Re: /was: Hello, I'm returning to Ohio with my autisitc son - resource info requested.

[Guest guest]

Hi ,

I know of Dr. Vinci-Khoury and Dr. , sorry can't remember her last name, who are dan! drs in warren/youngstown. Anybody else? Whom do you see, if I might ask?

----- Original Message -----

From: rmaher1969@...

Sent: Saturday, March 18, 2006 6:37 PM

Subject: RE: [ ] Hello, I'm returning to Ohio with my autisitc son - resource info requested.

Kim,

Welcome back to Ohio. I know of a few DAN! docs locally (warren/youngstown) but, otherwise I don't know of many sympathetic Peds. BTW, are you still feeling pioneerish? We are opening an autism center here in Trumbull County and we will need parent's involvement. Keep in touch and welcome back!

----- Original Message -----

From: ziahsmomma

Sent: 3/18/2006 6:35:27 AM

Subject: [ ] Hello, I'm returning to Ohio with my autisitc son - resource info requested.

I'm always so thankful for great resources. And invested parents are the best ones with the best knowledge. I am returning to Ohio after living in NY for 10 years. I have a precious 6 yr old son Josiah who is Autistic with many other issues. I am so blessed for all of you who have come together in NE Ohio to network and share what you know.I am coming from a tiny town where I had to pioneer every step of the way begining 6 years ago, but where my son received many great support services and most importantly the most AWESOME medical care. Working with a team that did not disregard me but included me and often times followed my lead. Who were clearly western medicine but did not scoff at or reject eastern medicine, herbs, holistic therapies. In fact as Josiah and I pioneered things they were so open that eventually other children were told about things we've tried. I am desperately wanting to find that in Ohio and I am praying that someone out there will write me back with a great reference for another awesome medical team. While Josiah has seen many specialists I am also interested in a great family practice or pediatrician who knows that while educated and intelligent, MOM knows this child best!Were initially coming back to twinsburg while we look for another home. I'd love to connect with some of you. Thanks for taking the tine to read my hello.Have a great weekend. Kim

[Guest guest]

,

Dr. Findley Belgrad, who we used to see. We are doing it all on our own now. Docs are too $$$!!

May I ask, why are you moving back to the area? Rich Center? Where in New York are you coming from? We used to live in NY and considered moving back for the school tied with Carbone, but hubby can't find work there and we would have to live with my mother-in-law. It just wouldn't work out I'm afraid!

There is also a DAN doc in Cleveland Dr. Demio, and a doc in Meadville PA who is on the DAN board, he does chelation- Dr. Piersel. There may be more, others on this board will know. My ped isn't involved with any of our bio-med treatments for our son, but he listens and seems sympathetic although I don't think he fully understands or believes in what we're doing.

What exactly did you do in New York as a "pioneer" We are in desperate need of more parents like you. I have met very few who are doing bio-med or ABA in this area. Our Organization is called TEAM To Find a Way. Actually, Dr. Vinci-Khoury was one of the original directors, but she was overloaded with other obligations and we didn't get much momentum going, There was also a problem with a conflict of interest. As and organization, we can't tell parents about one specific doctor. She is a wonderful woman and I told her that we will be recommending her to parents as a choice among docs.

Sorry I'm so long winded...

----- Original Message -----

From: Cochran

Sent: 3/18/2006 7:51:15 PM

Subject: Re: [ ]/was: Hello, I'm returning to Ohio with my autisitc son - resource info requested.

Hi ,

I know of Dr. Vinci-Khoury and Dr. , sorry can't remember her last name, who are dan! drs in warren/youngstown. Anybody else? Whom do you see, if I might ask?

----- Original Message -----

From: rmaher1969@...

Sent: Saturday, March 18, 2006 6:37 PM

Subject: RE: [ ] Hello, I'm returning to Ohio with my autisitc son - resource info requested.

Kim,

Welcome back to Ohio. I know of a few DAN! docs locally (warren/youngstown) but, otherwise I don't know of many sympathetic Peds. BTW, are you still feeling pioneerish? We are opening an autism center here in Trumbull County and we will need parent's involvement. Keep in touch and welcome back!

----- Original Message -----

From: ziahsmomma

Sent: 3/18/2006 6:35:27 AM

Subject: [ ] Hello, I'm returning to Ohio with my autisitc son - resource info requested.

I'm always so thankful for great resources. And invested parents are the best ones with the best knowledge. I am returning to Ohio after living in NY for 10 years. I have a precious 6 yr old son Josiah who is Autistic with many other issues. I am so blessed for all of you who have come together in NE Ohio to network and share what you know.I am coming from a tiny town where I had to pioneer every step of the way begining 6 years ago, but where my son received many great support services and most importantly the most AWESOME medical care. Working with a team that did not disregard me but included me and often times followed my lead. Who were clearly western medicine but did not scoff at or reject eastern medicine, herbs, holistic therapies. In fact as Josiah and I pioneered things they were so open that eventually other children were told about things we've tried. I am desperately wanting to find that in Ohio and I am praying that someone out there will write me back with a great reference for another awesome medical team. While Josiah has seen many specialists I am also interested in a great family practice or pediatrician who knows that while educated and intelligent, MOM knows this child best!Were initially coming back to twinsburg while we look for another home. I'd love to connect with some of you. Thanks for taking the tine to read my hello.Have a great weekend. Kim

[Guest guest]

Well, think you have me confused with the lady moving back to Ohio. We have always been in Ohio. Sorry should have changed the post heading.

We did see dr. Belgrad, but she had just started, that was 1.5 years ago, and, she told us we knew more than she did.

Dr. Khoury is a great woman, I am a psychologist and we have had the same patients over the years, but she is also just starting.

We ended up doing it on our own also. Couldn't find a dr who would take us as she did horribly on the gf/cf diet, lost language and looked absolutely awful. After three weeks we put her back on milk and we chelated anyway with wonderful results.

We contacted Dr. Tenpenny, but as she tested without allergies, did not want to go through her long and expensive allergy testing. By the time Dr. Demio came on the scene we were well under way, although we have used oral Ala, and I understand he is not a fan, so probably would not have been a good fit either.

She has some residual fine motor problems, writing does not come easy, but other than that, she is recovered.

Can I ask who is your ped? We are looking for a new one. Don't apologize for long posts, I love them :-)

TIA,

----- Original Message -----

From: rmaher1969@...

Sent: Saturday, March 18, 2006 8:25 PM

Subject: Re: [ ]/was: Hello, I'm returning to Ohio with my autisitc son - resource info requested.

,

Dr. Findley Belgrad, who we used to see. We are doing it all on our own now. Docs are too $$$!!

May I ask, why are you moving back to the area? Rich Center? Where in New York are you coming from? We used to live in NY and considered moving back for the school tied with Carbone, but hubby can't find work there and we would have to live with my mother-in-law. It just wouldn't work out I'm afraid!

There is also a DAN doc in Cleveland Dr. Demio, and a doc in Meadville PA who is on the DAN board, he does chelation- Dr. Piersel. There may be more, others on this board will know. My ped isn't involved with any of our bio-med treatments for our son, but he listens and seems sympathetic although I don't think he fully understands or believes in what we're doing.

What exactly did you do in New York as a "pioneer" We are in desperate need of more parents like you. I have met very few who are doing bio-med or ABA in this area. Our Organization is called TEAM To Find a Way. Actually, Dr. Vinci-Khoury was one of the original directors, but she was overloaded with other obligations and we didn't get much momentum going, There was also a problem with a conflict of interest. As and organization, we can't tell parents about one specific doctor. She is a wonderful woman and I told her that we will be recommending her to parents as a choice among docs.

Sorry I'm so long winded...

----- Original Message -----

From: Cochran

Sent: 3/18/2006 7:51:15 PM

Subject: Re: [ ]/was: Hello, I'm returning to Ohio with my autisitc son - resource info requested.

Hi ,

I know of Dr. Vinci-Khoury and Dr. , sorry can't remember her last name, who are dan! drs in warren/youngstown. Anybody else? Whom do you see, if I might ask?

----- Original Message -----

From: rmaher1969@...

Sent: Saturday, March 18, 2006 6:37 PM

Subject: RE: [ ] Hello, I'm returning to Ohio with my autisitc son - resource info requested.

Kim,

Welcome back to Ohio. I know of a few DAN! docs locally (warren/youngstown) but, otherwise I don't know of many sympathetic Peds. BTW, are you still feeling pioneerish? We are opening an autism center here in Trumbull County and we will need parent's involvement. Keep in touch and welcome back!

----- Original Message -----

From: ziahsmomma

Sent: 3/18/2006 6:35:27 AM

Subject: [ ] Hello, I'm returning to Ohio with my autisitc son - resource info requested.

I'm always so thankful for great resources. And invested parents are the best ones with the best knowledge. I am returning to Ohio after living in NY for 10 years. I have a precious 6 yr old son Josiah who is Autistic with many other issues. I am so blessed for all of you who have come together in NE Ohio to network and share what you know.I am coming from a tiny town where I had to pioneer every step of the way begining 6 years ago, but where my son received many great support services and most importantly the most AWESOME medical care. Working with a team that did not disregard me but included me and often times followed my lead. Who were clearly western medicine but did not scoff at or reject eastern medicine, herbs, holistic therapies. In fact as Josiah and I pioneered things they were so open that eventually other children were told about things we've tried. I am desperately wanting to find that in Ohio and I am praying that someone out there will write me back with a great reference for another awesome medical team. While Josiah has seen many specialists I am also interested in a great family practice or pediatrician who knows that while educated and intelligent, MOM knows this child best!Were initially coming back to twinsburg while we look for another home. I'd love to connect with some of you. Thanks for taking the tine to read my hello.Have a great weekend. Kim

[Guest guest]

Also, , since I am in the area, I would be interested in hearing more about your organization. Do you have some literature you could send me. Also, who are you working with, other moms/parents?

----- Original Message -----

From: Cochran

Sent: Saturday, March 18, 2006 8:36 PM

Subject: Re: [ ]/was: Hello, I'm returning to Ohio with my autisitc son - resource info requested.

Well, think you have me confused with the lady moving back to Ohio. We have always been in Ohio. Sorry should have changed the post heading.

We did see dr. Belgrad, but she had just started, that was 1.5 years ago, and, she told us we knew more than she did.

Dr. Khoury is a great woman, I am a psychologist and we have had the same patients over the years, but she is also just starting.

We ended up doing it on our own also. Couldn't find a dr who would take us as she did horribly on the gf/cf diet, lost language and looked absolutely awful. After three weeks we put her back on milk and we chelated anyway with wonderful results.

We contacted Dr. Tenpenny, but as she tested without allergies, did not want to go through her long and expensive allergy testing. By the time Dr. Demio came on the scene we were well under way, although we have used oral Ala, and I understand he is not a fan, so probably would not have been a good fit either.

She has some residual fine motor problems, writing does not come easy, but other than that, she is recovered.

Can I ask who is your ped? We are looking for a new one. Don't apologize for long posts, I love them :-)

TIA,

----- Original Message -----

From: rmaher1969@...

Sent: Saturday, March 18, 2006 8:25 PM

Subject: Re: [ ]/was: Hello, I'm returning to Ohio with my autisitc son - resource info requested.

,

Dr. Findley Belgrad, who we used to see. We are doing it all on our own now. Docs are too $$$!!

May I ask, why are you moving back to the area? Rich Center? Where in New York are you coming from? We used to live in NY and considered moving back for the school tied with Carbone, but hubby can't find work there and we would have to live with my mother-in-law. It just wouldn't work out I'm afraid!

There is also a DAN doc in Cleveland Dr. Demio, and a doc in Meadville PA who is on the DAN board, he does chelation- Dr. Piersel. There may be more, others on this board will know. My ped isn't involved with any of our bio-med treatments for our son, but he listens and seems sympathetic although I don't think he fully understands or believes in what we're doing.

What exactly did you do in New York as a "pioneer" We are in desperate need of more parents like you. I have met very few who are doing bio-med or ABA in this area. Our Organization is called TEAM To Find a Way. Actually, Dr. Vinci-Khoury was one of the original directors, but she was overloaded with other obligations and we didn't get much momentum going, There was also a problem with a conflict of interest. As and organization, we can't tell parents about one specific doctor. She is a wonderful woman and I told her that we will be recommending her to parents as a choice among docs.

Sorry I'm so long winded...

----- Original Message -----

From: Cochran

Sent: 3/18/2006 7:51:15 PM

Subject: Re: [ ]/was: Hello, I'm returning to Ohio with my autisitc son - resource info requested.

Hi ,

I know of Dr. Vinci-Khoury and Dr. , sorry can't remember her last name, who are dan! drs in warren/youngstown. Anybody else? Whom do you see, if I might ask?

----- Original Message -----

From: rmaher1969@...

Sent: Saturday, March 18, 2006 6:37 PM

Subject: RE: [ ] Hello, I'm returning to Ohio with my autisitc son - resource info requested.

Kim,

Welcome back to Ohio. I know of a few DAN! docs locally (warren/youngstown) but, otherwise I don't know of many sympathetic Peds. BTW, are you still feeling pioneerish? We are opening an autism center here in Trumbull County and we will need parent's involvement. Keep in touch and welcome back!

----- Original Message -----

From: ziahsmomma

Sent: 3/18/2006 6:35:27 AM

Subject: [ ] Hello, I'm returning to Ohio with my autisitc son - resource info requested.

I'm always so thankful for great resources. And invested parents are the best ones with the best knowledge. I am returning to Ohio after living in NY for 10 years. I have a precious 6 yr old son Josiah who is Autistic with many other issues. I am so blessed for all of you who have come together in NE Ohio to network and share what you know.I am coming from a tiny town where I had to pioneer every step of the way begining 6 years ago, but where my son received many great support services and most importantly the most AWESOME medical care. Working with a team that did not disregard me but included me and often times followed my lead. Who were clearly western medicine but did not scoff at or reject eastern medicine, herbs, holistic therapies. In fact as Josiah and I pioneered things they were so open that eventually other children were told about things we've tried. I am desperately wanting to find that in Ohio and I am praying that someone out there will write me back with a great reference for another awesome medical team. While Josiah has seen many specialists I am also interested in a great family practice or pediatrician who knows that while educated and intelligent, MOM knows this child best!Were initially coming back to twinsburg while we look for another home. I'd love to connect with some of you. Thanks for taking the tine to read my hello.Have a great weekend. Kim

[Guest guest]

,

I agree, most of the docs aren't as up on all the bio-med as we are...lol. My pediatrician is Dr. Vlad. He was my ped when I was a kid, so he seemed like the natural choice for my boys. We don't do GF/Cf anymore either, we use digestive enzymes with great results. I wonder why no DAN Docs ever recommend them?

We are using oral ALA with oral DMSA 1:1 ratio frequent/low dose. We have seen max results the past two months. Seeing some regression during the "ON" days, but much better all around on the "OFF" days.

I noticed last night we took our son to play at Burger King (a bribe...long story..lol) and he was actually with the other kids interacting, which has been coming about for the past 6 months, but the biggest change, was the kids didn't reject him. None of them seemed to notice anything different! Other kids usually will look at him like he's from Mars, and last night, he was just one of them. It was AWESOME!

BTW, where are you in NE Ohio?

A psychologist huh? That's great, I'm a neurotic, we could have a great friendship!

LOL

----- Original Message -----

From: Cochran

Sent: 3/18/2006 8:36:33 PM

Subject: Re: [ ]/was: Hello, I'm returning to Ohio with my autisitc son - resource info requested.

Well, think you have me confused with the lady moving back to Ohio. We have always been in Ohio. Sorry should have changed the post heading.

We did see dr. Belgrad, but she had just started, that was 1.5 years ago, and, she told us we knew more than she did.

Dr. Khoury is a great woman, I am a psychologist and we have had the same patients over the years, but she is also just starting.

We ended up doing it on our own also. Couldn't find a dr who would take us as she did horribly on the gf/cf diet, lost language and looked absolutely awful. After three weeks we put her back on milk and we chelated anyway with wonderful results.

We contacted Dr. Tenpenny, but as she tested without allergies, did not want to go through her long and expensive allergy testing. By the time Dr. Demio came on the scene we were well under way, although we have used oral Ala, and I understand he is not a fan, so probably would not have been a good fit either.

She has some residual fine motor problems, writing does not come easy, but other than that, she is recovered.

Can I ask who is your ped? We are looking for a new one. Don't apologize for long posts, I love them :-)

TIA,

----- Original Message -----

From: rmaher1969@...

Sent: Saturday, March 18, 2006 8:25 PM

Subject: Re: [ ]/was: Hello, I'm returning to Ohio with my autisitc son - resource info requested.

,

Dr. Findley Belgrad, who we used to see. We are doing it all on our own now. Docs are too $$$!!

May I ask, why are you moving back to the area? Rich Center? Where in New York are you coming from? We used to live in NY and considered moving back for the school tied with Carbone, but hubby can't find work there and we would have to live with my mother-in-law. It just wouldn't work out I'm afraid!

There is also a DAN doc in Cleveland Dr. Demio, and a doc in Meadville PA who is on the DAN board, he does chelation- Dr. Piersel. There may be more, others on this board will know. My ped isn't involved with any of our bio-med treatments for our son, but he listens and seems sympathetic although I don't think he fully understands or believes in what we're doing.

What exactly did you do in New York as a "pioneer" We are in desperate need of more parents like you. I have met very few who are doing bio-med or ABA in this area. Our Organization is called TEAM To Find a Way. Actually, Dr. Vinci-Khoury was one of the original directors, but she was overloaded with other obligations and we didn't get much momentum going, There was also a problem with a conflict of interest. As and organization, we can't tell parents about one specific doctor. She is a wonderful woman and I told her that we will be recommending her to parents as a choice among docs.

Sorry I'm so long winded...

----- Original Message -----

From: Cochran

Sent: 3/18/2006 7:51:15 PM

Subject: Re: [ ]/was: Hello, I'm returning to Ohio with my autisitc son - resource info requested.

Hi ,

I know of Dr. Vinci-Khoury and Dr. , sorry can't remember her last name, who are dan! drs in warren/youngstown. Anybody else? Whom do you see, if I might ask?

----- Original Message -----

From: rmaher1969@...

Sent: Saturday, March 18, 2006 6:37 PM

Subject: RE: [ ] Hello, I'm returning to Ohio with my autisitc son - resource info requested.

Kim,

Welcome back to Ohio. I know of a few DAN! docs locally (warren/youngstown) but, otherwise I don't know of many sympathetic Peds. BTW, are you still feeling pioneerish? We are opening an autism center here in Trumbull County and we will need parent's involvement. Keep in touch and welcome back!

----- Original Message -----

From: ziahsmomma

Sent: 3/18/2006 6:35:27 AM

Subject: [ ] Hello, I'm returning to Ohio with my autisitc son - resource info requested.

I'm always so thankful for great resources. And invested parents are the best ones with the best knowledge. I am returning to Ohio after living in NY for 10 years. I have a precious 6 yr old son Josiah who is Autistic with many other issues. I am so blessed for all of you who have come together in NE Ohio to network and share what you know.I am coming from a tiny town where I had to pioneer every step of the way begining 6 years ago, but where my son received many great support services and most importantly the most AWESOME medical care. Working with a team that did not disregard me but included me and often times followed my lead. Who were clearly western medicine but did not scoff at or reject eastern medicine, herbs, holistic therapies. In fact as Josiah and I pioneered things they were so open that eventually other children were told about things we've tried. I am desperately wanting to find that in Ohio and I am praying that someone out there will write me back with a great reference for another awesome medical team. While Josiah has seen many specialists I am also interested in a great family practice or pediatrician who knows that while educated and intelligent, MOM knows this child best!Were initially coming back to twinsburg while we look for another home. I'd love to connect with some of you. Thanks for taking the tine to read my hello.Have a great weekend. Kim

[Guest guest]

,

I have some flyers that I have made, but I made them on Microsoft Publisher and the files are too big to e-mail. I made some flyers for the Tri-County ASA chapter and tried to e-mail them and it was this whole debacle...anyway,

Right now, it's me, my hubby, and a friend of ours. I held some meetings in the past, but we didn't have a space for a physical center yet, so I think parents weren't interested in "what was going to be" so I say "Build it and they will come!" We will have our facility by June and then I have all kinds of plans.

In the meantime, let me pick my hubby's brain about how I can reformat my literature so that I can e-mail it to you.

I'll send them out to you when I have it done.

----- Original Message -----

From: Cochran

Sent: 3/18/2006 8:41:13 PM

Subject: Re: [ ]/was: Hello, I'm returning to Ohio with my autisitc son - resource info requested.

Also, , since I am in the area, I would be interested in hearing more about your organization. Do you have some literature you could send me. Also, who are you working with, other moms/parents?

----- Original Message -----

From: Cochran

Sent: Saturday, March 18, 2006 8:36 PM

Subject: Re: [ ]/was: Hello, I'm returning to Ohio with my autisitc son - resource info requested.

Well, think you have me confused with the lady moving back to Ohio. We have always been in Ohio. Sorry should have changed the post heading.

We did see dr. Belgrad, but she had just started, that was 1.5 years ago, and, she told us we knew more than she did.

Dr. Khoury is a great woman, I am a psychologist and we have had the same patients over the years, but she is also just starting.

We ended up doing it on our own also. Couldn't find a dr who would take us as she did horribly on the gf/cf diet, lost language and looked absolutely awful. After three weeks we put her back on milk and we chelated anyway with wonderful results.

We contacted Dr. Tenpenny, but as she tested without allergies, did not want to go through her long and expensive allergy testing. By the time Dr. Demio came on the scene we were well under way, although we have used oral Ala, and I understand he is not a fan, so probably would not have been a good fit either.

She has some residual fine motor problems, writing does not come easy, but other than that, she is recovered.

Can I ask who is your ped? We are looking for a new one. Don't apologize for long posts, I love them :-)

TIA,

----- Original Message -----

From: rmaher1969@...

Sent: Saturday, March 18, 2006 8:25 PM

Subject: Re: [ ]/was: Hello, I'm returning to Ohio with my autisitc son - resource info requested.

,

Dr. Findley Belgrad, who we used to see. We are doing it all on our own now. Docs are too $$$!!

May I ask, why are you moving back to the area? Rich Center? Where in New York are you coming from? We used to live in NY and considered moving back for the school tied with Carbone, but hubby can't find work there and we would have to live with my mother-in-law. It just wouldn't work out I'm afraid!

There is also a DAN doc in Cleveland Dr. Demio, and a doc in Meadville PA who is on the DAN board, he does chelation- Dr. Piersel. There may be more, others on this board will know. My ped isn't involved with any of our bio-med treatments for our son, but he listens and seems sympathetic although I don't think he fully understands or believes in what we're doing.

What exactly did you do in New York as a "pioneer" We are in desperate need of more parents like you. I have met very few who are doing bio-med or ABA in this area. Our Organization is called TEAM To Find a Way. Actually, Dr. Vinci-Khoury was one of the original directors, but she was overloaded with other obligations and we didn't get much momentum going, There was also a problem with a conflict of interest. As and organization, we can't tell parents about one specific doctor. She is a wonderful woman and I told her that we will be recommending her to parents as a choice among docs.

Sorry I'm so long winded...

----- Original Message -----

From: Cochran

Sent: 3/18/2006 7:51:15 PM

Subject: Re: [ ]/was: Hello, I'm returning to Ohio with my autisitc son - resource info requested.

Hi ,

I know of Dr. Vinci-Khoury and Dr. , sorry can't remember her last name, who are dan! drs in warren/youngstown. Anybody else? Whom do you see, if I might ask?

----- Original Message -----

From: rmaher1969@...

Sent: Saturday, March 18, 2006 6:37 PM

Subject: RE: [ ] Hello, I'm returning to Ohio with my autisitc son - resource info requested.

Kim,

Welcome back to Ohio. I know of a few DAN! docs locally (warren/youngstown) but, otherwise I don't know of many sympathetic Peds. BTW, are you still feeling pioneerish? We are opening an autism center here in Trumbull County and we will need parent's involvement. Keep in touch and welcome back!

----- Original Message -----

From: ziahsmomma

Sent: 3/18/2006 6:35:27 AM

Subject: [ ] Hello, I'm returning to Ohio with my autisitc son - resource info requested.

I'm always so thankful for great resources. And invested parents are the best ones with the best knowledge. I am returning to Ohio after living in NY for 10 years. I have a precious 6 yr old son Josiah who is Autistic with many other issues. I am so blessed for all of you who have come together in NE Ohio to network and share what you know.I am coming from a tiny town where I had to pioneer every step of the way begining 6 years ago, but where my son received many great support services and most importantly the most AWESOME medical care. Working with a team that did not disregard me but included me and often times followed my lead. Who were clearly western medicine but did not scoff at or reject eastern medicine, herbs, holistic therapies. In fact as Josiah and I pioneered things they were so open that eventually other children were told about things we've tried. I am desperately wanting to find that in Ohio and I am praying that someone out there will write me back with a great reference for another awesome medical team. While Josiah has seen many specialists I am also interested in a great family practice or pediatrician who knows that while educated and intelligent, MOM knows this child best!Were initially coming back to twinsburg while we look for another home. I'd love to connect with some of you. Thanks for taking the tine to read my hello.Have a great weekend. Kim

[Guest guest]

Yes, in Lordstown/Berlin Center area. Dr. Vlad is a distant relative, didn't know he was still in practice, nice man.

