Guest guest Posted October 3, 2006 Report Share Posted October 3, 2006 , I have had many c-tomas. Never got THAT specific a treatment plan. WOW Docs thought I MAY lose hearing but weren't sure. Guess that's the advances since I had my first one as a teen. Never had to even take vicodin. What do they do to you all now?! I have taken tylenol 3 for a mastoidectomy. Vike is pretty strong. Are they going to rebuild your eardrum at surgery time? What about prosthetic bones? Do you need tubes? How are your eustachian tubes performing?What is the condition of your other ear? That whole bit about your facial nerves isn't out of the question for a MASTOID, but a cholesteatoma? Never say never, I guess. Are you sure you aren't getting a mastoidectomy too? For a mastoidectomy they watch out for your facial bones to be sure that you don't get Bell's palsy. I want to say one DEFINITE thing here, they can't be 100% certain of anything until they start the operation. For my first op, doc had booked the room for 2 hours. From what he could SEE, he thought that would be it. The surgery ended up almost 5 hours. Told my mom that he had no idea there was that much infection. Blew him away, and scared the hell out of me afterwards. That is one of those times you can certainly see that doctors are not supermen. If you want to know the names of the bones, as a group, they are called auditory ossicles. Seperately they are known as (hammer/malleous), (anvil/incus), and (stirrup/stapes). I am pretty sure I spelled all of that right. Anyway, that is also the order in which they appear. When the doctor shines the otoscope in your ear, he can see the malleous. The other ossicles can be seen in x-ray, ct, mri. Edmondson (678)622-6085 Surgery scheduled... Hello everyone, Well I got the news I was dreading but was pretty sure I would get anyway. I am scheduled for surgery on 10/19. The Dr. said it will be a 3 1/2 hour outpatient surgery. He said he will be removing the tumor, the eardrum and at least 2 of the inner ear bones (the names of which escape me at the moment). He said I would lose 30% of my hearing and that I would most likely experience either loss of taste or develop a metallic taste on the left side of my tongue. My facial nerve will be monitored to make sure it doesn't lose function. He said that in 9 mos. to 1 year later they would operate again to check for regrowth and also to rebuild the bones of the inner ear. He also made it very clear that the primary purpose of the surgery is not to prevent hearing loss, but to remove the tumor. He said that I could expect a 7-10 day recovery period and that none of his patients have ever needed any pain pill stronger than a vicodin and that pain is not a complaint he usually hears. Hopefully all goes well... "Wherever you go, there you are!" Wagemann geowags Messenger with Voice. Make PC-to-Phone Calls to the US (and 30+ countries) for 2¢/min or less. Check out the new AOL. Most comprehensive set of free safety and security tools, free access to millions of high-quality videos from across the web, free AOL Mail and more. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 3, 2006 Report Share Posted October 3, 2006 Hi , I don't know your age so I don't know how long ago you had your first surgery but times have definitely changed. I was amazed at the catscan, no tube to slide into, just a ring around your head and in 5 mins. I was done. The last catscan I had took 45 min. and was very noisy and there was a huge tube to go into. This may sound selfish because I know a lot of people in this group have the congenital form of c-toma and have had problems all their lives but I'm 46 and up until about 8 mos. ago I had near perfect hearing. I don't want to lose any of my hearing much less 30%. I don't consider vicodin to be that strong, in fact I've been taking it since last week to stop the pain from my ear infection. Several people have posted that tylenol 3 and vicodin didn't even touch their pain and they had to go to percocet. I thought I was going to get off easy if all I had to take was vicodin. ; ) In answer to your questions to the best of my knowledge...Yes, they are going to rebuild my eardrum. I guess if I need prosthetic bones they would do that next year but he said he would "reconstruct" the bones. Not quite sure if he meant prosthetically or with bone grafts of some sort. He said nothing about needing tubes. My other ear is 100% thank God. He said he doesn't think I would need a mastoidectomy but wouldn't know for sure until he did the surgery. He told me I had a 1% chance of facial paralysis and a less than 1% chance of a brain infection. Thanks for refreshing my memory on the auditory ossicles. I used to know them by heart as a kid since I thought it was so cool to have bones that actually looked like the bones in the Operation game lol. BTW, it was the malleus and the incus that he said would need to be removed for sure, not sure about the stapes. I have a question regarding surgery. I know they do a posterior ear approach for the surgery but do they shave the area at all? I went and got a really short haircut on the chance that they did shave the area but it's something that no one has seemed to address. Thanks. shannon759@... wrote: , I have had many c-tomas. Never got THAT specific a treatment plan. WOW Docs thought I MAY lose hearing but weren't sure. Guess that's the advances since I had my first one as a teen. Never had to even take vicodin. What do they do to you all now?! I have taken tylenol 3 for a mastoidectomy. Vike is pretty strong. Are they going to rebuild your eardrum at surgery time? What about prosthetic