Guest guest Posted February 10, 2004 Report Share Posted February 10, 2004 I;m glad I could be of help to you. I have got so much support in the past with this group. My son had the CWD in Feb (almost a year now) and reconstruction 2 months ago. So, yes, my son had reconstruction after CWD. The doc reconstructed his eardrum and put in a torp to act as the bones. He lost the bones in his ears about 3 years ago. The reconstruction seems to have been a huge success. His hearing has greatly improved. He will need to have his ears cleaned out, for the rest of his life, every 3 to 6 mos. He has had a pretty dramatic CWD as his ear canal is very wide. He has not had a hearing test since the reconstruction because the doctor prefers to wait until the swelling goes down. He has an appt next week when I suspect that he might get a hearing test. I can tell you it will show dramatic improvement. My advice is that you need a second opinion if the current doctor will not reconstruct. I too, was scared about the CWD but it really is ok. First of all, if and when the ctoma reoccurs, he will not have to have his ear taken off again. The doc can suction out any ctoma that might appear. As far as the swimming goes, he has had to keep a dry ear since the c-toma was first discovered when he was 6 years old, so it really doesn't make much difference. With the swimming, he will always have to wear the earplugs and will avoid going under water. The antibiotic drops are for any water that might get in. When we go to the beach, I will let him try to ride the waves, if he wants to but we will be taking a chance of infection if any water gets into the ear but it's a risk we are willing to take. Now, knowing my son, there is a good chance he will not do it. He is very protective of his ear. One more thing. Reconstruction after c-toma is usually not a lifelong solution. My attitude is that if the reconstruction holds until he's a teen, I will be grateful. With that said, there are so many new things coming on the horizon like the BAHA (bone anchored hearing aid) that show great promise for our boys. I feel that this struggle will not continue throughout his whole life and medicine will have better solutions that last longer. I have such admiration for my son. He has handled all this like such a trooper. I remember a couple years ago when the ctoma came back with vengence and I was feeling just aweful about it, I had to take my son for a catscan. We were sitting in the waiting room with three children, about my son's age who obviously had cancer. Man, I was put right into my place at that very moment. I realized that my son will never die from this and counted my blessings at how relatively minor this was compared to what those other mom's felt. I try to be positive. I am a teacher in the poorest district in my state and I see what aweful lives some kids contend with every day. I think that helps. My son is athletic, smart, and as handsome and wonderful as his dad. I know this will be ok in the long run. Heck, maybe because of this he will be a great ear doctor some day. I also feel like since the CWD, the worst is finally over. He will not be having his ear cut-off and sewn back on every year. So, don't be too afraid of the CWD, He's going to be ok. Are you able to go to an otologist? We are from Massachusetts, where are you from? My best to you, Gus Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 31, 2011 Report Share Posted March 31, 2011 Also curious have you continued with the cell salts? And have you stopped all probotics for now, and antioxidants? > > > > > > > > How long did it take for you start noticing that things were working for you with the MMS or the baths? I haven't been at it long, but am up to 10 drops 2x/day. I haven't started the new protocol yet... > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 1, 2011 Report Share Posted April 1, 2011 I do continue with my cell salts. I take as often as I can remember and they sit by my computer. I am not taking probiotics right now for the time being, but taking some antioxidants and minerals. Also taking 2 mg of MSM daily, and 90 mg of CoQ10 and thyroid (pig), B complex and B12, B6 and D3. Re: To Marie Also curious have you continued with the cell salts? And have you stopped all probotics for now, and antioxidants? > >> > > > > > How long did it take for you start noticing that things were working for you with the MMS or the baths? I haven't been at it long, but am up to 10 drops 2x/day. I haven't started the new protocol yet... > > > > > > > > > >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 1, 2011 Report Share Posted April 1, 2011 By the way you wrote 2mg of MSM did you mean 2000mg? > > > > > > > > > > > > How long did it take for you start noticing that things were working for you with the MMS or the baths? I haven't been at it long, but am up to 10 drops 2x/day. I haven't started the new protocol yet... > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 1, 2011 Report Share Posted April 1, 2011 Yes, I meant 2000 mg - two pills of 