Dan drs stuck like glue to gf/cf thing. Before we did the testing with dr belgrad, I asked her if the test for casein and gluten came back without allergies/peptides would we have to do the diet? And she said YES!!! What the heck? They why bother with the test.

When we tried the diet and she lost language, we told dr belgrad about it and she said that she was not concerned!!! I told her we were logical people who would have to have some kind of reason why losing language was not cause for concern or considered a benign event. We put her back on the milk, no enzymes.

We also used oral ala with dmsa, with great results. Wonderful, your experience at BK. How old is your son?

Do you know of any other moms doing biomed in our area? How did you learn of the low/frequent dosing?

My practice is in Warren, just me. I agree we would make a great pair, as I am neurotic also, don't know of practically anyone who isn't.

Will look forward to maybe getting the brochure, but maybe you could tell me something about the organization? Just what is your purpose and what do you do?

----- Original Message -----

From: rmaher1969@...

Sent: Saturday, March 18, 2006 9:53 PM

Subject: Re: [ ]/was: Hello, I'm returning to Ohio with my autisitc son - resource info requested.

,

I agree, most of the docs aren't as up on all the bio-med as we are...lol. My pediatrician is Dr. Vlad. He was my ped when I was a kid, so he seemed like the natural choice for my boys. We don't do GF/Cf anymore either, we use digestive enzymes with great results. I wonder why no DAN Docs ever recommend them?

We are using oral ALA with oral DMSA 1:1 ratio frequent/low dose. We have seen max results the past two months. Seeing some regression during the "ON" days, but much better all around on the "OFF" days.

I noticed last night we took our son to play at Burger King (a bribe...long story..lol) and he was actually with the other kids interacting, which has been coming about for the past 6 months, but the biggest change, was the kids didn't reject him. None of them seemed to notice anything different! Other kids usually will look at him like he's from Mars, and last night, he was just one of them. It was AWESOME!

BTW, where are you in NE Ohio?

A psychologist huh? That's great, I'm a neurotic, we could have a great friendship!

LOL

----- Original Message -----

From: Cochran

Sent: 3/18/2006 8:36:33 PM

Subject: Re: [ ]/was: Hello, I'm returning to Ohio with my autisitc son - resource info requested.

Well, think you have me confused with the lady moving back to Ohio. We have always been in Ohio. Sorry should have changed the post heading.

We did see dr. Belgrad, but she had just started, that was 1.5 years ago, and, she told us we knew more than she did.

Dr. Khoury is a great woman, I am a psychologist and we have had the same patients over the years, but she is also just starting.

We ended up doing it on our own also. Couldn't find a dr who would take us as she did horribly on the gf/cf diet, lost language and looked absolutely awful. After three weeks we put her back on milk and we chelated anyway with wonderful results.

We contacted Dr. Tenpenny, but as she tested without allergies, did not want to go through her long and expensive allergy testing. By the time Dr. Demio came on the scene we were well under way, although we have used oral Ala, and I understand he is not a fan, so probably would not have been a good fit either.

She has some residual fine motor problems, writing does not come easy, but other than that, she is recovered.

Can I ask who is your ped? We are looking for a new one. Don't apologize for long posts, I love them :-)

TIA,

----- Original Message -----

From: rmaher1969@...

Sent: Saturday, March 18, 2006 8:25 PM

Subject: Re: [ ]/was: Hello, I'm returning to Ohio with my autisitc son - resource info requested.

,

Dr. Findley Belgrad, who we used to see. We are doing it all on our own now. Docs are too $$$!!

May I ask, why are you moving back to the area? Rich Center? Where in New York are you coming from? We used to live in NY and considered moving back for the school tied with Carbone, but hubby can't find work there and we would have to live with my mother-in-law. It just wouldn't work out I'm afraid!

There is also a DAN doc in Cleveland Dr. Demio, and a doc in Meadville PA who is on the DAN board, he does chelation- Dr. Piersel. There may be more, others on this board will know. My ped isn't involved with any of our bio-med treatments for our son, but he listens and seems sympathetic although I don't think he fully understands or believes in what we're doing.

What exactly did you do in New York as a "pioneer" We are in desperate need of more parents like you. I have met very few who are doing bio-med or ABA in this area. Our Organization is called TEAM To Find a Way. Actually, Dr. Vinci-Khoury was one of the original directors, but she was overloaded with other obligations and we didn't get much momentum going, There was also a problem with a conflict of interest. As and organization, we can't tell parents about one specific doctor. She is a wonderful woman and I told her that we will be recommending her to parents as a choice among docs.

Sorry I'm so long winded...

----- Original Message -----

From: Cochran

Sent: 3/18/2006 7:51:15 PM

Subject: Re: [ ]/was: Hello, I'm returning to Ohio with my autisitc son - resource info requested.

Hi ,

I know of Dr. Vinci-Khoury and Dr. , sorry can't remember her last name, who are dan! drs in warren/youngstown. Anybody else? Whom do you see, if I might ask?

----- Original Message -----

From: rmaher1969@...

Sent: Saturday, March 18, 2006 6:37 PM

Subject: RE: [ ] Hello, I'm returning to Ohio with my autisitc son - resource info requested.

Kim,

Welcome back to Ohio. I know of a few DAN! docs locally (warren/youngstown) but, otherwise I don't know of many sympathetic Peds. BTW, are you still feeling pioneerish? We are opening an autism center here in Trumbull County and we will need parent's involvement. Keep in touch and welcome back!

----- Original Message -----

From: ziahsmomma

Sent: 3/18/2006 6:35:27 AM

Subject: [ ] Hello, I'm returning to Ohio with my autisitc son - resource info requested.

I'm always so thankful for great resources. And invested parents are the best ones with the best knowledge. I am returning to Ohio after living in NY for 10 years. I have a precious 6 yr old son Josiah who is Autistic with many other issues. I am so blessed for all of you who have come together in NE Ohio to network and share what you know.I am coming from a tiny town where I had to pioneer every step of the way begining 6 years ago, but where my son received many great support services and most importantly the most AWESOME medical care. Working with a team that did not disregard me but included me and often times followed my lead. Who were clearly western medicine but did not scoff at or reject eastern medicine, herbs, holistic therapies. In fact as Josiah and I pioneered things they were so open that eventually other children were told about things we've tried. I am desperately wanting to find that in Ohio and I am praying that someone out there will write me back with a great reference for another awesome medical team. While Josiah has seen many specialists I am also interested in a great family practice or pediatrician who knows that while educated and intelligent, MOM knows this child best!Were initially coming back to twinsburg while we look for another home. I'd love to connect with some of you. Thanks for taking the tine to read my hello.Have a great weekend. Kim

[Guest guest]

,

Our organization basically serves as a resource center and support for parents/ siblings/ and children with ASD. We saw so many gaps when we were looking to help our son, so this was born out of our frustration at finding answers through our own research and then realizing that most of the things we needed for our son just weren't available. When we wanted to do chelation, five years ago I found Dr. Piersel in Meadville, he had never chelated a child before and used only intravenous methods. When we aksed him how we were supposed to get a three year old autistic child to sit still for nearly and hour with a needle in his arm, he said that we would have to restrain him. Our son is very big, very strong, and very determined, especially when he is terrified. I saw absolutely NO WAY that it would work! I have basically researched eveything online and found the chelation schedule that we use now online about chelation. Andy Cutler's protocol is actually the one that made the most sense to me, so we cautiously went ahead with doing it. It frustrates me that it seems that the DAN! docs want to use chelation as the last thing after the diet and yeast. It makes sense to me to get the toxins out as soon as possible, the rest is symptomatic of the toxicity.

I am very excited about having a sensory gym. It will work like a YMCA. Families will pay a monthly fee to have access to the gym and can pay extra to see an OT for an hour, kinda like a personal trainer at a gym. The fees will be on a sliding scale and we are putting out flyers for people to "sponsor a child" for families who can't pay. We will have cooking classes for GF/CF (thanks Dr. Vinci for thinking this up!) Sibling support/ parents support/ social group for ASD teens. AND Finally, ABA consulting for families who want to have a home based program. These services just don't exist around here. We have alot of talent leaving our area universities because there's nowhere for them to work. Kent has an ABA certification program, we can tap into that. Families shouldn't have to go bankrupt paying for therapists and consultants to come from Pittsburgh and Cleveland. We have the Rich Center locally, but they can only take so many kids and I think they have a cut off age.

Our son is seven. His name is .

Dr. Vlad is great, when I was little I LOVED him and called him Dr. Glad! We don't see him often, he has a few new docs in his office and they have less of a wait time. If you wanna see Dr. Vlad, you usually wait! I heard he is retiring.

I know of some parents who came to Dr. Vinci's cooking classes that are doing diet, but not biomed with supps and chelation.

Ok, bedtime, have a good night!

----- Original Message -----

From: Cochran

Sent: 3/18/2006 10:09:42 PM

Subject: Re: [ ]/was: Hello, I'm returning to Ohio with my autisitc son - resource info requested.

Yes, in Lordstown/Berlin Center area. Dr. Vlad is a distant relative, didn't know he was still in practice, nice man.

Dan drs stuck like glue to gf/cf thing. Before we did the testing with dr belgrad, I asked her if the test for casein and gluten came back without allergies/peptides would we have to do the diet? And she said YES!!! What the heck? They why bother with the test.

When we tried the diet and she lost language, we told dr belgrad about it and she said that she was not concerned!!! I told her we were logical people who would have to have some kind of reason why losing language was not cause for concern or considered a benign event. We put her back on the milk, no enzymes.

We also used oral ala with dmsa, with great results. Wonderful, your experience at BK. How old is your son?

Do you know of any other moms doing biomed in our area? How did you learn of the low/frequent dosing?

My practice is in Warren, just me. I agree we would make a great pair, as I am neurotic also, don't know of practically anyone who isn't.

Will look forward to maybe getting the brochure, but maybe you could tell me something about the organization? Just what is your purpose and what do you do?

----- Original Message -----

From: rmaher1969@...

Sent: Saturday, March 18, 2006 9:53 PM

Subject: Re: [ ]/was: Hello, I'm returning to Ohio with my autisitc son - resource info requested.

,

I agree, most of the docs aren't as up on all the bio-med as we are...lol. My pediatrician is Dr. Vlad. He was my ped when I was a kid, so he seemed like the natural choice for my boys. We don't do GF/Cf anymore either, we use digestive enzymes with great results. I wonder why no DAN Docs ever recommend them?

We are using oral ALA with oral DMSA 1:1 ratio frequent/low dose. We have seen max results the past two months. Seeing some regression during the "ON" days, but much better all around on the "OFF" days.

I noticed last night we took our son to play at Burger King (a bribe...long story..lol) and he was actually with the other kids interacting, which has been coming about for the past 6 months, but the biggest change, was the kids didn't reject him. None of them seemed to notice anything different! Other kids usually will look at him like he's from Mars, and last night, he was just one of them. It was AWESOME!

BTW, where are you in NE Ohio?

A psychologist huh? That's great, I'm a neurotic, we could have a great friendship!

LOL

----- Original Message -----

From: Cochran

Sent: 3/18/2006 8:36:33 PM

Subject: Re: [ ]/was: Hello, I'm returning to Ohio with my autisitc son - resource info requested.

Well, think you have me confused with the lady moving back to Ohio. We have always been in Ohio. Sorry should have changed the post heading.

We did see dr. Belgrad, but she had just started, that was 1.5 years ago, and, she told us we knew more than she did.

Dr. Khoury is a great woman, I am a psychologist and we have had the same patients over the years, but she is also just starting.

We ended up doing it on our own also. Couldn't find a dr who would take us as she did horribly on the gf/cf diet, lost language and looked absolutely awful. After three weeks we put her back on milk and we chelated anyway with wonderful results.

We contacted Dr. Tenpenny, but as she tested without allergies, did not want to go through her long and expensive allergy testing. By the time Dr. Demio came on the scene we were well under way, although we have used oral Ala, and I understand he is not a fan, so probably would not have been a good fit either.

She has some residual fine motor problems, writing does not come easy, but other than that, she is recovered.

Can I ask who is your ped? We are looking for a new one. Don't apologize for long posts, I love them :-)

TIA,

----- Original Message -----

From: rmaher1969@...

Sent: Saturday, March 18, 2006 8:25 PM

Subject: Re: [ ]/was: Hello, I'm returning to Ohio with my autisitc son - resource info requested.

,

Dr. Findley Belgrad, who we used to see. We are doing it all on our own now. Docs are too $$$!!

May I ask, why are you moving back to the area? Rich Center? Where in New York are you coming from? We used to live in NY and considered moving back for the school tied with Carbone, but hubby can't find work there and we would have to live with my mother-in-law. It just wouldn't work out I'm afraid!

There is also a DAN doc in Cleveland Dr. Demio, and a doc in Meadville PA who is on the DAN board, he does chelation- Dr. Piersel. There may be more, others on this board will know. My ped isn't involved with any of our bio-med treatments for our son, but he listens and seems sympathetic although I don't think he fully understands or believes in what we're doing.

What exactly did you do in New York as a "pioneer" We are in desperate need of more parents like you. I have met very few who are doing bio-med or ABA in this area. Our Organization is called TEAM To Find a Way. Actually, Dr. Vinci-Khoury was one of the original directors, but she was overloaded with other obligations and we didn't get much momentum going, There was also a problem with a conflict of interest. As and organization, we can't tell parents about one specific doctor. She is a wonderful woman and I told her that we will be recommending her to parents as a choice among docs.

Sorry I'm so long winded...

----- Original Message -----

From: Cochran

Sent: 3/18/2006 7:51:15 PM

Subject: Re: [ ]/was: Hello, I'm returning to Ohio with my autisitc son - resource info requested.

Hi ,

I know of Dr. Vinci-Khoury and Dr. , sorry can't remember her last name, who are dan! drs in warren/youngstown. Anybody else? Whom do you see, if I might ask?

----- Original Message -----

From: rmaher1969@...

Sent: Saturday, March 18, 2006 6:37 PM

Subject: RE: [ ] Hello, I'm returning to Ohio with my autisitc son - resource info requested.

Kim,

Welcome back to Ohio. I know of a few DAN! docs locally (warren/youngstown) but, otherwise I don't know of many sympathetic Peds. BTW, are you still feeling pioneerish? We are opening an autism center here in Trumbull County and we will need parent's involvement. Keep in touch and welcome back!

----- Original Message -----

From: ziahsmomma

Sent: 3/18/2006 6:35:27 AM

Subject: [ ] Hello, I'm returning to Ohio with my autisitc son - resource info requested.

I'm always so thankful for great resources. And invested parents are the best ones with the best knowledge. I am returning to Ohio after living in NY for 10 years. I have a precious 6 yr old son Josiah who is Autistic with many other issues. I am so blessed for all of you who have come together in NE Ohio to network and share what you know.I am coming from a tiny town where I had to pioneer every step of the way begining 6 years ago, but where my son received many great support services and most importantly the most AWESOME medical care. Working with a team that did not disregard me but included me and often times followed my lead. Who were clearly western medicine but did not scoff at or reject eastern medicine, herbs, holistic therapies. In fact as Josiah and I pioneered things they were so open that eventually other children were told about things we've tried. I am desperately wanting to find that in Ohio and I am praying that someone out there will write me back with a great reference for another awesome medical team. While Josiah has seen many specialists I am also interested in a great family practice or pediatrician who knows that while educated and intelligent, MOM knows this child best!Were initially coming back to twinsburg while we look for another home. I'd love to connect with some of you. Thanks for taking the tine to read my hello.Have a great weekend. Kim

[Guest guest]

and ,

I have also been doing the chelation thing on my own

for the last few rounds and " Ladyshrink " , you have

helped me a lot!!! I read the

group a lot and have learned so much. You have

answered many of my questions and I thank you for

that. I am using ALA alone now and have really upped

the supplements this time. So far, so good....

I also saw Dr Belgrad a few years back--no comment.

Also saw Dr. Tennpenny and my son did wonderfully with

the allergy elimination treatments. We are scheduled

for Dr. Demio at the end of the month---I figure what

the heck! I might as well see what he has to say!

LOL! I guess I want to cover all the bases, right?

That was a great story about your son. This group

needs to hear those kinds of comments. That is what

keeps us going.....

Laurie

--- Cochran <Ladyshrink111@...>

wrote:

> Yes, in Lordstown/Berlin Center area. Dr. Vlad is a

> distant relative, didn't know he was still in

> practice, nice man.

>

> Dan drs stuck like glue to gf/cf thing. Before we

> did the testing with dr belgrad, I asked her if the

> test for casein and gluten came back without

> allergies/peptides would we have to do the diet?

> And she said YES!!! What the heck? They why bother

> with the test.

>

> When we tried the diet and she lost language, we

> told dr belgrad about it and she said that she was

> not concerned!!! I told her we were logical people

> who would have to have some kind of reason why

> losing language was not cause for concern or

> considered a benign event. We put her back on the

> milk, no enzymes.

>

> We also used oral ala with dmsa, with great results.

> Wonderful, your experience at BK. How old is your

> son?

>

> Do you know of any other moms doing biomed in our

> area? How did you learn of the low/frequent dosing?

>

> My practice is in Warren, just me. I agree we would

> make a great pair, as I am neurotic also, don't know

> of practically anyone who isn't.

>

> Will look forward to maybe getting the brochure, but

> maybe you could tell me something about the

> organization? Just what is your purpose and what do

> you do?

>

>

> ----- Original Message -----

> From: rmaher1969@...

>

> Sent: Saturday, March 18, 2006 9:53 PM

> Subject: Re: [ ]/was: Hello, I'm

> returning to Ohio with my autisitc son - resource

> info requested.

>

>

> ,

> I agree, most of the docs aren't as up on all

> the bio-med as we are...lol. My pediatrician is Dr.

> Vlad. He was my ped when I was a kid, so he seemed

> like the natural choice for my boys. We don't do

> GF/Cf anymore either, we use digestive enzymes with

> great results. I wonder why no DAN Docs ever

> recommend them?

>

> We are using oral ALA with oral DMSA 1:1 ratio

> frequent/low dose. We have seen max results the

> past two months. Seeing some regression during the

> " ON " days, but much better all around on the " OFF "

> days.

>

> I noticed last night we took our son to play at

> Burger King (a bribe...long story..lol) and he was

> actually with the other kids interacting, which has

> been coming about for the past 6 months, but the

> biggest change, was the kids didn't reject him.

> None of them seemed to notice anything different!

> Other kids usually will look at him like he's from

> Mars, and last night, he was just one of them. It

> was AWESOME!

>

> BTW, where are you in NE Ohio?

> A psychologist huh? That's great, I'm a

> neurotic, we could have a great friendship!

> LOL

>

>

> ----- Original Message -----

> From: Cochran

>

> Sent: 3/18/2006 8:36:33 PM

> Subject: Re: [ ]/was: Hello, I'm

> returning to Ohio with my autisitc son - resource

> info requested.

>

>

> Well, think you have me confused with the lady

> moving back to Ohio. We have always been in Ohio.

> Sorry should have changed the post heading.

>

> We did see dr. Belgrad, but she had just

> started, that was 1.5 years ago, and, she told us we

> knew more than she did.

>

> Dr. Khoury is a great woman, I am a psychologist

> and we have had the same patients over the years,

> but she is also just starting.

>

> We ended up doing it on our own also. Couldn't

> find a dr who would take us as she did horribly on

> the gf/cf diet, lost language and looked absolutely

> awful. After three weeks we put her back on milk

> and we chelated anyway with wonderful results.

>

> We contacted Dr. Tenpenny, but as she tested

> without allergies, did not want to go through her

> long and expensive allergy testing. By the time Dr.

> Demio came on the scene we were well under way,

> although we have used oral Ala, and I understand he

> is not a fan, so probably would not have been a good

> fit either.

>

> She has some residual fine motor problems,

> writing does not come easy, but other than that, she

> is recovered.

>

> Can I ask who is your ped? We are looking for a

> new one. Don't apologize for long posts, I love them

> :-)

>

> TIA,

>

>

> ----- Original Message -----

> From: rmaher1969@...

>

> Sent: Saturday, March 18, 2006 8:25 PM

> Subject: Re: [ ]/was: Hello, I'm

> returning to Ohio with my autisitc son - resource

> info requested.

>

>

> ,

> Dr. Findley Belgrad, who we used

> to see. We are doing it all on our own now. Docs

> are too $$$!!

> May I ask, why are you moving back to

> the area? Rich Center? Where in New York are you

> coming from? We used to live in NY and considered

> moving back for the school tied with

> Carbone, but hubby can't find work there and we

> would have to live with my mother-in-law. It just

> wouldn't work out I'm afraid!

>

> There is also a DAN doc in Cleveland Dr.

> Demio, and a doc in Meadville PA who is on the DAN

> board, he does chelation- Dr. Piersel. There

> may be more, others on this board will know. My ped

> isn't involved with any of our bio-med treatments

> for our son, but he listens and seems sympathetic

> although I don't think he fully understands or

> believes in what we're doing.

>

> What exactly did you do in New York as a

> " pioneer " We are in desperate need of more parents

> like you. I have met very few who are doing bio-med

> or ABA in this area. Our Organization is called

> TEAM To Find a Way. Actually, Dr. Vinci-Khoury was

> one of the original directors, but she was

> overloaded with other obligations and we didn't get

> much momentum going, There was also a problem with a

> conflict of interest. As and organization, we can't

> tell parents about one specific doctor. She is a

> wonderful woman and I told her that we will be

> recommending her to parents as a choice among docs.

>

>

> Sorry I'm so long winded...

>

>

> ----- Original Message -----

> From: Cochran

>

> Sent: 3/18/2006 7:51:15 PM

> Subject: Re: [ ]/was: Hello,

> I'm returning to Ohio with my autisitc son -

> resource info requested.

>

>

> Hi ,

>

> I know of Dr. Vinci-Khoury and Dr.

> , sorry can't remember her last name, who

> are dan! drs in warren/youngstown. Anybody else?

> Whom do you see, if I might ask?

>

>

> ----- Original Message -----

> From: rmaher1969@...

>

> Sent: Saturday, March 18, 2006 6:37 PM

> Subject: RE: [ ] Hello, I'm

> returning to Ohio with my autisitc son - resource

> info requested.

>

>

> Kim,

> Welcome back to Ohio. I know of a few

> DAN! docs locally (warren/youngstown) but, otherwise

> I don't know of many sympathetic Peds. BTW, are you

> still feeling pioneerish? We are opening an autism

> center here in Trumbull County and we will need

> parent's

=== message truncated ===

[Guest guest]

,

Yes, we also use Cutler's protocol, 14 months now, working very well, ours was at first better on the chelators than off. We are finishing up with just Ala now, plan to chelate until she starts kindergarten, she is now 5.2.

Yes, I agree, and so does Andy that chelation should start as soon as possible. If you wait to get everything right, you waste a lot of time.

Your organization sounds great! Is it up and running now, ?

----- Original Message -----

From: rmaher1969@...

Sent: Saturday, March 18, 2006 10:51 PM

Subject: Re: [ ]/was: Hello, I'm returning to Ohio with my autisitc son - resource info requested.

,

Our organization basically serves as a resource center and support for parents/ siblings/ and children with ASD. We saw so many gaps when we were looking to help our son, so this was born out of our frustration at finding answers through our own research and then realizing that most of the things we needed for our son just weren't available. When we wanted to do chelation, five years ago I found Dr. Piersel in Meadville, he had never chelated a child before and used only intravenous methods. When we aksed him how we were supposed to get a three year old autistic child to sit still for nearly and hour with a needle in his arm, he said that we would have to restrain him. Our son is very big, very strong, and very determined, especially when he is terrified. I saw absolutely NO WAY that it would work! I have basically researched eveything online and found the chelation schedule that we use now online about chelation. Andy Cutler's protocol is actually the one that made the most sense to me, so we cautiously went ahead with doing it. It frustrates me that it seems that the DAN! docs want to use chelation as the last thing after the diet and yeast. It makes sense to me to get the toxins out as soon as possible, the rest is symptomatic of the toxicity.

I am very excited about having a sensory gym. It will work like a YMCA. Families will pay a monthly fee to have access to the gym and can pay extra to see an OT for an hour, kinda like a personal trainer at a gym. The fees will be on a sliding scale and we are putting out flyers for people to "sponsor a child" for families who can't pay. We will have cooking classes for GF/CF (thanks Dr. Vinci for thinking this up!) Sibling support/ parents support/ social group for ASD teens. AND Finally, ABA consulting for families who want to have a home based program. These services just don't exist around here. We have alot of talent leaving our area universities because there's nowhere for them to work. Kent has an ABA certification program, we can tap into that. Families shouldn't have to go bankrupt paying for therapists and consultants to come from Pittsburgh and Cleveland. We have the Rich Center locally, but they can only take so many kids and I think they have a cut off age.

Our son is seven. His name is .

Dr. Vlad is great, when I was little I LOVED him and called him Dr. Glad! We don't see him often, he has a few new docs in his office and they have less of a wait time. If you wanna see Dr. Vlad, you usually wait! I heard he is retiring.

I know of some parents who came to Dr. Vinci's cooking classes that are doing diet, but not biomed with supps and chelation.

Ok, bedtime, have a good night!

