Guest guest Posted August 4, 2006 Report Share Posted August 4, 2006 Hi Pb, I'm an Aussie and live in Brisbane. I " m a 30yr old married female mother of six rug rats and just had my 1st mastoidectomy on the R ear yesterday. All went well I think. I didn't realise how much you really use your neck muscles! lol. I have a bit of swelling on the neck area and would really love to blow my nose! My head feels really full of pressure and its driving me crazy because the kids are driving me crazy and I cant yell at them Lol! I think they think I'm a real walk over at the moment. Their fighting and screams are piercing i'll say. Other than that I feel all right.. Have some nice pain killers doing the trick. O well Off for a lie down I think and watch a dvd. Be great if I didnt have to have the tv going so loud all the time. Well I hope I dont have to have 6 surgeries like you, but it appears people seem to have a few. Best wishes with surgery number 6. Sharon 0 >From: " pindanblues " <pindanblues@...> >Reply-cholesteatoma >cholesteatoma >Subject: Aussies? >Date: Thu, 03 Aug 2006 07:12:26 -0000 > >Hi everyone, > >Are there any other Australian's in this group? >It does not seem to be so common here. >I have had 5 ops now on my left ear. Waiting for probably # 6 >in September if the specialist decides to visit our town. >Would love to hear (excuse the pun) from anyone having regrowth after >years of being " well " . >Best wishes to everyone >PB > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 20, 2006 Report Share Posted November 20, 2006 Hi Sharon, I trust you are well and recovering...sorry I have not replied earlier...lots of family drama. Now living in darwin and love it so far. Best wishes to everyone on the site AudSharon Brown <sharonbrown07@...> wrote: Hi Pb, I'm an Aussie and live in Brisbane. I"m a 30yr old married female mother of six rug rats and just had my 1st mastoidectomy on the R ear yesterday. All went well I think. I didn't realise how much you really use your neck muscles! lol. I have a bit of swelling on the neck area and would really love to blow my nose! My head feels really full of pressure and its driving me crazy because the kids are driving me crazy and I cant yell at them Lol! I think they think I'm a real walk over at the moment. Their fighting and screams are piercing i'll say. Other than that I feel all right.. Have some nice pain killers doing the trick. O well Off for a lie down I think and watch a dvd. Be great if I didnt have to have the tv going so loud all the time. Well I hope I dont have to have 6 surgeries like you, but it appears people seem to have a few. Best wishes with surgery number 6.Sharon0>From: "pindanblues" <pindanblues .au>>Reply-cholesteatoma >cholesteatoma >Subject: Aussies?>Date: Thu, 03 Aug 2006 07:12:26 -0000>>Hi everyone,>>Are there any other Australian's in this group?>It does not seem to be so common here.>I have had 5 ops now on my left ear. Waiting for probably # 6>in September if the specialist decides to visit our town.>Would love to hear (excuse the pun) from anyone having regrowth after>years of being "well".>Best wishes to everyone>PB>>>>>> Send instant messages to your online friends http://au.messenger. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 20, 2006 Report Share Posted November 20, 2006 Hi, We have a 10yr son With a Cholesteatoma.We live in NSW on the Mid North Coast. We have no surrport here at all. Brice is now under the Childrens Hospital at Westmead. He will under go his 4th lot of surgery on the 20th Dec. Not looking forward to that again. At least we now know we are not the only Aussies going through this sometimes it has been hell.He hates to blow his nose as well. Our real battle is scar Tissue he has got no ear canal and they have taken Cartlage as well.He had packing for almost 6 months[all up] and has been put under 5 times to change it. At the moment it is not discharging,1st time in i don't know how long. We are just going trying to give him a good Xmas.As he was in the same boat last year but the op was 3 weeks before. Anyway that's my winge fo the day LOL Keep in touch as this site is the best we