Guest guest Posted January 4, 2007 Report Share Posted January 4, 2007 I too have a Skeleton type of mold. It was offered with my open ear hearing aid because of the sensitivity and condition of my ear canal a standard mold was out of the question. I nixed the idea of a BAHA as I just didn't think I was ready for it yet - emotionally. The skeleton mold looks sort of like an umbrella with out the cover. Just a simple cup with only a few thin pieces of latex to hold the set in the ear. They come in various sizes. Widex is my brand. See the little thing on the end? It's GREAT As to children and BAHA - I read often especially in the UK of many children with BAHAs. If the doctor doesn't want to do the "implant" there is also a head band unit that I understand many people do very well with. The development of the child depends so much on hearing that is should not be "done without" for any reason when is can be helped. Sandi Lochner Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 4, 2007 Report Share Posted January 4, 2007 Marie I did try various bits and pieces - including the anti-allergy materials - a pinky-kind of plasticky type of thing <grin>.... my descriptions are just so full, huh? <wink>.... but to no avail. I had reconstruction at the time of Cholesteatoma removal back in 1999 - radical modified mastoidectomy, tympanoplasty and ossiculoplasty (all three in one go) - but sadly this failed in March 2003 when I had a massive infection and lost quite literally (physically) the incus: it's thought to have fallen out of my ear amongst all the debris and so on at the time of perforation and discharge. It was the hearing loss and damage apparently caused by the plasticky hearing aid molds that I had worn up till this point, that made my surgeon consider me for BAHA. Though I'm no medico, I would say that the BAHA is suitable for all those with the 'right' type of hearing loss - adult or child alike - subject to other relevant matters. I would recommend that you join the group BAHA_PPL and/or ask over on the BAHA support website: http://www.baha-users-support.com, where amongst its numbers are parents of some much younger BAHA users, and where you are likely to get some really helpful advice and pointers and then, armed with further relevant information you may gain from those sources, you may want to go ask your audiologist again, or perhaps your medical practitioner and see what is said then. Good luck, and if I can help further, please don't hesitate to ask - by all means by personal email if you prefer. Kazzy xx Re: Ear mold Hi Kazzy,Thanks... I never heard of a skeleton type ear mold before. But I will ask our audiologist about it. Did you also try different ear mold materials? If so, how did that go?I asked about a BAHA for him a year ago, but was told that it was not appropriate for children. Has anybody out there had a child that used a BAHA (bone-attached hearing aid)?Reconstruction would have made life so much easier! In Curtis' case, reconstruction is not possible because in the 2nd to last surgery, the surgeon scraped the bone really hard trying to get everything (which he did, God Bless him) but it stimulated the bone, which then grew a bone spur over the opening to the inner ear. To reconstruct, they would have to drill down through the bone towards the inner ear, with a high liklihood of damaging the nerve. So they would ONLY do it with the patient 1/2 awake to guide them and tell them when they are getting close. Needless to say, they don't do this on children either.Marie> > > > > > > > >> > > > > > > > > Hi,> > > > > > > > >> > > > > > > > > I haven't been on this list in awhile. My son, > Curtis,> > > was> > > > > > > > diagnosed> > > > > > > > > with ctoma when he was 3, then had multiple > surgeries,> > > but> > > > > it> > > > > > > kept> > > > > > > > > coming back. Finally, a surgeon removed his tonsils > and> > > > > > adenoids> > > > > > > to> > > > > > > > > get a more normal air flow into the middle ear, > which he> > > > > said> > > > > > > would> > > > > > > > > decrease the chance of regrowth. In my son's case > this> > > > > seemed> > > > > > to> > > > > > > > > work. He's 9 1/2 now and it has been 2 years since > the> > > > last> > > > > > > > surgery.> > > > > > > > > The doc says she can't see any sign of ctoma > reoccurring.> > > > > > > > >> > > > > > > > > However, something weird is going on... In August, we> > > went> > > > > to> > > > > > > Lake> > > > > > > > > Tahoe and we were careful but he got a little lake > water> > > > in> > > > > > his> > > > > > > > ear.