----- Original Message -----

From: Cochran

Sent: 3/18/2006 10:09:42 PM

Subject: Re: [ ]/was: Hello, I'm returning to Ohio with my autisitc son - resource info requested.

Yes, in Lordstown/Berlin Center area. Dr. Vlad is a distant relative, didn't know he was still in practice, nice man.

Dan drs stuck like glue to gf/cf thing. Before we did the testing with dr belgrad, I asked her if the test for casein and gluten came back without allergies/peptides would we have to do the diet? And she said YES!!! What the heck? They why bother with the test.

When we tried the diet and she lost language, we told dr belgrad about it and she said that she was not concerned!!! I told her we were logical people who would have to have some kind of reason why losing language was not cause for concern or considered a benign event. We put her back on the milk, no enzymes.

We also used oral ala with dmsa, with great results. Wonderful, your experience at BK. How old is your son?

Do you know of any other moms doing biomed in our area? How did you learn of the low/frequent dosing?

My practice is in Warren, just me. I agree we would make a great pair, as I am neurotic also, don't know of practically anyone who isn't.

Will look forward to maybe getting the brochure, but maybe you could tell me something about the organization? Just what is your purpose and what do you do?

----- Original Message -----

From: rmaher1969@...

Sent: Saturday, March 18, 2006 9:53 PM

Subject: Re: [ ]/was: Hello, I'm returning to Ohio with my autisitc son - resource info requested.

,

I agree, most of the docs aren't as up on all the bio-med as we are...lol. My pediatrician is Dr. Vlad. He was my ped when I was a kid, so he seemed like the natural choice for my boys. We don't do GF/Cf anymore either, we use digestive enzymes with great results. I wonder why no DAN Docs ever recommend them?

We are using oral ALA with oral DMSA 1:1 ratio frequent/low dose. We have seen max results the past two months. Seeing some regression during the "ON" days, but much better all around on the "OFF" days.

I noticed last night we took our son to play at Burger King (a bribe...long story..lol) and he was actually with the other kids interacting, which has been coming about for the past 6 months, but the biggest change, was the kids didn't reject him. None of them seemed to notice anything different! Other kids usually will look at him like he's from Mars, and last night, he was just one of them. It was AWESOME!

BTW, where are you in NE Ohio?

A psychologist huh? That's great, I'm a neurotic, we could have a great friendship!

LOL

----- Original Message -----

From: Cochran

Sent: 3/18/2006 8:36:33 PM

Subject: Re: [ ]/was: Hello, I'm returning to Ohio with my autisitc son - resource info requested.

Well, think you have me confused with the lady moving back to Ohio. We have always been in Ohio. Sorry should have changed the post heading.

We did see dr. Belgrad, but she had just started, that was 1.5 years ago, and, she told us we knew more than she did.

Dr. Khoury is a great woman, I am a psychologist and we have had the same patients over the years, but she is also just starting.

We ended up doing it on our own also. Couldn't find a dr who would take us as she did horribly on the gf/cf diet, lost language and looked absolutely awful. After three weeks we put her back on milk and we chelated anyway with wonderful results.

We contacted Dr. Tenpenny, but as she tested without allergies, did not want to go through her long and expensive allergy testing. By the time Dr. Demio came on the scene we were well under way, although we have used oral Ala, and I understand he is not a fan, so probably would not have been a good fit either.

She has some residual fine motor problems, writing does not come easy, but other than that, she is recovered.

Can I ask who is your ped? We are looking for a new one. Don't apologize for long posts, I love them :-)

TIA,

----- Original Message -----

From: rmaher1969@...

Sent: Saturday, March 18, 2006 8:25 PM

Subject: Re: [ ]/was: Hello, I'm returning to Ohio with my autisitc son - resource info requested.

,

Dr. Findley Belgrad, who we used to see. We are doing it all on our own now. Docs are too $$$!!

May I ask, why are you moving back to the area? Rich Center? Where in New York are you coming from? We used to live in NY and considered moving back for the school tied with Carbone, but hubby can't find work there and we would have to live with my mother-in-law. It just wouldn't work out I'm afraid!

There is also a DAN doc in Cleveland Dr. Demio, and a doc in Meadville PA who is on the DAN board, he does chelation- Dr. Piersel. There may be more, others on this board will know. My ped isn't involved with any of our bio-med treatments for our son, but he listens and seems sympathetic although I don't think he fully understands or believes in what we're doing.

What exactly did you do in New York as a "pioneer" We are in desperate need of more parents like you. I have met very few who are doing bio-med or ABA in this area. Our Organization is called TEAM To Find a Way. Actually, Dr. Vinci-Khoury was one of the original directors, but she was overloaded with other obligations and we didn't get much momentum going, There was also a problem with a conflict of interest. As and organization, we can't tell parents about one specific doctor. She is a wonderful woman and I told her that we will be recommending her to parents as a choice among docs.

Sorry I'm so long winded...

----- Original Message -----

From: Cochran

Sent: 3/18/2006 7:51:15 PM

Subject: Re: [ ]/was: Hello, I'm returning to Ohio with my autisitc son - resource info requested.

Hi ,

I know of Dr. Vinci-Khoury and Dr. , sorry can't remember her last name, who are dan! drs in warren/youngstown. Anybody else? Whom do you see, if I might ask?

----- Original Message -----

From: rmaher1969@...

Sent: Saturday, March 18, 2006 6:37 PM

Subject: RE: [ ] Hello, I'm returning to Ohio with my autisitc son - resource info requested.

Kim,

Welcome back to Ohio. I know of a few DAN! docs locally (warren/youngstown) but, otherwise I don't know of many sympathetic Peds. BTW, are you still feeling pioneerish? We are opening an autism center here in Trumbull County and we will need parent's involvement. Keep in touch and welcome back!

----- Original Message -----

From: ziahsmomma

Sent: 3/18/2006 6:35:27 AM

Subject: [ ] Hello, I'm returning to Ohio with my autisitc son - resource info requested.

I'm always so thankful for great resources. And invested parents are the best ones with the best knowledge. I am returning to Ohio after living in NY for 10 years. I have a precious 6 yr old son Josiah who is Autistic with many other issues. I am so blessed for all of you who have come together in NE Ohio to network and share what you know.I am coming from a tiny town where I had to pioneer every step of the way begining 6 years ago, but where my son received many great support services and most importantly the most AWESOME medical care. Working with a team that did not disregard me but included me and often times followed my lead. Who were clearly western medicine but did not scoff at or reject eastern medicine, herbs, holistic therapies. In fact as Josiah and I pioneered things they were so open that eventually other children were told about things we've tried. I am desperately wanting to find that in Ohio and I am praying that someone out there will write me back with a great reference for another awesome medical team. While Josiah has seen many specialists I am also interested in a great family practice or pediatrician who knows that while educated and intelligent, MOM knows this child best!Were initially coming back to twinsburg while we look for another home. I'd love to connect with some of you. Thanks for taking the tine to read my hello.Have a great weekend. Kim

[Guest guest]

<<I also saw Dr Belgrad a few years back--no comment.>>

LOL...seems to be a common thing.

----- Original Message -----

From: Laurie Kowalski

Sent: 3/18/2006 11:00:34 PM

Subject: Re: [ ]/was: Hello, I'm returning to Ohio with my autisitc son - resource info requested.

and ,I have also been doing the chelation thing on my ownfor the last few rounds and "Ladyshrink", you havehelped me a lot!!! I read the group a lot and have learned so much. You haveanswered many of my questions and I thank you forthat. I am using ALA alone now and have really uppedthe supplements this time. So far, so good....I also saw Dr Belgrad a few years back--no comment. Also saw Dr. Tennpenny and my son did wonderfully withthe allergy elimination treatments. We are scheduledfor Dr. Demio at the end of the month---I figure whatthe heck! I might as well see what he has to say!LOL! I guess I want to cover all the bases, right? That was a great story about your son. This groupneeds to hear those kinds of comments. That is whatkeeps us going.....Laurie--- Cochran <Ladyshrink111@...>wrote:> Yes, in Lordstown/Berlin Center area. Dr. Vlad is a> distant relative, didn't know he was still in> practice, nice man.> > Dan drs stuck like glue to gf/cf thing. Before we> did the testing with dr belgrad, I asked her if the> test for casein and gluten came back without> allergies/peptides would we have to do the diet? > And she said YES!!! What the heck? They why bother> with the test.> > When we tried the diet and she lost language, we> told dr belgrad about it and she said that she was> not concerned!!! I told her we were logical people> who would have to have some kind of reason why> losing language was not cause for concern or> considered a benign event. We put her back on the> milk, no enzymes.> > We also used oral ala with dmsa, with great results.> Wonderful, your experience at BK. How old is your> son?> > Do you know of any other moms doing biomed in our> area? How did you learn of the low/frequent dosing?> > My practice is in Warren, just me. I agree we would> make a great pair, as I am neurotic also, don't know> of practically anyone who isn't.> > Will look forward to maybe getting the brochure, but> maybe you could tell me something about the> organization? Just what is your purpose and what do> you do?> > > ----- Original Message ----- > From: rmaher1969@... > > Sent: Saturday, March 18, 2006 9:53 PM> Subject: Re: [ ]/was: Hello, I'm> returning to Ohio with my autisitc son - resource> info requested.> > > ,> I agree, most of the docs aren't as up on all> the bio-med as we are...lol. My pediatrician is Dr.> Vlad. He was my ped when I was a kid, so he seemed> like the natural choice for my boys. We don't do> GF/Cf anymore either, we use digestive enzymes with> great results. I wonder why no DAN Docs ever> recommend them? > > We are using oral ALA with oral DMSA 1:1 ratio> frequent/low dose. We have seen max results the> past two months. Seeing some regression during the> "ON" days, but much better all around on the "OFF"> days.> > I noticed last night we took our son to play at> Burger King (a bribe...long story..lol) and he was> actually with the other kids interacting, which has> been coming about for the past 6 months, but the> biggest change, was the kids didn't reject him. > None of them seemed to notice anything different! > Other kids usually will look at him like he's from> Mars, and last night, he was just one of them. It> was AWESOME!> > BTW, where are you in NE Ohio?> A psychologist huh? That's great, I'm a> neurotic, we could have a great friendship!> LOL> > > ----- Original Message ----- > From: Cochran > > Sent: 3/18/2006 8:36:33 PM > Subject: Re: [ ]/was: Hello, I'm> returning to Ohio with my autisitc son - resource> info requested.> > > Well, think you have me confused with the lady> moving back to Ohio. We have always been in Ohio.> Sorry should have changed the post heading.> > We did see dr. Belgrad, but she had just> started, that was 1.5 years ago, and, she told us we> knew more than she did.> > Dr. Khoury is a great woman, I am a psychologist> and we have had the same patients over the years,> but she is also just starting.> > We ended up doing it on our own also. Couldn't> find a dr who would take us as she did horribly on> the gf/cf diet, lost language and looked absolutely> awful. After three weeks we put her back on milk> and we chelated anyway with wonderful results.> > We contacted Dr. Tenpenny, but as she tested> without allergies, did not want to go through her> long and expensive allergy testing. By the time Dr.> Demio came on the scene we were well under way,> although we have used oral Ala, and I understand he> is not a fan, so probably would not have been a good> fit either.> > She has some residual fine motor problems,> writing does not come easy, but other than that, she> is recovered. > > Can I ask who is your ped? We are looking for a> new one. Don't apologize for long posts, I love them> :-)> > TIA,> > > ----- Original Message ----- > From: rmaher1969@... > > Sent: Saturday, March 18, 2006 8:25 PM> Subject: Re: [ ]/was: Hello, I'm> returning to Ohio with my autisitc son - resource> info requested.> > > ,> Dr. Findley Belgrad, who we used> to see. We are doing it all on our own now. Docs> are too $$$!! > May I ask, why are you moving back to> the area? Rich Center? Where in New York are you> coming from? We used to live in NY and considered> moving back for the school tied with > Carbone, but hubby can't find work there and we> would have to live with my mother-in-law. It just> wouldn't work out I'm afraid! > > There is also a DAN doc in Cleveland Dr.> Demio, and a doc in Meadville PA who is on the DAN> board, he does chelation- Dr. Piersel. There> may be more, others on this board will know. My ped> isn't involved with any of our bio-med treatments> for our son, but he listens and seems sympathetic> although I don't think he fully understands or> believes in what we're doing. > > What exactly did you do in New York as a> "pioneer" We are in desperate need of more parents> like you. I have met very few who are doing bio-med> or ABA in this area. Our Organization is called> TEAM To Find a Way. Actually, Dr. Vinci-Khoury was> one of the original directors, but she was> overloaded with other obligations and we didn't get> much momentum going, There was also a problem with a> conflict of interest. As and organization, we can't> tell parents about one specific doctor. She is a> wonderful woman and I told her that we will be> recommending her to parents as a choice among docs. > > > Sorry I'm so long winded...> > > ----- Original Message ----- > From: Cochran > > Sent: 3/18/2006 7:51:15 PM > Subject: Re: [ ]/was: Hello,> I'm returning to Ohio with my autisitc son -> resource info requested.> > > Hi ,> > I know of Dr. Vinci-Khoury and Dr.> , sorry can't remember her last name, who> are dan! drs in warren/youngstown. Anybody else? > Whom do you see, if I might ask?> > > ----- Original Message ----- > From: rmaher1969@... > > Sent: Saturday, March 18, 2006 6:37 PM> Subject: RE: [ ] Hello, I'm> returning to Ohio with my autisitc son - resource> info requested.> > > Kim,> Welcome back to Ohio. I know of a few> DAN! docs locally (warren/youngstown) but, otherwise> I don't know of many sympathetic Peds. BTW, are you> still feeling pioneerish? We are opening an autism> center here in Trumbull County and we will need> parent's === message truncated ===

[Guest guest]

,

The organization is up and running as far as serving as a resource and support to parents, but the facility with the gym isn't yet. It's coming together , I forgot to mention, we are having an event at Alberini's on April 13th from 7:00-10:00. It's called "Jazz it up for TEAM" It's a night of jazz music and we are selling raffle tix. We will have an info table in the lobby. The facility will be opening in June, I think that once we have an actual location, we will have a much better reception from parents. I am also due to speak at the Summit Academy of Warren at their next Parent Meeting. It'll just be a brief intro to let parents know what we are about. Would you be interested in having some of our flyers in your office? If so, let me know and I'll drop them off to you.

TEAM= Therapeutic Essentials for Autism Management

I know about chelation, we knew about it years ago and were scared to start so we waited , now we fear we have waited too long for maximum benefit, but I drive myself nuts wondering "what could have been?"

The grandaddy of them all is "What if we never vaccinated?"

I'm thrilled with his progress though , He's an awesome kid!

One more short story for you to analyze...lol Yesterday had his Janice and Miss Piggy Muppet dolls and he was looking up their skirts, when he saw me, he quickly threw down the dolls and said "Sorry, sorry!" Does this mean he's becoming curious about girls??? What the hell is that? He's my baby! No GIRLS!!! LOL! It also tells me that it embarrassed him that I saw what he was doing. I didn't scold him or anything, I just asked what he was doing and he said "Nothing," Typical male!

Let me know about the flyers,

----- Original Message -----

From: Cochran

Sent: 3/19/2006 12:12:24 AM

Subject: Re: [ ]/was: Hello, I'm returning to Ohio with my autisitc son - resource info requested.

,

Yes, we also use Cutler's protocol, 14 months now, working very well, ours was at first better on the chelators than off. We are finishing up with just Ala now, plan to chelate until she starts kindergarten, she is now 5.2.

Yes, I agree, and so does Andy that chelation should start as soon as possible. If you wait to get everything right, you waste a lot of time.

Your organization sounds great! Is it up and running now, ?

----- Original Message -----

From: rmaher1969@...

Sent: Saturday, March 18, 2006 10:51 PM

Subject: Re: [ ]/was: Hello, I'm returning to Ohio with my autisitc son - resource info requested.

,

Our organization basically serves as a resource center and support for parents/ siblings/ and children with ASD. We saw so many gaps when we were looking to help our son, so this was born out of our frustration at finding answers through our own research and then realizing that most of the things we needed for our son just weren't available. When we wanted to do chelation, five years ago I found Dr. Piersel in Meadville, he had never chelated a child before and used only intravenous methods. When we aksed him how we were supposed to get a three year old autistic child to sit still for nearly and hour with a needle in his arm, he said that we would have to restrain him. Our son is very big, very strong, and very determined, especially when he is terrified. I saw absolutely NO WAY that it would work! I have basically researched eveything online and found the chelation schedule that we use now online about chelation. Andy Cutler's protocol is actually the one that made the most sense to me, so we cautiously went ahead with doing it. It frustrates me that it seems that the DAN! docs want to use chelation as the last thing after the diet and yeast. It makes sense to me to get the toxins out as soon as possible, the rest is symptomatic of the toxicity.

I am very excited about having a sensory gym. It will work like a YMCA. Families will pay a monthly fee to have access to the gym and can pay extra to see an OT for an hour, kinda like a personal trainer at a gym. The fees will be on a sliding scale and we are putting out flyers for people to "sponsor a child" for families who can't pay. We will have cooking classes for GF/CF (thanks Dr. Vinci for thinking this up!) Sibling support/ parents support/ social group for ASD teens. AND Finally, ABA consulting for families who want to have a home based program. These services just don't exist around here. We have alot of talent leaving our area universities because there's nowhere for them to work. Kent has an ABA certification program, we can tap into that. Families shouldn't have to go bankrupt paying for therapists and consultants to come from Pittsburgh and Cleveland. We have the Rich Center locally, but they can only take so many kids and I think they have a cut off age.

Our son is seven. His name is .

Dr. Vlad is great, when I was little I LOVED him and called him Dr. Glad! We don't see him often, he has a few new docs in his office and they have less of a wait time. If you wanna see Dr. Vlad, you usually wait! I heard he is retiring.

I know of some parents who came to Dr. Vinci's cooking classes that are doing diet, but not biomed with supps and chelation.

Ok, bedtime, have a good night!

----- Original Message -----

From: Cochran

Sent: 3/18/2006 10:09:42 PM

Subject: Re: [ ]/was: Hello, I'm returning to Ohio with my autisitc son - resource info requested.

Yes, in Lordstown/Berlin Center area. Dr. Vlad is a distant relative, didn't know he was still in practice, nice man.

Dan drs stuck like glue to gf/cf thing. Before we did the testing with dr belgrad, I asked her if the test for casein and gluten came back without allergies/peptides would we have to do the diet? And she said YES!!! What the heck? They why bother with the test.

When we tried the diet and she lost language, we told dr belgrad about it and she said that she was not concerned!!! I told her we were logical people who would have to have some kind of reason why losing language was not cause for concern or considered a benign event. We put her back on the milk, no enzymes.

We also used oral ala with dmsa, with great results. Wonderful, your experience at BK. How old is your son?

Do you know of any other moms doing biomed in our area? How did you learn of the low/frequent dosing?

My practice is in Warren, just me. I agree we would make a great pair, as I am neurotic also, don't know of practically anyone who isn't.

Will look forward to maybe getting the brochure, but maybe you could tell me something about the organization? Just what is your purpose and what do you do?

----- Original Message -----

From: rmaher1969@...

Sent: Saturday, March 18, 2006 9:53 PM

Subject: Re: [ ]/was: Hello, I'm returning to Ohio with my autisitc son - resource info requested.

,

I agree, most of the docs aren't as up on all the bio-med as we are...lol. My pediatrician is Dr. Vlad. He was my ped when I was a kid, so he seemed like the natural choice for my boys. We don't do GF/Cf anymore either, we use digestive enzymes with great results. I wonder why no DAN Docs ever recommend them?

We are using oral ALA with oral DMSA 1:1 ratio frequent/low dose. We have seen max results the past two months. Seeing some regression during the "ON" days, but much better all around on the "OFF" days.

I noticed last night we took our son to play at Burger King (a bribe...long story..lol) and he was actually with the other kids interacting, which has been coming about for the past 6 months, but the biggest change, was the kids didn't reject him. None of them seemed to notice anything different! Other kids usually will look at him like he's from Mars, and last night, he was just one of them. It was AWESOME!

BTW, where are you in NE Ohio?

A psychologist huh? That's great, I'm a neurotic, we could have a great friendship!

LOL

----- Original Message -----

From: Cochran

Sent: 3/18/2006 8:36:33 PM

Subject: Re: [ ]/was: Hello, I'm returning to Ohio with my autisitc son - resource info requested.

Well, think you have me confused with the lady moving back to Ohio. We have always been in Ohio. Sorry should have changed the post heading.

We did see dr. Belgrad, but she had just started, that was 1.5 years ago, and, she told us we knew more than she did.

Dr. Khoury is a great woman, I am a psychologist and we have had the same patients over the years, but she is also just starting.

We ended up doing it on our own also. Couldn't find a dr who would take us as she did horribly on the gf/cf diet, lost language and looked absolutely awful. After three weeks we put her back on milk and we chelated anyway with wonderful results.

We contacted Dr. Tenpenny, but as she tested without allergies, did not want to go through her long and expensive allergy testing. By the time Dr. Demio came on the scene we were well under way, although we have used oral Ala, and I understand he is not a fan, so probably would not have been a good fit either.

She has some residual fine motor problems, writing does not come easy, but other than that, she is recovered.

Can I ask who is your ped? We are looking for a new one. Don't apologize for long posts, I love them :-)

TIA,

----- Original Message -----

From: rmaher1969@...

Sent: Saturday, March 18, 2006 8:25 PM

Subject: Re: [ ]/was: Hello, I'm returning to Ohio with my autisitc son - resource info requested.

,

Dr. Findley Belgrad, who we used to see. We are doing it all on our own now. Docs are too $$$!!

May I ask, why are you moving back to the area? Rich Center? Where in New York are you coming from? We used to live in NY and considered moving back for the school tied with Carbone, but hubby can't find work there and we would have to live with my mother-in-law. It just wouldn't work out I'm afraid!

There is also a DAN doc in Cleveland Dr. Demio, and a doc in Meadville PA who is on the DAN board, he does chelation- Dr. Piersel. There may be more, others on this board will know. My ped isn't involved with any of our bio-med treatments for our son, but he listens and seems sympathetic although I don't think he fully understands or believes in what we're doing.

What exactly did you do in New York as a "pioneer" We are in desperate need of more parents like you. I have met very few who are doing bio-med or ABA in this area. Our Organization is called TEAM To Find a Way. Actually, Dr. Vinci-Khoury was one of the original directors, but she was overloaded with other obligations and we didn't get much momentum going, There was also a problem with a conflict of interest. As and organization, we can't tell parents about one specific doctor. She is a wonderful woman and I told her that we will be recommending her to parents as a choice among docs.

Sorry I'm so long winded...

----- Original Message -----

From: Cochran

Sent: 3/18/2006 7:51:15 PM

Subject: Re: [ ]/was: Hello, I'm returning to Ohio with my autisitc son - resource info requested.

Hi ,

I know of Dr. Vinci-Khoury and Dr. , sorry can't remember her last name, who are dan! drs in warren/youngstown. Anybody else? Whom do you see, if I might ask?

----- Original Message -----

From: rmaher1969@...

Sent: Saturday, March 18, 2006 6:37 PM

Subject: RE: [ ] Hello, I'm returning to Ohio with my autisitc son - resource info requested.

Kim,

Welcome back to Ohio. I know of a few DAN! docs locally (warren/youngstown) but, otherwise I don't know of many sympathetic Peds. BTW, are you still feeling pioneerish? We are opening an autism center here in Trumbull County and we will need parent's involvement. Keep in touch and welcome back!

----- Original Message -----

From: ziahsmomma

Sent: 3/18/2006 6:35:27 AM

Subject: [ ] Hello, I'm returning to Ohio with my autisitc son - resource info requested.

I'm always so thankful for great resources. And invested parents are the best ones with the best knowledge. I am returning to Ohio after living in NY for 10 years. I have a precious 6 yr old son Josiah who is Autistic with many other issues. I am so blessed for all of you who have come together in NE Ohio to network and share what you know.I am coming from a tiny town where I had to pioneer every step of the way begining 6 years ago, but where my son received many great support services and most importantly the most AWESOME medical care. Working with a team that did not disregard me but included me and often times followed my lead. Who were clearly western medicine but did not scoff at or reject eastern medicine, herbs, holistic therapies. In fact as Josiah and I pioneered things they were so open that eventually other children were told about things we've tried. I am desperately wanting to find that in Ohio and I am praying that someone out there will write me back with a great reference for another awesome medical team. While Josiah has seen many specialists I am also interested in a great family practice or pediatrician who knows that while educated and intelligent, MOM knows this child best!Were initially coming back to twinsburg while we look for another home. I'd love to connect with some of you. Thanks for taking the tine to read my hello.Have a great weekend. Kim

[Guest guest]

Hi !

Where is the facility going to be located?

I live here in Ashtabula Co. and am always looking for new

places to take my son or meet new parents.

My son is 6.

Thanks,

Chris

(BTW~we have seen Dr peirsel also)

----- Original Message -----

From: rmaher1969@...

Sent: Sunday, March 19, 2006 8:48 AM

Subject: Re: [ ]/was: Hello, I'm returning to Ohio with my autisitc son - resource info requested.

