We Need Help

[Guest guest]

Dea, one suggestion I would make about the bathroom issue and school (since my

dd had big time bathroom germ issues as well), is ask the staff if there is one

bathroom she can use, like a staff bathroom or a handicapped one, one that is a

single person room, not the big bathroom with all the stalls. That can be SO

much easier for her to handle. Then you let her know that is her specific

bathroom and any time she needs to go, the teachers will let her go to that one.

And tell her because it isnt the one all the kids use, it is cleaner, it gets

cleaned more often, doesnt get used as much, and doesnt have the germs the

bigger one has. This may be lying a little and making the bigger bathrooms seem

worse, but if the options are telling her this, or having her wet her pants, I

say go for it. Single stall bathrooms were much easier for my dd to handle.

Sharon

we need help

I just joined the site so I am new to all of this. I have a 7 year old

daughter with severe OCD. She was diagnost 1 year ago and we have tired CBT and

medication. She has been on prozac (worked but made her very hyper got in

trouble everyday at school), went to luvox (same reaction), was on clomipramine

and was up to 150mg a day and had a seizure so we are not weening her off the

drug. It has been a very long hard year filled with frustration. She is a very

emotional child and is afraid of everything. Her anxiety is so high at times

that she just has complete meltdowns that we can not control. She has gotten so

good at avoiding everything. There are times that she can not walk some where or

we can not touch her because we have touched something she thinks has germs. She

went for 4 months without using one of the bathrooms in our house. She gets

angry with her dad and I because we can not anticipate all the things that are a

germ problem. I know that we enabl at times by washing our hands when she tells

us to but sometimes it is the only way I can get her to bed or out of the house

or anything. I am so fearful of what the new school year will bring. The last

one was so hard (she has a very hard time using public restrooms unless I am

with her, the end result is accidents at school). I have to be with her all the

time to do things for her because she can't due to the germs. It is so unfair

that everything has to be hard for her. She will not participate in the CBT. She

is willfull at the appointments and will not even try. Many times a day

something new becomes a germ problem and instead of telling us what it is she

gets angry and nasty. Other times I have to reassure her over and over that

something will not make her sick. We really need some relief and nothing seems

to be working.

Dea

__________________________________________________

[Guest guest]

My daughter, Kay is very emotional also. We have had 3 emergency

room visits in 2005 related to holding her pee/poop and resultant

kidney infections. The first visit we thought was appendicitis. The

second visit was because she was hoarding her meds in a sock. The

third visit was because of holding it, again. That whole year was so

stressful and such a blur. My memory nearly fails me when I try to

put events in order. You should see the nightmare it is to give the

child meds, and they had to be liquid because of hoarding pills. She

had rituals about it and would be very demanding and negotiating. I

would have to hold and force her and she was at full panic. At least

she doesn't vomit it all up anymore (its really hard when the kid is

10 and not 2!).

I felt like NO-ONE could possibly understand what I was dealing

with. She is afraid of alot, also. We do have a plan for using the

nurse's bathroom at school, which I can only hope she does. I don't

use fear tactics usually, but I told her that if she isn't going, I

may have to resort to a plan that might be embarrasing, like call

her out of class for " bathroom priveleges. " She started going.

I haven't lost my mind yet.

>

> Dea, one suggestion I would make about the bathroom issue and

school (since my dd had big time bathroom germ issues as well), is

ask the staff if there is one bathroom she can use, like a staff

bathroom or a handicapped one, one that is a single person room, not

the big bathroom with all the stalls. That can be SO much easier

for her to handle. Then you let her know that is her specific

bathroom and any time she needs to go, the teachers will let her go

to that one. And tell her because it isnt the one all the kids use,

it is cleaner, it gets cleaned more often, doesnt get used as much,

and doesnt have the germs the bigger one has. This may be lying a

little and making the bigger bathrooms seem worse, but if the

options are telling her this, or having her wet her pants, I say go

for it. Single stall bathrooms were much easier for my dd to handle.