bones? Do you need tubes? How are your eustachian tubes performing?What is the condition of your other ear? That whole bit about your facial nerves isn't out of the question for a MASTOID, but a cholesteatoma? Never say never, I guess. Are you sure you aren't getting a mastoidectomy too? For a mastoidectomy they watch out for your facial bones to be sure that you don't get Bell's palsy. I want to say one DEFINITE thing here, they can't be 100% certain of anything until they start the operation. For my first op, doc had booked the room for 2 hours. From what he could SEE, he thought that would be it. The surgery ended up almost 5 hours. Told my mom that he had no idea there was that much infection. Blew him away, and scared the hell out of me afterwards. That is one of those times you can certainly see that doctors are not supermen. If you want to know the names of the bones, as a group, they are called auditory ossicles. Seperately they are known as (hammer/malleous), (anvil/incus), and (stirrup/stapes). I am pretty sure I spelled all of that right. Anyway, that is also the order in which they appear. When the doctor shines the otoscope in your ear, he can see the malleous. The other ossicles can be seen in x-ray, ct, mri. Edmondson(678)622-6085 Surgery scheduled... Hello everyone, Well I got the news I was dreading but was pretty sure I would get anyway. I am scheduled for surgery on 10/19. The Dr. said it will be a 3 1/2 hour outpatient surgery. He said he will be removing the tumor, the eardrum and at least 2 of the inner ear bones (the names of which escape me at the moment). He said I would lose 30% of my hearing and that I would most likely experience either loss of taste or develop a metallic taste on the left side of my tongue. My facial nerve will be monitored to make sure it doesn't lose function. He said that in 9 mos. to 1 year later they would operate again to check for regrowth and also to rebuild the bones of the inner ear. He also made it very clear that the primary purpose of the surgery is not to prevent hearing loss, but to remove the tumor. He said that I could expect a 7-10 day recovery period and that none of his patients have ever needed any pain pill stronger than a vicodin and that pain is not a complaint he usually hears. Hopefully all goes well... "Wherever you go, there you are!" Wagemanngeowags Messenger with Voice. Make PC-to-Phone Calls to the US (and 30+ countries) for 2¢/min or less. Check out the new AOL. Most comprehensive set of free safety and security tools, free access to millions of high-quality videos from across the web, free AOL Mail and more. "Wherever you go, there you are!" Wagemanngeowags@... Messenger with Voice. Make PC-to-Phone Calls to the US (and 30+ countries) for 2¢/min or less. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 3, 2006 Report Share Posted October 3, 2006 If they have to shave, it is a small strip of hair. Perhaps 1 inch wide by 3-4 inches in a shape around your ear. I have had to have the area shaved 2 times. I am 33. I was born with a cleft palate. My ear trouble started when I was 11. I had a bad cold and no insurance. By the end of that year, I had mastoiditis and lost a good portion of my hearing in my left ear. It took until February of the next year to get the surgery because I had to belong to this indigent program for kids. I was 12 then. CTs have changed. In the beginning, I remember that it was cold in the room and it took forever. Now, with my asthma, the whole process 15-20 minutes is still insufferable because I have so much trouble breathing laying so flat. My first CT came after my doctor has diagnosed the problem. He had x-rays done while we were waiting for the CT machine. You should have seen them! The infection had vined on the side of my head and branched out. At the middle ear site, there was this bright white blob of infection. They should rebuild the bones while they are there, because if not, they will have to take out your ear drum to get to the space where the ossicular chain lives. That is a lot to put a patient through. I had no idea until about a year ago that there were doctors who specialized in only ears. I now have one of the 4 in the state. It's been hard because of all the trouble hurricane Katrina caused. Edmondson (678)622-6085 Surgery scheduled... Hello everyone, Well I got the news I was dreading but was pretty sure I would get anyway. I am scheduled for surgery on 10/19. The Dr. said it will be a 3 1/2 hour outpatient surgery. He said he will be removing the tumor, the eardrum and at least 2 of the inner ear bones (the names of which escape me at the moment). He said I would lose 30% of my hearing and that I would most likely experience either loss of taste or develop a metallic taste on the left side of my tongue. My facial nerve will be monitored to make sure it doesn't lose function. He said that in 9 mos. to 1 year later they would operate again to check for regrowth and also to rebuild the bones of the inner ear. He also made it very clear that the primary purpose of the surgery is not to prevent hearing loss, but to remove the tumor. He said that I could expect a 7-10 day recovery period and that none of his patients have ever needed any pain pill stronger than a vicodin and that pain is not a complaint he usually hears. Hopefully all goes well... "Wherever you go, there you are!" Wagemann geowags Messenger with Voice. Make PC-to-Phone Calls to the US (and 30+ countries) for 2¢/min or less. Check out the new AOL. Most comprehensive set of free safety and security tools, free access to millions of high-quality videos from across the web, free AOL Mail and more. "Wherever you go, there you are!" Wagemann geowags Messenger with Voice. Make PC-to-Phone Calls to the US (and 30+ countries) for 2¢/min or less. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 3, 2006 Report Share Posted October 3, 2006 I had never heard about the pain pills before. I wonder if this means that I have had a very high tolerance for pain? Nah, I am a WIMP! LOL Edmondson (678)622-6085 Surgery scheduled... Hello everyone, Well I got the news I was dreading but was pretty sure I would get anyway. I am scheduled for surgery on 10/19. The Dr. said it will be a 3 1/2 hour outpatient surgery. He said he will be removing the tumor, the eardrum and at least 2 of the inner ear bones (the names of which escape me at the moment). He said I would lose 30% of my hearing and that I would most likely experience either loss of taste or develop a metallic taste on the left side of my tongue. My facial nerve will be monitored to make sure it doesn't lose function. He said that in 9 mos. to 1 year later they would operate again to check for regrowth and also to rebuild the bones of the inner ear. He also made it very clear that the primary purpose of the surgery is not to prevent hearing loss, but to remove the tumor. He said that I could expect a 7-10 day recovery period and that none of his patients have ever needed any pain pill stronger than a vicodin and that pain is not a complaint he usually hears. Hopefully all goes well... "Wherever you go, there you are!" Wagemann geowags Messenger with Voice. Make PC-to-Phone Calls to the US (and 30+ countries) for 2¢/min or less. Check out the new AOL. Most comprehensive set of free safety and security tools, free access to millions of high-quality videos from across the web, free AOL Mail and more. "Wherever you go, there you are!" Wagemann geowags Messenger with Voice. Make PC-to-Phone Calls to the US (and 30+ countries) for 2¢/min or less. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 3, 2006 Report Share Posted October 3, 2006 I agree with . The doctor never knows until he gets in there. This time the doctor was hopeful that the damage wasn't too bad since the c-toma had just recently showed up on the C Scan though my other doctor saw white mass behind my scarred ear drum. I ended up with a mastoidectomy and tympanoplasty and some ossicular reconstruction. He says that I should have some improved hearing and that in six months I most definitely will have good aided hearing. About pain. I never had much before but this time I am on my second prescription to vicodin. I am having a lot of glandular pain caused by swelling somewhere. He says that it is not uncommon. All I know is that it really really hurts at times. Today he took some of the packing out and will take more in a month and my hearing should be much better then. If I decide I want it I can have a prosthesis put in my left ear next year. I may opt out but who knows how I will feel then. In the meantime I'm working on staying positive with my temporary hearing loss. > Hello everyone, > > Well I got the news I was dreading but was pretty sure I would get anyway. > > I am scheduled for surgery on 10/19. The Dr. said it will be a 3 1/2 hour outpatient surgery. He said he will be removing the tumor, the eardrum and at least 2 of the inner ear bones (the names of which escape me at the moment). He said I would lose 30% of my hearing and that I would most likely experience either loss of taste or develop a metallic taste on the left side of my tongue. My facial nerve will be monitored to make sure it doesn't lose function. He said that in 9 mos. to 1 year later they would operate again to check for regrowth and also to rebuild the bones of the inner ear. He also made it very clear that the primary purpose of the surgery is not to prevent hearing loss, but to remove the tumor. He said that I could expect a 7-10 day recovery period and that none of his patients have ever needed any pain pill stronger than a vicodin and that pain is not a complaint he usually hears. Hopefully all goes well... > > > > > > > " Wherever you go, there you are! " > > Wagemann > geowags@... > > --------------------------------- > Messenger with Voice. Make PC-to-Phone Calls to the US (and 30+ countries) for 2¢/min or less. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 4, 2006 Report Share Posted October 4, 2006 I understand that the facial nerve monitor is pretty standard. My doctor used it for all three of my cholsteatoma removals. I guess when you are that close to the nerve, they don't want to take any chances! Besides which, surprisingly, my first cholesteatoma had already grown onto the bone surrounding the facial nerve, so it was advantageous for the monitor to have been there! > > , I have had many c-tomas. Never got THAT specific a treatment plan. WOW Docs thought I MAY lose hearing but weren't sure. Guess that's the advances since I had my first one as a teen. Never had to even take vicodin. What do they do to you all now?! I have taken tylenol 3 for a mastoidectomy. Vike is pretty strong. Are they going to rebuild your eardrum at surgery time? What about prosthetic bones? Do you need tubes? How are your eustachian tubes performing?What is the condition of your other ear? That whole bit about your facial nerves isn't out of the question for a MASTOID, but a cholesteatoma? Never say never, I guess. Are you sure you aren't getting a mastoidectomy too? > > For a mastoidectomy they watch out for your facial bones to be sure that you don't get Bell's palsy. I want to say one DEFINITE thing here, they can't be 100% certain of anything until they start the