,

The organization is up and running as far as serving as a resource and support to parents, but the facility with the gym isn't yet. It's coming together , I forgot to mention, we are having an event at Alberini's on April 13th from 7:00-10:00. It's called "Jazz it up for TEAM" It's a night of jazz music and we are selling raffle tix. We will have an info table in the lobby. The facility will be opening in June, I think that once we have an actual location, we will have a much better reception from parents. I am also due to speak at the Summit Academy of Warren at their next Parent Meeting. It'll just be a brief intro to let parents know what we are about. Would you be interested in having some of our flyers in your office? If so, let me know and I'll drop them off to you.

TEAM= Therapeutic Essentials for Autism Management

I know about chelation, we knew about it years ago and were scared to start so we waited , now we fear we have waited too long for maximum benefit, but I drive myself nuts wondering "what could have been?"

The grandaddy of them all is "What if we never vaccinated?"

I'm thrilled with his progress though , He's an awesome kid!

One more short story for you to analyze...lol Yesterday had his Janice and Miss Piggy Muppet dolls and he was looking up their skirts, when he saw me, he quickly threw down the dolls and said "Sorry, sorry!" Does this mean he's becoming curious about girls??? What the hell is that? He's my baby! No GIRLS!!! LOL! It also tells me that it embarrassed him that I saw what he was doing. I didn't scold him or anything, I just asked what he was doing and he said "Nothing," Typical male!

Let me know about the flyers,

----- Original Message -----

From: Cochran

Sent: 3/19/2006 12:12:24 AM

Subject: Re: [ ]/was: Hello, I'm returning to Ohio with my autisitc son - resource info requested.

,

Yes, we also use Cutler's protocol, 14 months now, working very well, ours was at first better on the chelators than off. We are finishing up with just Ala now, plan to chelate until she starts kindergarten, she is now 5.2.

Yes, I agree, and so does Andy that chelation should start as soon as possible. If you wait to get everything right, you waste a lot of time.

Your organization sounds great! Is it up and running now, ?

----- Original Message -----

From: rmaher1969@...

Sent: Saturday, March 18, 2006 10:51 PM

Subject: Re: [ ]/was: Hello, I'm returning to Ohio with my autisitc son - resource info requested.

,

Our organization basically serves as a resource center and support for parents/ siblings/ and children with ASD. We saw so many gaps when we were looking to help our son, so this was born out of our frustration at finding answers through our own research and then realizing that most of the things we needed for our son just weren't available. When we wanted to do chelation, five years ago I found Dr. Piersel in Meadville, he had never chelated a child before and used only intravenous methods. When we aksed him how we were supposed to get a three year old autistic child to sit still for nearly and hour with a needle in his arm, he said that we would have to restrain him. Our son is very big, very strong, and very determined, especially when he is terrified. I saw absolutely NO WAY that it would work! I have basically researched eveything online and found the chelation schedule that we use now online about chelation. Andy Cutler's protocol is actually the one that made the most sense to me, so we cautiously went ahead with doing it. It frustrates me that it seems that the DAN! docs want to use chelation as the last thing after the diet and yeast. It makes sense to me to get the toxins out as soon as possible, the rest is symptomatic of the toxicity.

I am very excited about having a sensory gym. It will work like a YMCA. Families will pay a monthly fee to have access to the gym and can pay extra to see an OT for an hour, kinda like a personal trainer at a gym. The fees will be on a sliding scale and we are putting out flyers for people to "sponsor a child" for families who can't pay. We will have cooking classes for GF/CF (thanks Dr. Vinci for thinking this up!) Sibling support/ parents support/ social group for ASD teens. AND Finally, ABA consulting for families who want to have a home based program. These services just don't exist around here. We have alot of talent leaving our area universities because there's nowhere for them to work. Kent has an ABA certification program, we can tap into that. Families shouldn't have to go bankrupt paying for therapists and consultants to come from Pittsburgh and Cleveland. We have the Rich Center locally, but they can only take so many kids and I think they have a cut off age.

Our son is seven. His name is .

Dr. Vlad is great, when I was little I LOVED him and called him Dr. Glad! We don't see him often, he has a few new docs in his office and they have less of a wait time. If you wanna see Dr. Vlad, you usually wait! I heard he is retiring.

I know of some parents who came to Dr. Vinci's cooking classes that are doing diet, but not biomed with supps and chelation.

Ok, bedtime, have a good night!

----- Original Message -----

From: Cochran

Sent: 3/18/2006 10:09:42 PM

Subject: Re: [ ]/was: Hello, I'm returning to Ohio with my autisitc son - resource info requested.

Yes, in Lordstown/Berlin Center area. Dr. Vlad is a distant relative, didn't know he was still in practice, nice man.

Dan drs stuck like glue to gf/cf thing. Before we did the testing with dr belgrad, I asked her if the test for casein and gluten came back without allergies/peptides would we have to do the diet? And she said YES!!! What the heck? They why bother with the test.

When we tried the diet and she lost language, we told dr belgrad about it and she said that she was not concerned!!! I told her we were logical people who would have to have some kind of reason why losing language was not cause for concern or considered a benign event. We put her back on the milk, no enzymes.

We also used oral ala with dmsa, with great results. Wonderful, your experience at BK. How old is your son?

Do you know of any other moms doing biomed in our area? How did you learn of the low/frequent dosing?

My practice is in Warren, just me. I agree we would make a great pair, as I am neurotic also, don't know of practically anyone who isn't.

Will look forward to maybe getting the brochure, but maybe you could tell me something about the organization? Just what is your purpose and what do you do?

----- Original Message -----

From: rmaher1969@...

Sent: Saturday, March 18, 2006 9:53 PM

Subject: Re: [ ]/was: Hello, I'm returning to Ohio with my autisitc son - resource info requested.

,

I agree, most of the docs aren't as up on all the bio-med as we are...lol. My pediatrician is Dr. Vlad. He was my ped when I was a kid, so he seemed like the natural choice for my boys. We don't do GF/Cf anymore either, we use digestive enzymes with great results. I wonder why no DAN Docs ever recommend them?

We are using oral ALA with oral DMSA 1:1 ratio frequent/low dose. We have seen max results the past two months. Seeing some regression during the "ON" days, but much better all around on the "OFF" days.

I noticed last night we took our son to play at Burger King (a bribe...long story..lol) and he was actually with the other kids interacting, which has been coming about for the past 6 months, but the biggest change, was the kids didn't reject him. None of them seemed to notice anything different! Other kids usually will look at him like he's from Mars, and last night, he was just one of them. It was AWESOME!

BTW, where are you in NE Ohio?

A psychologist huh? That's great, I'm a neurotic, we could have a great friendship!

LOL

----- Original Message -----

From: Cochran

Sent: 3/18/2006 8:36:33 PM

Subject: Re: [ ]/was: Hello, I'm returning to Ohio with my autisitc son - resource info requested.

Well, think you have me confused with the lady moving back to Ohio. We have always been in Ohio. Sorry should have changed the post heading.

We did see dr. Belgrad, but she had just started, that was 1.5 years ago, and, she told us we knew more than she did.

Dr. Khoury is a great woman, I am a psychologist and we have had the same patients over the years, but she is also just starting.

We ended up doing it on our own also. Couldn't find a dr who would take us as she did horribly on the gf/cf diet, lost language and looked absolutely awful. After three weeks we put her back on milk and we chelated anyway with wonderful results.

We contacted Dr. Tenpenny, but as she tested without allergies, did not want to go through her long and expensive allergy testing. By the time Dr. Demio came on the scene we were well under way, although we have used oral Ala, and I understand he is not a fan, so probably would not have been a good fit either.

She has some residual fine motor problems, writing does not come easy, but other than that, she is recovered.

Can I ask who is your ped? We are looking for a new one. Don't apologize for long posts, I love them :-)

TIA,

----- Original Message -----

From: rmaher1969@...

Sent: Saturday, March 18, 2006 8:25 PM

Subject: Re: [ ]/was: Hello, I'm returning to Ohio with my autisitc son - resource info requested.

,

Dr. Findley Belgrad, who we used to see. We are doing it all on our own now. Docs are too $$$!!

May I ask, why are you moving back to the area? Rich Center? Where in New York are you coming from? We used to live in NY and considered moving back for the school tied with Carbone, but hubby can't find work there and we would have to live with my mother-in-law. It just wouldn't work out I'm afraid!

There is also a DAN doc in Cleveland Dr. Demio, and a doc in Meadville PA who is on the DAN board, he does chelation- Dr. Piersel. There may be more, others on this board will know. My ped isn't involved with any of our bio-med treatments for our son, but he listens and seems sympathetic although I don't think he fully understands or believes in what we're doing.

What exactly did you do in New York as a "pioneer" We are in desperate need of more parents like you. I have met very few who are doing bio-med or ABA in this area. Our Organization is called TEAM To Find a Way. Actually, Dr. Vinci-Khoury was one of the original directors, but she was overloaded with other obligations and we didn't get much momentum going, There was also a problem with a conflict of interest. As and organization, we can't tell parents about one specific doctor. She is a wonderful woman and I told her that we will be recommending her to parents as a choice among docs.

Sorry I'm so long winded...

----- Original Message -----

From: Cochran

Sent: 3/18/2006 7:51:15 PM

Subject: Re: [ ]/was: Hello, I'm returning to Ohio with my autisitc son - resource info requested.

Hi ,

I know of Dr. Vinci-Khoury and Dr. , sorry can't remember her last name, who are dan! drs in warren/youngstown. Anybody else? Whom do you see, if I might ask?

----- Original Message -----

From: rmaher1969@...

Sent: Saturday, March 18, 2006 6:37 PM

Subject: RE: [ ] Hello, I'm returning to Ohio with my autisitc son - resource info requested.

Kim,

Welcome back to Ohio. I know of a few DAN! docs locally (warren/youngstown) but, otherwise I don't know of many sympathetic Peds. BTW, are you still feeling pioneerish? We are opening an autism center here in Trumbull County and we will need parent's involvement. Keep in touch and welcome back!

----- Original Message -----

From: ziahsmomma

Sent: 3/18/2006 6:35:27 AM

Subject: [ ] Hello, I'm returning to Ohio with my autisitc son - resource info requested.

I'm always so thankful for great resources. And invested parents are the best ones with the best knowledge. I am returning to Ohio after living in NY for 10 years. I have a precious 6 yr old son Josiah who is Autistic with many other issues. I am so blessed for all of you who have come together in NE Ohio to network and share what you know.I am coming from a tiny town where I had to pioneer every step of the way begining 6 years ago, but where my son received many great support services and most importantly the most AWESOME medical care. Working with a team that did not disregard me but included me and often times followed my lead. Who were clearly western medicine but did not scoff at or reject eastern medicine, herbs, holistic therapies. In fact as Josiah and I pioneered things they were so open that eventually other children were told about things we've tried. I am desperately wanting to find that in Ohio and I am praying that someone out there will write me back with a great reference for another awesome medical team. While Josiah has seen many specialists I am also interested in a great family practice or pediatrician who knows that while educated and intelligent, MOM knows this child best!Were initially coming back to twinsburg while we look for another home. I'd love to connect with some of you. Thanks for taking the tine to read my hello.Have a great weekend. Kim

[Guest guest]

The autism center will be located in Trumbull County. We have a few places in mind and are in the process of finding our facility. We are a non-profit and we haven't gotten any grant money yet, so we have to do some fundraising. I'll keep you posted, we plan to open in June! It's going to be so great for the kids to have a place to go to have fun!

----- Original Message -----

From: Chris1

Sent: 3/19/2006 5:57:15 PM

Subject: Re: [ ]/was: Hello, I'm returning to Ohio with my autisitc son - resource info requested.

Hi !

Where is the facility going to be located?

I live here in Ashtabula Co. and am always looking for new

places to take my son or meet new parents.

My son is 6.

Thanks,

Chris

(BTW~we have seen Dr peirsel also)

----- Original Message -----

From: rmaher1969@...

Sent: Sunday, March 19, 2006 8:48 AM

Subject: Re: [ ]/was: Hello, I'm returning to Ohio with my autisitc son - resource info requested.

,

The organization is up and running as far as serving as a resource and support to parents, but the facility with the gym isn't yet. It's coming together , I forgot to mention, we are having an event at Alberini's on April 13th from 7:00-10:00. It's called "Jazz it up for TEAM" It's a night of jazz music and we are selling raffle tix. We will have an info table in the lobby. The facility will be opening in June, I think that once we have an actual location, we will have a much better reception from parents. I am also due to speak at the Summit Academy of Warren at their next Parent Meeting. It'll just be a brief intro to let parents know what we are about. Would you be interested in having some of our flyers in your office? If so, let me know and I'll drop them off to you.

TEAM= Therapeutic Essentials for Autism Management

I know about chelation, we knew about it years ago and were scared to start so we waited , now we fear we have waited too long for maximum benefit, but I drive myself nuts wondering "what could have been?"

The grandaddy of them all is "What if we never vaccinated?"

I'm thrilled with his progress though , He's an awesome kid!

One more short story for you to analyze...lol Yesterday had his Janice and Miss Piggy Muppet dolls and he was looking up their skirts, when he saw me, he quickly threw down the dolls and said "Sorry, sorry!" Does this mean he's becoming curious about girls??? What the hell is that? He's my baby! No GIRLS!!! LOL! It also tells me that it embarrassed him that I saw what he was doing. I didn't scold him or anything, I just asked what he was doing and he said "Nothing," Typical male!

Let me know about the flyers,

----- Original Message -----

From: Cochran

Sent: 3/19/2006 12:12:24 AM

Subject: Re: [ ]/was: Hello, I'm returning to Ohio with my autisitc son - resource info requested.

,

Yes, we also use Cutler's protocol, 14 months now, working very well, ours was at first better on the chelators than off. We are finishing up with just Ala now, plan to chelate until she starts kindergarten, she is now 5.2.

Yes, I agree, and so does Andy that chelation should start as soon as possible. If you wait to get everything right, you waste a lot of time.

Your organization sounds great! Is it up and running now, ?

----- Original Message -----

From: rmaher1969@...

Sent: Saturday, March 18, 2006 10:51 PM

Subject: Re: [ ]/was: Hello, I'm returning to Ohio with my autisitc son - resource info requested.

,

Our organization basically serves as a resource center and support for parents/ siblings/ and children with ASD. We saw so many gaps when we were looking to help our son, so this was born out of our frustration at finding answers through our own research and then realizing that most of the things we needed for our son just weren't available. When we wanted to do chelation, five years ago I found Dr. Piersel in Meadville, he had never chelated a child before and used only intravenous methods. When we aksed him how we were supposed to get a three year old autistic child to sit still for nearly and hour with a needle in his arm, he said that we would have to restrain him. Our son is very big, very strong, and very determined, especially when he is terrified. I saw absolutely NO WAY that it would work! I have basically researched eveything online and found the chelation schedule that we use now online about chelation. Andy Cutler's protocol is actually the one that made the most sense to me, so we cautiously went ahead with doing it. It frustrates me that it seems that the DAN! docs want to use chelation as the last thing after the diet and yeast. It makes sense to me to get the toxins out as soon as possible, the rest is symptomatic of the toxicity.

I am very excited about having a sensory gym. It will work like a YMCA. Families will pay a monthly fee to have access to the gym and can pay extra to see an OT for an hour, kinda like a personal trainer at a gym. The fees will be on a sliding scale and we are putting out flyers for people to "sponsor a child" for families who can't pay. We will have cooking classes for GF/CF (thanks Dr. Vinci for thinking this up!) Sibling support/ parents support/ social group for ASD teens. AND Finally, ABA consulting for families who want to have a home based program. These services just don't exist around here. We have alot of talent leaving our area universities because there's nowhere for them to work. Kent has an ABA certification program, we can tap into that. Families shouldn't have to go bankrupt paying for therapists and consultants to come from Pittsburgh and Cleveland. We have the Rich Center locally, but they can only take so many kids and I think they have a cut off age.

Our son is seven. His name is .

Dr. Vlad is great, when I was little I LOVED him and called him Dr. Glad! We don't see him often, he has a few new docs in his office and they have less of a wait time. If you wanna see Dr. Vlad, you usually wait! I heard he is retiring.

I know of some parents who came to Dr. Vinci's cooking classes that are doing diet, but not biomed with supps and chelation.

Ok, bedtime, have a good night!

----- Original Message -----

From: Cochran

Sent: 3/18/2006 10:09:42 PM

Subject: Re: [ ]/was: Hello, I'm returning to Ohio with my autisitc son - resource info requested.

Yes, in Lordstown/Berlin Center area. Dr. Vlad is a distant relative, didn't know he was still in practice, nice man.

Dan drs stuck like glue to gf/cf thing. Before we did the testing with dr belgrad, I asked her if the test for casein and gluten came back without allergies/peptides would we have to do the diet? And she said YES!!! What the heck? They why bother with the test.

When we tried the diet and she lost language, we told dr belgrad about it and she said that she was not concerned!!! I told her we were logical people who would have to have some kind of reason why losing language was not cause for concern or considered a benign event. We put her back on the milk, no enzymes.

We also used oral ala with dmsa, with great results. Wonderful, your experience at BK. How old is your son?

Do you know of any other moms doing biomed in our area? How did you learn of the low/frequent dosing?

My practice is in Warren, just me. I agree we would make a great pair, as I am neurotic also, don't know of practically anyone who isn't.

Will look forward to maybe getting the brochure, but maybe you could tell me something about the organization? Just what is your purpose and what do you do?

----- Original Message -----

From: rmaher1969@...

Sent: Saturday, March 18, 2006 9:53 PM

Subject: Re: [ ]/was: Hello, I'm returning to Ohio with my autisitc son - resource info requested.

,

I agree, most of the docs aren't as up on all the bio-med as we are...lol. My pediatrician is Dr. Vlad. He was my ped when I was a kid, so he seemed like the natural choice for my boys. We don't do GF/Cf anymore either, we use digestive enzymes with great results. I wonder why no DAN Docs ever recommend them?

We are using oral ALA with oral DMSA 1:1 ratio frequent/low dose. We have seen max results the past two months. Seeing some regression during the "ON" days, but much better all around on the "OFF" days.

I noticed last night we took our son to play at Burger King (a bribe...long story..lol) and he was actually with the other kids interacting, which has been coming about for the past 6 months, but the biggest change, was the kids didn't reject him. None of them seemed to notice anything different! Other kids usually will look at him like he's from Mars, and last night, he was just one of them. It was AWESOME!

BTW, where are you in NE Ohio?

A psychologist huh? That's great, I'm a neurotic, we could have a great friendship!

LOL

----- Original Message -----

From: Cochran

Sent: 3/18/2006 8:36:33 PM

Subject: Re: [ ]/was: Hello, I'm returning to Ohio with my autisitc son - resource info requested.

Well, think you have me confused with the lady moving back to Ohio. We have always been in Ohio. Sorry should have changed the post heading.

We did see dr. Belgrad, but she had just started, that was 1.5 years ago, and, she told us we knew more than she did.

Dr. Khoury is a great woman, I am a psychologist and we have had the same patients over the years, but she is also just starting.

We ended up doing it on our own also. Couldn't find a dr who would take us as she did horribly on the gf/cf diet, lost language and looked absolutely awful. After three weeks we put her back on milk and we chelated anyway with wonderful results.

We contacted Dr. Tenpenny, but as she tested without allergies, did not want to go through her long and expensive allergy testing. By the time Dr. Demio came on the scene we were well under way, although we have used oral Ala, and I understand he is not a fan, so probably would not have been a good fit either.

She has some residual fine motor problems, writing does not come easy, but other than that, she is recovered.

Can I ask who is your ped? We are looking for a new one. Don't apologize for long posts, I love them :-)

TIA,

----- Original Message -----

From: rmaher1969@...

Sent: Saturday, March 18, 2006 8:25 PM

Subject: Re: [ ]/was: Hello, I'm returning to Ohio with my autisitc son - resource info requested.

,

Dr. Findley Belgrad, who we used to see. We are doing it all on our own now. Docs are too $$$!!

May I ask, why are you moving back to the area? Rich Center? Where in New York are you coming from? We used to live in NY and considered moving back for the school tied with Carbone, but hubby can't find work there and we would have to live with my mother-in-law. It just wouldn't work out I'm afraid!

There is also a DAN doc in Cleveland Dr. Demio, and a doc in Meadville PA who is on the DAN board, he does chelation- Dr. Piersel. There may be more, others on this board will know. My ped isn't involved with any of our bio-med treatments for our son, but he listens and seems sympathetic although I don't think he fully understands or believes in what we're doing.

What exactly did you do in New York as a "pioneer" We are in desperate need of more parents like you. I have met very few who are doing bio-med or ABA in this area. Our Organization is called TEAM To Find a Way. Actually, Dr. Vinci-Khoury was one of the original directors, but she was overloaded with other obligations and we didn't get much momentum going, There was also a problem with a conflict of interest. As and organization, we can't tell parents about one specific doctor. She is a wonderful woman and I told her that we will be recommending her to parents as a choice among docs.

Sorry I'm so long winded...

----- Original Message -----

From: Cochran

Sent: 3/18/2006 7:51:15 PM

Subject: Re: [ ]/was: Hello, I'm returning to Ohio with my autisitc son - resource info requested.

Hi ,

I know of Dr. Vinci-Khoury and Dr. , sorry can't remember her last name, who are dan! drs in warren/youngstown. Anybody else? Whom do you see, if I might ask?

----- Original Message -----

From: rmaher1969@...

Sent: Saturday, March 18, 2006 6:37 PM

Subject: RE: [ ] Hello, I'm returning to Ohio with my autisitc son - resource info requested.

Kim,

Welcome back to Ohio. I know of a few DAN! docs locally (warren/youngstown) but, otherwise I don't know of many sympathetic Peds. BTW, are you still feeling pioneerish? We are opening an autism center here in Trumbull County and we will need parent's involvement. Keep in touch and welcome back!

----- Original Message -----

From: ziahsmomma

Sent: 3/18/2006 6:35:27 AM

Subject: [ ] Hello, I'm returning to Ohio with my autisitc son - resource info requested.

I'm always so thankful for great resources. And invested parents are the best ones with the best knowledge. I am returning to Ohio after living in NY for 10 years. I have a precious 6 yr old son Josiah who is Autistic with many other issues. I am so blessed for all of you who have come together in NE Ohio to network and share what you know.I am coming from a tiny town where I had to pioneer every step of the way begining 6 years ago, but where my son received many great support services and most importantly the most AWESOME medical care. Working with a team that did not disregard me but included me and often times followed my lead. Who were clearly western medicine but did not scoff at or reject eastern medicine, herbs, holistic therapies. In fact as Josiah and I pioneered things they were so open that eventually other children were told about things we've tried. I am desperately wanting to find that in Ohio and I am praying that someone out there will write me back with a great reference for another awesome medical team. While Josiah has seen many specialists I am also interested in a great family practice or pediatrician who knows that while educated and intelligent, MOM knows this child best!Were initially coming back to twinsburg while we look for another home. I'd love to connect with some of you. Thanks for taking the tine to read my hello.Have a great weekend. Kim

[Guest guest]

,

I took nearly 9 months to research the chelation. She was young, only 3, so I knew we had some time, but took a risk waiting.

As far as and the girl dolls, very normal, even as young as 3 or 4 kids start noticing the difference between girls and boys. Yes, they are curious, always, about the opposite sex. At 4, ours was asking us about when she would get breasts, lol. Bothers a lot of parents, but even small children are curious about sex, is normal.

I have heard of the Summit Academy, is that for our kids? Is it in Warren? Does your go there?

Darn, we will be out of town on that day, but would have liked to have come. My practice is small, I cut down a LOT to do the research necessary for her, so don't have any children, so don't want to waste your flyers as I don't have any patients at the time who could benefit.

But sounds like your organization is a great place for the many, many almost new toys she outgrows. I will keep it in mind. And please let us know of future events so we can participate.

We are in a bit of crunch here with my practice and building a new home, so not a lot of time left over.

----- Original Message -----

From: rmaher1969@...

Sent: Sunday, March 19, 2006 8:48 AM

Subject: Re: [ ]/was: Hello, I'm returning to Ohio with my autisitc son - resource info requested.

,

The organization is up and running as far as serving as a resource and support to parents, but the facility with the gym isn't yet. It's coming together , I forgot to mention, we are having an event at Alberini's on April 13th from 7:00-10:00. It's called "Jazz it up for TEAM" It's a night of jazz music and we are selling raffle tix. We will have an info table in the lobby. The facility will be opening in June, I think that once we have an actual location, we will have a much better reception from parents. I am also due to speak at the Summit Academy of Warren at their next Parent Meeting. It'll just be a brief intro to let parents know what we are about. Would you be interested in having some of our flyers in your office? If so, let me know and I'll drop them off to you.

TEAM= Therapeutic Essentials for Autism Management

I know about chelation, we knew about it years ago and were scared to start so we waited , now we fear we have waited too long for maximum benefit, but I drive myself nuts wondering "what could have been?"

The grandaddy of them all is "What if we never vaccinated?"

I'm thrilled with his progress though , He's an awesome kid!

One more short story for you to analyze...lol Yesterday had his Janice and Miss Piggy Muppet dolls and he was looking up their skirts, when he saw me, he quickly threw down the dolls and said "Sorry, sorry!" Does this mean he's becoming curious about girls??? What the hell is that? He's my baby! No GIRLS!!! LOL! It also tells me that it embarrassed him that I saw what he was doing. I didn't scold him or anything, I just asked what he was doing and he said "Nothing," Typical male!

