recurrence of cholesteatoma

[Guest guest]

Hi Pat,

My son, age 7, also had a huge ctoma and they are treating it aggressively, because it was so big and already eaten away most of his earbones and it was in his mastoid he has had three surgeries. When the ctoma is so large they may miss part of it. His doctor says there is nothing we can do to prevent it from coming back and he will need to be monitored all of his life. It may never come back but it could.

Best of Luck

BRENDA SIMKOVICH

recurrence of cholesteatoma

Hello everyone,I joined the group recently after my 10 year old son Jack had what the surgeon descibed as a enormous cholesteatoma removed on 10/1/05. About 12 months prior to the operation my son mentioned that he could not hear as well in his right ear. Apart from the occasional headache he showed no other symptoms. He had a radical modified mastoidectomy and the surgeon has indicated that every thing looks OK so far. He has said however that is is likely that because of the size of the cholesteatoma it may recurr. The prospect of this & further surgeries fills me with dread.Does anybody know how often monitoring needs to take place & what this involves? Also is a cholesteatoma more likely to recurr in children and if the cholesteatoma is large does that may the chances higher? Is there anything I can do to reduce the chances of it recurring? Regards to everyonePat

[Guest guest]

Pat,

Our surgeon said that one of the best things we can do is make sure the

effected ear stays as dry as possible. Anything to discourage an infection.

We use cottin balls covered in vaseline for baths and ear plugs for swimming

(only in chloronated pools, we haven't figured out what to do about the

beach yet). Otherwise, he said there isn't much we can do, watch and wait. I

have decided not to dwell on it. I know we have to monitor it but until they

tell me otherwise, I am going to believe it is gone. I can't and don't want

to think about everyday, knowing it may come back. It may not come back at

all or it may come back in 20 years. I can't let it sit at the forefront of

my mind all that time. My son is 4, so we have many year ahead of us to deal

with this.

Barbara

> recurrence of cholesteatoma

>

>

>

>

> Hello everyone,I joined the group recently after my 10 year old son

> Jack had what the surgeon descibed as a enormous cholesteatoma

> removed on 10/1/05. About 12 months prior to the operation my son

> mentioned that he could not hear as well in his right ear. Apart

> from the occasional headache he showed no other symptoms. He had a

> radical modified mastoidectomy and the surgeon has indicated that

> every thing looks OK so far. He has said however that is is likely

> that because of the size of the cholesteatoma it may recurr. The

> prospect of this & further surgeries fills me with dread.

> Does anybody know how often monitoring needs to take place & what

> this involves? Also is a cholesteatoma more likely to recurr in

> children and if the cholesteatoma is large does that may the chances

> higher? Is there anything I can do to reduce the chances of it

> recurring?

> Regards to everyone

> Pat

>

>

>

>

>

>

>

>

>

[Guest guest]

Dear Pat,

You should have him checked at least every 6 months. Also, in my son's case, the

first sign of re-occurrence was increased motion sickness, so that is something

to watch for. Followed closely by the appearance of a small pocket. For us, as

you may have seen me mention in other emails, the tonsillectomy/adenoidectomy

did a lot to improve the airflow and health of the middle ear, which reduces the

chance of a re-occurrence.

Marie

" Barbara Hatch " <rdnckgypc@...> wrote:

>  Pat,

>Our surgeon said that one of the best things we can do is make sure the

>effected ear stays as dry as possible. Anything to discourage an infection.

>We use cottin balls covered in vaseline for baths and ear plugs for swimming

>(only in chloronated pools, we haven't figured out what to do about the

>beach yet). Otherwise, he said there isn't much we can do, watch and wait. I

>have decided not to dwell on it. I know we have to monitor it but until they

>tell me otherwise, I am going to believe it is gone. I can't and don't want

>to think about everyday, knowing it may come back. It may not come back at

>all or it may come back in 20 years. I can't let it sit at the forefront of

>my mind all that time. My son is 4, so we have many year ahead of us to deal

>with this.

>Barbara

>gt;nbsp;nbsp; recurrence of cholesteatoma

>gt;

>gt;

>gt;

>gt;

>gt;nbsp;nbsp; Hello everyone,I joined the groupnbsp; recently after my 10 year

old son

>gt;nbsp;nbsp; Jack had what the surgeon descibed as a enormous cholesteatoma

>gt;nbsp;nbsp; removed on 10/1/05.nbsp; About 12 months prior to the operation

my son

>gt;nbsp;nbsp; mentioned that henbsp; could not hear as well in his right ear.

Apart

>gt;nbsp;nbsp; from the occasional headache he showed no other symptoms. He had

a

>gt;nbsp;nbsp; radical modified mastoidectomy and the surgeon has indicated that

>gt;nbsp;nbsp; every thing looks OK so far. He has said however that is is

likely

>gt;nbsp;nbsp; that because of the size of the cholesteatoma it may recurr.nbsp;

The

>gt;nbsp;nbsp; prospect of this amp; further surgeries fills me with dread.

>gt;nbsp;nbsp; Does anybody know how often monitoring needs to take place amp;

what

>gt;nbsp;nbsp; this involves? Also is a cholesteatoma more likely to recurr in

>gt;nbsp;nbsp; children and if the cholesteatoma is large does that may the

chances

>gt;nbsp;nbsp; higher? Is there anything I can do to reduce the chances of it

>gt;nbsp;nbsp; recurring?

>gt;nbsp;nbsp; Regards to everyone

>gt;nbsp;nbsp; Pat

>gt;

>gt;

>gt;

>gt;

>gt;

>gt;

>gt;

>gt;

>gt;nbsp;nbsp;

[Guest guest]

Hi all, i would like to ask few questions.2000 i had my first surgery in my left ear for cholesteatoma,with a success for 1 year.At that time i was living in the Czech republic.Had severe lost of hearing before and after surgery,was also told by mine surgeon that my hearing will not be improved,because the damage was too grate.Few months after surgery i began to have same problems as before.By follow up visit my doctor found another cholesteatoma in. I moved to Prag,and changed doctor,went for visit and i was told that another surgery was necessary.After second surgery I was told that my ear was infested by cholesteatoma and I was ones again scheduled for reconstruction surgery.My hearing was much much better.That was back in 2002. Now I'm living in Ireland,just went for visit last Tuesday,because my ear started to hurt again,my hearing went down hill big time,felt pressure in my ear.And surprise surprise,it doesn't look

good,A fourth surgery on the way,just been put on the waiting list.That be the six-st all together,i also had 2 cysts removed from the scar behind the ear . Is there maybe more radical way to stop this happening again? What is the recurrence rate?Or maybe i 'm doing something wrong?If i go trough this one,can somebody reassure me that it wont come back?

Cars NEW - sell your car and browse thousands of new and used cars online search now

[Guest guest]

Hi Vlad,

I am very new to the board and cholesteatomas; however, we have an

appointment with Dr. Roberson this Tuesday. Thus far I have been

incredibly impressed with his office staff and assistant, Bruna. We

had an appointment with them prior to my son being diagnosed. As soon

as we recieved the diagnosis from the fantastic doctors in Bakersfield,

Bruna upped our appointment. All of the reading I have done has been

spectacular regarding Dr. Roberson and we are desperately hoping he is

an answer to our prayers. When we return I will give you any info you

might find helpful. If you have specific questions you want me to look

for the answers to, I would be more than happy. Since you have been

through this before, your questions might actually help guide me

through this process.

Trier

Arielle735@...