Guest guest Posted November 7, 2002 Report Share Posted November 7, 2002 Becky, We are seriously thinking about the pump, but want to be sure amanda can manage it herself. This new insulin regime that we are going to try, is similiar in theory to the pump - eat what you want and adjust the insulin to accomadate the food intake. There's a bit of math involved in the pump and we want to be sure she can handle it as independently as possible. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 7, 2002 Report Share Posted November 7, 2002 , my SIL has one. It's changed her life, that's for sure. She loves it. She's had it about 3 years now. One really good thing, only have to stick yourself once every 3 days. Then it's just the cath. :-) That might brighten 's day. LOL...She's only had it pull out in her sleep once, and figured it out quick enough to prevent any major catrostophy. Good luck. Beth Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 7, 2002 Report Share Posted November 7, 2002 In a message dated 11/7/2002 6:01:02 PM Central Standard Time, sherriwalthers@... writes: > wow, the foods you thought you could > never eat really taste great, My SIL ate Carmel apples last year for the first time in her life. She usually ate whatever she wanted anyway, but she felt horrible all the time, had to take a nap every day. Now, she feels great all the time. It's been a huge difference for her. If she want's cake, she just puts the correct number in, and look out...:-) Beth Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 7, 2002 Report Share Posted November 7, 2002 Have you looked into the pump? I have a friend whose son (non-ds) was diagnosed with Diabetes 1 year and a half ago (a age 7) and last summer went on the pump (at age 8). She said the ability to regulate levels with the pump was truly incredible. - Becky Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 7, 2002 Report Share Posted November 7, 2002 I will agree with you on the pump, I have been on one for almost a year now and I love it, lots of freedom and wow, the foods you thought you could never eat really taste great, I have been diabetic(type 1) for 31 years and never had better control than I do now Sherri mom To Tayler 4 ds and Cierra almost 3 Re: More stress > Have you looked into the pump? > > I have a friend whose son (non-ds) was diagnosed with Diabetes 1 year and a half ago (a age 7) and last summer went on the pump (at age 8). She said the ability to regulate levels with the pump was truly incredible. > > - Becky > > Click reply to all for messages to go to the list. Just hit reply for messages to go to the sender of the message. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 7, 2002 Report Share Posted November 7, 2002 Things will get better for you . You know how it is when everything is new and all changed up. It is nothing but stress and confusion until you get the hang of the new thing. The doctor appointments will be gone soon and you will feel like a pro at this new issue soon enough. Just hang in there. Both, you and will do great with any new changes you go through. You know everything hits all at once. It wouldn't be " right " if it didn't happen this way. Don't let it get the best of you. Once in the new routine of things you two will be handling this like pros. I hate change also but this is the way of life. Everything is always changing, nothing stays the same forever. Once you think you have something down, you have to go and do it another way because something else came up. Hang in there it will get better. Hope this little message helped a little. >From: linman42@... > >Subject: More stress >Date: Thu, 7 Nov 2002 13:17:50 EST > >Hi, >I'll try to keep this brief. Yesterday, amanda had her diabetes >appointment. > Well, she's been not having great diabetes management lately. Those of >you >who know her, know how well she does manage her diabetes (short of the >occassional marshmallow). > >Anyway, they want to change her entire insulin regime ( which i agree with >because her diabetes is not in control). But that would mean an extra shot >and we would lose some freedoms that we enjoy now. > >For instance, if she goes out for dinner without me, i can pre make her >injection and she can take it with her and give it to herself. That >couldnt >happen now. They want me to increase the quick acting insulin which is >scary >for me cause that could lead to low blood sugar emergencies. > >OK, so without the medical stuff, I am totally stressed. The endo spent >like >1 hour with me yesterday and amanda was adament - no more shots. She just >got Celiac Disease, changed her diet radically, started Middle school, >decreased her activity due to alot of school work, the dark and cold days, >and is not used to change anyway. > >I am feeling really overwhelmed - the doctors appointments, the tests at >the >doctors, the changes, and i just put Clorox II in the rinse cycle of the >laundry. Am I losing it or what????? > > ~ Mom to 12 DS and Diabetes Type 1 and Celiac Disease and > >8 NY >(running out of space here!) _________________________________________________________________ MSN 8 with e-mail virus protection service: 2 months FREE* http://join.msn.com/?page=features/virus Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 