Guest guest Posted June 11, 2004 Report Share Posted June 11, 2004 Hi , Remember me? My son Brody had his surgery the same day as you did. His incus was eroded and during the c'toma removal, they attempted to reconstruct by removing it, cleaning it, and then replacing it. Unfortunately it slipped sometime during recovery and he now has mild to moderate hearing loss. Less hearing than before his surgery. But his surgeon wants to reconstruct with prosthetic bone this coming February. Did your surgeon mention reconstruction for you? Don't give up hope yet. My son has also mentioned that sometimes his bad ear feels plugged up and he is just getting over an infection that required anti biotics. Somedays I find that his hearing is worst than others as well. Good luck and keep us posted. - Dee - In cholesteatoma , " " <purr_30@y...> wrote: > Hi everyone, > > I am sure it is possible but I have to throw this question out to > the group as I need some advice. > Since my Feb 4 surgery my hearing has gone up and down. More down in > the last 2 months than anything.I remember shortly after the surgery > I would hear great, just after the cleaning out phase and then a few > days later it would feel plugged again and the hearing would go > down. Dr. said it was because the ear was not DRY yet and to give it > time. > Well, today I saw him and it has been a lil more than 4 mths, ear is > dry and drum and everything looks back to normal so to speak. The > problem is, My hearing has dropped ALOT and I am scared. > He did a test and he was not happy with the results. My hearing has > dropped about 25-30 % since the surgery so now I am at about 50%. > To some that might not be alot but for me, I have a 95% loss in my > left ear and depend on a aid already. I am very depressed and wanted > to freak on the Dr. cause he said if anything, my hearing would > improve if not, it would remain the same. > So, I am wondering if anyone has lost more hearing since surgery. If > you have, please post and give me some advice on how you handled it. > I would really appreciate it alot right now. > > Thanks so much, > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 11, 2004 Report Share Posted June 11, 2004 Hi Dee, Yes I remember you and Brody. How is he adjusting? He has not mentioned reconstruction and I think that is the hardest part of my accepting this might be it. I have better hearing days as well and it is really making me angry. It either comes back or it doesn't. Almost like it tis teasing me. Grrrrrr. I am so sick and tired of hearing that I have to have PATIENCE. It's been 4 mths. My husband mentioned yesterday that he is unimpressed by the fact that whenever we mentioned the hearing to the DR. it's almost as if he is getting iritated that we are questioning it. Is this not his job? I haven't had any infections since the surgery so I am lucky there. But what I have noticed though is, even though nothing is draining from my ear onto the pillow, I can feel something, or am I just going crazy?? I am at my wits end and don't know what to do anymore. Did I make a wrong choice in the Dr.? Do I allow him to do reconstruction on my other ear? Sednign you and Brody tons of prayers and hope his hearing gets better. Please keep me posted by e-mail or post. Thanks God Bless, > > Hi everyone, > > > > I am sure it is possible but I have to throw this question out to > > the group as I need some advice. > > Since my Feb 4 surgery my hearing has gone up and down. More down > in > > the last 2 months than anything.I remember shortly after the > surgery > > I would hear great, just after the cleaning out phase and then a > few > > days later it would feel plugged again and the hearing would go > > down. Dr. said it was because the ear was not DRY yet and to give > it > > time. > > Well, today I saw him and it has been a lil more than 4 mths, ear > is > > dry and drum and everything looks back to normal so to speak. The > > problem is, My hearing has dropped ALOT and I am scared. > > He did a test and he was not happy with the results. My hearing has > > dropped about 25-30 % since the surgery so now I am at about 50%. > > To some that might not be alot but for me, I have a 95% loss in my > > left ear and depend on a aid already. I am very depressed and > wanted > > to freak on the Dr. cause he said if anything, my hearing would > > improve if not, it would remain the same. > > So, I am wondering if anyone has lost more hearing since surgery. > If > > you have, please post and give me some advice on how you handled it. > > I would really appreciate it alot right now. > > > > Thanks so much, > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 21, 2004 Report Share Posted June 21, 2004 Dear , I'm sorry about your hearing. I have had 3 attempts just to improve my hearing after 4 cholesteatomas. I know the excitement post surgery when you can hear better and then the tremendous disappointment when after a short while (for me usually about 3 to 6 weeks) later your hearing drops dramatically. Your case may be different and it may be transient (I truly hope so). Unfortunately, mine was a permanent drop in hearing. It's normal to respond with feellings of frustration and even depression. Unfortunately, the prostheses are so small that it's very difficult for them to remain in place once the internal packing disolves. You must make sure you don't blow your nose, etc... I plan on getting hearing aids for both ears and waiting a while before trying again. I know its extremely disappointing, but I hope this has helped, and that either your hearing will return very soon or that you can look ahead to your next try. Best, Caroline <purr_30@...> wrote: Hi everyone,I am sure it is possible but I have to throw this question out to the group as I need some advice.Since my Feb 4 surgery my hearing has gone up and down. More down in the last 2 months than anything.I remember shortly after the surgery I would hear great, just after the cleaning out phase and then a few days later it would feel plugged again and the hearing would go down. Dr. said it was because the ear was not DRY yet and to give it time.Well, today I saw him and it has been a lil more than 4 mths, ear is dry and drum and everything looks back to normal so to speak. The problem is, My hearing has dropped ALOT and I am scared.He did a test and he was not happy with the results. My hearing has dropped about 25-30 % since the surgery so now I am at about 50%.To some that might not be alot but for me, I have a 95% loss in my left ear and depend on a aid already. I am very depressed and wanted to freak on the Dr. cause he said if anything, my hearing would improve if not, it would remain the same.So, I am wondering if anyone has lost more hearing since surgery. If you have, please post and give me some advice on how you handled it.I would really appreciate it alot right now.Thanks so much, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 26, 2004 Report Share Posted June 26, 2004 Hi Carolyn, Thanks for replying to my post. I sure need to hear that others have experienced similar situations as I have. Yes it is very disappointing but there is nothing I can do about it now. The hardest part I am dealing with is the anger I have towards him. I am livid with this Dr. I know he can't perform miracles and should never had gotten my hopes up, but I trusted and beleived in him. I am sure within time, I will accept it but for now, I have way too much anger to just let it go. Hope this finds you well and good luck with the Aids. I have one and LOVE IT. Can't imagine living without it. > Hi everyone, > > I am sure it is possible but I have to throw this question out to > the group as I need some advice. > Since my Feb 4 surgery my hearing has gone up and down. More down in > the last 2 months than anything.I remember shortly after the surgery > I would hear great, just after the cleaning out phase and then a few > days later it would feel plugged again and the hearing would go > down. Dr. said it was because the ear was not DRY yet and to give it > time. > Well, today I saw him and it has been a lil more than 4 mths, ear is > dry and drum and everything looks back to normal so to speak. The > problem is, My hearing has dropped ALOT and I am scared. > He did a test and he was not happy with the results. My hearing has > dropped about 25-30 % since the surgery so now I am at about 50%. > To some that might not be alot but for me, I have a 95% loss in my > left ear and depend on a aid already. I am very depressed and wanted > to freak on the Dr. cause he said if anything, my hearing would > improve if not, it would remain the same. > So, I am wondering if anyone has lost more hearing since surgery. If > you have, please post and give me some advice on how you handled it. > I would really appreciate it alot right now. > > Thanks so much, > > > > > > > > Quote Link to comment Share on other sites More sharing options...
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