Guest guest Posted November 11, 2004 Report Share Posted November 11, 2004 It's definitely best to get the surgery. Ctoma can kill you if you don't have the surgery, and the symptoms as you get worse are awful. Plus if you let it get so far that it goes into the brain cavity, you may not fully recover. It's better not to get Ctoma, but that's out of our contral and, once you have it, there are some inconveniences you may have to live with. Since you expressed a strong preference for not going to doctors and seemed to think that the Wall Down might mean fewer future doc visits, I was trying to tell you that the Wall Down will not mean fewer doc visits. Just a different kind of visits; cleaning instead of looking so much for a reoccurrence perhaps. You can talk to your surgeon about the Wall Up versus Wall Down version and express your preference but, ultimately, she or he will have to make the decision during the surgery once he sees the state of things inside your head. Still, it would be good for you to know the future possible effects of both options, then you can have your expectations aligned with the facts. I'm sorry this is happening to you! :-( Marie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 11, 2004 Report Share Posted November 11, 2004 Terrance, Definitely HAVE the surgery. If C-tomas are left untreated they can eventually lead to death. If you do have the CWD, routine cleanings are done as office visits. Your doctor will use a tool to suction out any build up and debris that is hanging out in your middle ear. The reason is because your ear canal is enlarged and fluids and such can actually drain into your middle ear rather than flowing through correctly. I would recommend that you talk to Tom or Phil as they can provide you with the best information available. Good luck, leilani_sweet2002 <leilani_808@...> wrote: > Hi Terrance,> > I understand that after a canal wall down, regular doctor visits are > necessary to keep the ear cleaned out. It will no longer be the self-cleaning ear it > was born to be. Just thought you might like to ask your surgeon about this and > prepare yourself....> > MarieWow...I am scheduled for that surgery on jan 13....do you think it is best NOT to get the surgery?? I am so undecided! Probably just scared...but ...maybe i shouldnt get the surgery? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 11, 2004 Report Share Posted November 11, 2004 Hi Terrance >> Wow...I am scheduled for that surgery on jan 13....do you think it is best NOT to get the surgery?? I am so undecided! Probably just scared...but ...maybe i shouldnt get the surgery? << Because of a cholesteatoma, I had a CWD mastoidectomy, tympanoplasty (reconstruction of ear drum) and ossiculoplasty (reconstruction of the hearing bones) all carried out in one operation in November 1999. I feel there's nothing to fear at all. The cholesteatoma is out - with no recurrence to date - the eardrum has withstood a few more perforations and the hearing bones lasted a fair while, too.... so although I'm not a doctor and have absolutely no experience in this field (except personal experience as a patient) I would suggest there's no reason for you not to have it - if you need it. Kazzy :-) Quote Link to comment Share on other sites More sharing options...
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