> Sharon

> we need help

>

>

> I just joined the site so I am new to all of this. I have a 7

year old daughter with severe OCD. She was diagnost 1 year ago and

we have tired CBT and medication. She has been on prozac (worked but

made her very hyper got in trouble everyday at school), went to

luvox (same reaction), was on clomipramine and was up to 150mg a day

and had a seizure so we are not weening her off the . It has

been a very long hard year filled with frustration. She is a very

emotional child and is afraid of everything. Her anxiety is so high

at times that she just has complete meltdowns that we can not

control. She has gotten so good at avoiding everything. There are

times that she can not walk some where or we can not touch her

because we have touched something she thinks has germs. She went for

4 months without using one of the bathrooms in our house. She gets

angry with her dad and I because we can not anticipate all the

things that are a germ problem. I know that we enabl at times by

washing our hands when she tells us to but sometimes it is the only

way I can get her to bed or out of the house or anything. I am so

fearful of what the new school year will bring. The last one was so

hard (she has a very hard time using public restrooms unless I am

with her, the end result is s at school). I have to be with

her all the time to do things for her because she can't due to the

germs. It is so unfair that everything has to be hard for her. She

will not participate in the CBT. She is willfull at the appointments

and will not even try. Many times a day something new becomes a germ

problem and instead of telling us what it is she gets angry and

nasty. Other times I have to reassure her over and over that

something will not make her sick. We really need some relief and

nothing seems to be working.

> Dea

>

>

> __________________________________________________

>

[Guest guest]

Hi Dea, welcome to the group!! I have a son, 17, whose OCD ordeal

began back in 6th grade. Briefly, things were worst that first year,

ups/downs after, 9th and 10th grade great, and just this year a few

new things popped up. (but he went off his medication)

OCD can bring out anger/outbursts! I am lucky in that my son is one

who really doesn't have a temper or was the emotional type (like me,

LOL) in the first place. But with OCD, I noted a temper at times and

that was new!

Her therapist appts - is the therapist experienced with kids and with

OCD? I would hope an experienced therapist would be able to break

down some of the barriers put up over time and get the child to begin

to open up or participate a bit. It does sound like medication would

help her, could lower her anxiety level enough to begin to

participate in therapy and make her feel better too. So is she going

to try another medication for the OCD? Some parents have had to go

through 3 or 4 and then the *next* one is the one that works well.

So don't let 2 strikes with an SSRI stop you from trying another one

if she's in such distress. My son took Celexa, which I believe is

less activating than some others. Everyone can react differently to

the same medication, but it actually tired him out some (afternoon

naps), which I believe isn't uncommon with Celexa (some tiredness)

from others I've asked online. Though he wasn't real physically

active before the Celexa either (my couch potato)!

Perhaps at some calm time, you and she can talk a bit about her OCD

and get her to agree on just 1 or maybe 2 things to work on, to boss

back. Ignore the other things for now. She could pick (or you) 1 or

2 things that she feels will be easiest to work on, cause the least

anxiety. Has her therapist had her make a list/hierarchy of her

behaviors and rate them for anxiety (least to most)? When my son

managed to succeed with 1 OCD ritual/need, it seemed to boost him

enough that other things seemed easier or just went away. (Though

the tough things, like bedtime, stayed!) You might try a time of day

for OCD homework? A lot of times some incentives can help. Rewards

to work towards, earning points/money...and you reward the EFFORT

too, not just success (trying is better than not trying at all), or

even a treat that day (stay up later or something - I would suggest

food, LOL, but there's germ issues I guess).

Well, a few things to do, but write back and let us know how things

are going, what you've tried already, etc. This group has been my

best support through all these years!!! Nice to know you are not

alone and can go somewhere people understand, even if the behaviors

aren't the same!

single mom, 3 sons

, 17, with OCD, dysgraphia and Aspergers/autism

(and 2 more sons!)

>

> I just joined the site so I am new to all of this. I have a 7 year

old daughter with severe OCD. She was diagnost 1 year ago and we

have tired CBT and medication. She has been on prozac (worked but

made her very hyper got in trouble everyday at school), went to luvox

[Guest guest]

My son had his 4th op on the 20th Dec.He has packing in and it stinks

like somethink has died in it. GP has swobbed it but we won't know for

a few days what it is.The discharge has gone from a clear and watery

to thick yellow-green. I have rung the hospital that did the op, they

have told us that the packing can smell.His ear is sticking out it

wasn't a few days before the smell.To me it smells like roting

meat.They have put him Antibiotics {it's day 3 no change}.