have found. Viv > Hi Pb, I'm an Aussie and live in Brisbane. I " m a 30yr old married female > mother of six rug rats and just had my 1st mastoidectomy on the R ear > yesterday. All went well I think. I didn't realise how much you really use > your neck muscles! lol. I have a bit of swelling on the neck area and would > really love to blow my nose! My head feels really full of pressure and its > driving me crazy because the kids are driving me crazy and I cant yell at > them Lol! I think they think I'm a real walk over at the moment. Their > fighting and screams are piercing i'll say. Other than that I feel all > right.. Have some nice pain killers doing the trick. O well Off for a lie > down I think and watch a dvd. Be great if I didnt have to have the tv going > so loud all the time. Well I hope I dont have to have 6 surgeries like you, > but it appears people seem to have a few. Best wishes with surgery number > 6. > Sharon > 0 > > >From: " pindanblues " <pindanblues@...> > >Reply-cholesteatoma > >cholesteatoma > >Subject: Aussies? > >Date: Thu, 03 Aug 2006 07:12:26 -0000 > > > >Hi everyone, > > > >Are there any other Australian's in this group? > >It does not seem to be so common here. > >I have had 5 ops now on my left ear. Waiting for probably # 6 > >in September if the specialist decides to visit our town. > >Would love to hear (excuse the pun) from anyone having regrowth after > >years of being " well " . > >Best wishes to everyone > >PB > > > > > > > > > > > > > > > > > > Send instant messages to your online friends http://au.messenger. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 10, 2007 Report Share Posted March 10, 2007 Hi again Viv, Been through a few trials and unfortunately suffering with my ear. I don't think the humidity is good for me. My son who has also had (5 ops...now 18) has had recussing infections...booked for specialist review in a few weeks. Compaired to broome this place knows zero about CTOMA I hope Brice is doing well. kind regards Audrey hayviv65 <hayviv65@...> wrote: Hi,We have a 10yr son With a Cholesteatoma.We live in NSW on the Mid North Coast. We have no surrport here at all. Brice is now under the Childrens Hospital at Westmead. He will under go his 4th lot of surgery on the 20th Dec. Not looking forward to that again. At least we now know we are not the only Aussies going through this sometimes it has been hell.He hates to blow his nose as well. Our real battle is scar Tissue he has got no ear canal and they have taken Cartlage as well.He had packing for almost 6 months[all up] and has been put under 5 times to change it. At the moment it is not discharging,1st time in i don't know how long.We are just going trying to give him a good Xmas.As he was in the same boat last year but the op was 3 weeks before.Anyway that's my winge fo the day LOLKeep in touch as this site is the best we have found.Viv> Hi Pb, I'm an Aussie and live in Brisbane. I"m a 30yr old married female > mother of six rug rats and just had my 1st mastoidectomy on the R ear > yesterday. All went well I think. I didn't realise how much you really use > your neck muscles! lol. I have a bit of swelling on the neck area and would > really love to blow my nose! My head feels really full of pressure and its > driving me crazy because the kids are driving me crazy and I cant yell at > them Lol! I think they think I'm a real walk over at the moment. Their > fighting and screams are piercing i'll say. Other than that I feel all > right.. Have some nice pain killers doing the trick. O well Off for a lie > down I think and watch a dvd. Be great if I didnt have to have the tv going > so loud all the time. Well I hope I dont have to have 6 surgeries like you, > but it appears people seem to have a few. Best wishes with surgery number > 6.> Sharon> 0> > >From: "pindanblues" <pindanblues@...>> >Reply-cholesteatoma > >cholesteatoma > >Subject: Aussies?> >Date: Thu, 03 Aug 2006 07:12:26 -0000> >> >Hi everyone,> >> >Are there any other Australian's in this group?> >It does not seem to be so common here.> >I have had 5 ops now on my left ear. Waiting for probably # 6> >in September if the specialist decides to visit our town.