Guest guest Posted December 10, 2006 Report Share Posted December 10, 2006 Hi all, I just thought I'd share how my specialist appointment went last Tuesday. I tried posting this the day after but only half of it was posted for some reason. Hopefully this one doesn't get modified prior to being accepted for posting. Everything I managed to dig up and figure out from my CT scan report was fairly accurate. I'm scheduled for a CWU tympanomastoidectomy for Jan 5th - which is incredible considering the waiting time for most people around here (northern Alberta, Canada). Actually, they had to 'bump' me in just to get me in ASAP. Which means, someone else's appointment was rescheduled to probably March or April ... not sure how I feel about that. However, something that the ENT has planned has me concerned. According to the ENT he is going to eradicate all the ossicle bones even it they are intact because the c-toma is that extensive. He mentioned that if he doesn't remove everything the c-toma has come in contact with and every little bit of cell debris, the c-toma will grow back. He reassured me my hearing could be reconstructed if that's all he has to do. However, because of my dizziness, vertigo, and other symptoms he's concerned it has spread into the inner ear. If so, he'll have to remove that too - which there will be no hope for my hearing then. During my appointment I was at a loss for what questions to ask - I went blank. So, after the appointment I typed up a letter and faxed it to him asking a few questions. His secretary called the next day and said he explained everything to me when I was at the office, if I wanted him to answer my questions again, then I'll have to book another appointment and loose my Jan 5th surgery date. She suggested talking to my GP. So, I sent him a copy of the letter and have an appointment with him next week. Hopefully someone will be able to answer my questions! I still haven't heard from the first ENT I seen. I managed to get an appointment this December 19th with him to find out what's up. I still want to get his opinion before I jump into any kind of surgery. This time, I'll be taking my list of questions with me. For all the veterans out there, what's your take on this? Colleen Quote Link to comment Share on other sites More sharing options...
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