Please can anyone help us?

Brice is 10 years old and has had 4 major op's and 5 to change

dressing in the last 18 months

Viv

[Guest guest]

Viv

It sounds to me like he might have an infection. I'm no expert but that's what it sounds like to me. When i had me cwd done in Nov the discharge papers mentioned odor and yellow-green discharge and to call the doctor immediately and on off hours to call the hospital and ask for the otolaryngologist on call if those happened.

If you haven't spoken to a doctor directly i would suggest doing so. I would call the hospital and demand to speak to and otologist or otolaryngologist. A GP might not know enough about this type of surgery to have a clue. A good friend of mine is a GP and he told me that that ear surgery is something very foreign to most GP's. I would also think you might want to speak to the doctor that did the surgery directly too just in case they want you to bring you son in for a look.

If you dont get anywhere on the phone you might want to bring him to the hospital and have it looked it again.

I hope your son gets better fast. that smell and discharge would have me very worried too.

We Need Help

My son had his 4th op on the 20th Dec.He has packing in and it stinks like somethink has died in it. GP has swobbed it but we won't know for a few days what it is.The discharge has gone from a clear and watery to thick yellow-green. I have rung the hospital that did the op, they have told us that the packing can smell.His ear is sticking out it wasn't a few days before the smell.To me it smells like roting meat.They have put him Antibiotics {it's day 3 no change}.Please can anyone help us? Brice is 10 years old and has had 4 major op's and 5 to change dressing in the last 18 monthsViv

__________________________________________________

[Guest guest]

Thank you for your help. We are still waiting for the swab results

that the GP did. We live in the country so I the Hospital is trying

to keep us at home as long as they can.It doesn't smell as Bad in

the mornings than it does in the night.It's still thick and Yellow

though.

We have to sit and wait even though my inside are screaming they

keep saying not too panic he is eating and doesn't have a fever they

are not worried.

VIV

-- In cholesteatoma , " boudiccamk2 " <boudiccamk2@...>

wrote:

>

> Hiya Viv

> I concur, he has an infection, they need to take a swab to check

> wether it is a resistant strain and if so which it may be

resistant

> to. When I had my CWD I reacted to the iodine in the packing which

> gave me a nasty infection that took awhile to clear and involved

> hanging upside down for 10mins each time I applied the antibiotic.

> GP's seldom have the specialist knowledge bout what is still an

> uncommon condition, go back to ENT.

> Big hugs hang in there kiddo

> June

>

> >

> > My son had his 4th op on the 20th Dec.He has packing in and it

> stinks

> > like somethink has died in it. GP has swobbed it but we won't

know

> for

> > a few days what it is.The discharge has gone from a clear and

watery

> > to thick yellow-green. I have rung the hospital that did the op,

> they

> > have told us that the packing can smell.His ear is sticking out

it

> > wasn't a few days before the smell.To me it smells like roting

> > meat.They have put him Antibiotics {it's day 3 no change}.

> > Please can anyone help us?

> > Brice is 10 years old and has had 4 major op's and 5 to change

> > dressing in the last 18 months

> >

> > Viv

> >

>

[Guest guest]

Yes The Doctors know they don't seem as worried as us.

The swab came back as a golden staph strain they changed the

antibotics.The Doctors from the Hospital are in touch with his GP,so

we just have wait it out.I just don't know how long I should wait.

Thank you for your prayers.

I just have my Fingers crossed it will be ok AGAIN

VIV

> >

> > My son had his 4th op on the 20th Dec.He has packing in and it

> stinks

> > like somethink has died in it. GP has swobbed it but we won't

know

> for

> > a few days what it is.The discharge has gone from a clear and

watery

> > to thick yellow-green. I have rung the hospital that did the op,

> they

> > have told us that the packing can smell.His ear is sticking out

it

> > wasn't a few days before the smell.To me it smells like roting

> > meat.They have put him Antibiotics {it's day 3 no change}.

> > Please can anyone help us?

> > Brice is 10 years old and has had 4 major op's and 5 to change

> > dressing in the last 18 months

> >

> > Viv

> >

>

>

>

>

>

> __________________________________________________

>