1000 mg each, morn and eve. Re: To Marie By the way you wrote 2mg of MSM did you mean 2000mg? > > > > > > > > > > > > How long did it take for you start noticing that things were working for you with the MMS or the baths? I haven't been at it long, but am up to 10 drops 2x/day. I haven't started the new protocol yet... > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 1, 2011 Report Share Posted April 1, 2011 Hi Marie-- I haven't had a chance to open the new box of powdered MMS yet to look at the products. I assumed the directions for mixing the products were in the box. If not, I think I read on your posts that distilled water or purified water should be used to mix the sodium chlorite and citric acid. I have gallons of distilled water at home. MMS is truly a wonderful disinfectant. The only other really good disinfectant that I know of is Vodka. Hulda advised using Vodka for counters, etc., and I have used this for years (1 part Vodka to 3 parts or maybe it was 4 parts water) in a spray bottle for counters. It also dissolves grease on the stove top better than anything I've ever found--MMS would be perfect for that too as I never seen anything cut dirt like MMS as seen in the tub. I've kept a spray bottle of Vodka water handy for years--I just buy cheapest Vodka on the market for this. But MMS would be excellent too. Don't you have to wait for it to activate before you spray it? Or use it within a certain time? I never did use my fogger, but plan to in the summer with the MMS. I decided Cedarcide was too expensive and I only purchased one quart, no enough to much of anything. But actually the MMS as you use it with a fan would treat walls too. These things are floating off of me and falling off of me even though I don't see it happen (proof is seen by my keyboard which is black and keyboard tray which is also black). It does not take very long before keyboard is sprinkled with white clumps of various sizes (not dandruff). By the way, I looked at some of them under scope and one in particular looked egg-like, shiny and oval. There is also an irridescent quality about it under the scope. Whatever I have it is threaded throughout my whole body, not just skin surface so the MMS should take care of that over time. I'm not seeing any change yet. How long should I continue 10 drops 2x/day? I thought I was supposed to increase to 15 drops 2x/day. Wasn't that in the original directions (which I've lost)? Thanks friend. Re: To Marie With your life being so demanding right now stick with the 10 drops twice daily. This should help keep your immune system strong for the new protocol, and help getting through this emotional and demanding time. I had nausea and diarrhea, in fact I detoxed hard and took months to reach 10 drops 2 times a day. Perhaps I was sicker? You might consider using the 10 activated drops in each room, without human or animal in the room for treatment of environment to. This is something I do in my old farmhouse weekly. Actually I use 10 drops on the bar in the kitchen with a small fan and I and the animals are unaffected. However the home is 2500 sq ft. Treating each room initially is a good way to render bacteria virus and mold. Was the product what you expected? Do you understand how to make the sodium chlorite, and citric acid? Having plenty of MMS will open up all kinds of new treatments, I also wash all fruit vegs, and meats, disinfect counters, use in shampooer, and fogger. > > > > > > > > How long did it take for you start noticing that things were working for you with the MMS or the baths? I haven't been at it long, but am up to 10 drops 2x/day. I haven't started the new protocol yet... > > > > > > > > > >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 1, 2011 Report Share Posted April 1, 2011 I think I'll continue the CoQ10 because it really helps with heart health... I think heart is okay, but it helps me with a very lagging energy system. So so so tired. Thanks for the kind words... I had 3 family members pass away in the last several months: my sister on January 23, my brother-in-law - her husband on March 15 (didn't know him well) and brother on March 25. That is a lot to take in. Let's just hope no one else gets any crazy ideas. I couldn't handle it; but I'm doing okay considering. Thank you to everyone for kind thoughts and words here. I am not one to generally ask for things, but believe me, I really needed it. So thank you once again. Re: To Marie Q10 is a antioxidant, so is coffee tea ect. Try and avoid antioxidants while doing the 1000 then after reaching the goal ramp up on probotics prebotics and antioxidants. Be sure and allow at least 2 hour window before or after for the antioxidants, if you must. I would continue cell salts, sulfur MSM, including flower of sulfur, and D3, also the B's if you are deficient. The black strap molasses is a great compliment to the MMS with the iron and magnesium, taken with the flower of sulfur. I take the spring tonic daily, good stuff for me. Also how about the tea tree soap? I bought some and made a liquid soap