Let me know about the flyers,

----- Original Message -----

From: Cochran

Sent: 3/19/2006 12:12:24 AM

Subject: Re: [ ]/was: Hello, I'm returning to Ohio with my autisitc son - resource info requested.

,

Yes, we also use Cutler's protocol, 14 months now, working very well, ours was at first better on the chelators than off. We are finishing up with just Ala now, plan to chelate until she starts kindergarten, she is now 5.2.

Yes, I agree, and so does Andy that chelation should start as soon as possible. If you wait to get everything right, you waste a lot of time.

Your organization sounds great! Is it up and running now, ?

----- Original Message -----

From: rmaher1969@...

Sent: Saturday, March 18, 2006 10:51 PM

Subject: Re: [ ]/was: Hello, I'm returning to Ohio with my autisitc son - resource info requested.

,

Our organization basically serves as a resource center and support for parents/ siblings/ and children with ASD. We saw so many gaps when we were looking to help our son, so this was born out of our frustration at finding answers through our own research and then realizing that most of the things we needed for our son just weren't available. When we wanted to do chelation, five years ago I found Dr. Piersel in Meadville, he had never chelated a child before and used only intravenous methods. When we aksed him how we were supposed to get a three year old autistic child to sit still for nearly and hour with a needle in his arm, he said that we would have to restrain him. Our son is very big, very strong, and very determined, especially when he is terrified. I saw absolutely NO WAY that it would work! I have basically researched eveything online and found the chelation schedule that we use now online about chelation. Andy Cutler's protocol is actually the one that made the most sense to me, so we cautiously went ahead with doing it. It frustrates me that it seems that the DAN! docs want to use chelation as the last thing after the diet and yeast. It makes sense to me to get the toxins out as soon as possible, the rest is symptomatic of the toxicity.

I am very excited about having a sensory gym. It will work like a YMCA. Families will pay a monthly fee to have access to the gym and can pay extra to see an OT for an hour, kinda like a personal trainer at a gym. The fees will be on a sliding scale and we are putting out flyers for people to "sponsor a child" for families who can't pay. We will have cooking classes for GF/CF (thanks Dr. Vinci for thinking this up!) Sibling support/ parents support/ social group for ASD teens. AND Finally, ABA consulting for families who want to have a home based program. These services just don't exist around here. We have alot of talent leaving our area universities because there's nowhere for them to work. Kent has an ABA certification program, we can tap into that. Families shouldn't have to go bankrupt paying for therapists and consultants to come from Pittsburgh and Cleveland. We have the Rich Center locally, but they can only take so many kids and I think they have a cut off age.

Our son is seven. His name is .

Dr. Vlad is great, when I was little I LOVED him and called him Dr. Glad! We don't see him often, he has a few new docs in his office and they have less of a wait time. If you wanna see Dr. Vlad, you usually wait! I heard he is retiring.

I know of some parents who came to Dr. Vinci's cooking classes that are doing diet, but not biomed with supps and chelation.

Ok, bedtime, have a good night!

----- Original Message -----

From: Cochran

Sent: 3/18/2006 10:09:42 PM

Subject: Re: [ ]/was: Hello, I'm returning to Ohio with my autisitc son - resource info requested.

Yes, in Lordstown/Berlin Center area. Dr. Vlad is a distant relative, didn't know he was still in practice, nice man.

Dan drs stuck like glue to gf/cf thing. Before we did the testing with dr belgrad, I asked her if the test for casein and gluten came back without allergies/peptides would we have to do the diet? And she said YES!!! What the heck? They why bother with the test.

When we tried the diet and she lost language, we told dr belgrad about it and she said that she was not concerned!!! I told her we were logical people who would have to have some kind of reason why losing language was not cause for concern or considered a benign event. We put her back on the milk, no enzymes.

We also used oral ala with dmsa, with great results. Wonderful, your experience at BK. How old is your son?

Do you know of any other moms doing biomed in our area? How did you learn of the low/frequent dosing?

My practice is in Warren, just me. I agree we would make a great pair, as I am neurotic also, don't know of practically anyone who isn't.

Will look forward to maybe getting the brochure, but maybe you could tell me something about the organization? Just what is your purpose and what do you do?

----- Original Message -----

From: rmaher1969@...

Sent: Saturday, March 18, 2006 9:53 PM

Subject: Re: [ ]/was: Hello, I'm returning to Ohio with my autisitc son - resource info requested.

,

I agree, most of the docs aren't as up on all the bio-med as we are...lol. My pediatrician is Dr. Vlad. He was my ped when I was a kid, so he seemed like the natural choice for my boys. We don't do GF/Cf anymore either, we use digestive enzymes with great results. I wonder why no DAN Docs ever recommend them?

We are using oral ALA with oral DMSA 1:1 ratio frequent/low dose. We have seen max results the past two months. Seeing some regression during the "ON" days, but much better all around on the "OFF" days.

I noticed last night we took our son to play at Burger King (a bribe...long story..lol) and he was actually with the other kids interacting, which has been coming about for the past 6 months, but the biggest change, was the kids didn't reject him. None of them seemed to notice anything different! Other kids usually will look at him like he's from Mars, and last night, he was just one of them. It was AWESOME!

BTW, where are you in NE Ohio?

A psychologist huh? That's great, I'm a neurotic, we could have a great friendship!

LOL

----- Original Message -----

From: Cochran

Sent: 3/18/2006 8:36:33 PM

Subject: Re: [ ]/was: Hello, I'm returning to Ohio with my autisitc son - resource info requested.

Well, think you have me confused with the lady moving back to Ohio. We have always been in Ohio. Sorry should have changed the post heading.

We did see dr. Belgrad, but she had just started, that was 1.5 years ago, and, she told us we knew more than she did.

Dr. Khoury is a great woman, I am a psychologist and we have had the same patients over the years, but she is also just starting.

We ended up doing it on our own also. Couldn't find a dr who would take us as she did horribly on the gf/cf diet, lost language and looked absolutely awful. After three weeks we put her back on milk and we chelated anyway with wonderful results.

We contacted Dr. Tenpenny, but as she tested without allergies, did not want to go through her long and expensive allergy testing. By the time Dr. Demio came on the scene we were well under way, although we have used oral Ala, and I understand he is not a fan, so probably would not have been a good fit either.

She has some residual fine motor problems, writing does not come easy, but other than that, she is recovered.

Can I ask who is your ped? We are looking for a new one. Don't apologize for long posts, I love them :-)

TIA,

----- Original Message -----

From: rmaher1969@...

Sent: Saturday, March 18, 2006 8:25 PM

Subject: Re: [ ]/was: Hello, I'm returning to Ohio with my autisitc son - resource info requested.

,

Dr. Findley Belgrad, who we used to see. We are doing it all on our own now. Docs are too $$$!!

May I ask, why are you moving back to the area? Rich Center? Where in New York are you coming from? We used to live in NY and considered moving back for the school tied with Carbone, but hubby can't find work there and we would have to live with my mother-in-law. It just wouldn't work out I'm afraid!

There is also a DAN doc in Cleveland Dr. Demio, and a doc in Meadville PA who is on the DAN board, he does chelation- Dr. Piersel. There may be more, others on this board will know. My ped isn't involved with any of our bio-med treatments for our son, but he listens and seems sympathetic although I don't think he fully understands or believes in what we're doing.

What exactly did you do in New York as a "pioneer" We are in desperate need of more parents like you. I have met very few who are doing bio-med or ABA in this area. Our Organization is called TEAM To Find a Way. Actually, Dr. Vinci-Khoury was one of the original directors, but she was overloaded with other obligations and we didn't get much momentum going, There was also a problem with a conflict of interest. As and organization, we can't tell parents about one specific doctor. She is a wonderful woman and I told her that we will be recommending her to parents as a choice among docs.

Sorry I'm so long winded...

----- Original Message -----

From: Cochran

Sent: 3/18/2006 7:51:15 PM

Subject: Re: [ ]/was: Hello, I'm returning to Ohio with my autisitc son - resource info requested.

Hi ,

I know of Dr. Vinci-Khoury and Dr. , sorry can't remember her last name, who are dan! drs in warren/youngstown. Anybody else? Whom do you see, if I might ask?

----- Original Message -----

From: rmaher1969@...

Sent: Saturday, March 18, 2006 6:37 PM

Subject: RE: [ ] Hello, I'm returning to Ohio with my autisitc son - resource info requested.

Kim,

Welcome back to Ohio. I know of a few DAN! docs locally (warren/youngstown) but, otherwise I don't know of many sympathetic Peds. BTW, are you still feeling pioneerish? We are opening an autism center here in Trumbull County and we will need parent's involvement. Keep in touch and welcome back!

----- Original Message -----

From: ziahsmomma

Sent: 3/18/2006 6:35:27 AM

Subject: [ ] Hello, I'm returning to Ohio with my autisitc son - resource info requested.

I'm always so thankful for great resources. And invested parents are the best ones with the best knowledge. I am returning to Ohio after living in NY for 10 years. I have a precious 6 yr old son Josiah who is Autistic with many other issues. I am so blessed for all of you who have come together in NE Ohio to network and share what you know.I am coming from a tiny town where I had to pioneer every step of the way begining 6 years ago, but where my son received many great support services and most importantly the most AWESOME medical care. Working with a team that did not disregard me but included me and often times followed my lead. Who were clearly western medicine but did not scoff at or reject eastern medicine, herbs, holistic therapies. In fact as Josiah and I pioneered things they were so open that eventually other children were told about things we've tried. I am desperately wanting to find that in Ohio and I am praying that someone out there will write me back with a great reference for another awesome medical team. While Josiah has seen many specialists I am also interested in a great family practice or pediatrician who knows that while educated and intelligent, MOM knows this child best!Were initially coming back to twinsburg while we look for another home. I'd love to connect with some of you. Thanks for taking the tine to read my hello.Have a great weekend. Kim

[Guest guest]

,

Summit only started taking ASD kids three years ago, they are still primarily ADD/ADHD school. The Youngstown location was open when was due to start Kindergarten so we put him in there, since then, the Warren Location has opened and I am going to meet with them tomorrow to discuss the possiblity of moving him next year, then he can be bussed, so it will be much more convenient, but we are very anxious about moving him. Right now, Younsgtown has two Autism Units, whereas Warren doesn't. But his IEP says he should be in an Autism Unit, so I don't forsee any problems. The hard part is Younstown has been his home for three years. They are SO accomodating and have a genuine affection for . This past Christmas he participated in the Christmas program and his teachers cried along with us, tears of JOY! In fact, when I called to talk about moving him to Warren, the news spread like wildfire through the school and everyone was very concerned about why we would move him. I worry that I'm being selfish for moving him just for convenience, but if I know , he will surprise all of us and make the transition just fine. it's the rest of us that might not ...lol.

I'll keep you posted about any news with the center, we hope to have a grand opening this summer, something fun for the whole family!

Take care,

----- Original Message -----

From: Cochran

Sent: 3/20/2006 6:38:30 AM

Subject: Re: [ ]/was: Hello, I'm returning to Ohio with my autisitc son - resource info requested.

,

I took nearly 9 months to research the chelation. She was young, only 3, so I knew we had some time, but took a risk waiting.

As far as and the girl dolls, very normal, even as young as 3 or 4 kids start noticing the difference between girls and boys. Yes, they are curious, always, about the opposite sex. At 4, ours was asking us about when she would get breasts, lol. Bothers a lot of parents, but even small children are curious about sex, is normal.

I have heard of the Summit Academy, is that for our kids? Is it in Warren? Does your go there?

Darn, we will be out of town on that day, but would have liked to have come. My practice is small, I cut down a LOT to do the research necessary for her, so don't have any children, so don't want to waste your flyers as I don't have any patients at the time who could benefit.

But sounds like your organization is a great place for the many, many almost new toys she outgrows. I will keep it in mind. And please let us know of future events so we can participate.

We are in a bit of crunch here with my practice and building a new home, so not a lot of time left over.

----- Original Message -----

From: rmaher1969@...

Sent: Sunday, March 19, 2006 8:48 AM

Subject: Re: [ ]/was: Hello, I'm returning to Ohio with my autisitc son - resource info requested.

,

The organization is up and running as far as serving as a resource and support to parents, but the facility with the gym isn't yet. It's coming together , I forgot to mention, we are having an event at Alberini's on April 13th from 7:00-10:00. It's called "Jazz it up for TEAM" It's a night of jazz music and we are selling raffle tix. We will have an info table in the lobby. The facility will be opening in June, I think that once we have an actual location, we will have a much better reception from parents. I am also due to speak at the Summit Academy of Warren at their next Parent Meeting. It'll just be a brief intro to let parents know what we are about. Would you be interested in having some of our flyers in your office? If so, let me know and I'll drop them off to you.

TEAM= Therapeutic Essentials for Autism Management

I know about chelation, we knew about it years ago and were scared to start so we waited , now we fear we have waited too long for maximum benefit, but I drive myself nuts wondering "what could have been?"

The grandaddy of them all is "What if we never vaccinated?"

I'm thrilled with his progress though , He's an awesome kid!

One more short story for you to analyze...lol Yesterday had his Janice and Miss Piggy Muppet dolls and he was looking up their skirts, when he saw me, he quickly threw down the dolls and said "Sorry, sorry!" Does this mean he's becoming curious about girls??? What the hell is that? He's my baby! No GIRLS!!! LOL! It also tells me that it embarrassed him that I saw what he was doing. I didn't scold him or anything, I just asked what he was doing and he said "Nothing," Typical male!

Let me know about the flyers,

----- Original Message -----

From: Cochran

Sent: 3/19/2006 12:12:24 AM

Subject: Re: [ ]/was: Hello, I'm returning to Ohio with my autisitc son - resource info requested.

,

Yes, we also use Cutler's protocol, 14 months now, working very well, ours was at first better on the chelators than off. We are finishing up with just Ala now, plan to chelate until she starts kindergarten, she is now 5.2.

Yes, I agree, and so does Andy that chelation should start as soon as possible. If you wait to get everything right, you waste a lot of time.

Your organization sounds great! Is it up and running now, ?

----- Original Message -----

From: rmaher1969@...

Sent: Saturday, March 18, 2006 10:51 PM

Subject: Re: [ ]/was: Hello, I'm returning to Ohio with my autisitc son - resource info requested.

,

Our organization basically serves as a resource center and support for parents/ siblings/ and children with ASD. We saw so many gaps when we were looking to help our son, so this was born out of our frustration at finding answers through our own research and then realizing that most of the things we needed for our son just weren't available. When we wanted to do chelation, five years ago I found Dr. Piersel in Meadville, he had never chelated a child before and used only intravenous methods. When we aksed him how we were supposed to get a three year old autistic child to sit still for nearly and hour with a needle in his arm, he said that we would have to restrain him. Our son is very big, very strong, and very determined, especially when he is terrified. I saw absolutely NO WAY that it would work! I have basically researched eveything online and found the chelation schedule that we use now online about chelation. Andy Cutler's protocol is actually the one that made the most sense to me, so we cautiously went ahead with doing it. It frustrates me that it seems that the DAN! docs want to use chelation as the last thing after the diet and yeast. It makes sense to me to get the toxins out as soon as possible, the rest is symptomatic of the toxicity.

I am very excited about having a sensory gym. It will work like a YMCA. Families will pay a monthly fee to have access to the gym and can pay extra to see an OT for an hour, kinda like a personal trainer at a gym. The fees will be on a sliding scale and we are putting out flyers for people to "sponsor a child" for families who can't pay. We will have cooking classes for GF/CF (thanks Dr. Vinci for thinking this up!) Sibling support/ parents support/ social group for ASD teens. AND Finally, ABA consulting for families who want to have a home based program. These services just don't exist around here. We have alot of talent leaving our area universities because there's nowhere for them to work. Kent has an ABA certification program, we can tap into that. Families shouldn't have to go bankrupt paying for therapists and consultants to come from Pittsburgh and Cleveland. We have the Rich Center locally, but they can only take so many kids and I think they have a cut off age.

Our son is seven. His name is .

Dr. Vlad is great, when I was little I LOVED him and called him Dr. Glad! We don't see him often, he has a few new docs in his office and they have less of a wait time. If you wanna see Dr. Vlad, you usually wait! I heard he is retiring.

I know of some parents who came to Dr. Vinci's cooking classes that are doing diet, but not biomed with supps and chelation.

Ok, bedtime, have a good night!

----- Original Message -----

From: Cochran

Sent: 3/18/2006 10:09:42 PM

Subject: Re: [ ]/was: Hello, I'm returning to Ohio with my autisitc son - resource info requested.

Yes, in Lordstown/Berlin Center area. Dr. Vlad is a distant relative, didn't know he was still in practice, nice man.

Dan drs stuck like glue to gf/cf thing. Before we did the testing with dr belgrad, I asked her if the test for casein and gluten came back without allergies/peptides would we have to do the diet? And she said YES!!! What the heck? They why bother with the test.

When we tried the diet and she lost language, we told dr belgrad about it and she said that she was not concerned!!! I told her we were logical people who would have to have some kind of reason why losing language was not cause for concern or considered a benign event. We put her back on the milk, no enzymes.

We also used oral ala with dmsa, with great results. Wonderful, your experience at BK. How old is your son?

Do you know of any other moms doing biomed in our area? How did you learn of the low/frequent dosing?

My practice is in Warren, just me. I agree we would make a great pair, as I am neurotic also, don't know of practically anyone who isn't.

Will look forward to maybe getting the brochure, but maybe you could tell me something about the organization? Just what is your purpose and what do you do?

----- Original Message -----

From: rmaher1969@...

Sent: Saturday, March 18, 2006 9:53 PM

Subject: Re: [ ]/was: Hello, I'm returning to Ohio with my autisitc son - resource info requested.

,

I agree, most of the docs aren't as up on all the bio-med as we are...lol. My pediatrician is Dr. Vlad. He was my ped when I was a kid, so he seemed like the natural choice for my boys. We don't do GF/Cf anymore either, we use digestive enzymes with great results. I wonder why no DAN Docs ever recommend them?

We are using oral ALA with oral DMSA 1:1 ratio frequent/low dose. We have seen max results the past two months. Seeing some regression during the "ON" days, but much better all around on the "OFF" days.

I noticed last night we took our son to play at Burger King (a bribe...long story..lol) and he was actually with the other kids interacting, which has been coming about for the past 6 months, but the biggest change, was the kids didn't reject him. None of them seemed to notice anything different! Other kids usually will look at him like he's from Mars, and last night, he was just one of them. It was AWESOME!

BTW, where are you in NE Ohio?

A psychologist huh? That's great, I'm a neurotic, we could have a great friendship!

LOL

----- Original Message -----

From: Cochran

Sent: 3/18/2006 8:36:33 PM

Subject: Re: [ ]/was: Hello, I'm returning to Ohio with my autisitc son - resource info requested.

Well, think you have me confused with the lady moving back to Ohio. We have always been in Ohio. Sorry should have changed the post heading.

We did see dr. Belgrad, but she had just started, that was 1.5 years ago, and, she told us we knew more than she did.

Dr. Khoury is a great woman, I am a psychologist and we have had the same patients over the years, but she is also just starting.

We ended up doing it on our own also. Couldn't find a dr who would take us as she did horribly on the gf/cf diet, lost language and looked absolutely awful. After three weeks we put her back on milk and we chelated anyway with wonderful results.

We contacted Dr. Tenpenny, but as she tested without allergies, did not want to go through her long and expensive allergy testing. By the time Dr. Demio came on the scene we were well under way, although we have used oral Ala, and I understand he is not a fan, so probably would not have been a good fit either.

She has some residual fine motor problems, writing does not come easy, but other than that, she is recovered.

Can I ask who is your ped? We are looking for a new one. Don't apologize for long posts, I love them :-)

TIA,

----- Original Message -----

From: rmaher1969@...

Sent: Saturday, March 18, 2006 8:25 PM

Subject: Re: [ ]/was: Hello, I'm returning to Ohio with my autisitc son - resource info requested.

,

Dr. Findley Belgrad, who we used to see. We are doing it all on our own now. Docs are too $$$!!

May I ask, why are you moving back to the area? Rich Center? Where in New York are you coming from? We used to live in NY and considered moving back for the school tied with Carbone, but hubby can't find work there and we would have to live with my mother-in-law. It just wouldn't work out I'm afraid!

There is also a DAN doc in Cleveland Dr. Demio, and a doc in Meadville PA who is on the DAN board, he does chelation- Dr. Piersel. There may be more, others on this board will know. My ped isn't involved with any of our bio-med treatments for our son, but he listens and seems sympathetic although I don't think he fully understands or believes in what we're doing.

What exactly did you do in New York as a "pioneer" We are in desperate need of more parents like you. I have met very few who are doing bio-med or ABA in this area. Our Organization is called TEAM To Find a Way. Actually, Dr. Vinci-Khoury was one of the original directors, but she was overloaded with other obligations and we didn't get much momentum going, There was also a problem with a conflict of interest. As and organization, we can't tell parents about one specific doctor. She is a wonderful woman and I told her that we will be recommending her to parents as a choice among docs.

Sorry I'm so long winded...

----- Original Message -----

From: Cochran

Sent: 3/18/2006 7:51:15 PM

Subject: Re: [ ]/was: Hello, I'm returning to Ohio with my autisitc son - resource info requested.

Hi ,

I know of Dr. Vinci-Khoury and Dr. , sorry can't remember her last name, who are dan! drs in warren/youngstown. Anybody else? Whom do you see, if I might ask?

----- Original Message -----

From: rmaher1969@...

Sent: Saturday, March 18, 2006 6:37 PM

Subject: RE: [ ] Hello, I'm returning to Ohio with my autisitc son - resource info requested.

Kim,

Welcome back to Ohio. I know of a few DAN! docs locally (warren/youngstown) but, otherwise I don't know of many sympathetic Peds. BTW, are you still feeling pioneerish? We are opening an autism center here in Trumbull County and we will need parent's involvement. Keep in touch and welcome back!

----- Original Message -----

From: ziahsmomma

Sent: 3/18/2006 6:35:27 AM

Subject: [ ] Hello, I'm returning to Ohio with my autisitc son - resource info requested.

I'm always so thankful for great resources. And invested parents are the best ones with the best knowledge. I am returning to Ohio after living in NY for 10 years. I have a precious 6 yr old son Josiah who is Autistic with many other issues. I am so blessed for all of you who have come together in NE Ohio to network and share what you know.I am coming from a tiny town where I had to pioneer every step of the way begining 6 years ago, but where my son received many great support services and most importantly the most AWESOME medical care. Working with a team that did not disregard me but included me and often times followed my lead. Who were clearly western medicine but did not scoff at or reject eastern medicine, herbs, holistic therapies. In fact as Josiah and I pioneered things they were so open that eventually other children were told about things we've tried. I am desperately wanting to find that in Ohio and I am praying that someone out there will write me back with a great reference for another awesome medical team. While Josiah has seen many specialists I am also interested in a great family practice or pediatrician who knows that while educated and intelligent, MOM knows this child best!Were initially coming back to twinsburg while we look for another home. I'd love to connect with some of you. Thanks for taking the tine to read my hello.Have a great weekend. Kim

[Guest guest]

:

Ours was only ever dx'd with adhd. She had many, many more problems than that, verbal apraxia and sensory integration, fine and gross motor problems.

However, both times we took her up to Akron Children's Hospital for an evaluation, she did things we had never seen her do, answered questions perfectly, drew a square at 3.5 years. Reminded me of the times I have tried to have paranoid schizophrenics institutionalized. They come into court looking and sounding more sane than anyone else there, lol.

Honestly, we left there thinking we were crazy, and, after the second evaluatin when they looked at us with raised eyebrows and asked "Why are you back?" was afraid to take her back in case they would turn us in for Munchausen by Proxy.

As it stands now, after chelation, she would only barely meet the criteria for ADD, no more hyperactivity, but she appears to have trouble focusing in large groups where there is a LOT of noise, no problem in small groups. I have even seen her do well in large groups, so don't quite know what we will face when she starts to school. I looked at the ADD checklist and 5 or more, says they should be checked out for ADD, she met 4, maybe 5 critieria, so it is light.

Thinking we will try regular kindergarten, she is in regular preK preschool, with 14 other children, 11 of which are very rowdy boys (she likes them the best ;-) and see what we get. We have more time to chelate and are going to start antiviral treatment also. Then if she has too much trouble we will think of moving her to smaller, more intense schooling.

Trouble with her is this: and I do mean it is trouble, she taught herself to read at 2.5 years, she is now 5.2 years and reading at a 6th grade level. Her math skills are just as advanced. She knows how to tell time, understands fractions and knows her left from her right (something I only really got a couple of years ago). I have seen kids like this in school and it is a problem, believe me, just as much as if they are behind. I have no clue what they are going to do with her. I think we will just sit down with the principal and tell her all; the good and the bad, wish them luck, support them and hope for the best. Any suggestions from anyone appreciated. Anyone ever see a kid like this?? Anyone??

Yes, let me know about future events.

----- Original Message -----

From: rmaher1969@...

Sent: Monday, March 20, 2006 10:53 AM

Subject: Re: [ ]/was: Hello, I'm returning to Ohio with my autisitc son - resource info requested.

