You will get through this!

[Guest guest]

Hi there,

I'm (31yo) and have just had my 5th c-toma removed. I can understand how you must be feeling, but it is a help when you realize others have been through what you are going through. I found it took me a good couple of weeks to feel right again. I only just found this group, wish I had a long time ago! Hopefully you will receive some help from others experience. Be brave.

Regards.carimichelle78 <carimichelle78@...> wrote:

I'm 26 and just found out I have a ctoma....I'm due for surgery this month and I am so scared!!! I went to the doc a month ago with what I thought was an ear infection, he did tubes and adenoids...he only got one tube in, in the other ear the ctoma protruded through the incision, that's how it was found....come to find out it's probably been there my whole life,it has completely filled my inner ear it's eroded all the bone and thinned the wall of the facial nerve. I've read a lot but like I said this was quite sudden, so I'm looking for input from actual people who KNOW what the pain and pressure and fear are like. I love my doctor, but he only knows from what he's learned, not from expirience. I want to know what the surgery is like, what is recovery like....how bad does it hurt . I have to admit I

feel like a lost scared kid right now...what is the quality of life for people with hearing loss and ctomas? right now I have smaller tumors in my "good" ear, and the ear with the large tumor doesn't work at all, I don't go out in public much anymore cause I can't really communicate with anyone. Does it get better or is it a constant battle??