operation. For my first op, doc had booked the room for 2 hours. From what he could SEE, he thought that would be it. The surgery ended up almost 5 hours. Told my mom that he had no idea there was that much infection. Blew him away, and scared the hell out of me afterwards. That is one of those times you can certainly see that doctors are not supermen. > > If you want to know the names of the bones, as a group, they are called auditory ossicles. Seperately they are known as (hammer/malleous), (anvil/incus), and (stirrup/stapes). I am pretty sure I spelled all of that right. Anyway, that is also the order in which they appear. When the doctor shines the otoscope in your ear, he can see the malleous. The other ossicles can be seen in x-ray, ct, mri. > > Edmondson > (678)622-6085 > > > > Surgery scheduled... > > > Hello everyone, > > Well I got the news I was dreading but was pretty sure I would get anyway. > > I am scheduled for surgery on 10/19. The Dr. said it will be a 3 1/2 hour outpatient surgery. He said he will be removing the tumor, the eardrum and at least 2 of the inner ear bones (the names of which escape me at the moment). He said I would lose 30% of my hearing and that I would most likely experience either loss of taste or develop a metallic taste on the left side of my tongue. My facial nerve will be monitored to make sure it doesn't lose function. He said that in 9 mos. to 1 year later they would operate again to check for regrowth and also to rebuild the bones of the inner ear. He also made it very clear that the primary purpose of the surgery is not to prevent hearing loss, but to remove the tumor. He said that I could expect a 7-10 day recovery period and that none of his patients have ever needed any pain pill stronger than a vicodin and that pain is not a complaint he usually hears. Hopefully all goes well... > > > > > > > " Wherever you go, there you are! " > > Wagemann > geowags@... > > > Messenger with Voice. Make PC-to-Phone Calls to the US (and 30+ countries) for 2¢/min or less. > > _____________________________________________________________________ ___ > Check out the new AOL. Most comprehensive set of free safety and security tools, free access to millions of high-quality videos from across the web, free AOL Mail and more. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 4, 2006 Report Share Posted October 4, 2006 As far as hair shaving - my head did not get shaved - thank goodness b/c I have long hair! > , I have had many c-tomas. Never got THAT specific a treatment plan. WOW Docs thought I MAY lose hearing but weren't sure. Guess that's the advances since I had my first one as a teen. Never had to even take vicodin. What do they do to you all now?! I have taken tylenol 3 for a mastoidectomy. Vike is pretty strong. Are they going to rebuild your eardrum at surgery time? What about prosthetic bones? Do you need tubes? How are your eustachian tubes performing?What is the condition of your other ear? That whole bit about your facial nerves isn't out of the question for a MASTOID, but a cholesteatoma? Never say never, I guess. Are you sure you aren't getting a mastoidectomy too? > > For a mastoidectomy they watch out for your facial bones to be sure that you don't get Bell's palsy. I want to say one DEFINITE thing here, they can't be 100% certain of anything until they start the operation. For my first op, doc had booked the room for 2 hours. From what he could SEE, he thought that would be it. The surgery ended up almost 5 hours. Told my mom that he had no idea there was that much infection. Blew him away, and scared the hell out of me afterwards. That is one of those times you can certainly see that doctors are not supermen. > > If you want to know the names of the bones, as a group, they are called auditory ossicles. Seperately they are known as (hammer/malleous), (anvil/incus), and (stirrup/stapes). I am pretty sure I spelled all of that right. Anyway, that is also the order in which they appear. When the doctor shines the otoscope in your ear, he can see the malleous. The other ossicles can be seen in x-ray, ct, mri. > > Edmondson > (678)622-6085 > > > > Surgery scheduled... > > Hello everyone, > > Well I got the news I was dreading but was pretty sure I would get anyway. > > I am scheduled for surgery on 10/19. The Dr. said it will be a 3 1/2 hour outpatient surgery. He said he will be removing the tumor, the eardrum and at least 2 of the inner ear bones (the names of which escape me at the moment). He said I would lose 30% of my hearing and that I would most likely experience either loss of taste or develop a metallic taste on the left side of my tongue. My facial nerve will be monitored to make sure it doesn't lose function. He said that in 9 mos. to 1 year later they would operate again to check for regrowth and also to rebuild the bones of the inner ear. He also made it very clear that the primary purpose of the surgery is not to prevent hearing loss, but to remove the tumor. He said that I could expect a 7-10 day recovery period and that none of his patients have ever needed any pain pill stronger than a vicodin and that pain is not a complaint he usually hears. Hopefully all goes well... > > > > > > > " Wherever you go, there you are! " > > Wagemann > geowags@... > --------------------------------- > Messenger with Voice. Make PC-to-Phone Calls to the US (and 30+ countries) for 2¢/min or less. > > > > --------------------------------- > Check out the new AOL. Most comprehensive set of free safety and security tools, free access to millions of high-quality videos from across the web, free AOL Mail and more. > > > > > > > > > > > " Wherever you go, there you are! " > > Wagemann > geowags@... > > --------------------------------- > Messenger with Voice. Make PC-to-Phone Calls to the US (and 30+ countries) for 2¢/min or less. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 4, 2006 Report Share Posted October 4, 2006 I had about a quarter to a third of my head shaved and I had long hair back then... it just goes to show how surgeons can be the epitome of variety and difference, eh? ;-)))))))))) Kazzy xx Surgery scheduled...> > Hello everyone,> > Well I got the news I was dreading but was pretty sure I would get anyway.> > I am scheduled for surgery on 10/19. The Dr. said it will be a 3 1/2 hour outpatient surgery. He said he will be removing the tumor, the eardrum and at least 2 of the inner ear bones (the names of which escape me at the moment). He said I would lose 30% of my hearing and that I would most likely experience either loss of taste or develop a metallic taste on the left side of my tongue. My facial nerve will be monitored to make sure it doesn't lose function. He said that in 9 mos. to 1 year later they would operate again to check for regrowth and also to rebuild the bones of the inner ear. He also made it very clear that the primary purpose of the surgery is not to prevent hearing loss, but to remove the tumor. He said that I could expect a 7-10 day recovery period and that none of his patients have ever needed any pain pill stronger than a vicodin and that pain is not a complaint he usually hears. Hopefully all goes well...> > > > > > > "Wherever you go, there you are!"> > Wagemann> geowags@... > ---------------------------------> Messenger with Voice. Make PC-to-Phone Calls to the US (and 30+ countries) for 2¢/min or less. > > > > ---------------------------------> Check out the new AOL. Most comprehensive set of free safety and security tools, free access to millions of high-quality videos from across the web, free AOL Mail and more.> > > > > > > > > > > "Wherever you go, there you are!"> > Wagemann> geowags@...> > ---------------------------------> Messenger with Voice. Make PC-to-Phone Calls to the US (and 30+ countries) for 2¢/min or less.> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 4, 2006 Report Share Posted October 4, 2006 I have long hair also, but it didn't matter. The hair seemed to grow back pretty quickly, and with hair down, you can't tell. That would be the only external tell tale of CWD to me. Edmondson (678)622-6085 Re: Re: Surgery scheduled... I had about a quarter to a third of my head shaved and I had long hair back then... it just goes to show how surgeons can be the epitome of variety and difference, eh? ;-)))))))))) Kazzy xx Surgery scheduled... > > Hello everyone, > > Well I got the news I was dreading but was pretty sure I would get anyway. > > I am scheduled for surgery on 10/19. The Dr. said it will be a 3 1/2 hour outpatient surgery. He said he will be removing the tumor, the eardrum and at least 2 of the inner ear bones (the names of which escape me at the moment). He said I would lose 30% of my hearing and that I would most likely experience either loss of taste or develop a metallic taste on the left side of my tongue. My facial nerve will be monitored to make sure it doesn't lose function. He said that in 9 mos. to 1 year later they would operate again to check for regrowth and also to rebuild the bones of the inner ear. He also made it very clear that the primary purpose of the surgery is not to prevent hearing loss, but to remove the tumor. He said that I could expect a 7-10 day recovery period and that none of his patients have ever needed any pain pill stronger than a vicodin and that pain is not a complaint he usually hears. Hopefully all goes well... > > > > > > > "Wherever you go, there you are!" > > Wagemann > geowags@... > --------------------------------- > Messenger with Voice. Make PC-to-Phone Calls to the US (and 30+ countries) for 2¢/min or less. > > > > --------------------------------- > Check out the new AOL. Most comprehensive set of free safety and security tools, free access to millions of high-quality videos from across the web, free AOL Mail and more. > > > > > > > > > > > "Wherever you go, there you are!" > > Wagemann > geowags@... > > --------------------------------- > Messenger with Voice. Make PC-to-Phone Calls to the US (and 30+ countries) for 2¢/min or less. > Check out the new AOL. Most comprehensive set of free safety and security tools, free access to millions of high-quality videos from across the web, free AOL Mail and more. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 4, 2006 Report Share Posted October 4, 2006 I guess I was lucky that I didn't have to have my hair shaved off this time! I recall I did have it shaved off a little for my other two surgeries. It does look stupid for a time when you put your hair up in a ponytail for the gym and stuff. Or even for work (in a bun or ponytail) when I want to look a little more put together. But, it could be worse - there are many more horrible medical issues than to have a cholesteatoma! Although, I still can't hear from my surgery in August - ugh, it's driving me crazy! > > , I have had many c-tomas. Never got THAT > specific a treatment plan. WOW Docs thought I MAY lose hearing but > weren't sure. Guess that's the advances since I had my first one as > a teen. Never had to even take vicodin. What do they do to you all > now?! I have taken tylenol 3 for a mastoidectomy. Vike is pretty > strong. Are they going to rebuild your eardrum at surgery time? > What about prosthetic bones? Do you need tubes? How are your > eustachian tubes