7, 2002 Report Share Posted November 7, 2002 sherriwalthers wrote: >I will agree with you on the pump, I have been on one for almost a year now >and I love it, lots of freedom and wow, the foods you thought you could >never eat really taste great, I have been diabetic(type 1) for 31 years and >never had better control than I do now >Sherri mom To Tayler 4 ds and Cierra almost 3 > My girlfriend has been a diabetic for about 25 years, and has had her pump for quite awhile and LOVES it. It's not just the great control she gets, but she just got a new one recently that is not just " splashproof " , but waterproof to some depth, and went jetskiing this summer with her pump on...... that way she could enjoy the BBQ as well. Things have certainly come a long way ! > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 9, 2003 Report Share Posted October 9, 2003 Hi Sandy, I know this is a very stressful time for you. I have been going through ear problems since the age of 6 or 7. I am now 41. I do not know if there is a "fix" for poor eustachian tube function. What has worked for me, is having a Canal Wall Down procedure in both ears, with the widened canals. I have had no re-occurence of c-toma since having those operations. I have severe hearing loss in both ears. I wear hearing aids right now. This past August, I had a procedure for a BAHA ( Bone Anchor Hearing Aid. ) I will get this aid in early November. This type of aid is very good for people with conductive hearing loss. I am very optimistic that I will hear alot better with this type of aid. Best of luck to you and your son. Ilona sbrick2 <sbrick2@...> wrote: Hi. We have posted in the past, as our 8 year old son, , has had two cholesteatomas removed within a year of each other. His first surgery was about 15 months ago and all of the bones in the right ear were destroyed, except for the eardrum. Thus, no hearing on the right side. Last April, he had his second surgery, this time on the left ear. Here we were luckier. He still has the stapes and the ear drum and some hearing. At our appointment last night we were told that 's left eustachian tube does not function and that the eardrum is retracted. We are confused and very stressed out about this information as our dr. sounded very concerned. Here's the question for all of you. Have any of you been through this? What if anything was the "fix" and did it cause more hearing loss. From what I read online last night, the retracted eardrum can cause cholesteatomas so is he at an even greater risk of a reaccurance? We are very happy with our ENT. He came very highly recommended and works at the Children's Hospital in Wisconsin. We are just very stressed parents. Sorry about rambling on and on. Thanks for the support.Sandy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 9, 2003 Report Share Posted October 9, 2003 Hi I had a cholesteatoma removed in November 1999 and to date, have had no recurrence thankfully. However, in nearly all my visits to the ENT consultant since then, the specialists have said that my tympanic membrane (ear drum) is retracted towards the attic. I don't know that means anything, but they don't seem too fussed by it. I had a message left on my answerphone today - I have to ring the Admissions Officer at the hospital, where I'm waiting to have surgery for a BAHA. I'll ring tomorrow morning and see what she has to say. Shame they were closed today when I got home from work. :-( Kazz xx -- More stress Hi. We have posted in the past, as our 8 year old son, , has had two cholesteatomas removed within a year of each other. His first surgery was about 15 months ago and all of the bones in the right ear were destroyed, except for the eardrum. Thus, no hearing on the right side. Last April, he had his second surgery, this time on the left ear. Here we were luckier. He still has the stapes and the ear drum and some hearing. At our appointment last night we were told that 's left eustachian tube does not function and that the eardrum is retracted. We are confused and very stressed out about this information as our dr. sounded very concerned. Here's the question for all of you. Have any of you been through this? What if anything was the "fix" and did it cause more hearing loss. From what I read online last night, the retracted eardrum can cause cholesteatomas so is he at an even greater risk of a reaccurance? We are very happy with our ENT. He came very highly recommended and works at the Children's Hospital in Wisconsin. We are just very stressed parents. Sorry about rambling on and on. Thanks for the support.Sandy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 9, 2003 Report Share Posted October 9, 2003 Hi Sandy I think it may depend on whether it's a big or little retraction pocket. A bigger eardrum retraction can get wrapped around the ossicles or attached to the wall of the middle ear. A smaller one can sometimes resolve itself by getting the Eustachian tube working better. Whenever the Eustachian tube is blocked the no air can get into the middle ear and the air that's already there is absorbed into the tissue. That creates a vacuum which sucks the eardrum inwards and fluid usually starts to buld up in the middle ear i.e. leading to middle ear disease. If the pressure can't be relieved, the