Guest guest Posted March 4, 2004 Report Share Posted March 4, 2004 dra, Glad to hear you are back home from the hospital, hope you are not in too much pain. Take care of yourself during this recuperating process. Jan in Northern KY Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 4, 2004 Report Share Posted March 4, 2004 dra -- great to hear you're back home already! Please keep us posted on your progress as you heal!Debbi Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 20, 2004 Report Share Posted August 20, 2004 Hi Everyone I am new to this site, but have found it extremely helpful. I am from the UK and am having my first surgrey next week on wednesday. I am a little nervous as I didn't know what it would be like but have found some answers in your emails. As I have never had an op before don't know what its gonna be like. Not alot of people in the UK have heard of cholesteatoma. A quick question does, how quick does the hearing come back in the ear, its just I have quite a marked loss? Cheers RiaxXx Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 20, 2004 Report Share Posted August 20, 2004 Hi Ria Sorry to hear that you also have this dreadful disease. I also live in the UK and had my first c-toma operation on my right ear in August 2003 and am due to have a 2nd operation for c-toma recurrance in September 2004 and then another operation once that has healed for c-toma which has now occured in my left ear. After my first operation I was not too well I developed what the doctors called Labrynthitis (basically I was throwing up for 2 days and felt really ill like I was really drunk but much worse the room was spinning around really fast). My doctor gave me some tablets for this but I can't understand why they didn't mention to me that this might happen before I had my operation (at least I know for next time), it might be worth mentioning this to your doctor he may be able to give you something in case you develop this. If that wasn't bad emough I then developed post-op infection and had to go back in hospital for 2 days and have 6 bags of antibiotics through IV. Anyway hopefully you will have a quick speedy recovery, I just seemed to be unlucky a lot of people have recovered fairly quickly from reading other peoples responses everyone is different. On a more positive note my scar is really good you can hardly tell I've had it done and I had very little hair shaved. My hearing didn't actually change that much which was also a good thing (not so sure this will be the case after my 2nd op though), you will feel a little deaf while the packaging is in though. Good Luck to you and I hope you feel well soon. Zoe. cholesteatoma , " Ria " <rm402@s...> wrote: > Hi Everyone > > I am new to this site, but have found it extremely helpful. I am from > the UK and am having my first surgrey next week on wednesday. I am a > little nervous as I didn't know what it would be like but have found > some answers in your emails. As I have never had an op before don't > know what its gonna be like. Not alot of people in the UK have heard > of cholesteatoma. A quick question does, how quick does the hearing > come back in the ear, its just I have quite a marked loss? > > Cheers > > RiaxXx Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 20, 2004 Report Share Posted August 20, 2004 Hi Ria I'm also in the UK. Outside of the ENT department and everybody on this site, you'll find that there aren't many people anywhere who've heard of ctoma. One thing I will say about the surgery is that it will be lengthy. It requires delicate microsurgey and so anything from 3 to to 7 hours could be considered in normal range. It may help to remind anyone who is enquiring after you of that fact because they're only likely to become more anxious as the surgery drags on. You may expect to have a bit of a messy ear and a sore head following the surgery. You'll probably be given painkillers to take for the first week or two. Some other things you may experience dizziness at first, bleeding and discharge from the ear and often a temporary disturbance of your sense of taste. Few people have any great problems with the recovery and most are fine after a week of two of rest. I do have to tell you that your hearing may not come back immediately after the surgery. It could even be worse. Much depends on how much permanent damage has been done to the little bones in the middle ear that conduct sound. Many people do undergo a second (milder) surgery six months or a year after the first. This would be to check that ear has remained free of ctoma and to restore hearing by resonstructing the bones. The surgeon will most likely come to talk to you on the morning of the operation, so you could ask then - you may be just a bit too nervous to take it in though. Good luck and speedy recovery Phil Surgrey Hi EveryoneI am new to this site, but have found it extremely helpful. I am from the UK and am having my first surgrey next week on wednesday. I am a little nervous as I didn't know what it would be like but have found some answers in your emails. As I have never had an op before don't know what its gonna be like. Not alot of people in the UK have heard of cholesteatoma. A quick question does, how quick does the hearing come back in the ear, its just I have quite a marked loss?Cheers RiaxXx Quote Link to comment Share on other sites More sharing options...
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