> > > > > > > > > It was treated and seemed to go away, although he> > > > continued> > > > > to> > > > > > > > > sniffle. Later it turned out that the lake bacteria > had> > > > > maybe> > > > > > > moved> > > > > > > > > to his sinuses and he had some antibiotics, which> > > cleared> > > > up> > > > > > the> > > > > > > > > sniffling. Partway through the antibiotic treatment, > he> > > > got> > > > > a> > > > > > > cold> > > > > > > > > which got the ear going again. Since that time, the > ear> > > is> > > > > > > > > strange... there is this white goo accumulating in > it.> > > It> > > > > > > doesn't> > > > > > > > > smell bad, it isn't yellow, it doesn't hurt. I took > him> > > in> > > > > and> > > > > > > the> > > > > > > > > surgeon vacumned out the goo to look inside. She > said it> > > > > > looked> > > > > > > > > okay, didn't look like the goo was coming from the> > > middle> > > > > ear.> > > > > > > But> > > > > > > > > she also didn't think it was an infection of the ear> > > canal> > > > > > > because,> > > > > > > > > while it did hurt way more than normal when she put > the> > > > > little> > > > > > > > > vacumn in his ear, it didn't hurt at all when she had> > > him> > > > > > press> > > > > > > > > towards his ear, from right in front of the ear. She> > > said> > > > > that> > > > > > > > would> > > > > > > > > hurt alot if it was the ear canal.> > > > > > > > >> > > > > > > > > In the end, she told me something was going on, but > she> > > > > didn't> > > > > > > know> > > > > > > > > what it was! She was going to leave it up to my > mother's> > > > > > > intuition!> > > > > > > > > She offered either more antibiotics or we could take> > > dairy> > > > > out> > > > > > > of> > > > > > > > > his diet and see if that helped. He hasn't had dairy> > > > > products> > > > > > > for 6> > > > > > > > > days now and the vacumming took place 1 week ago, but> > > his> > > > > ear> > > > > > is> > > > > > > > > continuing to slowly fill up with this white goo > again!> > > > > > > > >> > > > > > > > > Have any of you had this before or heard of it? What > do> > > > you> > > > > > all> > > > > > > > > think? My mother's intuition is saying it IS an ear> > > canal> > > > > > > > infection,> > > > > > > > > although I don't know why it doesn't hurt.> > > > > > > > >> > > > > > > > > Thanks for your help,> > > > > > > > > Marie> > > > > > > > >> > > > > > > >> > > > > > >> > > > > >> > > > >> > > >> > >> >> > > > > > > ---------------------------------------------------------------------> > > No virus found in this incoming message.> Checked by AVG Free Edition.> Version: 7.5.432 / Virus Database: 268.16.5/616 - Release Date: 1/4/2007 1:34 PM> No virus found in this incoming message.Checked by AVG Free Edition.Version: 7.5.432 / Virus Database: 268.16.5/616 - Release Date: 1/4/2007 1:34 PM Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 4, 2007 Report Share Posted January 4, 2007 Actually, a skeleton mold is a whole earmold with tubing attached to a regular BTE hearing aid. It's called a skeleton b/c it goes along the edges of the concha bowl and the antihelix of the pinna. The widex elan open fits are great with the domes and are even better for patients with occlusion effect and for those who can't tolerate anything in their ear. You just sacrifice low frequency amplification.SDSSandie@... wrote: I too have a Skeleton type of mold. It was offered with my open ear hearing aid because of the sensitivity and condition of my ear canal a standard mold was out of the question. I nixed the idea of a BAHA as I just didn't think I was ready for it yet - emotionally. The skeleton mold looks sort of like an umbrella with out the cover. Just a simple cup with only a few thin pieces of latex to hold the set in the ear. They come in various sizes. Widex is my brand. See the little thing on the end? It's GREAT As to children and BAHA - I read often especially in the UK of many children with BAHAs. If the doctor doesn't want to do the "implant" there is also a head band unit that I understand many people do very well with. The development of the child depends so much on hearing that is should not be "done without" for any reason when is can be helped. Sandi Lochner __________________________________________________ Quote Link to comment Share on other sites More sharing options...
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