,

Summit only started taking ASD kids three years ago, they are still primarily ADD/ADHD school. The Youngstown location was open when was due to start Kindergarten so we put him in there, since then, the Warren Location has opened and I am going to meet with them tomorrow to discuss the possiblity of moving him next year, then he can be bussed, so it will be much more convenient, but we are very anxious about moving him. Right now, Younsgtown has two Autism Units, whereas Warren doesn't. But his IEP says he should be in an Autism Unit, so I don't forsee any problems. The hard part is Younstown has been his home for three years. They are SO accomodating and have a genuine affection for . This past Christmas he participated in the Christmas program and his teachers cried along with us, tears of JOY! In fact, when I called to talk about moving him to Warren, the news spread like wildfire through the school and everyone was very concerned about why we would move him. I worry that I'm being selfish for moving him just for convenience, but if I know , he will surprise all of us and make the transition just fine. it's the rest of us that might not ...lol.

I'll keep you posted about any news with the center, we hope to have a grand opening this summer, something fun for the whole family!

Take care,

----- Original Message -----

From: Cochran

Sent: 3/20/2006 6:38:30 AM

Subject: Re: [ ]/was: Hello, I'm returning to Ohio with my autisitc son - resource info requested.

,

I took nearly 9 months to research the chelation. She was young, only 3, so I knew we had some time, but took a risk waiting.

As far as and the girl dolls, very normal, even as young as 3 or 4 kids start noticing the difference between girls and boys. Yes, they are curious, always, about the opposite sex. At 4, ours was asking us about when she would get breasts, lol. Bothers a lot of parents, but even small children are curious about sex, is normal.

I have heard of the Summit Academy, is that for our kids? Is it in Warren? Does your go there?

Darn, we will be out of town on that day, but would have liked to have come. My practice is small, I cut down a LOT to do the research necessary for her, so don't have any children, so don't want to waste your flyers as I don't have any patients at the time who could benefit.

But sounds like your organization is a great place for the many, many almost new toys she outgrows. I will keep it in mind. And please let us know of future events so we can participate.

We are in a bit of crunch here with my practice and building a new home, so not a lot of time left over.

----- Original Message -----

From: rmaher1969@...

Sent: Sunday, March 19, 2006 8:48 AM

Subject: Re: [ ]/was: Hello, I'm returning to Ohio with my autisitc son - resource info requested.

,

The organization is up and running as far as serving as a resource and support to parents, but the facility with the gym isn't yet. It's coming together , I forgot to mention, we are having an event at Alberini's on April 13th from 7:00-10:00. It's called "Jazz it up for TEAM" It's a night of jazz music and we are selling raffle tix. We will have an info table in the lobby. The facility will be opening in June, I think that once we have an actual location, we will have a much better reception from parents. I am also due to speak at the Summit Academy of Warren at their next Parent Meeting. It'll just be a brief intro to let parents know what we are about. Would you be interested in having some of our flyers in your office? If so, let me know and I'll drop them off to you.

TEAM= Therapeutic Essentials for Autism Management

I know about chelation, we knew about it years ago and were scared to start so we waited , now we fear we have waited too long for maximum benefit, but I drive myself nuts wondering "what could have been?"

The grandaddy of them all is "What if we never vaccinated?"

I'm thrilled with his progress though , He's an awesome kid!

One more short story for you to analyze...lol Yesterday had his Janice and Miss Piggy Muppet dolls and he was looking up their skirts, when he saw me, he quickly threw down the dolls and said "Sorry, sorry!" Does this mean he's becoming curious about girls??? What the hell is that? He's my baby! No GIRLS!!! LOL! It also tells me that it embarrassed him that I saw what he was doing. I didn't scold him or anything, I just asked what he was doing and he said "Nothing," Typical male!

Let me know about the flyers,

----- Original Message -----

From: Cochran

Sent: 3/19/2006 12:12:24 AM

Subject: Re: [ ]/was: Hello, I'm returning to Ohio with my autisitc son - resource info requested.

,

Yes, we also use Cutler's protocol, 14 months now, working very well, ours was at first better on the chelators than off. We are finishing up with just Ala now, plan to chelate until she starts kindergarten, she is now 5.2.

Yes, I agree, and so does Andy that chelation should start as soon as possible. If you wait to get everything right, you waste a lot of time.

Your organization sounds great! Is it up and running now, ?

----- Original Message -----

From: rmaher1969@...

Sent: Saturday, March 18, 2006 10:51 PM

Subject: Re: [ ]/was: Hello, I'm returning to Ohio with my autisitc son - resource info requested.

,

Our organization basically serves as a resource center and support for parents/ siblings/ and children with ASD. We saw so many gaps when we were looking to help our son, so this was born out of our frustration at finding answers through our own research and then realizing that most of the things we needed for our son just weren't available. When we wanted to do chelation, five years ago I found Dr. Piersel in Meadville, he had never chelated a child before and used only intravenous methods. When we aksed him how we were supposed to get a three year old autistic child to sit still for nearly and hour with a needle in his arm, he said that we would have to restrain him. Our son is very big, very strong, and very determined, especially when he is terrified. I saw absolutely NO WAY that it would work! I have basically researched eveything online and found the chelation schedule that we use now online about chelation. Andy Cutler's protocol is actually the one that made the most sense to me, so we cautiously went ahead with doing it. It frustrates me that it seems that the DAN! docs want to use chelation as the last thing after the diet and yeast. It makes sense to me to get the toxins out as soon as possible, the rest is symptomatic of the toxicity.

I am very excited about having a sensory gym. It will work like a YMCA. Families will pay a monthly fee to have access to the gym and can pay extra to see an OT for an hour, kinda like a personal trainer at a gym. The fees will be on a sliding scale and we are putting out flyers for people to "sponsor a child" for families who can't pay. We will have cooking classes for GF/CF (thanks Dr. Vinci for thinking this up!) Sibling support/ parents support/ social group for ASD teens. AND Finally, ABA consulting for families who want to have a home based program. These services just don't exist around here. We have alot of talent leaving our area universities because there's nowhere for them to work. Kent has an ABA certification program, we can tap into that. Families shouldn't have to go bankrupt paying for therapists and consultants to come from Pittsburgh and Cleveland. We have the Rich Center locally, but they can only take so many kids and I think they have a cut off age.

Our son is seven. His name is .

Dr. Vlad is great, when I was little I LOVED him and called him Dr. Glad! We don't see him often, he has a few new docs in his office and they have less of a wait time. If you wanna see Dr. Vlad, you usually wait! I heard he is retiring.

I know of some parents who came to Dr. Vinci's cooking classes that are doing diet, but not biomed with supps and chelation.

Ok, bedtime, have a good night!

----- Original Message -----

From: Cochran

Sent: 3/18/2006 10:09:42 PM

Subject: Re: [ ]/was: Hello, I'm returning to Ohio with my autisitc son - resource info requested.

Yes, in Lordstown/Berlin Center area. Dr. Vlad is a distant relative, didn't know he was still in practice, nice man.

Dan drs stuck like glue to gf/cf thing. Before we did the testing with dr belgrad, I asked her if the test for casein and gluten came back without allergies/peptides would we have to do the diet? And she said YES!!! What the heck? They why bother with the test.

When we tried the diet and she lost language, we told dr belgrad about it and she said that she was not concerned!!! I told her we were logical people who would have to have some kind of reason why losing language was not cause for concern or considered a benign event. We put her back on the milk, no enzymes.

We also used oral ala with dmsa, with great results. Wonderful, your experience at BK. How old is your son?

Do you know of any other moms doing biomed in our area? How did you learn of the low/frequent dosing?

My practice is in Warren, just me. I agree we would make a great pair, as I am neurotic also, don't know of practically anyone who isn't.

Will look forward to maybe getting the brochure, but maybe you could tell me something about the organization? Just what is your purpose and what do you do?

----- Original Message -----

From: rmaher1969@...

Sent: Saturday, March 18, 2006 9:53 PM

Subject: Re: [ ]/was: Hello, I'm returning to Ohio with my autisitc son - resource info requested.

,

I agree, most of the docs aren't as up on all the bio-med as we are...lol. My pediatrician is Dr. Vlad. He was my ped when I was a kid, so he seemed like the natural choice for my boys. We don't do GF/Cf anymore either, we use digestive enzymes with great results. I wonder why no DAN Docs ever recommend them?

We are using oral ALA with oral DMSA 1:1 ratio frequent/low dose. We have seen max results the past two months. Seeing some regression during the "ON" days, but much better all around on the "OFF" days.

I noticed last night we took our son to play at Burger King (a bribe...long story..lol) and he was actually with the other kids interacting, which has been coming about for the past 6 months, but the biggest change, was the kids didn't reject him. None of them seemed to notice anything different! Other kids usually will look at him like he's from Mars, and last night, he was just one of them. It was AWESOME!

BTW, where are you in NE Ohio?

A psychologist huh? That's great, I'm a neurotic, we could have a great friendship!

LOL

----- Original Message -----

From: Cochran

Sent: 3/18/2006 8:36:33 PM

Subject: Re: [ ]/was: Hello, I'm returning to Ohio with my autisitc son - resource info requested.

Well, think you have me confused with the lady moving back to Ohio. We have always been in Ohio. Sorry should have changed the post heading.

We did see dr. Belgrad, but she had just started, that was 1.5 years ago, and, she told us we knew more than she did.

Dr. Khoury is a great woman, I am a psychologist and we have had the same patients over the years, but she is also just starting.

We ended up doing it on our own also. Couldn't find a dr who would take us as she did horribly on the gf/cf diet, lost language and looked absolutely awful. After three weeks we put her back on milk and we chelated anyway with wonderful results.

We contacted Dr. Tenpenny, but as she tested without allergies, did not want to go through her long and expensive allergy testing. By the time Dr. Demio came on the scene we were well under way, although we have used oral Ala, and I understand he is not a fan, so probably would not have been a good fit either.

She has some residual fine motor problems, writing does not come easy, but other than that, she is recovered.

Can I ask who is your ped? We are looking for a new one. Don't apologize for long posts, I love them :-)

TIA,

----- Original Message -----

From: rmaher1969@...

Sent: Saturday, March 18, 2006 8:25 PM

Subject: Re: [ ]/was: Hello, I'm returning to Ohio with my autisitc son - resource info requested.

,

Dr. Findley Belgrad, who we used to see. We are doing it all on our own now. Docs are too $$$!!

May I ask, why are you moving back to the area? Rich Center? Where in New York are you coming from? We used to live in NY and considered moving back for the school tied with Carbone, but hubby can't find work there and we would have to live with my mother-in-law. It just wouldn't work out I'm afraid!

There is also a DAN doc in Cleveland Dr. Demio, and a doc in Meadville PA who is on the DAN board, he does chelation- Dr. Piersel. There may be more, others on this board will know. My ped isn't involved with any of our bio-med treatments for our son, but he listens and seems sympathetic although I don't think he fully understands or believes in what we're doing.

What exactly did you do in New York as a "pioneer" We are in desperate need of more parents like you. I have met very few who are doing bio-med or ABA in this area. Our Organization is called TEAM To Find a Way. Actually, Dr. Vinci-Khoury was one of the original directors, but she was overloaded with other obligations and we didn't get much momentum going, There was also a problem with a conflict of interest. As and organization, we can't tell parents about one specific doctor. She is a wonderful woman and I told her that we will be recommending her to parents as a choice among docs.

Sorry I'm so long winded...

----- Original Message -----

From: Cochran

Sent: 3/18/2006 7:51:15 PM

Subject: Re: [ ]/was: Hello, I'm returning to Ohio with my autisitc son - resource info requested.

Hi ,

I know of Dr. Vinci-Khoury and Dr. , sorry can't remember her last name, who are dan! drs in warren/youngstown. Anybody else? Whom do you see, if I might ask?

----- Original Message -----

From: rmaher1969@...

Sent: Saturday, March 18, 2006 6:37 PM

Subject: RE: [ ] Hello, I'm returning to Ohio with my autisitc son - resource info requested.

Kim,

Welcome back to Ohio. I know of a few DAN! docs locally (warren/youngstown) but, otherwise I don't know of many sympathetic Peds. BTW, are you still feeling pioneerish? We are opening an autism center here in Trumbull County and we will need parent's involvement. Keep in touch and welcome back!

----- Original Message -----

From: ziahsmomma

Sent: 3/18/2006 6:35:27 AM

Subject: [ ] Hello, I'm returning to Ohio with my autisitc son - resource info requested.

I'm always so thankful for great resources. And invested parents are the best ones with the best knowledge. I am returning to Ohio after living in NY for 10 years. I have a precious 6 yr old son Josiah who is Autistic with many other issues. I am so blessed for all of you who have come together in NE Ohio to network and share what you know.I am coming from a tiny town where I had to pioneer every step of the way begining 6 years ago, but where my son received many great support services and most importantly the most AWESOME medical care. Working with a team that did not disregard me but included me and often times followed my lead. Who were clearly western medicine but did not scoff at or reject eastern medicine, herbs, holistic therapies. In fact as Josiah and I pioneered things they were so open that eventually other children were told about things we've tried. I am desperately wanting to find that in Ohio and I am praying that someone out there will write me back with a great reference for another awesome medical team. While Josiah has seen many specialists I am also interested in a great family practice or pediatrician who knows that while educated and intelligent, MOM knows this child best!Were initially coming back to twinsburg while we look for another home. I'd love to connect with some of you. Thanks for taking the tine to read my hello.Have a great weekend. Kim

[Guest guest]

,

To me, in my opinion, sounds like Asperger's Symdrome. What I have heard, is that although these kids do well academically, there is trouble socially, especially in the teen years (big surprise). Much like ADD, because they do well academically, teachers don't see a problem and will often disregard things like focus and sensory issues. Most public school teachers aren't familiar with Asperger's and may fault the child for lack of class preparation, and label them "lazy". Also, as they get older, they are aware that they may be different from others and self esteem plummets. then school work can suffer. Lucky for her, she has a mom who is a psychologist and is on the ball! If you send her to public school, I would be very clear with the school from the very beginning that her disability is REAL and her sensory needs are real. They may not want to give you any services and will try to argue that your child has no disablity. Believe me, was evalauted by Cleveland Clinic Center for Autism and Children's Hospital Autism Center, we had independent evals done because we KNEW that the school was going to try to tell us that was fine. I had one school admin tell me that she spent an hour with and she couldn't tell that he had autism. I told her, "Funny, most three year olds on the playground know that he's different within the first ten minutes!" You have a bit of an advantage, because of your profession, they may be more likely to listen to you. If she is so advanced, she may also get bored in school??

Just my opinion, I have lots of them!

----- Original Message -----

From: Cochran

Sent: 3/20/2006 11:09:27 AM

Subject: Re: [ ]/was: Hello, I'm returning to Ohio with my autisitc son - resource info requested.

:

Ours was only ever dx'd with adhd. She had many, many more problems than that, verbal apraxia and sensory integration, fine and gross motor problems.

However, both times we took her up to Akron Children's Hospital for an evaluation, she did things we had never seen her do, answered questions perfectly, drew a square at 3.5 years. Reminded me of the times I have tried to have paranoid schizophrenics institutionalized. They come into court looking and sounding more sane than anyone else there, lol.

Honestly, we left there thinking we were crazy, and, after the second evaluatin when they looked at us with raised eyebrows and asked "Why are you back?" was afraid to take her back in case they would turn us in for Munchausen by Proxy.

As it stands now, after chelation, she would only barely meet the criteria for ADD, no more hyperactivity, but she appears to have trouble focusing in large groups where there is a LOT of noise, no problem in small groups. I have even seen her do well in large groups, so don't quite know what we will face when she starts to school. I looked at the ADD checklist and 5 or more, says they should be checked out for ADD, she met 4, maybe 5 critieria, so it is light.

Thinking we will try regular kindergarten, she is in regular preK preschool, with 14 other children, 11 of which are very rowdy boys (she likes them the best ;-) and see what we get. We have more time to chelate and are going to start antiviral treatment also. Then if she has too much trouble we will think of moving her to smaller, more intense schooling.

Trouble with her is this: and I do mean it is trouble, she taught herself to read at 2.5 years, she is now 5.2 years and reading at a 6th grade level. Her math skills are just as advanced. She knows how to tell time, understands fractions and knows her left from her right (something I only really got a couple of years ago). I have seen kids like this in school and it is a problem, believe me, just as much as if they are behind. I have no clue what they are going to do with her. I think we will just sit down with the principal and tell her all; the good and the bad, wish them luck, support them and hope for the best. Any suggestions from anyone appreciated. Anyone ever see a kid like this?? Anyone??

Yes, let me know about future events.

----- Original Message -----

From: rmaher1969@...

Sent: Monday, March 20, 2006 10:53 AM

Subject: Re: [ ]/was: Hello, I'm returning to Ohio with my autisitc son - resource info requested.

,

Summit only started taking ASD kids three years ago, they are still primarily ADD/ADHD school. The Youngstown location was open when was due to start Kindergarten so we put him in there, since then, the Warren Location has opened and I am going to meet with them tomorrow to discuss the possiblity of moving him next year, then he can be bussed, so it will be much more convenient, but we are very anxious about moving him. Right now, Younsgtown has two Autism Units, whereas Warren doesn't. But his IEP says he should be in an Autism Unit, so I don't forsee any problems. The hard part is Younstown has been his home for three years. They are SO accomodating and have a genuine affection for . This past Christmas he participated in the Christmas program and his teachers cried along with us, tears of JOY! In fact, when I called to talk about moving him to Warren, the news spread like wildfire through the school and everyone was very concerned about why we would move him. I worry that I'm being selfish for moving him just for convenience, but if I know , he will surprise all of us and make the transition just fine. it's the rest of us that might not ...lol.

I'll keep you posted about any news with the center, we hope to have a grand opening this summer, something fun for the whole family!

Take care,

----- Original Message -----

From: Cochran

Sent: 3/20/2006 6:38:30 AM

Subject: Re: [ ]/was: Hello, I'm returning to Ohio with my autisitc son - resource info requested.

,

I took nearly 9 months to research the chelation. She was young, only 3, so I knew we had some time, but took a risk waiting.

As far as and the girl dolls, very normal, even as young as 3 or 4 kids start noticing the difference between girls and boys. Yes, they are curious, always, about the opposite sex. At 4, ours was asking us about when she would get breasts, lol. Bothers a lot of parents, but even small children are curious about sex, is normal.

I have heard of the Summit Academy, is that for our kids? Is it in Warren? Does your go there?

Darn, we will be out of town on that day, but would have liked to have come. My practice is small, I cut down a LOT to do the research necessary for her, so don't have any children, so don't want to waste your flyers as I don't have any patients at the time who could benefit.

But sounds like your organization is a great place for the many, many almost new toys she outgrows. I will keep it in mind. And please let us know of future events so we can participate.

We are in a bit of crunch here with my practice and building a new home, so not a lot of time left over.

----- Original Message -----

From: rmaher1969@...

Sent: Sunday, March 19, 2006 8:48 AM

Subject: Re: [ ]/was: Hello, I'm returning to Ohio with my autisitc son - resource info requested.

,

The organization is up and running as far as serving as a resource and support to parents, but the facility with the gym isn't yet. It's coming together , I forgot to mention, we are having an event at Alberini's on April 13th from 7:00-10:00. It's called "Jazz it up for TEAM" It's a night of jazz music and we are selling raffle tix. We will have an info table in the lobby. The facility will be opening in June, I think that once we have an actual location, we will have a much better reception from parents. I am also due to speak at the Summit Academy of Warren at their next Parent Meeting. It'll just be a brief intro to let parents know what we are about. Would you be interested in having some of our flyers in your office? If so, let me know and I'll drop them off to you.

TEAM= Therapeutic Essentials for Autism Management

I know about chelation, we knew about it years ago and were scared to start so we waited , now we fear we have waited too long for maximum benefit, but I drive myself nuts wondering "what could have been?"

The grandaddy of them all is "What if we never vaccinated?"

I'm thrilled with his progress though , He's an awesome kid!

One more short story for you to analyze...lol Yesterday had his Janice and Miss Piggy Muppet dolls and he was looking up their skirts, when he saw me, he quickly threw down the dolls and said "Sorry, sorry!" Does this mean he's becoming curious about girls??? What the hell is that? He's my baby! No GIRLS!!! LOL! It also tells me that it embarrassed him that I saw what he was doing. I didn't scold him or anything, I just asked what he was doing and he said "Nothing," Typical male!

Let me know about the flyers,

----- Original Message -----

From: Cochran

Sent: 3/19/2006 12:12:24 AM

Subject: Re: [ ]/was: Hello, I'm returning to Ohio with my autisitc son - resource info requested.

,

Yes, we also use Cutler's protocol, 14 months now, working very well, ours was at first better on the chelators than off. We are finishing up with just Ala now, plan to chelate until she starts kindergarten, she is now 5.2.

Yes, I agree, and so does Andy that chelation should start as soon as possible. If you wait to get everything right, you waste a lot of time.

Your organization sounds great! Is it up and running now, ?

----- Original Message -----

From: rmaher1969@...

Sent: Saturday, March 18, 2006 10:51 PM

Subject: Re: [ ]/was: Hello, I'm returning to Ohio with my autisitc son - resource info requested.

,

Our organization basically serves as a resource center and support for parents/ siblings/ and children with ASD. We saw so many gaps when we were looking to help our son, so this was born out of our frustration at finding answers through our own research and then realizing that most of the things we needed for our son just weren't available. When we wanted to do chelation, five years ago I found Dr. Piersel in Meadville, he had never chelated a child before and used only intravenous methods. When we aksed him how we were supposed to get a three year old autistic child to sit still for nearly and hour with a needle in his arm, he said that we would have to restrain him. Our son is very big, very strong, and very determined, especially when he is terrified. I saw absolutely NO WAY that it would work! I have basically researched eveything online and found the chelation schedule that we use now online about chelation. Andy Cutler's protocol is actually the one that made the most sense to me, so we cautiously went ahead with doing it. It frustrates me that it seems that the DAN! docs want to use chelation as the last thing after the diet and yeast. It makes sense to me to get the toxins out as soon as possible, the rest is symptomatic of the toxicity.

I am very excited about having a sensory gym. It will work like a YMCA. Families will pay a monthly fee to have access to the gym and can pay extra to see an OT for an hour, kinda like a personal trainer at a gym. The fees will be on a sliding scale and we are putting out flyers for people to "sponsor a child" for families who can't pay. We will have cooking classes for GF/CF (thanks Dr. Vinci for thinking this up!) Sibling support/ parents support/ social group for ASD teens. AND Finally, ABA consulting for families who want to have a home based program. These services just don't exist around here. We have alot of talent leaving our area universities because there's nowhere for them to work. Kent has an ABA certification program, we can tap into that. Families shouldn't have to go bankrupt paying for therapists and consultants to come from Pittsburgh and Cleveland. We have the Rich Center locally, but they can only take so many kids and I think they have a cut off age.

Our son is seven. His name is .

Dr. Vlad is great, when I was little I LOVED him and called him Dr. Glad! We don't see him often, he has a few new docs in his office and they have less of a wait time. If you wanna see Dr. Vlad, you usually wait! I heard he is retiring.

I know of some parents who came to Dr. Vinci's cooking classes that are doing diet, but not biomed with supps and chelation.

Ok, bedtime, have a good night!

----- Original Message -----

From: Cochran

Sent: 3/18/2006 10:09:42 PM

Subject: Re: [ ]/was: Hello, I'm returning to Ohio with my autisitc son - resource info requested.

Yes, in Lordstown/Berlin Center area. Dr. Vlad is a distant relative, didn't know he was still in practice, nice man.

Dan drs stuck like glue to gf/cf thing. Before we did the testing with dr belgrad, I asked her if the test for casein and gluten came back without allergies/peptides would we have to do the diet? And she said YES!!! What the heck? They why bother with the test.

When we tried the diet and she lost language, we told dr belgrad about it and she said that she was not concerned!!! I told her we were logical people who would have to have some kind of reason why losing language was not cause for concern or considered a benign event. We put her back on the milk, no enzymes.

We also used oral ala with dmsa, with great results. Wonderful, your experience at BK. How old is your son?

Do you know of any other moms doing biomed in our area? How did you learn of the low/frequent dosing?

My practice is in Warren, just me. I agree we would make a great pair, as I am neurotic also, don't know of practically anyone who isn't.

Will look forward to maybe getting the brochure, but maybe you could tell me something about the organization? Just what is your purpose and what do you do?

----- Original Message -----

From: rmaher1969@...

Sent: Saturday, March 18, 2006 9:53 PM

Subject: Re: [ ]/was: Hello, I'm returning to Ohio with my autisitc son - resource info requested.

,

I agree, most of the docs aren't as up on all the bio-med as we are...lol. My pediatrician is Dr. Vlad. He was my ped when I was a kid, so he seemed like the natural choice for my boys. We don't do GF/Cf anymore either, we use digestive enzymes with great results. I wonder why no DAN Docs ever recommend them?

We are using oral ALA with oral DMSA 1:1 ratio frequent/low dose. We have seen max results the past two months. Seeing some regression during the "ON" days, but much better all around on the "OFF" days.

I noticed last night we took our son to play at Burger King (a bribe...long story..lol) and he was actually with the other kids interacting, which has been coming about for the past 6 months, but the biggest change, was the kids didn't reject him. None of them seemed to notice anything different! Other kids usually will look at him like he's from Mars, and last night, he was just one of them. It was AWESOME!