performing?What is the condition of your other > ear? That whole bit about your facial nerves isn't out of the > question for a MASTOID, but a cholesteatoma? Never say never, I > guess. Are you sure you aren't getting a mastoidectomy too? > > > > For a mastoidectomy they watch out for your facial bones to be > sure that you don't get Bell's palsy. I want to say one DEFINITE > thing here, they can't be 100% certain of anything until they start > the operation. For my first op, doc had booked the room for 2 > hours. From what he could SEE, he thought that would be it. The > surgery ended up almost 5 hours. Told my mom that he had no idea > there was that much infection. Blew him away, and scared the hell > out of me afterwards. That is one of those times you can certainly > see that doctors are not supermen. > > > > If you want to know the names of the bones, as a group, they are > called auditory ossicles. Seperately they are known as > (hammer/malleous), (anvil/incus), and (stirrup/stapes). I am pretty > sure I spelled all of that right. Anyway, that is also the order in > which they appear. When the doctor shines the otoscope in your ear, > he can see the malleous. The other ossicles can be seen in x-ray, > ct, mri. > > > > Edmondson > > (678)622-6085 > > > > > > > > Surgery scheduled... > > > > Hello everyone, > > > > Well I got the news I was dreading but was pretty sure I would > get anyway. > > > > I am scheduled for surgery on 10/19. The Dr. said it will be a > 3 1/2 hour outpatient surgery. He said he will be removing the > tumor, the eardrum and at least 2 of the inner ear bones (the names > of which escape me at the moment). He said I would lose 30% of my > hearing and that I would most likely experience either loss of taste > or develop a metallic taste on the left side of my tongue. My > facial nerve will be monitored to make sure it doesn't lose > function. He said that in 9 mos. to 1 year later they would operate > again to check for regrowth and also to rebuild the bones of the > inner ear. He also made it very clear that the primary purpose of > the surgery is not to prevent hearing loss, but to remove the > tumor. He said that I could expect a 7-10 day recovery period and > that none of his patients have ever needed any pain pill stronger > than a vicodin and that pain is not a complaint he usually hears. > Hopefully all goes well... > > > > > > > > > > > > > > " Wherever you go, there you are! " > > > > Wagemann > > geowags@ > > --------------------------------- > > Messenger with Voice. Make PC-to-Phone Calls to the US > (and 30+ countries) for 2¢/min or less. > > > > > > > > --------------------------------- > > Check out the new AOL. Most comprehensive set of free safety and > security tools, free access to millions of high-quality videos from > across the web, free AOL Mail and more. > > > > > > > > > > > > > > > > > > > > > > " Wherever you go, there you are! " > > > > Wagemann > > geowags@ > > > > --------------------------------- > > Messenger with Voice. Make PC-to-Phone Calls to the US (and > 30+ countries) for 2¢/min or less. > > > > > > _____________________________________________________________________ ___ > Check out the new AOL. Most comprehensive set of free safety and security tools, free access to millions of high-quality videos from across the web, free AOL Mail and more. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 4, 2006 Report Share Posted October 4, 2006 Make sure that you don't have a clogged tube, infection, perforated eardrum, fluid behind the drum, retracted drum, eustachian tube disfunction, c-toma, and mastoiditis. If you are clear on these, it's not going to come back much if at all. Edmondson (678)622-6085 Surgery scheduled... > > > > Hello everyone, > > > > Well I got the news I was dreading but was pretty sure I would > get anyway. > > > > I am scheduled for surgery on 10/19. The Dr. said it will be a > 3 1/2 hour outpatient surgery. He said he will be removing the > tumor, the eardrum and at least 2 of the inner ear bones (the names > of which escape me at the moment). He said I would lose 30% of my > hearing and that I would most likely experience either loss of taste > or develop a metallic taste on the left side of my tongue. My > facial nerve will be monitored to make sure it doesn't lose > function. He said that in 9 mos. to 1 year later they would operate > again to check for regrowth and also to rebuild the bones of the > inner ear. He also made it very clear that the primary purpose of > the surgery is not to prevent hearing loss, but to remove the > tumor. He said that I could expect a 7-10 day recovery period and > that none of his patients have ever needed any pain pill stronger > than a vicodin and that pain is not a complaint he usually hears. > Hopefully all goes well... > > > > > > > > > > > > > > "Wherever you go, there you are!" > > > > Wagemann > > geowags@ > > --------------------------------- > > Messenger with Voice. Make PC-to-Phone Calls to the US > (and 30+ countries) for 2¢/min or less. > > > > > > > > --------------------------------- > > Check out the new AOL. Most comprehensive set of free safety and > security tools, free access to millions of high-quality videos from > across the web, free AOL Mail and more. > > > > > > > > > > > > > > > > > > > > > > "Wherever you go, there you are!" > > > > Wagemann > > geowags@ > > > > --------------------------------- > > Messenger with Voice. Make PC-to-Phone Calls to the US (and > 30+ countries) for 2¢/min or less. > > > > > > __________________________________________________________ ___ > Check out the new AOL. Most comprehensive set of free safety and security tools, free access to millions of high-quality videos from across the web, free AOL Mail and more. > Check out the new AOL. Most comprehensive set of free safety and security tools, free access to millions of high-quality videos from across the web, free AOL Mail and more. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 4, 2006 Report Share Posted October 4, 2006 Last week at my appointment, I found out I had a " bit of an infection on the ear drum " and the doctor installed a wick and I have had to put drops in my ear twice a day. I go back tomorrow for the removal of the wick - which I am not looking forward to. I don't look forward to any of these appointments! I hate having my ears poked at. Hopefully this is all cleared up, especially since I have to fly for a business trip on Monday. > > > , I have had many c-tomas. Never got THAT > > specific a treatment plan. WOW Docs thought I MAY lose hearing but > > weren't sure. Guess that's the advances since I had my first one > as > > a teen. Never had to even take vicodin. What do they do to you all > > now?! I have taken tylenol 3 for a mastoidectomy. Vike is pretty > > strong. Are they going to rebuild your eardrum at surgery time? > > What about prosthetic bones? Do you need tubes? How are your > > eustachian tubes performing?What is the condition of your other > > ear? That whole bit about your facial nerves isn't out of the > > question for a MASTOID, but a cholesteatoma? Never say never, I > > guess. Are you sure you aren't getting a mastoidectomy too? > > > > > > For a mastoidectomy they watch out for your facial bones to be > > sure that you don't get Bell's palsy. I want to say one DEFINITE > > thing here, they can't be 100% certain of anything until they > start > > the operation. For my first op, doc had booked the room for 2 > > hours. From what he could SEE, he thought that would be it. The > > surgery ended up almost 5 hours. Told my mom that he had no idea > > there was that much infection. Blew him away, and scared the hell > > out of me afterwards. That is one of those times you can certainly > > see that doctors are not supermen. > > > > > > If you want to know the names of the bones, as a group, they are > > called auditory ossicles. Seperately they are known as > > (hammer/malleous), (anvil/incus), and (stirrup/stapes). I am > pretty > > sure I spelled all of that right. Anyway, that is also the order > in > > which they appear. When the doctor shines the otoscope in your > ear, > > he can see the malleous. The other ossicles can be seen in x- ray, > > ct, mri. > > > > > > Edmondson > > > (678)622-6085 > > > > > > > > > > > > Surgery scheduled... > > > > > > Hello everyone, > > > > > > Well I got the news I was dreading but was pretty sure I would > > get anyway. > > > > > > I am scheduled for surgery on 10/19. The Dr. said it will be a > > 3 1/2 hour outpatient surgery. He said he will be removing the > > tumor, the eardrum and at least 2 of the inner ear bones (the > names > > of which escape me at the moment). He said I would lose 30% of my > > hearing and that I would most likely experience either loss of > taste > > or develop a metallic taste on the left side of my tongue. My > > facial nerve will be monitored to make sure it doesn't lose > > function. He said that in 9 mos. to 1 year later they would > operate > > again to check for regrowth and also to rebuild the bones of the > > inner ear. He also made it very clear that the primary purpose of > > the surgery is not to prevent hearing loss, but to remove the > > tumor. He said that I could expect a 7-10 day recovery period and > > that none of his patients have ever needed any pain pill stronger > > than a vicodin and that pain is not a complaint he usually hears. > > Hopefully all goes well... > > > > > > > > > > > > > > > > > > > > > " Wherever you go, there you are! " > > > > > > Wagemann > > > geowags@ > > > --------------------------------- > > > Messenger with Voice. Make PC-to-Phone Calls to the US > > (and 30+ countries) for 2¢/min or less. > > > > > > > > > > > > --------------------------------- > > > Check out the new AOL. Most comprehensive set of free safety and > > security tools, free access to millions of high-quality videos > from > > across the web, free AOL Mail and more. > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > " Wherever you go, there you are! " > > > > > > Wagemann > > > geowags@ > > > > > > --------------------------------- > > > Messenger with Voice. Make PC-to-Phone Calls to the US > (and > > 30+ countries) for 2¢/min or less. > > > > > > > > > > > > __________________________________________________________ > ___ > > Check out the new AOL. Most comprehensive set of free safety and > security tools, free access to millions of high-quality videos from > across the web, free AOL Mail and more. > > > > > > _____________________________________________________________________ ___ > Check out the new AOL. Most comprehensive set of free safety and security tools, free access to millions of high-quality videos from across the web, free AOL Mail and more. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 4, 2006 Report Share Posted October 4, 2006 I was really never all that conscious of the scars or long term effects of surgery before this year. I just lived with it and moved on. Then this year, someone made a crude remark about a scar I have near my right arm. It is from an IV that has been sewn into my chest making it easier for blood tests and IVs. It's called a port-a-cath. It was last month that the remark was made. I was truly fine with it before. My doc had apologized profusely; I wasn't bothered by it at all. I told him that anyone who had a problem with it could shut their eyes or look in another direction. I meant that, but when the remark got made. I don't know. There was a little opening of vulnerability that was there, and I got ashamed. Then I got angry that I had gotten ashamed. Some whack job I am! LOL I just can't seem to get past it now. You know, when I got my first hearing aid, I woe a pony tail every day for maybe 2 months! I was so excited that I could hear! Same for the shaved areas. Now, all of a sudden, it matters. Every scar. The scar on my chest is most noticeable because I am almost translucent, I am so pale. It's called a keloid or an over growth of scar tissue. The very pale and very dark are more succeptable to getting them from accidents or operations. When you have veins and blood flowing through the tissue and the tissue is very red or pink, it becomes a circatrix (sp?). I tell you all of these things, and I never remember if I am spelling them correctly. I need to go buy a new medical dictionary! The keloids itch like crazy; you can get them reduced by a dermatologist. That injection is the most wonderful thing in the world! Edmondson (678)622-6085 Surgery scheduled... > > > > Hello everyone, > > > > Well I got the news I was dreading but was pretty sure I would > get anyway. > > > > I am scheduled for surgery on 10/19. The Dr. said it will be a > 3 1/2 hour outpatient surgery. He said he will be removing the > tumor, the eardrum and at least 2 of the inner ear bones (the names > of which escape me at the moment). He said I would lose 30% of my > hearing and that I would most likely experience either loss of taste > or develop a metallic taste on the left side of my tongue. My > facial nerve will be monitored to make sure it doesn't lose > function. He said that in 9 mos. to 1 year later they would operate > again to check for regrowth and also to rebuild the bones of the > inner ear. He also made it very clear that the primary purpose of > the surgery is not to prevent hearing loss, but to remove the > tumor. He said that I could expect a 7-10 day recovery period and > that none of his patients have ever needed any pain pill stronger > than a vicodin and that pain is not a complaint he usually hears. > Hopefully all goes well... > > > > > > > > > > > > > > "Wherever you go, there you are!" > > > > Wagemann > > geowags@ > > --------------------------------- > > Messenger with Voice. Make PC-to-Phone Calls to the US > (and 30+ countries) for 2¢/min or less. > > > > > > > > --------------------------------- > > Check out the new AOL. Most comprehensive set of free safety and > security tools, free access to millions of high-quality videos from > across the web, free AOL Mail and more. > > > > > > > > > > > > > > > > > > > > > > "Wherever you go, there you are!" > > > > Wagemann > > geowags@ > > > > --------------------------------- > > Messenger with Voice. Make PC-to-Phone Calls to the US (and > 30+ countries) for 2¢/min or less. > > > > > > __________________________________________________________ ___ > Check out the new AOL. Most comprehensive set of free safety and security tools, free access to millions of high-quality videos from across the web, free AOL Mail and more. > Check out the new AOL. Most comprehensive set of free safety and security tools, free access to millions of high-quality videos from across the web, free AOL Mail and more. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 4, 2006 Report Share Posted October 4, 2006  Exactly. And such a small price to pay for the removal of the monster that is cholesteatoma. :-) Kazzy xx Surgery scheduled...> > Hello everyone,> > Well I got the news I was dreading but was pretty sure I would get anyway.> > I am scheduled for surgery on 10/19. The Dr. said it will be a 3 1/2 hour outpatient surgery. He said he will be removing the tumor, the eardrum and at least 2 of the inner ear bones (the names of which escape me at the moment). He said I would lose 30% of my hearing and that I would most likely experience either loss of taste or develop a metallic taste on the left side of my tongue. My facial nerve will be monitored to make sure it doesn't lose function. He said that in 9 mos. to 1 year later they would operate again to check for regrowth and also to rebuild the bones of the inner ear. He also made it very clear that the primary purpose of the surgery is not to prevent hearing loss, but to remove the tumor. He said that I could expect a 7-10 day recovery period and that none of his patients have ever needed any pain pill stronger than a vicodin and that pain is not a complaint he usually hears. Hopefully all goes well...> > > > > > > "Wherever you go, there you are!"> > Wagemann> geowags@... > ---------------------------------> Messenger with Voice. Make PC-to-Phone Calls to the US (and 30+ countries) for 2¢/min or less. > > > > ---------------------------------> Check out the new AOL. Most comprehensive set of free safety and security tools, free access to millions of high-quality videos from across the web, free AOL Mail and more.> > > > > > > > > > > "Wherever you go, there you are!"> > Wagemann> geowags@...> > ---------------------------------> Messenger with Voice. Make PC-to-Phone Calls to the US (and 30+ countries) for 2¢/min or less.> Check out the new AOL. Most comprehensive set of free safety and security tools, free access to millions of high-quality videos from across the web, free AOL Mail and more. Quote Link to comment Share on other sites More sharing options...
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