Guest guest Posted July 10, 2002 Report Share Posted July 10, 2002 Sounds like a good plan, LuLu. Best of luck and keep us posted. Jeff, your post really did make me laugh out loud. Thank you. I had my 1st post-op suctioning yesterday. Not the best way to start a day, but no pain just noise. When my ENT works on my ear, I see it on a TV monitor - do most ENTs have this now? Sometimes the visuals plus the sound effects are just too much & I close my eyes. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 10, 2002 Report Share Posted July 10, 2002 Yeah girl! that's what we want to hear! Good for u > Thank you all for your responses, I am calling to book my surgery in > Sept. I was dx in June so I think Sept is not that far away. I want > to go on my three week vacation at the beach (YEAH!! exactly what I > need..)get the kids settled in school, and then take the time to have > the surgery and recover, without the stress!! I will keep you > informed. Thanks for the support, !!! > > LuLu Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 10, 2002 Report Share Posted July 10, 2002 Re: September...... > Jeff, your post really did make me laugh out loud. Thank you. Heh. > I had my 1st post-op suctioning yesterday. Not the best way to start a day, > but no pain just noise. When my ENT works on my ear, I see it on a TV monitor > - do most ENTs have this now? Sometimes the visuals plus the sound effects > are just too much & I close my eyes. This specialist I'm seeing now has that monitor. I have absolutely NO INTEREST in seeing that. Ewwwwwww. -- Cheers, --Jeff Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 10, 2002 Report Share Posted July 10, 2002 oooh! video!! I have always wanted one! with this ENT, a new one since i don't live at home anymore, i finally got a picture of my ear! i know it is kinda gross, but i really really would like to see what the heck is in there. i did get a picture of my tonsils when they came out (they wouldn't let me keep them). and i actually have a slide of my ctoma, a perk that my mom works in the lab that looked at it. gross, yes, but so are my pillow cases! --- Jeff Tindall <@...> wrote: > Re: September...... > > > > Jeff, your post really did make me laugh out loud. Thank you. > > Heh. > > > I had my 1st post-op suctioning yesterday. Not the best way to start a > day, > > but no pain just noise. When my ENT works on my ear, I see it on a TV > monitor > > - do most ENTs have this now? Sometimes the visuals plus the sound > effects > > are just too much & I close my eyes. > > This specialist I'm seeing now has that monitor. I have absolutely NO > INTEREST in seeing that. Ewwwwwww. > > -- > Cheers, > --Jeff > > > > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 10, 2002 Report Share Posted July 10, 2002 Hi , did you know we have some videos of procedures in the bookmarks section? Need Quicktime and they are a little bit grosser than I thought they would be, but still interesting. I think they are under com cases. Michele richard wrote: oooh! video!!I have always wanted one! with this ENT, a new one since i don't live athome anymore, i finally got a picture of my ear! i know it is kindagross, but i really really would like to see what the heck is in there. i did get a picture of my tonsils when they came out (they wouldn't let mekeep them). and i actually have a slide of my ctoma, a perk that my momworks in the lab that looked at it.gross, yes, but so are my pillow cases!--- Jeff Tindall <@...> wrote:> Re: September......> > > > Jeff, your post really did make me laugh out loud. Thank you.> > Heh.> > > I had my 1st post-op suctioning yesterday. Not the best way to start a> day,> > but no pain just noise. When my ENT works on my ear, I see it on a TV> monitor> > - do most ENTs have this now? Sometimes the visuals plus the sound> effects> > are just too much & I close my eyes.> > This specialist I'm seeing now has that monitor. I have absolutely NO> INTEREST in seeing that. Ewwwwwww.> > --> Cheers,> --Jeff> > > > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 10, 2002 Report Share Posted July 10, 2002 Hi LuLu, Glad you're not putting it off any longer. You will feel much better once you get this monster out of your head. Good luck to you and keep us posted. And keep that ear dry on vacation. michele gamesaddict1 wrote: Thank you all for your responses, I am calling to book my surgery in Sept. I was dx in June so I think Sept is not that far away. I want to go on my three week vacation at the beach (YEAH!! exactly what I need..)get the kids settled in school, and then take the time to have the surgery and recover, without the stress!! I will keep you informed. Thanks for the support, !!!LuLu Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 10, 2002 Report Share Posted July 10, 2002 Video! I agree with . I'm jealous. I wish I could see what's going on in my head. I asked my ENT for pictures before my last operation. He said he tried to borrow a camera but he wasn't able to find one, last minute. Oh well, I'll just