BTW, where are you in NE Ohio?

A psychologist huh? That's great, I'm a neurotic, we could have a great friendship!

LOL

----- Original Message -----

From: Cochran

Sent: 3/18/2006 8:36:33 PM

Subject: Re: [ ]/was: Hello, I'm returning to Ohio with my autisitc son - resource info requested.

Well, think you have me confused with the lady moving back to Ohio. We have always been in Ohio. Sorry should have changed the post heading.

We did see dr. Belgrad, but she had just started, that was 1.5 years ago, and, she told us we knew more than she did.

Dr. Khoury is a great woman, I am a psychologist and we have had the same patients over the years, but she is also just starting.

We ended up doing it on our own also. Couldn't find a dr who would take us as she did horribly on the gf/cf diet, lost language and looked absolutely awful. After three weeks we put her back on milk and we chelated anyway with wonderful results.

We contacted Dr. Tenpenny, but as she tested without allergies, did not want to go through her long and expensive allergy testing. By the time Dr. Demio came on the scene we were well under way, although we have used oral Ala, and I understand he is not a fan, so probably would not have been a good fit either.

She has some residual fine motor problems, writing does not come easy, but other than that, she is recovered.

Can I ask who is your ped? We are looking for a new one. Don't apologize for long posts, I love them :-)

TIA,

----- Original Message -----

From: rmaher1969@...

Sent: Saturday, March 18, 2006 8:25 PM

Subject: Re: [ ]/was: Hello, I'm returning to Ohio with my autisitc son - resource info requested.

,

Dr. Findley Belgrad, who we used to see. We are doing it all on our own now. Docs are too $$$!!

May I ask, why are you moving back to the area? Rich Center? Where in New York are you coming from? We used to live in NY and considered moving back for the school tied with Carbone, but hubby can't find work there and we would have to live with my mother-in-law. It just wouldn't work out I'm afraid!

There is also a DAN doc in Cleveland Dr. Demio, and a doc in Meadville PA who is on the DAN board, he does chelation- Dr. Piersel. There may be more, others on this board will know. My ped isn't involved with any of our bio-med treatments for our son, but he listens and seems sympathetic although I don't think he fully understands or believes in what we're doing.

What exactly did you do in New York as a "pioneer" We are in desperate need of more parents like you. I have met very few who are doing bio-med or ABA in this area. Our Organization is called TEAM To Find a Way. Actually, Dr. Vinci-Khoury was one of the original directors, but she was overloaded with other obligations and we didn't get much momentum going, There was also a problem with a conflict of interest. As and organization, we can't tell parents about one specific doctor. She is a wonderful woman and I told her that we will be recommending her to parents as a choice among docs.

Sorry I'm so long winded...

----- Original Message -----

From: Cochran

Sent: 3/18/2006 7:51:15 PM

Subject: Re: [ ]/was: Hello, I'm returning to Ohio with my autisitc son - resource info requested.

Hi ,

I know of Dr. Vinci-Khoury and Dr. , sorry can't remember her last name, who are dan! drs in warren/youngstown. Anybody else? Whom do you see, if I might ask?

----- Original Message -----

From: rmaher1969@...

Sent: Saturday, March 18, 2006 6:37 PM

Subject: RE: [ ] Hello, I'm returning to Ohio with my autisitc son - resource info requested.

Kim,

Welcome back to Ohio. I know of a few DAN! docs locally (warren/youngstown) but, otherwise I don't know of many sympathetic Peds. BTW, are you still feeling pioneerish? We are opening an autism center here in Trumbull County and we will need parent's involvement. Keep in touch and welcome back!

----- Original Message -----

From: ziahsmomma

Sent: 3/18/2006 6:35:27 AM

Subject: [ ] Hello, I'm returning to Ohio with my autisitc son - resource info requested.

I'm always so thankful for great resources. And invested parents are the best ones with the best knowledge. I am returning to Ohio after living in NY for 10 years. I have a precious 6 yr old son Josiah who is Autistic with many other issues. I am so blessed for all of you who have come together in NE Ohio to network and share what you know.I am coming from a tiny town where I had to pioneer every step of the way begining 6 years ago, but where my son received many great support services and most importantly the most AWESOME medical care. Working with a team that did not disregard me but included me and often times followed my lead. Who were clearly western medicine but did not scoff at or reject eastern medicine, herbs, holistic therapies. In fact as Josiah and I pioneered things they were so open that eventually other children were told about things we've tried. I am desperately wanting to find that in Ohio and I am praying that someone out there will write me back with a great reference for another awesome medical team. While Josiah has seen many specialists I am also interested in a great family practice or pediatrician who knows that while educated and intelligent, MOM knows this child best!Were initially coming back to twinsburg while we look for another home. I'd love to connect with some of you. Thanks for taking the tine to read my hello.Have a great weekend. Kim

[Guest guest]

,

Congratulations on all of your hard work!!! My son

taught himself to read at about 2.5-3 years old. He

was and still is unbelievable on the computer. He

loves to research his favorite toys on E-bay! Gosh, I

hope he never gets ahold of my credit card numbers!!!!

Unfortunately, these things delayed our believing

that he was on the spectrum. But----once we figured

it out we tried everything to help him. I still think

that the chelation is a big part and I am continuing

with that. Also---from your other post, Dr. Demeio

charges $465.00 at the first visit. I am not sure

what that includes. We took Charlie to a Metabolic

Neurologist at the Cleve. Clinic last summer and he

ran about $9,000.00 worth of tests (we are still

pending with our insurance)I have posted these results

on the group but no one seems to want

to answer me. I am very worried because some of his

amino acids were really off---i.e. Methionine was a 0!

I have a call into the neuro., but maybe he didn't

know how to interpret them??? Anyways, I think part

of Demeio's fee may be lab tests. I'll let you know

once I go.

Laurie

[Guest guest]

I have two friends who are majorly (is that a word?)

battling with their districts to provide services. On

the outside, the kids look great, but when they are in

a kindergarten class with lots of kids (many of which

are undiagnosed ADHD/Mercury/Autism...)then the

problems start.

Laurie

--- " rmaher1969@... "

<rmaher1969@...> wrote:

> ,

>

> To me, in my opinion, sounds like Asperger's

> Symdrome. What I have heard, is that although these

> kids do well academically, there is trouble

> socially, especially in the teen years (big

> surprise). Much like ADD, because they do well

> academically, teachers don't see a problem and will

> often disregard things like focus and sensory

> issues. Most public school teachers aren't familiar

> with Asperger's and may fault the child for lack of

> class preparation, and label them " lazy " . Also, as

> they get older, they are aware that they may be

> different from others and self esteem plummets.

> then school work can suffer. Lucky for her, she has

> a mom who is a psychologist and is on the ball! If

> you send her to public school, I would be very clear

> with the school from the very beginning that her

> disability is REAL and her sensory needs are real.

> They may not want to give you any services and will

> try to argue that your child has no disablity.

> Believe me, was evalauted by Cleveland Clinic

> Center for Autism and Children's Hospital Autism

> Center, we had independent evals done because we

> KNEW that the school was going to try to tell us

> that was fine. I had one school admin tell me

> that she spent an hour with and she couldn't

> tell that he had autism. I told her, " Funny, most

> three year olds on the playground know that he's

> different within the first ten minutes! " You have a

> bit of an advantage, because of your profession,

> they may be more likely to listen to you. If she is

> so advanced, she may also get bored in school??

>

> Just my opinion, I have lots of them!

>

>

>

>

> ----- Original Message -----

> From: Cochran

>

> Sent: 3/20/2006 11:09:27 AM

> Subject: Re: [ ]/was: Hello, I'm

> returning to Ohio with my autisitc son - resource

> info requested.

>

>

> :

>

> Ours was only ever dx'd with adhd. She had many,

> many more problems than that, verbal apraxia and

> sensory integration, fine and gross motor problems.

>

> However, both times we took her up to Akron

> Children's Hospital for an evaluation, she did

> things we had never seen her do, answered questions

> perfectly, drew a square at 3.5 years. Reminded me

> of the times I have tried to have paranoid

> schizophrenics institutionalized. They come into

> court looking and sounding more sane than anyone

> else there, lol.

>

> Honestly, we left there thinking we were crazy, and,

> after the second evaluatin when they looked at us

> with raised eyebrows and asked " Why are you back? "

> was afraid to take her back in case they would turn

> us in for Munchausen by Proxy.

>

> As it stands now, after chelation, she would only

> barely meet the criteria for ADD, no more

> hyperactivity, but she appears to have trouble

> focusing in large groups where there is a LOT of

> noise, no problem in small groups. I have even seen

> her do well in large groups, so don't quite know

> what we will face when she starts to school. I

> looked at the ADD checklist and 5 or more, says they

> should be checked out for ADD, she met 4, maybe 5

> critieria, so it is light.

>

> Thinking we will try regular kindergarten, she is in

> regular preK preschool, with 14 other children, 11

> of which are very rowdy boys (she likes them the

> best ;-) and see what we get. We have more time to

> chelate and are going to start antiviral treatment

> also. Then if she has too much trouble we will

> think of moving her to smaller, more intense

> schooling.

>

> Trouble with her is this: and I do mean it is

> trouble, she taught herself to read at 2.5 years,

> she is now 5.2 years and reading at a 6th grade

> level. Her math skills are just as advanced. She

> knows how to tell time, understands fractions and

> knows her left from her right (something I only

> really got a couple of years ago). I have seen kids

> like this in school and it is a problem, believe me,

> just as much as if they are behind. I have no clue

> what they are going to do with her. I think we will

> just sit down with the principal and tell her all;

> the good and the bad, wish them luck, support them

> and hope for the best. Any suggestions from anyone

> appreciated. Anyone ever see a kid like this??

> Anyone??

>

> Yes, let me know about future events.

>

>

>

> ----- Original Message -----

> From: rmaher1969@...

>

> Sent: Monday, March 20, 2006 10:53 AM

> Subject: Re: [ ]/was: Hello, I'm

> returning to Ohio with my autisitc son - resource

> info requested.

>

>

> ,

>

> Summit only started taking ASD kids three years

> ago, they are still primarily ADD/ADHD school. The

> Youngstown location was open when was due to

> start Kindergarten so we put him in there, since

> then, the Warren Location has opened and I am going

> to meet with them tomorrow to discuss the possiblity

> of moving him next year, then he can be bussed, so

> it will be much more convenient, but we are very

> anxious about moving him. Right now, Younsgtown has

> two Autism Units, whereas Warren doesn't. But his

> IEP says he should be in an Autism Unit, so I don't

> forsee any problems. The hard part is Younstown has

> been his home for three years. They are SO

> accomodating and have a genuine affection for .

> This past Christmas he participated in the Christmas

> program and his teachers cried along with us, tears

> of JOY! In fact, when I called to talk about moving

> him to Warren, the news spread like wildfire through

> the school and everyone was very concerned about why

> we would move him. I worry that I'm being selfish

> for moving him just for convenience, but if I know

> , he will surprise all of us and make the

> transition just fine. it's the rest of us that

> might not ...lol.

>

> I'll keep you posted about any news with the center,

> we hope to have a grand opening this summer,

> something fun for the whole family!

>

> Take care,

>

>

> ----- Original Message -----

> From: Cochran

>

> Sent: 3/20/2006 6:38:30 AM

> Subject: Re: [ ]/was: Hello, I'm

> returning to Ohio with my autisitc son - resource

> info requested.

>

>

> ,

>

> I took nearly 9 months to research the chelation.

> She was young, only 3, so I knew we had some time,

> but took a risk waiting.

>

> As far as and the girl dolls, very normal, even

> as young as 3 or 4 kids start noticing the

> difference between girls and boys. Yes, they are

> curious, always, about the opposite sex. At 4, ours

> was asking us about when she would get breasts, lol.

> Bothers a lot of parents, but even small children

> are curious about sex, is normal.

>

> I have heard of the Summit Academy, is that for our

> kids? Is it in Warren? Does your go there?

>

> Darn, we will be out of town on that day, but would

> have liked to have come. My practice is small, I cut

> down a LOT to do the research necessary for her, so

> don't have any children, so don't want to waste your

> flyers as I don't have any patients at the time who

> could benefit.

>

> But sounds like your organization is a great place

> for the many, many almost new toys she outgrows. I

> will keep it in mind. And please let us know of

> future events so we can participate.

>

> We are in a bit of crunch here with my practice and

> building a new home, so not a lot of time left over.

>

>

> ----- Original Message -----

> From: rmaher1969@...

>

> Sent: Sunday, March 19, 2006 8:48 AM

> Subject: Re: [ ]/was: Hello, I'm

> returning to Ohio with my autisitc son - resource

> info requested.

>

=== message truncated ===

[Guest guest]

,

May be close to Asperger's but no marked impairment in the use of multiple nonverbal behaviors and no restricted or stereotypical patterns of behaviors, interest and activities.

Believe me, I have read the criteria a million times for all the different disorders. The best I could come up with was Verbal Apraxia, as she had this odd speech pattern early on where she would not say how she was. But she would ask you to ask her how she was, then she could say.

That improved with supplementation. We saw the last of that last summer, when she would do this out of habit, but we just cut it off, wouldn't let her do it, and she stopped it.

No advantage with my degrees, people always think that, but doesn't matter when you sit in front of a school administrator, my 3 degrees in child developmental psychology, mean nothing, you are still just a parent.

Yes, bored in preK, they are learning letters and she knew the letters at 13 months, was working on sounds then, so she will not misbehave, just does her own thing and zones out when they are doing something she has known. She got in trouble for saying all the sight words, then she got in trouble for whispering or trying to help the other kids figure out what the sight words were. We stopped that, don't want her getting in trouble for knowing something, but that is the trouble I spoke of, people never think about the negatives of kids being too advanced. Is really just as hard as when they are having trouble keeping up.

She never met the criteria for Asperger's even before chelation, so really don't know. Socially, early on, at 3, she did have LOTS of trouble. Now, at 5.2, per her preK teacher, says she does not. However she has 11 boys in her class on only 3 girls, prefers playing rough with the boys, so maybe with the girls she would have more issues, will play with the girls, so I don't know.

Making matters worse, despite her advanced academics, emotionally she is very much a 5.2 year old, so not exactly even.

I can't help feeling we are in for some rough school times.

----- Original Message -----

From: rmaher1969@...

Sent: Monday, March 20, 2006 11:31 AM

Subject: Re: [ ]/was: Hello, I'm returning to Ohio with my autisitc son - resource info requested.

,

To me, in my opinion, sounds like Asperger's Symdrome. What I have heard, is that although these kids do well academically, there is trouble socially, especially in the teen years (big surprise). Much like ADD, because they do well academically, teachers don't see a problem and will often disregard things like focus and sensory issues. Most public school teachers aren't familiar with Asperger's and may fault the child for lack of class preparation, and label them "lazy". Also, as they get older, they are aware that they may be different from others and self esteem plummets. then school work can suffer. Lucky for her, she has a mom who is a psychologist and is on the ball! If you send her to public school, I would be very clear with the school from the very beginning that her disability is REAL and her sensory needs are real. They may not want to give you any services and will try to argue that your child has no disablity. Believe me, was evalauted by Cleveland Clinic Center for Autism and Children's Hospital Autism Center, we had independent evals done because we KNEW that the school was going to try to tell us that was fine. I had one school admin tell me that she spent an hour with and she couldn't tell that he had autism. I told her, "Funny, most three year olds on the playground know that he's different within the first ten minutes!" You have a bit of an advantage, because of your profession, they may be more likely to listen to you. If she is so advanced, she may also get bored in school??

Just my opinion, I have lots of them!

----- Original Message -----

From: Cochran

Sent: 3/20/2006 11:09:27 AM

Subject: Re: [ ]/was: Hello, I'm returning to Ohio with my autisitc son - resource info requested.

:

Ours was only ever dx'd with adhd. She had many, many more problems than that, verbal apraxia and sensory integration, fine and gross motor problems.

However, both times we took her up to Akron Children's Hospital for an evaluation, she did things we had never seen her do, answered questions perfectly, drew a square at 3.5 years. Reminded me of the times I have tried to have paranoid schizophrenics institutionalized. They come into court looking and sounding more sane than anyone else there, lol.

Honestly, we left there thinking we were crazy, and, after the second evaluatin when they looked at us with raised eyebrows and asked "Why are you back?" was afraid to take her back in case they would turn us in for Munchausen by Proxy.

As it stands now, after chelation, she would only barely meet the criteria for ADD, no more hyperactivity, but she appears to have trouble focusing in large groups where there is a LOT of noise, no problem in small groups. I have even seen her do well in large groups, so don't quite know what we will face when she starts to school. I looked at the ADD checklist and 5 or more, says they should be checked out for ADD, she met 4, maybe 5 critieria, so it is light.

Thinking we will try regular kindergarten, she is in regular preK preschool, with 14 other children, 11 of which are very rowdy boys (she likes them the best ;-) and see what we get. We have more time to chelate and are going to start antiviral treatment also. Then if she has too much trouble we will think of moving her to smaller, more intense schooling.

Trouble with her is this: and I do mean it is trouble, she taught herself to read at 2.5 years, she is now 5.2 years and reading at a 6th grade level. Her math skills are just as advanced. She knows how to tell time, understands fractions and knows her left from her right (something I only really got a couple of years ago). I have seen kids like this in school and it is a problem, believe me, just as much as if they are behind. I have no clue what they are going to do with her. I think we will just sit down with the principal and tell her all; the good and the bad, wish them luck, support them and hope for the best. Any suggestions from anyone appreciated. Anyone ever see a kid like this?? Anyone??

Yes, let me know about future events.

----- Original Message -----

From: rmaher1969@...

Sent: Monday, March 20, 2006 10:53 AM

Subject: Re: [ ]/was: Hello, I'm returning to Ohio with my autisitc son - resource info requested.

,

Summit only started taking ASD kids three years ago, they are still primarily ADD/ADHD school. The Youngstown location was open when was due to start Kindergarten so we put him in there, since then, the Warren Location has opened and I am going to meet with them tomorrow to discuss the possiblity of moving him next year, then he can be bussed, so it will be much more convenient, but we are very anxious about moving him. Right now, Younsgtown has two Autism Units, whereas Warren doesn't. But his IEP says he should be in an Autism Unit, so I don't forsee any problems. The hard part is Younstown has been his home for three years. They are SO accomodating and have a genuine affection for . This past Christmas he participated in the Christmas program and his teachers cried along with us, tears of JOY! In fact, when I called to talk about moving him to Warren, the news spread like wildfire through the school and everyone was very concerned about why we would move him. I worry that I'm being selfish for moving him just for convenience, but if I know , he will surprise all of us and make the transition just fine. it's the rest of us that might not ...lol.

I'll keep you posted about any news with the center, we hope to have a grand opening this summer, something fun for the whole family!

Take care,

----- Original Message -----

From: Cochran

Sent: 3/20/2006 6:38:30 AM

Subject: Re: [ ]/was: Hello, I'm returning to Ohio with my autisitc son - resource info requested.

,

I took nearly 9 months to research the chelation. She was young, only 3, so I knew we had some time, but took a risk waiting.

As far as and the girl dolls, very normal, even as young as 3 or 4 kids start noticing the difference between girls and boys. Yes, they are curious, always, about the opposite sex. At 4, ours was asking us about when she would get breasts, lol. Bothers a lot of parents, but even small children are curious about sex, is normal.

I have heard of the Summit Academy, is that for our kids? Is it in Warren? Does your go there?

Darn, we will be out of town on that day, but would have liked to have come. My practice is small, I cut down a LOT to do the research necessary for her, so don't have any children, so don't want to waste your flyers as I don't have any patients at the time who could benefit.

But sounds like your organization is a great place for the many, many almost new toys she outgrows. I will keep it in mind. And please let us know of future events so we can participate.

We are in a bit of crunch here with my practice and building a new home, so not a lot of time left over.

----- Original Message -----

From: rmaher1969@...

Sent: Sunday, March 19, 2006 8:48 AM

Subject: Re: [ ]/was: Hello, I'm returning to Ohio with my autisitc son - resource info requested.

,

The organization is up and running as far as serving as a resource and support to parents, but the facility with the gym isn't yet. It's coming together , I forgot to mention, we are having an event at Alberini's on April 13th from 7:00-10:00. It's called "Jazz it up for TEAM" It's a night of jazz music and we are selling raffle tix. We will have an info table in the lobby. The facility will be opening in June, I think that once we have an actual location, we will have a much better reception from parents. I am also due to speak at the Summit Academy of Warren at their next Parent Meeting. It'll just be a brief intro to let parents know what we are about. Would you be interested in having some of our flyers in your office? If so, let me know and I'll drop them off to you.

TEAM= Therapeutic Essentials for Autism Management

I know about chelation, we knew about it years ago and were scared to start so we waited , now we fear we have waited too long for maximum benefit, but I drive myself nuts wondering "what could have been?"

The grandaddy of them all is "What if we never vaccinated?"

I'm thrilled with his progress though , He's an awesome kid!

One more short story for you to analyze...lol Yesterday had his Janice and Miss Piggy Muppet dolls and he was looking up their skirts, when he saw me, he quickly threw down the dolls and said "Sorry, sorry!" Does this mean he's becoming curious about girls??? What the hell is that? He's my baby! No GIRLS!!! LOL! It also tells me that it embarrassed him that I saw what he was doing. I didn't scold him or anything, I just asked what he was doing and he said "Nothing," Typical male!

Let me know about the flyers,

----- Original Message -----

From: Cochran

Sent: 3/19/2006 12:12:24 AM

Subject: Re: [ ]/was: Hello, I'm returning to Ohio with my autisitc son - resource info requested.

,

Yes, we also use Cutler's protocol, 14 months now, working very well, ours was at first better on the chelators than off. We are finishing up with just Ala now, plan to chelate until she starts kindergarten, she is now 5.2.

Yes, I agree, and so does Andy that chelation should start as soon as possible. If you wait to get everything right, you waste a lot of time.

Your organization sounds great! Is it up and running now, ?

----- Original Message -----

From: rmaher1969@...

Sent: Saturday, March 18, 2006 10:51 PM

Subject: Re: [ ]/was: Hello, I'm returning to Ohio with my autisitc son - resource info requested.

,

Our organization basically serves as a resource center and support for parents/ siblings/ and children with ASD. We saw so many gaps when we were looking to help our son, so this was born out of our frustration at finding answers through our own research and then realizing that most of the things we needed for our son just weren't available. When we wanted to do chelation, five years ago I found Dr. Piersel in Meadville, he had never chelated a child before and used only intravenous methods. When we aksed him how we were supposed to get a three year old autistic child to sit still for nearly and hour with a needle in his arm, he said that we would have to restrain him. Our son is very big, very strong, and very determined, especially when he is terrified. I saw absolutely NO WAY that it would work! I have basically researched eveything online and found the chelation schedule that we use now online about chelation. Andy Cutler's protocol is actually the one that made the most sense to me, so we cautiously went ahead with doing it. It frustrates me that it seems that the DAN! docs want to use chelation as the last thing after the diet and yeast. It makes sense to me to get the toxins out as soon as possible, the rest is symptomatic of the toxicity.

I am very excited about having a sensory gym. It will work like a YMCA. Families will pay a monthly fee to have access to the gym and can pay extra to see an OT for an hour, kinda like a personal trainer at a gym. The fees will be on a sliding scale and we are putting out flyers for people to "sponsor a child" for families who can't pay. We will have cooking classes for GF/CF (thanks Dr. Vinci for thinking this up!) Sibling support/ parents support/ social group for ASD teens. AND Finally, ABA consulting for families who want to have a home based program. These services just don't exist around here. We have alot of talent leaving our area universities because there's nowhere for them to work. Kent has an ABA certification program, we can tap into that. Families shouldn't have to go bankrupt paying for therapists and consultants to come from Pittsburgh and Cleveland. We have the Rich Center locally, but they can only take so many kids and I think they have a cut off age.

Our son is seven. His name is .

Dr. Vlad is great, when I was little I LOVED him and called him Dr. Glad! We don't see him often, he has a few new docs in his office and they have less of a wait time. If you wanna see Dr. Vlad, you usually wait! I heard he is retiring.

I know of some parents who came to Dr. Vinci's cooking classes that are doing diet, but not biomed with supps and chelation.

Ok, bedtime, have a good night!

----- Original Message -----

From: Cochran

Sent: 3/18/2006 10:09:42 PM

Subject: Re: [ ]/was: Hello, I'm returning to Ohio with my autisitc son - resource info requested.

Yes, in Lordstown/Berlin Center area. Dr. Vlad is a distant relative, didn't know he was still in practice, nice man.

Dan drs stuck like glue to gf/cf thing. Before we did the testing with dr belgrad, I asked her if the test for casein and gluten came back without allergies/peptides would we have to do the diet? And she said YES!!! What the heck? They why bother with the test.

When we tried the diet and she lost language, we told dr belgrad about it and she said that she was not concerned!!! I told her we were logical people who would have to have some kind of reason why losing language was not cause for concern or considered a benign event. We put her back on the milk, no enzymes.

We also used oral ala with dmsa, with great results. Wonderful, your experience at BK. How old is your son?

Do you know of any other moms doing biomed in our area? How did you learn of the low/frequent dosing?

