Re: For Snider BPV question

[Guest guest]

Hi ,

No, when I told my otologist about it I was not experiencing it. He

told me to lie down and he positioned my head and I started to spin

and he knew he was on the right track.

I too can roll over in bed in the morning with my eyes closed and

start to spin. It happens now and then but I get it under control

somehow. Kind of a mind body thing.

I encourage you to get it treated and get trained in how to do the

positioning to yourself or/and have your husband learn it. There were

times when I had to lie on the floor at work and do it. But, hey, if

it works, why not!!

> Hello ,

>

> Your reply to Re: Vertigo caught my eye.

>

> I started having dizzy/vertigo spells approx. 5 to 10 years before

> my CT was found. Since then I've had 2 surgeries done, and the

> dizzy/vertigo spells have not subsided at all. I remember the day I

> got home from the hospital after having my CT surgery the day

> before. I was sitting on the sofa and all the sudden I got this

> terrible vertigo. It may have been just the surgery causing it or

> may have been linked to BPV who knows?

>

> My family doctor suspected I have BPV because most of the time got

> it when I was just starting to wake up in the morning. I wouldn't

> have my eyes open and I would have to spinning sensation. I seem to

> get this right around spring into summertime. The last time I had

> it, it was severe, my husband took me to the ER they had given me

> something called Bromaline spelling, all I can remember is was for

> motion sickness and it put me to sleep for hours. Also the ER doctor

> said more then likely BPV was to blame.

>

> My family doctor refered me to a physiotherapist who is said to have

> had good luck with giving BPV treatments. I haven't gone to see him

> because the ER Doctor " thought " I had to have the BPV at the time of

> treatment for it to work. Do you know it this is true? I have a hard

> time with this since the last thing I want to do is hop into a car

> to have the treatment done while I've got the spins.

>

> Let me know,

> Thanks,

>

>

>

>

> >

> > There is something called " Benign Positional Vertigo. " I was not

> > dizzy when I first had a c-toma removed 10 years ago, but it began

> > about 10 months afterwards. I asked the otologist about my

> diziness

> > and he tried out the procedure for getting rid of the BPV and it

> > worked. It is a simple procedure. It has to do with particles

> being on

> > the wrong side of something in the inner ear, I think. You can do

> a

> > search on it and find out more. I have learned to do the

> positioning

> > procedure on myself when it happens.

> >

> > I am not saying that this is what is bothering your son, but it is

> > worth checking out.

> >

> >

> >

> >

> > >

> > > My son had cholesteatoma surgery October 18, 2006. He is 21

> years old.

> > > He had some dizziness post op but since then has gotten

> progressively

> > > worse. He has been back to the ENT that performed the surgery

> and he

> > > says everything is looking great and he sees no reason for the

> > > dizziness. He has sent us back for another CT scan with

> contrast. This

> > > was normal. We have been to an ophthamologist. Again everything

> is

> > > normal. We had a consult with a neurologist this am. He is

> sending us

> > > for an MRI. This is the only side effect that he has had but as

> I said

> > > before it has gotten progressively worse since the surgery. He

> is now

> > > to the point of having to use a cane to walk. Any one else have

> this

> > > problem or know what might be going on? Any help/ifo would be

> greatly

> > > appreciated.

> > >

> >

>

[Guest guest]

Hi ,

Thanks so much for clearing that up for me, I just couldn't see

myself trying to drive while in the mist of having a spell. You say

you get them while at work. I sometimes I get them while working or

anytime and have to sit down on my cutting chair or lean into the

chair that my customer is in, just to keep from tipping over. (I'm a

hairdresser).

I've had this, sensation since my 1st. surgery right ear, if I look

to the left my eyes feel like their jerking to the right. I used to

try and explain it as, if I look to the left then to the right

it " feels " like my brain is moving to the right but it's not. Yes I

know it sounds silly but that's the best I can explain it.