ask him the next time I have surgery ... because as we all know, there will probably be a next time. I have a small piece of c-toma in a bottle. My first ENT removed it with a forceps in his office. He thought it would be a good idea to do some lab work because the c-toma was growing though a hole in my eardrum all the way out my ear canal. When the lab was done with the sample they gave it back to him, so he gave it to me. It is gross and I don't really know why I keep it. Since brought it up, is there anything more gross than ear drainage stains on a pillow case? Does anyone have a Cholesteatoma Grosser than gross story? Mark Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 10, 2002 Report Share Posted July 10, 2002 Hi , I am going for my first cleaning tomorrow... can't wait... right!!!! Glad you said it doesn't hurt. Lynn Re: September...... Sounds like a good plan, LuLu. Best of luck and keep us posted.Jeff, your post really did make me laugh out loud. Thank you.I had my 1st post-op suctioning yesterday. Not the best way to start a day, but no pain just noise. When my ENT works on my ear, I see it on a TV monitor - do most ENTs have this now? Sometimes the visuals plus the sound effects are just too much & I close my eyes. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 10, 2002 Report Share Posted July 10, 2002 Hi Re: September...... > find one, last minute. Oh well, I'll just ask him the next time I > have surgery ... because as we all know, there will probably be a > next time. I think that for some that is the experience... many surgeries, but remember that the stats say that only there is only perhaps a 16% recurrence rate... especially with canal wall down... Lynn Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 10, 2002 Report Share Posted July 10, 2002 Well glad you have booked your op LuLu...I think you need to "put yourself first".....don't forget water and ears are a NO NO! If you must go swimming don't put your head under or wear plugs. I hope you enjoy the break anyway. I live two streets from the beach (One of the best in Australia) and each winter people from the south come in the thousands to our little town. It is school holidays and that time right now so very busy. Take care Audrey September...... Thank you all for your responses, I am calling to book my surgery in Sept. I was dx in June so I think Sept is not that far away. I want to go on my three week vacation at the beach (YEAH!! exactly what I need..)get the kids settled in school, and then take the time to have the surgery and recover, without the stress!! I will keep you informed. Thanks for the support, !!!LuLu Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 11, 2002 Report Share Posted July 11, 2002 One of the Moms was asking awhile back about hearing loss, in terms of what sounds in particular might be lost. I saw a pretty neat chart in my ENT's office from www.audiology.org that uses the hearing test graph & pictures to explain it. I added it to the bookmarks. I couldn't find the big chart the doctor had, but they have a smaller one as part of a consumer guide to understanding your audiogram. Lynn, I hope your cleaning is also pain-free but I don't want to mislead you. My suctioning was just a post-op packing removal, my canal wall is up. I know very little about the post CWD cleaning process although the post-ers don't seem to be reporting pain with it. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 11, 2002 Report Share Posted July 11, 2002 Hello, I think the pain with cleanings depends upon the person. While others have no pain, my husband experiences intense pain and dizziness during cleaning. During cleanings he also gets a metallic taste in his mouth (I never knew this until just now - I wonder what else he doesn't tell me....LOL). He has a canal wall down. Each and every one of his cleanings have caused this pain and dizziness, but subsides shortly after the cleaning. I'm sure he would like to do without it, but it is just part of his life now. Michele rlockw1092@... wrote: One of the Moms was asking awhile back about hearing loss, in terms of what sounds in particular might be lost. I saw a pretty neat chart in my ENT's office from www.audiology.org that uses the hearing test graph & pictures to explain it.I added it to the bookmarks. I couldn't find the big chart the doctor had, but they have a smaller one as part of a consumer guide to understanding your audiogram.Lynn, I hope your cleaning is also pain-free but I don't want to mislead you. My suctioning was just a post-op packing removal, my canal wall is up. I know very little about the post CWD cleaning process although the post-ers don't seem to be reporting pain with it. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 12, 2002 Report Share Posted July 12, 2002 Hi and everyone, Well, I had my cleaning done... but it was not what I expected at all. I am really confused about the whole thing. All my ENT did was remove some wax that was near the ear drum... The ear drum that I thought wasn't there.... There was NO suctioning and only a moderate amt of wax to remove. It hurt only a bit when he pulled the last bit out felt like something tearing. Then it was done. So it wasn't really painful except for maybe 2 seconds. He examined the ear and said he'd like one part of it to be more dry. I think I'd like or need an anatomy lesson. Does anyone have any links to diagrams of what a Canal Wall down looks like post op? (My surgery was a rt radical mastoidectomy). I, for some reason thought I didn't have an ear drum, and that it was through this opening that they accessed the mastoid cavity to clean it... but I do indeed have an eardrum, I could see it, and he didn't go through it, but he moved the ear piece a bit, and I could see another part of my ear... I am not sure what, but I think maybe the mastoid and it was a haze of slightly differering colors the largest area being a yellowish color, looked smooth, and maybe a bit shiny... When he looked at this he said he'd like it to be more dry.. (and said not to let water in too much)... After cleaning and examining, he discussed reconstructing the ossicles, and he wanted to wait a minimum of 6 months. So I go back next March to see him about that. But I don't need to have any more cleanings. I also had an audiogram on my rt ear, and my hearing is unchanged... That was a surprise because I was sure it was improved. Anyway, he said a hearing aid would correct the hearing, but knows I am not keen on having one. He was optomistic that ossicular reconstruction would be helpful to me, but it would not restore my hearing to the level of my normal ear, but that I would definetely hear from my ear again. Lynn ----- Original Message ----- From: rlockw1092@... Sent: Thursday, July 11, 2002 6:34 AMLynn, I hope your cleaning is also pain-free but I don't want to mislead you. My suctioning was just a post-op packing removal, my canal wall is up. I know very little about the post CWD cleaning process although the post-ers don't seem to be reporting pain with it. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 12, 2002 Report Share Posted July 12, 2002 Hi Lynn, Are you sure you had a canal wall down procedure? I don't know, but I don't think a radical mastoidectomy is the same thing as a canal wall down. Depending on the location and severity of your c-toma, it is possible to remove it without doing a canal wall down or a canal wall up procedure. When I went in to have packing removed following my surgery I thought it was going to be a horrible experience because I thought I could feel packing half way down the side of my neck. I could just picture my doctor pulling and pulling and pulling (just like the clown pulling that never ending scarf out of his pocket). I almost laughed when he removed just a little and said he was done. Then he took a look and said that my rebuilt eardrum looked good. I had no idea that he had rebuilt my eardrum. I felt so dumb, but really had no way of knowing since he didn't tell me. Good Luck to you, Lynn Witkowski <lynnwit@...> wrote: Hi and everyone, Well, I had my cleaning done... but it was not what I expected at all. I am really confused about the whole thing. All my ENT did was remove some wax that was near the ear drum... The ear drum that I thought wasn't there.... There was NO suctioning and only a moderate amt of wax to remove. It hurt only a bit when he pulled the last bit out felt like something tearing. Then it was done. So it wasn't really painful except for maybe 2 seconds. He examined the ear and said he'd like one part of it to be more dry. I think I'd like or need an anatomy lesson. Does anyone have any links to diagrams of what a Canal Wall down looks like post op? (My surgery was a rt radical mastoidectomy). I, for some reason thought I didn't have an ear drum, and that it was through this opening that they accessed the mastoid cavity to clean it... but I do indeed have an eardrum, I could see it, and he didn't go through it, but he moved the ear piece a bit, and I could see another part of my ear... I am not sure what, but I think maybe the mastoid and it was a haze of slightly differering colors the largest area being a yellowish color, looked smooth, and maybe a bit shiny... When he looked at this he said he'd like it to be more dry.. (and said not to let water in too much)... After cleaning and examining, he discussed reconstructing the ossicles, and he wanted to wait a minimum of 6 months. So I go back next March to see him about that. But I don't need to have any more cleanings. I also had an audiogram on my rt ear, and my hearing is unchanged... That was a surprise because I was sure it was improved. Anyway, he said a hearing aid would correct the hearing, but knows I am not keen on having one. He was optomistic that ossicular reconstruction would be helpful to me, but it would not restore my hearing to the level of my normal ear, but that I would definetely hear from my ear again. Lynn Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 12, 2002 