My practice is in Warren, just me. I agree we would make a great pair, as I am neurotic also, don't know of practically anyone who isn't.

Will look forward to maybe getting the brochure, but maybe you could tell me something about the organization? Just what is your purpose and what do you do?

----- Original Message -----

From: rmaher1969@...

Sent: Saturday, March 18, 2006 9:53 PM

Subject: Re: [ ]/was: Hello, I'm returning to Ohio with my autisitc son - resource info requested.

,

I agree, most of the docs aren't as up on all the bio-med as we are...lol. My pediatrician is Dr. Vlad. He was my ped when I was a kid, so he seemed like the natural choice for my boys. We don't do GF/Cf anymore either, we use digestive enzymes with great results. I wonder why no DAN Docs ever recommend them?

We are using oral ALA with oral DMSA 1:1 ratio frequent/low dose. We have seen max results the past two months. Seeing some regression during the "ON" days, but much better all around on the "OFF" days.

I noticed last night we took our son to play at Burger King (a bribe...long story..lol) and he was actually with the other kids interacting, which has been coming about for the past 6 months, but the biggest change, was the kids didn't reject him. None of them seemed to notice anything different! Other kids usually will look at him like he's from Mars, and last night, he was just one of them. It was AWESOME!

BTW, where are you in NE Ohio?

A psychologist huh? That's great, I'm a neurotic, we could have a great friendship!

LOL

----- Original Message -----

From: Cochran

Sent: 3/18/2006 8:36:33 PM

Subject: Re: [ ]/was: Hello, I'm returning to Ohio with my autisitc son - resource info requested.

Well, think you have me confused with the lady moving back to Ohio. We have always been in Ohio. Sorry should have changed the post heading.

We did see dr. Belgrad, but she had just started, that was 1.5 years ago, and, she told us we knew more than she did.

Dr. Khoury is a great woman, I am a psychologist and we have had the same patients over the years, but she is also just starting.

We ended up doing it on our own also. Couldn't find a dr who would take us as she did horribly on the gf/cf diet, lost language and looked absolutely awful. After three weeks we put her back on milk and we chelated anyway with wonderful results.

We contacted Dr. Tenpenny, but as she tested without allergies, did not want to go through her long and expensive allergy testing. By the time Dr. Demio came on the scene we were well under way, although we have used oral Ala, and I understand he is not a fan, so probably would not have been a good fit either.

She has some residual fine motor problems, writing does not come easy, but other than that, she is recovered.

Can I ask who is your ped? We are looking for a new one. Don't apologize for long posts, I love them :-)

TIA,

----- Original Message -----

From: rmaher1969@...

Sent: Saturday, March 18, 2006 8:25 PM

Subject: Re: [ ]/was: Hello, I'm returning to Ohio with my autisitc son - resource info requested.

,

Dr. Findley Belgrad, who we used to see. We are doing it all on our own now. Docs are too $$$!!

May I ask, why are you moving back to the area? Rich Center? Where in New York are you coming from? We used to live in NY and considered moving back for the school tied with Carbone, but hubby can't find work there and we would have to live with my mother-in-law. It just wouldn't work out I'm afraid!

There is also a DAN doc in Cleveland Dr. Demio, and a doc in Meadville PA who is on the DAN board, he does chelation- Dr. Piersel. There may be more, others on this board will know. My ped isn't involved with any of our bio-med treatments for our son, but he listens and seems sympathetic although I don't think he fully understands or believes in what we're doing.

What exactly did you do in New York as a "pioneer" We are in desperate need of more parents like you. I have met very few who are doing bio-med or ABA in this area. Our Organization is called TEAM To Find a Way. Actually, Dr. Vinci-Khoury was one of the original directors, but she was overloaded with other obligations and we didn't get much momentum going, There was also a problem with a conflict of interest. As and organization, we can't tell parents about one specific doctor. She is a wonderful woman and I told her that we will be recommending her to parents as a choice among docs.

Sorry I'm so long winded...

----- Original Message -----

From: Cochran

Sent: 3/18/2006 7:51:15 PM

Subject: Re: [ ]/was: Hello, I'm returning to Ohio with my autisitc son - resource info requested.

Hi ,

I know of Dr. Vinci-Khoury and Dr. , sorry can't remember her last name, who are dan! drs in warren/youngstown. Anybody else? Whom do you see, if I might ask?

----- Original Message -----

From: rmaher1969@...

Sent: Saturday, March 18, 2006 6:37 PM

Subject: RE: [ ] Hello, I'm returning to Ohio with my autisitc son - resource info requested.

Kim,

Welcome back to Ohio. I know of a few DAN! docs locally (warren/youngstown) but, otherwise I don't know of many sympathetic Peds. BTW, are you still feeling pioneerish? We are opening an autism center here in Trumbull County and we will need parent's involvement. Keep in touch and welcome back!

----- Original Message -----

From: ziahsmomma

Sent: 3/18/2006 6:35:27 AM

Subject: [ ] Hello, I'm returning to Ohio with my autisitc son - resource info requested.

I'm always so thankful for great resources. And invested parents are the best ones with the best knowledge. I am returning to Ohio after living in NY for 10 years. I have a precious 6 yr old son Josiah who is Autistic with many other issues. I am so blessed for all of you who have come together in NE Ohio to network and share what you know.I am coming from a tiny town where I had to pioneer every step of the way begining 6 years ago, but where my son received many great support services and most importantly the most AWESOME medical care. Working with a team that did not disregard me but included me and often times followed my lead. Who were clearly western medicine but did not scoff at or reject eastern medicine, herbs, holistic therapies. In fact as Josiah and I pioneered things they were so open that eventually other children were told about things we've tried. I am desperately wanting to find that in Ohio and I am praying that someone out there will write me back with a great reference for another awesome medical team. While Josiah has seen many specialists I am also interested in a great family practice or pediatrician who knows that while educated and intelligent, MOM knows this child best!Were initially coming back to twinsburg while we look for another home. I'd love to connect with some of you. Thanks for taking the tine to read my hello.Have a great weekend. Kim

[Guest guest]

,

<<Verbal Apraxia, as she had this odd speech pattern early on where she would not say how she was. But she would ask you to ask her how she was, then she could say.>>

does this as well. He prompts me on what to ask him, it happens frequently when he is scripting. Thankfully we are all very well versed in Sesame Street videos so that we can participate. It has become less intense and if we refuse to play along he doesn't melt down. He is also morphing it into some imaginary play. He will now substitute other phrases with different toys. I think it's his way of practicing langauge while staying within his comfort zone(Sesame Street). This seems to have been his pattern. he has his stim, then it morphs slowly with sprinkles of more appropriate behavior until he "gets it" .

BTW, what about Dr Malick at Children's hospital in Columbus for evals? Our insurance covered the evals and it was a very comprehensive eval.

----- Original Message -----

From: Cochran

Sent: 3/20/2006 12:44:13 PM

Subject: Re: [ ]/was: Hello, I'm returning to Ohio with my autisitc son - resource info requested.

,

May be close to Asperger's but no marked impairment in the use of multiple nonverbal behaviors and no restricted or stereotypical patterns of behaviors, interest and activities.

Believe me, I have read the criteria a million times for all the different disorders. The best I could come up with was Verbal Apraxia, as she had this odd speech pattern early on where she would not say how she was. But she would ask you to ask her how she was, then she could say.

That improved with supplementation. We saw the last of that last summer, when she would do this out of habit, but we just cut it off, wouldn't let her do it, and she stopped it.

No advantage with my degrees, people always think that, but doesn't matter when you sit in front of a school administrator, my 3 degrees in child developmental psychology, mean nothing, you are still just a parent.

Yes, bored in preK, they are learning letters and she knew the letters at 13 months, was working on sounds then, so she will not misbehave, just does her own thing and zones out when they are doing something she has known. She got in trouble for saying all the sight words, then she got in trouble for whispering or trying to help the other kids figure out what the sight words were. We stopped that, don't want her getting in trouble for knowing something, but that is the trouble I spoke of, people never think about the negatives of kids being too advanced. Is really just as hard as when they are having trouble keeping up.

She never met the criteria for Asperger's even before chelation, so really don't know. Socially, early on, at 3, she did have LOTS of trouble. Now, at 5.2, per her preK teacher, says she does not. However she has 11 boys in her class on only 3 girls, prefers playing rough with the boys, so maybe with the girls she would have more issues, will play with the girls, so I don't know.

Making matters worse, despite her advanced academics, emotionally she is very much a 5.2 year old, so not exactly even.

I can't help feeling we are in for some rough school times.

----- Original Message -----

From: rmaher1969@...

Sent: Monday, March 20, 2006 11:31 AM

Subject: Re: [ ]/was: Hello, I'm returning to Ohio with my autisitc son - resource info requested.

,

To me, in my opinion, sounds like Asperger's Symdrome. What I have heard, is that although these kids do well academically, there is trouble socially, especially in the teen years (big surprise). Much like ADD, because they do well academically, teachers don't see a problem and will often disregard things like focus and sensory issues. Most public school teachers aren't familiar with Asperger's and may fault the child for lack of class preparation, and label them "lazy". Also, as they get older, they are aware that they may be different from others and self esteem plummets. then school work can suffer. Lucky for her, she has a mom who is a psychologist and is on the ball! If you send her to public school, I would be very clear with the school from the very beginning that her disability is REAL and her sensory needs are real. They may not want to give you any services and will try to argue that your child has no disablity. Believe me, was evalauted by Cleveland Clinic Center for Autism and Children's Hospital Autism Center, we had independent evals done because we KNEW that the school was going to try to tell us that was fine. I had one school admin tell me that she spent an hour with and she couldn't tell that he had autism. I told her, "Funny, most three year olds on the playground know that he's different within the first ten minutes!" You have a bit of an advantage, because of your profession, they may be more likely to listen to you. If she is so advanced, she may also get bored in school??

Just my opinion, I have lots of them!

----- Original Message -----

From: Cochran

Sent: 3/20/2006 11:09:27 AM

Subject: Re: [ ]/was: Hello, I'm returning to Ohio with my autisitc son - resource info requested.

:

Ours was only ever dx'd with adhd. She had many, many more problems than that, verbal apraxia and sensory integration, fine and gross motor problems.

However, both times we took her up to Akron Children's Hospital for an evaluation, she did things we had never seen her do, answered questions perfectly, drew a square at 3.5 years. Reminded me of the times I have tried to have paranoid schizophrenics institutionalized. They come into court looking and sounding more sane than anyone else there, lol.

Honestly, we left there thinking we were crazy, and, after the second evaluatin when they looked at us with raised eyebrows and asked "Why are you back?" was afraid to take her back in case they would turn us in for Munchausen by Proxy.

As it stands now, after chelation, she would only barely meet the criteria for ADD, no more hyperactivity, but she appears to have trouble focusing in large groups where there is a LOT of noise, no problem in small groups. I have even seen her do well in large groups, so don't quite know what we will face when she starts to school. I looked at the ADD checklist and 5 or more, says they should be checked out for ADD, she met 4, maybe 5 critieria, so it is light.

Thinking we will try regular kindergarten, she is in regular preK preschool, with 14 other children, 11 of which are very rowdy boys (she likes them the best ;-) and see what we get. We have more time to chelate and are going to start antiviral treatment also. Then if she has too much trouble we will think of moving her to smaller, more intense schooling.

Trouble with her is this: and I do mean it is trouble, she taught herself to read at 2.5 years, she is now 5.2 years and reading at a 6th grade level. Her math skills are just as advanced. She knows how to tell time, understands fractions and knows her left from her right (something I only really got a couple of years ago). I have seen kids like this in school and it is a problem, believe me, just as much as if they are behind. I have no clue what they are going to do with her. I think we will just sit down with the principal and tell her all; the good and the bad, wish them luck, support them and hope for the best. Any suggestions from anyone appreciated. Anyone ever see a kid like this?? Anyone??

Yes, let me know about future events.

----- Original Message -----

From: rmaher1969@...

Sent: Monday, March 20, 2006 10:53 AM

Subject: Re: [ ]/was: Hello, I'm returning to Ohio with my autisitc son - resource info requested.

,

Summit only started taking ASD kids three years ago, they are still primarily ADD/ADHD school. The Youngstown location was open when was due to start Kindergarten so we put him in there, since then, the Warren Location has opened and I am going to meet with them tomorrow to discuss the possiblity of moving him next year, then he can be bussed, so it will be much more convenient, but we are very anxious about moving him. Right now, Younsgtown has two Autism Units, whereas Warren doesn't. But his IEP says he should be in an Autism Unit, so I don't forsee any problems. The hard part is Younstown has been his home for three years. They are SO accomodating and have a genuine affection for . This past Christmas he participated in the Christmas program and his teachers cried along with us, tears of JOY! In fact, when I called to talk about moving him to Warren, the news spread like wildfire through the school and everyone was very concerned about why we would move him. I worry that I'm being selfish for moving him just for convenience, but if I know , he will surprise all of us and make the transition just fine. it's the rest of us that might not ...lol.

I'll keep you posted about any news with the center, we hope to have a grand opening this summer, something fun for the whole family!

Take care,

----- Original Message -----

From: Cochran

Sent: 3/20/2006 6:38:30 AM

Subject: Re: [ ]/was: Hello, I'm returning to Ohio with my autisitc son - resource info requested.

,

I took nearly 9 months to research the chelation. She was young, only 3, so I knew we had some time, but took a risk waiting.

As far as and the girl dolls, very normal, even as young as 3 or 4 kids start noticing the difference between girls and boys. Yes, they are curious, always, about the opposite sex. At 4, ours was asking us about when she would get breasts, lol. Bothers a lot of parents, but even small children are curious about sex, is normal.

I have heard of the Summit Academy, is that for our kids? Is it in Warren? Does your go there?

Darn, we will be out of town on that day, but would have liked to have come. My practice is small, I cut down a LOT to do the research necessary for her, so don't have any children, so don't want to waste your flyers as I don't have any patients at the time who could benefit.

But sounds like your organization is a great place for the many, many almost new toys she outgrows. I will keep it in mind. And please let us know of future events so we can participate.

We are in a bit of crunch here with my practice and building a new home, so not a lot of time left over.

----- Original Message -----

From: rmaher1969@...

Sent: Sunday, March 19, 2006 8:48 AM

Subject: Re: [ ]/was: Hello, I'm returning to Ohio with my autisitc son - resource info requested.

,

The organization is up and running as far as serving as a resource and support to parents, but the facility with the gym isn't yet. It's coming together , I forgot to mention, we are having an event at Alberini's on April 13th from 7:00-10:00. It's called "Jazz it up for TEAM" It's a night of jazz music and we are selling raffle tix. We will have an info table in the lobby. The facility will be opening in June, I think that once we have an actual location, we will have a much better reception from parents. I am also due to speak at the Summit Academy of Warren at their next Parent Meeting. It'll just be a brief intro to let parents know what we are about. Would you be interested in having some of our flyers in your office? If so, let me know and I'll drop them off to you.

TEAM= Therapeutic Essentials for Autism Management

I know about chelation, we knew about it years ago and were scared to start so we waited , now we fear we have waited too long for maximum benefit, but I drive myself nuts wondering "what could have been?"

The grandaddy of them all is "What if we never vaccinated?"

I'm thrilled with his progress though , He's an awesome kid!

One more short story for you to analyze...lol Yesterday had his Janice and Miss Piggy Muppet dolls and he was looking up their skirts, when he saw me, he quickly threw down the dolls and said "Sorry, sorry!" Does this mean he's becoming curious about girls??? What the hell is that? He's my baby! No GIRLS!!! LOL! It also tells me that it embarrassed him that I saw what he was doing. I didn't scold him or anything, I just asked what he was doing and he said "Nothing," Typical male!

Let me know about the flyers,

----- Original Message -----

From: Cochran

Sent: 3/19/2006 12:12:24 AM

Subject: Re: [ ]/was: Hello, I'm returning to Ohio with my autisitc son - resource info requested.

,

Yes, we also use Cutler's protocol, 14 months now, working very well, ours was at first better on the chelators than off. We are finishing up with just Ala now, plan to chelate until she starts kindergarten, she is now 5.2.

Yes, I agree, and so does Andy that chelation should start as soon as possible. If you wait to get everything right, you waste a lot of time.

Your organization sounds great! Is it up and running now, ?

----- Original Message -----

From: rmaher1969@...

Sent: Saturday, March 18, 2006 10:51 PM

Subject: Re: [ ]/was: Hello, I'm returning to Ohio with my autisitc son - resource info requested.

,

Our organization basically serves as a resource center and support for parents/ siblings/ and children with ASD. We saw so many gaps when we were looking to help our son, so this was born out of our frustration at finding answers through our own research and then realizing that most of the things we needed for our son just weren't available. When we wanted to do chelation, five years ago I found Dr. Piersel in Meadville, he had never chelated a child before and used only intravenous methods. When we aksed him how we were supposed to get a three year old autistic child to sit still for nearly and hour with a needle in his arm, he said that we would have to restrain him. Our son is very big, very strong, and very determined, especially when he is terrified. I saw absolutely NO WAY that it would work! I have basically researched eveything online and found the chelation schedule that we use now online about chelation. Andy Cutler's protocol is actually the one that made the most sense to me, so we cautiously went ahead with doing it. It frustrates me that it seems that the DAN! docs want to use chelation as the last thing after the diet and yeast. It makes sense to me to get the toxins out as soon as possible, the rest is symptomatic of the toxicity.

I am very excited about having a sensory gym. It will work like a YMCA. Families will pay a monthly fee to have access to the gym and can pay extra to see an OT for an hour, kinda like a personal trainer at a gym. The fees will be on a sliding scale and we are putting out flyers for people to "sponsor a child" for families who can't pay. We will have cooking classes for GF/CF (thanks Dr. Vinci for thinking this up!) Sibling support/ parents support/ social group for ASD teens. AND Finally, ABA consulting for families who want to have a home based program. These services just don't exist around here. We have alot of talent leaving our area universities because there's nowhere for them to work. Kent has an ABA certification program, we can tap into that. Families shouldn't have to go bankrupt paying for therapists and consultants to come from Pittsburgh and Cleveland. We have the Rich Center locally, but they can only take so many kids and I think they have a cut off age.

Our son is seven. His name is .

Dr. Vlad is great, when I was little I LOVED him and called him Dr. Glad! We don't see him often, he has a few new docs in his office and they have less of a wait time. If you wanna see Dr. Vlad, you usually wait! I heard he is retiring.

I know of some parents who came to Dr. Vinci's cooking classes that are doing diet, but not biomed with supps and chelation.

Ok, bedtime, have a good night!

----- Original Message -----

From: Cochran

Sent: 3/18/2006 10:09:42 PM

Subject: Re: [ ]/was: Hello, I'm returning to Ohio with my autisitc son - resource info requested.

Yes, in Lordstown/Berlin Center area. Dr. Vlad is a distant relative, didn't know he was still in practice, nice man.

Dan drs stuck like glue to gf/cf thing. Before we did the testing with dr belgrad, I asked her if the test for casein and gluten came back without allergies/peptides would we have to do the diet? And she said YES!!! What the heck? They why bother with the test.

When we tried the diet and she lost language, we told dr belgrad about it and she said that she was not concerned!!! I told her we were logical people who would have to have some kind of reason why losing language was not cause for concern or considered a benign event. We put her back on the milk, no enzymes.

We also used oral ala with dmsa, with great results. Wonderful, your experience at BK. How old is your son?

Do you know of any other moms doing biomed in our area? How did you learn of the low/frequent dosing?

My practice is in Warren, just me. I agree we would make a great pair, as I am neurotic also, don't know of practically anyone who isn't.

Will look forward to maybe getting the brochure, but maybe you could tell me something about the organization? Just what is your purpose and what do you do?

----- Original Message -----

From: rmaher1969@...

Sent: Saturday, March 18, 2006 9:53 PM

Subject: Re: [ ]/was: Hello, I'm returning to Ohio with my autisitc son - resource info requested.

,

I agree, most of the docs aren't as up on all the bio-med as we are...lol. My pediatrician is Dr. Vlad. He was my ped when I was a kid, so he seemed like the natural choice for my boys. We don't do GF/Cf anymore either, we use digestive enzymes with great results. I wonder why no DAN Docs ever recommend them?

We are using oral ALA with oral DMSA 1:1 ratio frequent/low dose. We have seen max results the past two months. Seeing some regression during the "ON" days, but much better all around on the "OFF" days.

I noticed last night we took our son to play at Burger King (a bribe...long story..lol) and he was actually with the other kids interacting, which has been coming about for the past 6 months, but the biggest change, was the kids didn't reject him. None of them seemed to notice anything different! Other kids usually will look at him like he's from Mars, and last night, he was just one of them. It was AWESOME!

BTW, where are you in NE Ohio?

A psychologist huh? That's great, I'm a neurotic, we could have a great friendship!

LOL

----- Original Message -----

From: Cochran

Sent: 3/18/2006 8:36:33 PM

Subject: Re: [ ]/was: Hello, I'm returning to Ohio with my autisitc son - resource info requested.

Well, think you have me confused with the lady moving back to Ohio. We have always been in Ohio. Sorry should have changed the post heading.

We did see dr. Belgrad, but she had just started, that was 1.5 years ago, and, she told us we knew more than she did.

Dr. Khoury is a great woman, I am a psychologist and we have had the same patients over the years, but she is also just starting.

We ended up doing it on our own also. Couldn't find a dr who would take us as she did horribly on the gf/cf diet, lost language and looked absolutely awful. After three weeks we put her back on milk and we chelated anyway with wonderful results.

We contacted Dr. Tenpenny, but as she tested without allergies, did not want to go through her long and expensive allergy testing. By the time Dr. Demio came on the scene we were well under way, although we have used oral Ala, and I understand he is not a fan, so probably would not have been a good fit either.

She has some residual fine motor problems, writing does not come easy, but other than that, she is recovered.

Can I ask who is your ped? We are looking for a new one. Don't apologize for long posts, I love them :-)

TIA,

----- Original Message -----

From: rmaher1969@...

Sent: Saturday, March 18, 2006 8:25 PM

Subject: Re: [ ]/was: Hello, I'm returning to Ohio with my autisitc son - resource info requested.

,

Dr. Findley Belgrad, who we used to see. We are doing it all on our own now. Docs are too $$$!!

May I ask, why are you moving back to the area? Rich Center? Where in New York are you coming from? We used to live in NY and considered moving back for the school tied with Carbone, but hubby can't find work there and we would have to live with my mother-in-law. It just wouldn't work out I'm afraid!

There is also a DAN doc in Cleveland Dr. Demio, and a doc in Meadville PA who is on the DAN board, he does chelation- Dr. Piersel. There may be more, others on this board will know. My ped isn't involved with any of our bio-med treatments for our son, but he listens and seems sympathetic although I don't think he fully understands or believes in what we're doing.

What exactly did you do in New York as a "pioneer" We are in desperate need of more parents like you. I have met very few who are doing bio-med or ABA in this area. Our Organization is called TEAM To Find a Way. Actually, Dr. Vinci-Khoury was one of the original directors, but she was overloaded with other obligations and we didn't get much momentum going, There was also a problem with a conflict of interest. As and organization, we can't tell parents about one specific doctor. She is a wonderful woman and I told her that we will be recommending her to parents as a choice among docs.

Sorry I'm so long winded...

----- Original Message -----

From: Cochran

Sent: 3/18/2006 7:51:15 PM

Subject: Re: [ ]/was: Hello, I'm returning to Ohio with my autisitc son - resource info requested.

Hi ,

I know of Dr. Vinci-Khoury and Dr. , sorry can't remember her last name, who are dan! drs in warren/youngstown. Anybody else? Whom do you see, if I might ask?

----- Original Message -----

From: rmaher1969@...

Sent: Saturday, March 18, 2006 6:37 PM

Subject: RE: [ ] Hello, I'm returning to Ohio with my autisitc son - resource info requested.

Kim,

Welcome back to Ohio. I know of a few DAN! docs locally (warren/youngstown) but, otherwise I don't know of many sympathetic Peds. BTW, are you still feeling pioneerish? We are opening an autism center here in Trumbull County and we will need parent's involvement. Keep in touch and welcome back!

----- Original Message -----

From: ziahsmomma

Sent: 3/18/2006 6:35:27 AM

Subject: [ ] Hello, I'm returning to Ohio with my autisitc son - resource info requested.

I'm always so thankful for great resources. And invested parents are the best ones with the best knowledge. I am returning to Ohio after living in NY for 10 years. I have a precious 6 yr old son Josiah who is Autistic with many other issues. I am so blessed for all of you who have come together in NE Ohio to network and share what you know.I am coming from a tiny town where I had to pioneer every step of the way begining 6 years ago, but where my son received many great support services and most importantly the most AWESOME medical care. Working with a team that did not disregard me but included me and often times followed my lead. Who were clearly western medicine but did not scoff at or reject eastern medicine, herbs, holistic therapies. In fact as Josiah and I pioneered things they were so open that eventually other children were told about things we've tried. I am desperately wanting to find that in Ohio and I am praying that someone out there will write me back with a great reference for another awesome medical team. While Josiah has seen many specialists I am also interested in a great family practice or pediatrician who knows that while educated and intelligent, MOM knows this child best!Were initially coming back to twinsburg while we look for another home. I'd love to connect with some of you. Thanks for taking the tine to read my hello.Have a great weekend. Kim