: Does anyone have a child with both autism anddiabetes?> Dear ,>> I have been looking at your recommendation on the autism treatment> board also for Transfer Factor for a few days now, and found some> info, and I thought I would post here for those who are> interested... and I also have a question for you, if you don't mind.> Which formula, you think, would be a good start for a 4 yo with> autism? And what about children/adults that are sensitive to Casein?>> Here's what I found on it on a distributor's website on 4Life> Transfer Factor Plus Advanced Formula, providing an over 400% boost> to the immune system:>> Far-Reaching Immune System Support> Inside your body there is an amazing protection mechanism called the> immune system. It is designed to defend you against a variety of> unfavorable elements that would love to invade your body and> compromise your health. For this reason, it is easy to understand> that maintaining a healthy immune system means living a healthier> life. 4Life Transfer Factor Plus Advanced Formula provides far-> reaching immune support. It combines the synergistic power of 4Life> Transfer Factor Advanced Formula with the proprietary Cordyvant> blend to support overall good health. Recent scientific studies> report that this Advanced Formula boosts immune system activity 437> percent above normal immune response.>> Amount Per Serving DV%> Zinc (as monomethionine) 3.3 mg 22%> Transfer Factor E-XF?150 mg **> A patented concentrate of transfer factors and other natural> components from cow colostrum and egg yolk.> Cordyvant?Proprietary 440 mg **> Polysaccharide Complex> IP-6 (Inositol hexaphosphate)> Soya bean Extract (phytosterols)> Cordyceps sinensis (7% cordyceptic acids)> Beta-Glucan (from baker? yeast)(Saacharomyces cerevisiae)> Beta-Glucan (from Oat)(Avena sativa)> Agaricus blazeii Extract> Mannans (from Aloe vera)(leaf)> Olive Leaf Extract (Olea europaea)> Maitake Mushroom (Grifola frondosa)(whole plant)> Shiitake Mushroom (Lentinus edodes)(whole plant)(5:1extract)> **Daily Value (DV) not established> Other Ingredients: gelatin capsule, lemon peel.>>> DIRECTIONS: Take two (2) capsules daily with 8 oz of fluid.> Serving Size: One (1) Capsules> Servings Per Container: 60>>> Supplement Facts> Key Points>>> Transfer factors: Transfer factors are tiny molecules that transfer> immunity information from one entity to another, such as between a> mother and her infant who she breastfeeds. Transfer factors educate> your immune system, thus supporting the recognition phase of an> infection. This provides the necessary support for the immune system> to be able to remember healthy immune function.>> Developed exclusively by 4Life using patented and patent-pending> technology, the Transfer Factor E-XF proprietary blend used in our> Advanced Formula calls upon the knowledge of two sources, providing> an enhanced combined effect of transfer factors from both cow> colostrum and egg yolks. Research shows that the immune-supporting> effects of this transfer factor blend are more potent than that of> colostrum or egg sources alone.>> Cordyvant: Cordyvant contains ingredients that support the innate> immune system, your first and instinctive response when your body is> threatened.>> This blend contains known immune system nutrients, including:> Maitake and Shiitake Mushrooms?ong known to support T-Cell (immune> system) and other health functions.>> Cordyceps?ich in polysaccharides, which help support immune system> response.>> Inositol Hexaphosphate?aining attention for its preventative immune> power.>> Beta Glucans?n important immune cell stimulator. They are the ?ake-> up call to white blood cells.>> Soya Bean Extract? phytosterol that has been shown to help activate> immune system response.>> Olive Leaf Extract?ay be instrumental in supporting healthy cell> duplication.>> Scientifically Studied: 4Life researchers and scientists developed> this Advanced Formula in an effort to further maximize immune system> support using transfer factor molecules. Results of an independent> study conducted at the Russian Academy of Medical Science> conclusively showed the ability of 4Life Transfer> Factor Plus Advanced Formula to propel Natural Killer (NK) cell> activity to a remarkable 437 percent above normal immune response>> Thanks,> >> > > > > > >> > > > > > Well, just when I thought I had somewhat of> > > a> > > > handle on the> > > > > autism,> > > > > > something new came along.> > > > > >> > > > > > What I thought was a simple bladder> > > infection,> > > > turned out to be> > > > > acute> > > > > > onset type 1 diabetes. My son's sugar> > > reading> > > > was 557 (normal is> > > > > > between 80 and 120). We just got out of the> > > > hospital after an> > > > > > overnight stay to stabilize his sugar and> > > learn> > > > how to administer> > > > > the> > > > > > testing and the insulin injections.> > > > > >> > > > > > We are having such a difficult time testing> > > his> > > > sugar and giving> > > > > him> > > > > > the injections. He fights us so hard. It> > > takes> > > > 3 to 4 people to> > > > > > hold him down (testing is 4 times per day> > > and> > > > injections are 2> > > > > times> > > > > > per day). Most of this resistance stems from> > > > his fear of needles> > > > > and> > > > > > the fact that I have taught him not to play> > > with> > > > needles - they> > > > > are> > > > > > not safe. Of course, this is the exception> > > to> > > > the rule (we all> > > > > know> > > > > > how our kids handle exceptions to rules --> > > not> > > > well).> > > > > >> > > > > > I was wondering if anyone on the list knew> > > of> > > > someone who had a> > > > > child> > > > > > who is both autistic and diabetic. I think> > > it> > > > would be helpful> > > > > for> > > > > > me to talk to someone who maybe able to give> > > me> > > > more ideas.> > > > > >> > > > > > I am taking him to see a behavioral> > > psychologist> > > > tomorrow. I'm> > > > > > hoping she can help. However, I would really> > > > like to talk to> > > > > someone> > > > > > who has a child with both autism and> > > diabetes.> > >> > === message truncated ===> >>>>>>>>>> *Just Some Group Notes:>> ~~~ ~~~ ~~~ ~~~ ~~~ ~~~ ~~~ ~~~>> We can help raise money for ASO (Autism Society of Ohio). Just by using acharity based search engine. Search for anything you need info on. 2steps: Just click on the link then type in Autism Society of Ohio and hitverify. Then type in your search word. heres the link:http://www.goodsearch.com>> ~~~ ~~~ ~~~ ~~~ ~~~ ~~~ ~~~ ~~~>> When Adding to your email address book, don't forget to includethe s in groups. Here is the complete address:> >> ~~~ ~~~ ~~~ ~~~ ~~~ ~~~ ~~~ ~~~>> Our Parent Contact list - see a printable list or add your contact info:>> See the printable list: /database?method=reportRows & tbl=2 & sortBy=1 & sortDir=down & startAt= & prntRpt=1>> Add your contact info here: /database?method=addRecord & tbl=2>> ~~~ ~~~ ~~~ ~~~ ~~~ ~~~ ~~~ ~~~>> Would you like to invite a friend to our group?> Would you like to handout information about our group to your areameeting?> Just print out some handouts from this link:>http://f4.grp.fs.com/v1/AIN0RLAa_M73oRrFIxpAYAoyKhpUQjhAQwLZyn-aHudv5wBIo5CIDOYwMaYSuKIwsAQHkU2a2WBN2D3h6hU6ig/ -Handout.doc>> ~~~ ~~~ ~~~ ~~~ ~~~ ~~~ ~~~ ~~~>> See our group photo albums or Add your family photo album here:> http://health.ph./group/ /photos>> ~~~ ~~~ ~~~ ~~~ ~~~ ~~~ ~~~ ~~~>> is a networking and support group> of "Parent to Parent for Autism".> Website: http://hometown.aol.com/parentschat/homepage.html>> ~~~ ~~~ ~~~ ~~~ ~~~ ~~~ ~~~ ~~~>