eardrum inevitably perforates. Children generally have poorly functioning Eustachian tubes which makes them prone to ear infections. Most grow out of it by about 8 or 9 as their heads change shape and the tube becomes normal. For some people though, the little muscle that controls the Eustachian tubes is weakened or atrophied and they may stay more or less permanently closed. Under normal circumstances Eustachian tubes open whenever we yawn, suck or swallow etc. Some doctors give patients exercises to try and pop the ears. At various times I was asked to blow hard with my thumb in my mouth or to blow up balloons or to breathe in bowls of vapour and nasal sprays - I even had a bizarre treatment that involved sending a little electric charge down the Eustachian tube in order to force them open (not recommended). At the time they were considering hearing reconstruction, should any of the treatment actually have worked. I don't know if other people have had much success in learning to pop their ears. Perhaps it's worth asking your doctor if E tube opening techniques might be feasible. I know that there is now a surgery around to deal with Eustachain Tube Dysfuncton but it is fairly new and experimental and not suitable for all cases. Phil More stress Hi. We have posted in the past, as our 8 year old son, , has had two cholesteatomas removed within a year of each other. His first surgery was about 15 months ago and all of the bones in the right ear were destroyed, except for the eardrum. Thus, no hearing on the right side. Last April, he had his second surgery, this time on the left ear. Here we were luckier. He still has the stapes and the ear drum and some hearing. At our appointment last night we were told that 's left eustachian tube does not function and that the eardrum is retracted. We are confused and very stressed out about this information as our dr. sounded very concerned. Here's the question for all of you. Have any of you been through this? What if anything was the "fix" and did it cause more hearing loss. From what I read online last night, the retracted eardrum can cause cholesteatomas so is he at an even greater risk of a reaccurance? We are very happy with our ENT. He came very highly recommended and works at the Children's Hospital in Wisconsin. We are just very stressed parents. Sorry about rambling on and on. Thanks for the support.Sandy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 12, 2003 Report Share Posted October 12, 2003 Hi Sandy, My son is scheduled for his 2nd surgery on the 29th for another Tympanoplasty due to a retracted eardrum. The first one was a bit over 5 months ago, and while reconstructing his eardrum, a small c-toma was found and removed. They also put a tube in . Everything was going well until a couple weeks ago at his post-op visit. His tube has fallen out, a good size hole is there and the eardrum is quite retracted again. Our ENT said he was somewhat puzzled, as he thought his problem was due to the eustachian tube not functioning well, but now hes not so sure. Im not sure what he meant by this but will know more soon at his pre-op visit. They are going in behind the ear again, as he said going thru the canal was not an option. Im hoping there isnt another c-toma lurking in there Whatever the cause, we just want it over with. My son is 13 and at the age where walking around with an ear sticking out after surgery, makes him very un-comfortable. Its just not "cool" to be the odd looking one in the group. Poor guy....Anyways, good luck with whatever your surgeons decide to do. Keep us posted. Sincerely, Renonda (mom of ) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 7, 2006 Report Share Posted November 7, 2006 there is nothing wrong with worrying. we all do it, it means we care. i am sorry to hear your family is going through so much and hope that you find a way to cope. know that the group is always here. evelynrealitytv50 <goodgolly7078@...> wrote: I tell you what I truly don't know if my heart is able to break anymore. My father still having problems woke up with swollen feet looked like his toes were going to pop off. We have had this before with him and know sometimes when you are coming off of steroids fluid builds up and that he needs to take his water pills and potassium pills.My mother today had an appointment and had several tests done because she has severe shortness of breath. Not that she told any of the family. The doctor called this afternoon one of her tests came back abnormal. He set her up for a cat scan to be done on her lungs to see if a blood clot is there. That is Wednesday.I got an email from one of my wonderful Aunts today (my fathers sister) and they found an anuerism in her head. She said that it isn't in her brain yet but has to go to Neurosurgeon to get options of what to do. Not sure where exactly it is if not in her brain? Will have to call her tonight to get info. I am a chronic worrier anyways and I know I will not do anyone any good just stressing about everything. But my goodness my worry needle is off the charts.Sharon Check out the all-new - Fire up a more powerful email and get things done faster. Quote Link to comment Share on other sites More sharing options...
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