> >Would love to hear (excuse the pun) from anyone having regrowth after> >years of being "well".> >Best wishes to everyone> >PB> >> >> >> >> >> >> > > > > > Send instant messages to your online friends http://au.messenger.> Send instant messages to your online friends http://au.messenger. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 22, 2007 Report Share Posted March 22, 2007 Hi Audrey, Brice is doing ok at the moment.But he is getting headaches alot.we are going to have a CT scan on the 2nd of April I think more for my peace of mind.do you get headaches?and is that normal post cholesteatoma removeal. Wish you were on the east coast it would be great meet someone that could relate to him and us for that matter. i hope your son is doing well. All the best VIV > > Hi Pb, I'm an Aussie and live in Brisbane. I " m a 30yr > old married female > > mother of six rug rats and just had my 1st mastoidectomy on the R > ear > > yesterday. All went well I think. I didn't realise how much you > really use > > your neck muscles! lol. I have a bit of swelling on the neck area > and would > > really love to blow my nose! My head feels really full of pressure > and its > > driving me crazy because the kids are driving me crazy and I cant > yell at > > them Lol! I think they think I'm a real walk over at the moment. > Their > > fighting and screams are piercing i'll say. Other than that I feel > all > > right.. Have some nice pain killers doing the trick. O well Off > for a lie > > down I think and watch a dvd. Be great if I didnt have to have the > tv going > > so loud all the time. Well I hope I dont have to have 6 surgeries > like you, > > but it appears people seem to have a few. Best wishes with surgery > number > > 6. > > Sharon > > 0 > > > > >From: " pindanblues " <pindanblues@> > > >Reply-cholesteatoma > > >cholesteatoma > > >Subject: Aussies? > > >Date: Thu, 03 Aug 2006 07:12:26 -0000 > > > > > >Hi everyone, > > > > > >Are there any other Australian's in this group? > > >It does not seem to be so common here. > > >I have had 5 ops now on my left ear. Waiting for probably # 6 > > >in September if the specialist decides to visit our town. > > >Would love to hear (excuse the pun) from anyone having regrowth > after > > >years of being " well " . > > >Best wishes to everyone > > >PB > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Send instant messages to your online friends > http://au.messenger. > > > > > > > > Send instant messages to your online friends http://au.messenger. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 23, 2007 Report Share Posted March 23, 2007 Hi all, Sharon Here from bris.. i think my last post in aug. well i found out 3mths after first surgery that i had one in other ear. had surgery done 2nd march. this one appeared different and had different symptoms. apparently had been growing in there silently for years before it decided to pop its head out of the pocket.This one was not nice at all and i had a lot of mastoid removed and have partial stapes left. Hurt like hell. and now have retracted pocket back in other ear again... so looks like life long dramas... so the best thing is ... i am still alive . I hope they dont continue to come back, but by posting and reading this site, it sure appears that they do. Well good health to all. Cheers for now. lol its friday and i need a scotch.lol love sharon >From: " hayviv65 " <hayviv65@...> >Reply-cholesteatoma >cholesteatoma >Subject: Re: Aussies? >Date: Fri, 23 Mar 2007 05:21:03 -0000 > >Hi Audrey, > >Brice is doing ok at the moment.But he is getting headaches alot.we >are going to have a CT scan on the 2nd of April I think more for my >peace of mind.do you get headaches?and is that normal post >cholesteatoma removeal. >Wish you were on the east coast it would be great meet someone that >could relate to him and us for that matter. >i hope your son is doing well. >All the best >VIV > > > > > > > Hi Pb, I'm an Aussie and live in Brisbane. I " m a 30yr > > old married female > > > mother of six rug rats and just had my 1st mastoidectomy on the R > > ear > > > yesterday. All went well I think. I