June 12, 2006

Debbie, what is his diet like? in Fairlawn

>

> Well, just when I thought I had somewhat of a handle on the

autism,

> something new came along.

>

> What I thought was a simple bladder infection, turned out to be

acute

> onset type 1 diabetes. My son's sugar reading was 557 (normal is

> between 80 and 120). We just got out of the hospital after an

> overnight stay to stabilize his sugar and learn how to administer

the

> testing and the insulin injections.

>

> We are having such a difficult time testing his sugar and giving

him

> the injections. He fights us so hard. It takes 3 to 4 people to

> hold him down (testing is 4 times per day and injections are 2

times

> per day). Most of this resistance stems from his fear of needles

and

> the fact that I have taught him not to play with needles - they

are

> not safe. Of course, this is the exception to the rule (we all

know

> how our kids handle exceptions to rules -- not well).

>

> I was wondering if anyone on the list knew of someone who had a

child

> who is both autistic and diabetic. I think it would be helpful

for

> me to talk to someone who maybe able to give me more ideas.

>

> I am taking him to see a behavioral psychologist tomorrow. I'm

> hoping she can help. However, I would really like to talk to

someone

> who has a child with both autism and diabetes.

>

> To complicate things even further, my husband's father passed away

> early this morning (his grandmother passed away last week and we

> buried her last weekend). As such, I may not be able to monitor

the

> list as often as I usually do (at least until after this

weekend).

>

> I would appreciate any suggestions.

>

> Thanks.

> Debbie Z.

>

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