from mine. Use for my second lather of shampoo, love it for the body and hair. stay strong this will be a immune buster what you have to deal with. You are in my thoughts and may the spirits of strength and wisdom be with you. > > > > > > > > > > > > How long did it take for you start noticing that things were working for you with the MMS or the baths? I haven't been at it long, but am up to 10 drops 2x/day. I haven't started the new protocol yet... > > > > > > > > > > > > > > > > >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 1, 2011 Report Share Posted April 1, 2011 That is a lot to deal with, stay strong. Agree Q10 is great for the heart is cayenne. > > > > > > > > > > > > > > > > How long did it take for you start noticing that things were working for you with the MMS or the baths? I haven't been at it long, but am up to 10 drops 2x/day. I haven't started the new protocol yet... > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 8, 2011 Report Share Posted April 8, 2011 Marie I think things are coming to the surface... I really do. I expect that things might get worse, itch and sensations, before they get better. They absolutely hate MMS and are trying to get out I think. I think the MMS irritates the Lyme too. So there has been an increase is neuro symptoms and buzzing. I'll keep up the 10 drops activated 2x/day until after Memorial #2 on Sunday (a scattering of ashes). There has been much preparation to do both of these memorials, but my brother would have been very pleased, since he was afraid everyone would forget him. That will never happen on my watch. On some level my brain seems to be functioning better since starting MMS AND I think the Bioplasma cell salts are working. I have an overall increase of well being just in general, even with all the itching and sensations going on. So grateful for that. That stuff is amazing. Thanks friend. Re: To Marie With the baths I could tell after the first week it was helping, internally took me almost a year to feel healed. I knew within the first several months the MMS had worked better for me than anything I had tried to that point. This beast is not easy to tame and even harder to beat. I really wish you could do the new protocol with less drops and more frequency, it has been proven to me much more successful for things like lyme and morgellon, then take the maintenance. I had gone off the maintenance, but have decided to start back taking 6 to 8 drops a day. Are you seeing any results? >> > > How long did it take for you start noticing that things were working for you with the MMS or the baths? I haven't been at it long, but am up to 10 drops 2x/day. I haven't started the new protocol yet... > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 8, 2011 Report Share Posted April 8, 2011 I do have an old drip coffee maker which I can use for this. So that will work great. Thx Re: To Marie The old protocol is 15 drops of activated MMS daily for 2 weeks. Do the new protocol it is more effective at not as taxing on the body. Stay where you are for now with the 10 drops twice daily until you have the memorial services behind you. Then go for the new 1000 protocol, perhaps the 2000 if the 1000 won't kick it. Give yourself time to get through every thing now. Here are simple directions for a small bottle of MMS1. I use a drip coffee maker for the MMS and use it FOR ONLY making the MMS, it is the perfect temperature. To Prepare One Small Four Ounce Bottle of 28% MMS Solution: Step 1: In a small bowl place 4 level tablespoons of sodium chlorite flakes/powder. Step 2: Add 3 fluid ounces of distilled warm water (max temperature - 150 degrees Fahrenheit). Step 3: Stir with a non-metallic spoon and cover for darkness. Let the solution sit for 3 hours or overnight. Expect some settlings to fall to the bottom. Step 4: Pour slowly into a dark 4 or 6 ounce bottle for storage and future use. Leave settlings in the bowl - discard them.Citric acid 50% solution mixing InstructionsTo Convert the Full 2.36 Pounds Package into 53 fluid ounces (6 and 2/3 cups) of 50% Citric Acid Solution: Step 1: Fill a non-metallic large bowl or half gal. jar with 32 fluid ounces (4 cups) of warm or room temperature distilled water. Step 2: While sprinkling in the entire contents (2.36 pounds) of the citric acid powder, stir with a non-metallic spoon or shake jar.Step 3: Once all the powder is dissolved, cover and let it stand for several hours or overnight in a dark location. Step 4: The solution will be transparent. Can be strained through a paper towel and slowly transfer the solution into a clean and preferably dark glass or plastic container leaving any sediment behind. Step 5: You now have 53 fluid ounces (6 and 2/3 cups)] of 50% citric acid solution ready for future use.M > > > > > > > > > > > > How long did it take for you start noticing that things were working for you with the MMS or the baths? I haven't been at it long, but am up to 10 drops 2x/day. I haven't started the new protocol yet... > > > > > > > > > > > > > > > > >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 