didn't realise how much you > > really use > > > your neck muscles! lol. I have a bit of swelling on the neck area > > and would > > > really love to blow my nose! My head feels really full of >pressure > > and its > > > driving me crazy because the kids are driving me crazy and I cant > > yell at > > > them Lol! I think they think I'm a real walk over at the moment. > > Their > > > fighting and screams are piercing i'll say. Other than that I >feel > > all > > > right.. Have some nice pain killers doing the trick. O well Off > > for a lie > > > down I think and watch a dvd. Be great if I didnt have to have >the > > tv going > > > so loud all the time. Well I hope I dont have to have 6 surgeries > > like you, > > > but it appears people seem to have a few. Best wishes with >surgery > > number > > > 6. > > > Sharon > > > 0 > > > > > > >From: " pindanblues " <pindanblues@> > > > >Reply-cholesteatoma > > > >cholesteatoma > > > >Subject: Aussies? > > > >Date: Thu, 03 Aug 2006 07:12:26 -0000 > > > > > > > >Hi everyone, > > > > > > > >Are there any other Australian's in this group? > > > >It does not seem to be so common here. > > > >I have had 5 ops now on my left ear. Waiting for probably # 6 > > > >in September if the specialist decides to visit our town. > > > >Would love to hear (excuse the pun) from anyone having regrowth > > after > > > >years of being " well " . > > > >Best wishes to everyone > > > >PB > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Send instant messages to your online friends > > http://au.messenger. > > > > > > > > > > > > > > > Send instant messages to your online friends >http://au.messenger. > > > > _________________________________________________________________ Advertisement: Meet Sexy Singles at Lavalife today. Click here http://a.ninemsn.com.au/b.aspx?URL=http%3A%2F%2Flavalife9%2Eninemsn%2Ecom%2Eau%2\ Fclickthru%2Fclickthru%2Eact%3Fid%3Dninemsn%26context%3Dan99%26locale%3Den%5FAU%\ 26a%3D25448 & _t=754951090 & _r=meet & _m=EXT Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 23, 2007 Report Share Posted March 23, 2007 --- Hi I am an in south australia and i havent found any support groups in aust, at all, read my msg, nbr 17640 posted on the 21/03/07. regards judy cholesteatoma , " hayviv65 " <hayviv65@...> wrote: > > Hi Audrey, > > Brice is doing ok at the moment.But he is getting headaches alot.we > are going to have a CT scan on the 2nd of April I think more for my > peace of mind.do you get headaches?and is that normal post > cholesteatoma removeal. > Wish you were on the east coast it would be great meet someone that > could relate to him and us for that matter. > i hope your son is doing well. > All the best > VIV > > > > > > > Hi Pb, I'm an Aussie and live in Brisbane. I " m a 30yr > > old married female > > > mother of six rug rats and just had my 1st mastoidectomy on the R > > ear > > > yesterday. All went well I think. I didn't realise how much you > > really use > > > your neck muscles! lol. I have a bit of swelling on the neck area > > and would > > > really love to blow my nose! My head feels really full of > pressure > > and its > > > driving me crazy because the kids are driving me crazy and I cant > > yell at > > > them Lol! I think they think I'm a real walk over at the moment. > > Their > > > fighting and screams are piercing i'll say. Other than that I > feel > > all > > > right.. Have some nice pain killers doing the trick. O well Off > > for a lie > > > down I think and watch a dvd. Be great if I didnt have to have > the > > tv going > > > so loud all the time. Well I hope I dont have to have 6 surgeries > > like you, > > > but it appears people seem to have a few. Best wishes with > surgery > > number > > > 6. > > > Sharon > > > 0 > > > > > > >From: " pindanblues " <pindanblues@> > > > >Reply-cholesteatoma > > > >cholesteatoma > > > >Subject: Aussies? > > > >Date: Thu, 03 Aug 2006 07:12:26 -0000 > > > > > > > >Hi everyone, > > > > > > > >Are there any other Australian's in this group? > > > >It does not seem to be so common here. > > > >I have had 5 ops now on my left ear. Waiting for probably # 6 > > > >in September if the specialist decides to visit our town. > > > >Would love to hear (excuse the pun) from anyone having regrowth > > after > > > >years of being " well " . > > > >Best wishes to everyone > > > >PB > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Send instant messages to your online friends > > http://au.messenger. > > > > > > > > > > > > > > > Send instant messages to your online friends > http://au.messenger. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 23, 2007 Report Share Posted March 23, 2007 Hi there, I hope Brice is feeling better. Yes headaches are "normal". Even now after all this time I sometimes feel like a knife is going through my head. Fortunately it doesnt happen quite so much. I think what we have to remember is someone was "inside" our head! (Well your sons) and actually playing around in there! All i can say is time heals. My son is doing ok for now. The humidity doesnt help either of us. I am seriously thinking of relocating back to Perth. A further scan is a good idea. One thing I wish i had done earlier is seek further opinion. Doctors who really understand this disease are few. Well chin up, and take care Audreyhayviv65 <hayviv65@...> wrote: Hi Audrey,Brice is doing ok at the moment.But he is getting headaches alot.we are going to have a CT scan on the 2nd of April I think more for my peace of mind.do you get headaches?and is that normal post cholesteatoma removeal.Wish you were on the east coast it would be great meet someone that could relate to him and us for that matter.i hope your son is doing well.All the best VIV > > Hi Pb, I'm an Aussie and live in Brisbane. I"m a 30yr > old married female > > mother of six rug rats and just had my 1st mastoidectomy on the R > ear > > yesterday. All went well I think. I didn't realise how much you > really use > > your neck muscles! lol. I have a bit of swelling on the neck area > and would > > really love to blow my nose! My head feels really full of pressure > and its > > driving me crazy because the kids are driving me crazy and I cant > yell at > > them Lol! I think they think I'm a real walk over at the moment. > Their > > fighting and screams are piercing i'll say. Other than that I feel > all > > right.. Have some nice pain killers doing the trick. O well Off > for a lie > > down I think and watch a dvd. Be great if I didnt have to have the > tv going > > so loud all the time. Well I hope I dont have to have 6 surgeries > like you, > > but it appears people seem to have a few. Best wishes with surgery > number > > 6.> > Sharon> > 0> > > > >From: "pindanblues" <pindanblues@>> > >Reply-cholesteatoma > > >cholesteatoma > > >Subject: Aussies?> > >Date: Thu, 03 Aug 2006 07:12:26 -0000> > >> > >Hi everyone,> > >> > >Are there any other Australian's in this group?> > >It does not seem to be so common here.> > >I have had 5 ops now on my left ear. Waiting for probably # 6> > >in September if the specialist decides to visit our town.> > >Would love to hear (excuse the pun) from anyone having regrowth > after> > >years of being "well".> > >Best wishes to everyone> > >PB> > >> > >> > >> > >> > >> > >> > > > > > > > > > > > Send instant messages to your online friends > http://au.messenger.> >> > > > > > Send instant messages to your online friends http://au.messenger.> Send instant messages to your online friends http://au.messenger. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 24, 2007 Report Share Posted March 24, 2007 Hi Judy Just read your post 17640 wow I know as a mum now you feel and being an aussie I think sometimes makes it hard because there is no group to help or support us. So hang in there. Reading the notes on this site have helped me to learn so much the Doctors have never told us about. I don't just sit anymore if I have a gut feeling that things aren't right I do something about.Our GP is also very good he listens to me more than the ENT does.Thats how we found that Brice had the cholesteatoma back. So go with your gut he may be an adult but you are still his Mum Best of luck Viv > > > > Hi Pb, I'm an Aussie and live in Brisbane. I " m a 30yr > > > old married female > > > > mother of six rug rats and just had