Report Share Posted July 12, 2002 Hi , Yes I had a canal wall down, radical mastoidectomy... I am not sure if it was a modified radical or a radical, but I read the surgical report and it was a canal wall down, and my ENT sent a note to my refering ENT and wrote that he "took down the posterior canal wall", and he also did a meatoplasty... So it was definitely that... Now I know that everything I read says that you need regular cleaning, but he didn't mention that... so I guess he'll just clean it when I go back in March to discuss the surgery to reconstruct the ossicles. Maybe since my ear was pretty clean, he didn't need to do any further cleaning such as suctioning. So I consider myself fortunate... Lynn ----- Original Message ----- From: Hi Lynn, Are you sure you had a canal wall down procedure? I don't know, but I don't think a radical mastoidectomy is the same thing as a canal wall down. Depending on the location and severity of your c-toma, it is possible to remove it without doing a canal wall down or a canal wall up procedure. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 12, 2002 Report Share Posted July 12, 2002 Hi , I just wanted to add that, I had 2 surgeries. One in Feb this year and again in March. On the first surgery in Feb, my diagnosis was not c-toma, that was a surprise to my ENT, so he tried ( I just learned) a transcanal approach to remove the c-toma, but he didn't think he got it all, and needed to do a "combined" approach... that is a transcanal approach AND also an incision behing the ear. That is what I went in for in May, and was admitted to hospital overnight. In answer to your question, I guess it is possible to remove a small c-toma without doing a wall down or wall up surgery, (the route is probably transcanal), but it is harder to be sure the whole thing is removed. If you have a mastoidectomy it is either a canal wall down, or a canal wall up. They decide which procedure based on what they find when they go in. If you have a fistula in the balance canals, that is basically a hole into the inner ear, well, that is a big criteria to do the canal wall down... another big criteria for CWD is a severely sclerotic mastoid. I think they would prefer to leave the wall up if at all possible, but if you have the above problems, they take the wall down. When you have a radical or modified radical, the posterior ear canal wall is brought down to "the facial ridge", so that you have a open cavity in the middle ear and mastoid area. The mastoid itself is grounded to a smooth surface to remove the air cells etc... so that nothing can get trapped in there... and it is this area that they are supposed to clean regularly. Hope this helps... (My question was "where is the opening to this cavity if the ear drum is in place?) Lynn ----- Original Message ----- From: Hi Lynn, the same thing as a canal wall down. Depending on the location and severity of your c-toma, it is possible to remove it without doing a canal wall down or a canal wall up procedure. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 13, 2002 Report Share Posted July 13, 2002 Wow, I didn't think they left anything in your ear with cwd. That's news to me. Maybe it was a first step toward reconstruction???? Michele Lynn Witkowski wrote: Hi , Yes I had a canal wall down, radical mastoidectomy... I am not sure if it was a modified radical or a radical, but I read the surgical report and it was a canal wall down, and my ENT sent a note to my refering ENT and wrote that he "took down the posterior canal wall", and he also did a meatoplasty... So it was definitely that... Now I know that everything I read says that you need regular cleaning, but he didn't mention that... so I guess he'll just clean it when I go back in March to discuss the surgery to reconstruct the ossicles. Maybe since my ear was pretty clean, he didn't need to do any further cleaning such as suctioning. So I consider myself fortunate... Lynn ----- Original Message ----- From: Hi Lynn, Are you sure you had a canal wall down procedure? I don't know, but I don't think a radical mastoidectomy is the same thing as a canal wall down. Depending on the location and severity of your c-toma, it is possible to remove it without doing a canal wall down or a canal wall up procedure. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 14, 2002 Report Share Posted July 14, 2002 Hi Michele, I hope you are feeling better. Glad to see you back. Michele, I thought that I gave the right info to Charla. Perhaps my description of CWD and CWU are incorrect though. I didn't write that they remove the ossicles, but I know in my case, they removed what was left of the incus. I still have part of the malleus, that is attached to the eardrum, and there was no "suprastructure of the stapes" left. But even though I initially believed that my ear drum was placed over my oval window, "according the the surgical report", it seems that I have a reconstructed eardrum. I saw this when he examined my ear on Thursday. I think the cwd and cwu differ in that they remove the posterior canal wall in a modified radical mastoidectomy, which creates a cavity for the middle ear and mastoid, and in a radiacal mastoidectomy they also remove the canal to the eustation tube... leaving an even bigger cavity. But I believe that if other structures are healthy they leave them in place. My confusion, since I still have an eardrum, is where the opening is to the mastoid? I assumed it was through the ear drum... but now I think it is before the eardrum... on the skull side or outside wall of the external auditory canal, as opposed to the inner side... I wish I could draw on this... and this opening is created with the meatoplasty. Does this make any sense... do you have any links to diagrams showing the anatomy following CWD surgery? Also, in my case the surgical report said there was no room for reconstruction so they did not attempt that during my surg.... But since my recovery and healing have been so good, and my ear is dry (and always was), he will try the reconstruction, and he was optimistic that it will work. He wants to see me in 6 months, for this, and didn't mention any more cleanings. Lynn Re: September...... Wow, I didn't think they left anything in your ear with cwd. That's news to me. Maybe it was a first step toward reconstruction???? Michele Lynn Witkowski wrote: Hi , Yes I had a canal wall down, radical mastoidectomy... I am not sure if it was a modified radical or a radical, but I read the surgical report and it was a canal wall down, and my ENT sent a note to my refering ENT and wrote that he "took down the posterior canal wall", and he also did a meatoplasty... So it was definitely that... Now I know that everything I read says that you need regular cleaning, but he didn't mention that... so I guess he'll just clean it when I go back in March to discuss the surgery to reconstruct the ossicles. Maybe since my ear was pretty clean, he didn't need to do any further cleaning such as suctioning. So I consider myself fortunate... Lynn ----- Original Message ----- From: Hi Lynn, Are you sure you had a canal wall down procedure? I don't know, but I don't think a radical mastoidectomy is the same thing as a canal wall down. Depending on the location and severity of your c-toma, it is possible to remove it without doing a canal wall down or a canal wall up procedure. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 14, 2002 Report Share Posted July 14, 2002 Hi Lynn, I don't know what to think anymore. With you having a cwd with an intact eardrum, well, I'm confused. This is one of the subjects I really wanted to get a good and clear,consise answer to because a lot of people want to know what you have left in your ear after a particlar procedure. They tried tympanoplasty on Larry the first time he had surgery on the left ear (I think he had a modified radical mastoidectomy the first time but I would have to look to be sure. I think it's time to write the man. The man is Dr. McMenomey who is Larrys other doctor. He is a skull base surgeon and he does cholesteatoma surgeries everyday. Larry's other doctor in town told me to write him and see if I could get him involved in the site. I also need to put in some kind of medical disclosure, these are personal stories and are not in anyway meant to replace the advice of a qualified, competent physician, blah, blah, blah. Ok, now I am rambling. I just woke up. Michele > > Hi , > Yes I had a canal wall down, radical mastoidectomy... I am not sure if it was a modified radical or a radical, but I read the surgical report and it was a canal wall down, and my ENT sent a note to my refering ENT and wrote that he " took down the posterior canal wall " , and he also did a meatoplasty... So it was definitely that... > Now I know that everything I read says that you need regular cleaning, but he didn't mention that... so I guess he'll just clean it when I go back in March to discuss the surgery to reconstruct the ossicles. > Maybe since my ear was pretty clean, he didn't need to do any further cleaning such as suctioning. So I consider myself fortunate... > Lynn > > ----- Original Message ----- > From: > Hi Lynn, > Are you sure you had a canal wall down procedure? I don't know, but I don't think a radical mastoidectomy is the same thing as a canal wall down. Depending on the location and severity of your c- toma, it is possible to remove it without doing a canal wall down or a canal wall up procedure. > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 14, 2002 Report Share Posted July 14, 2002 Hi , It is confusing, and I am the most confused, because sometimes I think the information my doctor gives me is so vague... I will retype the surgical report to send to you, and you tell me what you get out of it. I have an eardrum, but it is a reconstructed one. On Thursday, I saw dr Nedzelski, and my daugher was with me. So before he started in my good ear, he showed her my good left ear. Then he showed her my rt ear... and he pointed out the eardrum..., but he said it was