8, 2011 Report Share Posted April 8, 2011 As many have written me on your symptoms and theirs, better out than in:) I am glad the memorial services are going as well as they can. Your brother will be looking over thanking you. Strong believer in great spirits like the Indians, and karma like Buddha. Glad you are seeing, and feeling some better, the journey is hard. My eyesight and others improved as well, and yes MMS is amazing:) The cells salts should help with mood and stress. Just remember to keep on them, cheap enough:) Did you try making liquid soap out of the tea tree bar? Wow it's great for shampoo as well. A gallon with shipping and handling once made up cost about $2.00. My pantry looks like bed and bath. I have liquid raspberry, tea tree, peppermint, light peppermint, blackberry and plain lye. Will be thinking of you going through this hard journey. Marie > > > > > > > > How long did it take for you start noticing that things were working for you with the MMS or the baths? I haven't been at it long, but am up to 10 drops 2x/day. I haven't started the new protocol yet... > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 8, 2011 Report Share Posted April 8, 2011 Me too... Sent from my iPodOn Apr 8, 2011, at 11:54 AM, "healinghope" <mfrreman@...> wrote: As many have written me on your symptoms and theirs, better out than in:) I am glad the memorial services are going as well as they can. Your brother will be looking over thanking you. Strong believer in great spirits like the Indians, and karma like Buddha. Glad you are seeing, and feeling some better, the journey is hard. My eyesight and others improved as well, and yes MMS is amazing:) The cells salts should help with mood and stress. Just remember to keep on them, cheap enough:) Did you try making liquid soap out of the tea tree bar? Wow it's great for shampoo as well. A gallon with shipping and handling once made up cost about $2.00. My pantry looks like bed and bath. I have liquid raspberry, tea tree, peppermint, light peppermint, blackberry and plain lye. Will be thinking of you going through this hard journey. Marie > > > > > > > > How long did it take for you start noticing that things were working for you with the MMS or the baths? I haven't been at it long, but am up to 10 drops 2x/day. I haven't started the new protocol yet... > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 8, 2011 Report Share Posted April 8, 2011 I am using tea tree soap for shampoo and I really like it. Use it for 2nd shampoo.Sent from my iPodOn Apr 8, 2011, at 11:54 AM, "healinghope" <mfrreman@...> wrote: As many have written me on your symptoms and theirs, better out than in:) I am glad the memorial services are going as well as they can. Your brother will be looking over thanking you. Strong believer in great spirits like the Indians, and karma like Buddha. Glad you are seeing, and feeling some better, the journey is hard. My eyesight and others improved as well, and yes MMS is amazing:) The cells salts should help with mood and stress. Just remember to keep on them, cheap enough:) Did you try making liquid soap out of the tea tree bar? Wow it's great for shampoo as well. A gallon with shipping and handling once made up cost about $2.00. My pantry looks like bed and bath. I have liquid raspberry, tea tree, peppermint, light peppermint, blackberry and plain lye. Will be thinking of you going through this hard journey. Marie > > > > > > > > How long did it take for you start noticing that things were working for you with the MMS or the baths? I haven't been at it long, but am up to 10 drops 2x/day. I haven't started the new protocol yet... > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 11, 2011 Report Share Posted April 11, 2011 Isn't it strange that your eyesight improved too?Wow! Sent from my iPodOn Apr 8, 2011, at 11:54 AM, "healinghope" <mfrreman@...> wrote: As many have written me on your symptoms and theirs, better out than in:) I am glad the memorial services are going as well as they can. Your brother will be looking over thanking you. Strong believer in great spirits like the Indians, and karma like Buddha. Glad you are seeing, and feeling some better, the journey is hard. My eyesight and others improved as well, and yes MMS is amazing:) The cells salts should help with mood and stress. Just remember to keep on them, cheap enough:) Did you try making liquid soap out of the tea tree bar? Wow it's great for shampoo as well. A gallon with shipping and handling once made up cost about $2.00. My pantry looks like bed and bath. I have liquid raspberry, tea tree, peppermint, light peppermint, blackberry and plain lye. Will be thinking of you going through this hard journey. Marie > > > > > > > > How long did it take for you start noticing that things were working for you with the MMS or the baths? I haven't been at it long, but am up to 10 drops 2x/day. I haven't started the new protocol yet... > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
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