my 1st mastoidectomy on the > R > > > ear > > > > yesterday. All went well I think. I didn't realise how much you > > > really use > > > > your neck muscles! lol. I have a bit of swelling on the neck > area > > > and would > > > > really love to blow my nose! My head feels really full of > > pressure > > > and its > > > > driving me crazy because the kids are driving me crazy and I > cant > > > yell at > > > > them Lol! I think they think I'm a real walk over at the > moment. > > > Their > > > > fighting and screams are piercing i'll say. Other than that I > > feel > > > all > > > > right.. Have some nice pain killers doing the trick. O well Off > > > for a lie > > > > down I think and watch a dvd. Be great if I didnt have to have > > the > > > tv going > > > > so loud all the time. Well I hope I dont have to have 6 > surgeries > > > like you, > > > > but it appears people seem to have a few. Best wishes with > > surgery > > > number > > > > 6. > > > > Sharon > > > > 0 > > > > > > > > >From: " pindanblues " <pindanblues@> > > > > >Reply-cholesteatoma > > > > >cholesteatoma > > > > >Subject: Aussies? > > > > >Date: Thu, 03 Aug 2006 07:12:26 -0000 > > > > > > > > > >Hi everyone, > > > > > > > > > >Are there any other Australian's in this group? > > > > >It does not seem to be so common here. > > > > >I have had 5 ops now on my left ear. Waiting for probably # 6 > > > > >in September if the specialist decides to visit our town. > > > > >Would love to hear (excuse the pun) from anyone having > regrowth > > > after > > > > >years of being " well " . > > > > >Best wishes to everyone > > > > >PB > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Send instant messages to your online friends > > > http://au.messenger. > > > > > > > > > > > > > > > > > > > > > > Send instant messages to your online friends > > http://au.messenger. > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 25, 2007 Report Share Posted March 25, 2007 Hi Viv. Thanks for the feedback. I have found this site, extremely supporting. It is great to compare notes, and find that we are the same as everyone else. Yes now that i know more about this dreadfull disease/tumour, i will be certainly asking the specialist a few more questions on our visit on thurs. Wishing you all the best to with all your dramas, regards judy --- hayviv65 <hayviv65@...> wrote: > Hi Judy > Just read your post 17640 wow > I know as a mum now you feel and being an aussie I > think sometimes > makes it hard because there is no group to help or > support us. > So hang in there. Reading the notes on this site > have helped me to > learn so much the Doctors have never told us about. > I don't just sit anymore if I have a gut feeling > that things aren't > right I do something about.Our GP is also very good > he listens to me > more than the ENT does.Thats how we found that Brice > had the > cholesteatoma back. So go with your gut he may be an > adult but you > are still his Mum > Best of luck > Viv > > > > > > > > > Hi Pb, I'm an Aussie and live in Brisbane. > I " m a 30yr > > > > old married female > > > > > mother of six rug rats and just had my 1st > mastoidectomy on > the > > R > > > > ear > > > > > yesterday. All went well I think. I didn't > realise how much > you > > > > really use > > > > > your neck muscles! lol. I have a bit of > swelling on the neck > > area > > > > and would > > > > > really love to blow my nose! My head feels > really full of > > > pressure > > > > and its > > > > > driving me crazy because the kids are > driving me crazy and I > > cant > > > > yell at > > > > > them Lol! I think they think I'm a real walk > over at the > > moment. > > > > Their > > > > > fighting and screams are piercing i'll say. > Other than that I > > > feel > > > > all > > > > > right.. Have some nice pain killers doing > the trick. O well > Off > > > > for a lie > > > > > down I think and watch a dvd. Be great if I > didnt have to > have > > > the > > > > tv going > > > > > so loud all the time. Well I hope I dont > have to have 6 > > surgeries > > > > like you, > > > > > but it appears people seem to have a few. > Best wishes with > > > surgery > > > > number > > > > > 6. > > > > > Sharon > > > > > 0 > > > > > > > > > > >From: " pindanblues " <pindanblues@> > > > > > >Reply-cholesteatoma > > > > > >cholesteatoma > > > > > >Subject: Aussies? > > > > > >Date: Thu, 03 Aug 2006 07:12:26 -0000 > > > > > > > > > > > >Hi everyone, > > > > > > > > > > > >Are there any other Australian's in this > group? > > > > > >It does not seem to be so common here. > > > > > >I have had 5 ops now on my left ear. > Waiting === message truncated === Send instant messages to your online friends http://au.messenger. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 4, 2007 Report Share Posted April 4, 2007 Hi All Brice has had the CT on Monday the called to say it's normal thank God.So it's just his manic mum working over time LOL. He is doing really good this week. Hope everyone is as well VIV > > > > > > Hi Pb, I'm an Aussie and live in Brisbane. > > I " m a 30yr > > > > > old married female > > > > > > mother of six rug rats and just had my 1st > > mastoidectomy on > > the > > > R > > > > > ear > > > > > > yesterday. All went well I think. I didn't > > realise how much > > you > > > > > really use > > > > > > your neck muscles! lol. I have a bit of > > swelling on the neck > > > area > > > > > and would > > > > > > really love to blow my nose! My head feels > > really full of > > > > pressure > > > > > and its > > > > > > driving me crazy because the kids are > > driving me crazy and I > > > cant > > > > > yell at > > > > > > them Lol! I think they think I'm a real walk > > over at the > > > moment. > > > > > Their > > > > > > fighting and screams are piercing i'll say. > > Other than that I > > > > feel > > > > > all > > > > > > right.. Have some nice pain killers doing > > the trick. O well > > Off > > > > > for a lie > > > > > > down I think and watch a dvd. Be great if I > > didnt have to > > have > > > > the > > > > > tv going > > > > > > so loud all the time. Well I hope I dont > > have to have 6 > > > surgeries > > > > > like you, > > > > > > but it appears people seem to have a few. > > Best wishes with > > > > surgery > > > > > number > > > > > > 6. > > > > > > Sharon > > > > > > 0 > > > > > > > > > > > > >From: " pindanblues " <pindanblues@> > > > > > > >Reply-cholesteatoma > > > > > > >cholesteatoma > > > > > > >Subject: Aussies? > > > > > > >Date: Thu, 03 Aug 2006 07:12:26 -0000 > > > > > > > > > > > > > >Hi everyone, > > > > > > > > > > > > > >Are there any other Australian's in this > > group? > > > > > > >It does not seem to be so common here. > > > > > > >I have had 5 ops now on my left ear. > > Waiting > === message truncated === > > > Send instant messages to your online friends http://au.messenger. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 4, 2007 Report Share Posted April 4, 2007 Hi, thats great news on bryce. Fantastic. Hey we are mums we are allowed to worry. My son shane has his operation on may 23, so we all have our fingers crossed till then. They arent to sure what they are going to do yet. His specialist said its too messy at the moment , so will have a clean and take it from there. As his hearing is deterioting, we are now looking into learning sign language.... regards judy --- hayviv65 <hayviv65@...> wrote: > Hi All > Brice has had the CT on Monday the called to say > it's normal thank > God.So it's just his manic mum working over time > LOL. > He is doing really good this week. > Hope everyone is as well > VIV > > > > > > > > Hi Pb, I'm an Aussie and live in > Brisbane. > > > I " m a 30yr > > > > > > old married female > > > > > > > mother of six rug rats and just had my > 1st > > > mastoidectomy on > > > the > === message truncated === Send instant messages to your online friends http://au.messenger. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 7, 2007 Report Share Posted April 7, 2007 Hi Judy I will keep you and your son in my prayers. I know how you are feeling.Where is he having the op? Brice has bounced back he is driving us all mad. Hang in there. Viv > > > > > > > > Hi Pb, I'm an Aussie and live in > > Brisbane. > > > > I " m a 30yr > > > > > > > old married female > > > > > > > > mother of six rug rats and just had my > > 1st > > > > mastoidectomy on > > > > the > > > === message truncated === > > > Send instant messages to your online friends http://au.messenger. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 7, 2007 Report Share Posted April 7, 2007 Hi, Thanks viv. Hes having it here in Port Pirie. We usually have to travel to Adelaide a few hours away, but the specialist has agreed to operate in our country hospital. More than likely we will be in adelaide after for the checkups and packing. Great to hear bryce is bouncing back, doesnt seem to take long when they are younger.. Regards Judy --- hayviv65 <hayviv65@...> wrote: > Hi Judy > I will keep you and your son in my prayers. I know > how you are > feeling.Where is he having the op? Brice has bounced > back he is > driving us all mad. > Hang in there. > Viv > > > > > > > > > Hi, > > > > > > > > We have a 10yr son With a > Cholesteatoma.We > > > > > live in NSW on the > > > > > Mid > > > > > > > > North Coast. We have no surrport here > at > > > all. > > > > > Brice is now > > > > > under > > > > > > > the > > > > > > > > Childrens Hospital at Westmead. He > will > > > under > > > > > go his 4th lot of > > > > > > > > surgery on the 20th Dec. Not looking > > > forward > > > > > to that again. At > > > > > > > least > > > > > > > > we now know we are not the only > Aussies > > > going > > > > > through this > > > > > > > sometimes > > > > > > > > it has been hell.He hates to blow his > nose > > > as > > > > > well. Our real > > > > > > battle > === message truncated === Send instant messages to your online friends http://au.messenger. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 27, 2007 Report Share Posted April 27, 2007 Hi To all, I just wondering how many Aussie's on this site are in Sydney.Brice has to go down to childrens hospital in May and it would be unreal [for mum] if we could catch up and meet. Even those out the state we should Try to see if we could get together sometime. I would love to meet all of you and have a good chat. I know I'm crazy. just hope some of you are as crazy as me LOL VIV > > > Hi Pb, I'm an Aussie and live in Brisbane. I " m a 30yr > > old married female > > > mother of six rug rats and just had my 1st mastoidectomy on the R > > ear > > > yesterday. All went well I think. I didn't realise how much you > > really use > > > your neck muscles! lol. I have a bit of swelling on the neck area > > and would > > > really love to blow my nose! My head feels really full of > pressure > > and its > > > driving me crazy because the kids are driving me crazy and I cant > > yell at > > > them Lol! I think they think I'm a real walk over at the moment. > > Their > > > fighting and screams are piercing i'll say. Other than that I > feel > > all > > > right.. Have some nice pain killers doing the trick. O well Off > > for a lie > > > down I think and watch a dvd. Be great if I didnt have to have > the > > tv going > > > so loud all the time. Well I hope I dont have to have 6 surgeries > > like you, > > > but it appears people seem to have a few. Best wishes with > surgery > > number > > > 6. > > > Sharon > > > 0 > > > > > > >From: " pindanblues " <pindanblues@> > > > >Reply-cholesteatoma > > > >cholesteatoma > > > >Subject: Aussies? > > > >Date: Thu, 03 Aug 2006 07:12:26 -0000 > > > > > > > >Hi everyone, > > > > > > > >Are there any other Australian's in this group? > > > >It does not seem to be so common here. > > > >I have had 5 ops now on my left ear. Waiting for probably # 6 > > > >in September if the specialist decides to visit our town. > > > >Would love to hear (excuse the pun) from anyone having regrowth > > after > > > >years of being " well " . > > > >Best wishes to everyone > > > >PB > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Send instant messages to your online friends > > http://au.messenger. > > > > > > > > > > > > > > > Send instant messages to your online friends > http://au.messenger. > > > > > > > > Send instant messages to your online friends http://au.messenger. > Quote Link to comment Share on other sites More sharing options...
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