the eardrum they made for me... but it looked very much like like left eardrum, but smaller. He did not go through that to clean, and all he did was remove wax from an area just prior to the ear drum... then he moved the earpiece a bit and looked at an area, and it was yelowish and shiny a bit, and said that needed to be a bit dryer... I think that was the mastoid... but he did not go through the eardrum to look at at this. Lynn Re: September...... > Hi Lynn, > > I don't know what to think anymore. With you having a cwd with an > intact eardrum, well, I'm confused. This is one of the subjects I > really wanted to get a good and clear,consise answer to because a > lot of people want to know what you have left in your ear after a > particlar procedure. They tried tympanoplasty on Larry the first > time he had surgery on the left ear (I think he had a modified > radical mastoidectomy the first time but I would have to look to be > sure. > > I think it's time to write the man. The man is Dr. McMenomey who is > Larrys other doctor. He is a skull base surgeon and he does > cholesteatoma surgeries everyday. Larry's other doctor in town told > me to write him and see if I could get him involved in the site. > > I also need to put in some kind of medical disclosure, these are > personal stories and are not in anyway meant to replace the advice > of a qualified, competent physician, blah, blah, blah. > > Ok, now I am rambling. I just woke up. > > Michele > > > > > Hi , > > Yes I had a canal wall down, radical mastoidectomy... I am > not sure if it was a modified radical or a radical, but I read the > surgical report and it was a canal wall down, and my ENT sent a note > to my refering ENT and wrote that he " took down the posterior canal > wall " , and he also did a meatoplasty... So it was definitely that... > > Now I know that everything I read says that you need > regular cleaning, but he didn't mention that... so I guess he'll > just clean it when I go back in March to discuss the surgery to > reconstruct the ossicles. > > Maybe since my ear was pretty clean, he didn't need to do > any further cleaning such as suctioning. So I consider myself > fortunate... > > Lynn > > > > ----- Original Message ----- > > From: > > Hi Lynn, > > Are you sure you had a canal wall down procedure? I don't > know, but I don't think a radical mastoidectomy is the same thing as > a canal wall down. Depending on the location and severity of your c- > toma, it is possible to remove it without doing a canal wall down or > a canal wall up procedure. > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 14, 2002 Report Share Posted July 14, 2002 Hi, I'm sure I had CWD but also have an intact eardrum & as you may remember 3 ops for reconstruction (prosthesis). I also have enlarged canal now which I think is meatoplasty...they did this the first op. I will try hard to get a copy of my notes but can't do til the ENT's next visit in September. Audrey Re: September...... Hi Lynn,I don't know what to think anymore. With you having a cwd with an intact eardrum, well, I'm confused. This is one of the subjects I really wanted to get a good and clear,consise answer to because a lot of people want to know what you have left in your ear after a particlar procedure. They tried tympanoplasty on Larry the first time he had surgery on the left ear (I think he had a modified radical mastoidectomy the first time but I would have to look to be sure.I think it's time to write the man. The man is Dr. McMenomey who is Larrys other doctor. He is a skull base surgeon and he does cholesteatoma surgeries everyday. Larry's other doctor in town told me to write him and see if I could get him involved in the site.I also need to put in some kind of medical disclosure, these are personal stories and are not in anyway meant to replace the advice of a qualified, competent physician, blah, blah, blah.Ok, now I am rambling. I just woke up.Michele > > Hi ,> Yes I had a canal wall down, radical mastoidectomy... I am not sure if it was a modified radical or a radical, but I read the surgical report and it was a canal wall down, and my ENT sent a note to my refering ENT and wrote that he "took down the posterior canal wall", and he also did a meatoplasty... So it was definitely that... > Now I know that everything I read says that you need regular cleaning, but he didn't mention that... so I guess he'll just clean it when I go back in March to discuss the surgery to reconstruct the ossicles. > Maybe since my ear was pretty clean, he didn't need to do any further cleaning such as suctioning. So I consider myself fortunate... > Lynn> > ----- Original Message ----- > From: > Hi Lynn, > Are you sure you had a canal wall down procedure? I don't know, but I don't think a radical mastoidectomy is the same thing as a canal wall down. Depending on the location and severity of your c-toma, it is possible to remove it without doing a canal wall down or a canal wall up procedure. > > > > Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.