I when it was in ER the Doctor he had me looking here and looking

there while shining a light in my both my eyes, and said eye

movement can effect BPV.

Also after the 1st. surgery, there was one country road near us that

was bumpy and curvey, everytime I went on it I'd have slight

vertigo. The road has since been repaired and I don't have the

vertigo anymore while on it!

Thanks,

-- In cholesteatoma , " Snider " <jabulanee@...>

wrote:

>

> Hi ,

>

> No, when I told my otologist about it I was not experiencing it.

He

> told me to lie down and he positioned my head and I started to spin

> and he knew he was on the right track.

>

> I too can roll over in bed in the morning with my eyes closed and

> start to spin. It happens now and then but I get it under control

> somehow. Kind of a mind body thing.

>

> I encourage you to get it treated and get trained in how to do the

> positioning to yourself or/and have your husband learn it. There

were

> times when I had to lie on the floor at work and do it. But, hey,

if

> it works, why not!!

>

>

>

>

> > Hello ,

> >

> > Your reply to Re: Vertigo caught my eye.

> >

> > I started having dizzy/vertigo spells approx. 5 to 10 years

before

> > my CT was found. Since then I've had 2 surgeries done, and the

> > dizzy/vertigo spells have not subsided at all. I remember the

day I

> > got home from the hospital after having my CT surgery the day

> > before. I was sitting on the sofa and all the sudden I got this

> > terrible vertigo. It may have been just the surgery causing it

or

> > may have been linked to BPV who knows?

> >

> > My family doctor suspected I have BPV because most of the time

got

> > it when I was just starting to wake up in the morning. I

wouldn't

> > have my eyes open and I would have to spinning sensation. I seem

to

> > get this right around spring into summertime. The last time I

had

> > it, it was severe, my husband took me to the ER they had given

me

> > something called Bromaline spelling, all I can remember is was

for

> > motion sickness and it put me to sleep for hours. Also the ER

doctor

> > said more then likely BPV was to blame.

> >

> > My family doctor refered me to a physiotherapist who is said to

have

> > had good luck with giving BPV treatments. I haven't gone to see

him

> > because the ER Doctor " thought " I had to have the BPV at the

time of

> > treatment for it to work. Do you know it this is true? I have a

hard

> > time with this since the last thing I want to do is hop into a

car

> > to have the treatment done while I've got the spins.

> >

> > Let me know,

> > Thanks,

> >

> >

> >

> >

> > >

> > > There is something called " Benign Positional Vertigo. " I was

not

> > > dizzy when I first had a c-toma removed 10 years ago, but it

began

> > > about 10 months afterwards. I asked the otologist about my

> > diziness

> > > and he tried out the procedure for getting rid of the BPV and

it

> > > worked. It is a simple procedure. It has to do with particles

> > being on

> > > the wrong side of something in the inner ear, I think. You

can do

> > a

> > > search on it and find out more. I have learned to do the

> > positioning

> > > procedure on myself when it happens.

> > >

> > > I am not saying that this is what is bothering your son, but

it is

> > > worth checking out.

> > >

> > >

> > >

> > >

> > > >

> > > > My son had cholesteatoma surgery October 18, 2006. He is 21

> > years old.

> > > > He had some dizziness post op but since then has gotten

> > progressively

> > > > worse. He has been back to the ENT that performed the

surgery

> > and he

> > > > says everything is looking great and he sees no reason for

the

> > > > dizziness. He has sent us back for another CT scan with

> > contrast. This

> > > > was normal. We have been to an ophthamologist. Again

everything

> > is

> > > > normal. We had a consult with a neurologist this am. He is

> > sending us

> > > > for an MRI. This is the only side effect that he has had but

as

> > I said

> > > > before it has gotten progressively worse since the surgery.

He

> > is now

> > > > to the point of having to use a cane to walk. Any one else

have

> > this

> > > > problem or know what might be going on? Any help/ifo would

be

> > greatly

> > > > appreciated.

> > > >

> > >

> >

>