Re: Cholesteatoma and allergies

[Guest guest]

Hi

I'm a 43 year old Englishwoman and I have had only the one cholesteatoma

(thankfully only the one!), but prior to the diagnosis of cholesteatoma, I

was diagnosed with Eustachian Tube Dysfunction, Glue Ear, supposed " inverted

hayfever " and then, eventually, severe hayfever, which became Perennial

Rhinitis (all year-round hayfever) and which they (the medicos) also say is

Allergic Rhinitis.

Sadly, I suffer all year round and take meds in an effort to

control/counteract the allergies. Back in 1981, I think it was, Beechams

laboratories here in the UK tested me as my hayfever was affecting my

military training (I was a linguist, learning languages in the language lab,

which backed on to a field of rapeseed and which caused me severe breathing

problems if i was in there in the mornings - we eventually changed the

lessons to after lunch and I was much better). Of the 40 tests Beechams

carried out on me, I had reactions to some 22 or more allergens... they

could confirm the 22, but said to me that those 22 reactions had been so

great that they interfered with the testing sites of the other 18 to such an

extent that any reactions on those 18 sites couldn't be assessed or

verified.

I live right by the sea and find this helps - if I go inland, I suffer

really badly with my allergies.

I'm lucky, though... I've had no recurrence of cholesteatoma, fortunately.

Kazzy :-)

Cholesteatoma and allergies

We received confirmation last week that my son's cholesteatoma has

returned (his 4th) and the tympanoplasty done last July has

perforated. We saw a new doctor and for the first time, he mentioned

having my son tested for allergies. Aside from mosquitoes, he shows

no " classic " signs of allergies (runny nose, watery eyes, etc). He had

his adenoids out at 11 months of age and they've grown back. He's 10

now, so we'll have them removed again.

Has anyone heard of the association between recurrent CToma and

allergies? If it proves to be a problem for my son, I'll be

disappointed (to say the least) that testing was not suggested

earlier.

Would love any thoughts on the above. After having the adenoids

removed again and the CToma surgery, he'll be at 7 total surgeries.

Thanks!!

[Guest guest]

That settles it! All of us with special ears, move to the seaside! (or Great Lakes in my case). I'm in! For the people with the son on his 4th Ctoma, might want to try laying off all dairy products for a while to see if that helps. Luck to all! May your pain and numbness be minimal! Kazbat <kazbat@...> wrote: HiI'm a 43 year old Englishwoman and I have had only the one cholesteatoma (thankfully only the one!), but prior to the diagnosis of cholesteatoma, I was diagnosed with Eustachian Tube Dysfunction, Glue Ear, supposed "inverted hayfever" and then, eventually, severe hayfever, which became Perennial Rhinitis (all year-round hayfever) and which they (the medicos) also say is Allergic Rhinitis.Sadly, I suffer

all year round and take meds in an effort to control/counteract the allergies. Back in 1981, I think it was, Beechams laboratories here in the UK tested me as my hayfever was affecting my military training (I was a linguist, learning languages in the language lab, which backed on to a field of rapeseed and which caused me severe breathing problems if i was in there in the mornings - we eventually changed the lessons to after lunch and I was much better). Of the 40 tests Beechams carried out on me, I had reactions to some 22 or more allergens... they could confirm the 22, but said to me that those 22 reactions had been so great that they interfered with the testing sites of the other 18 to such an extent that any reactions on those 18 sites couldn't be assessed or verified.I live right by the sea and find this helps - if I go inland, I suffer really badly with my allergies.I'm lucky, though... I've

had no recurrence of cholesteatoma, fortunately.Kazzy :-) Cholesteatoma and allergiesWe received confirmation last week that my son's cholesteatoma hasreturned (his 4th) and the tympanoplasty done last July hasperforated. We saw a new doctor and for the first time, he mentionedhaving my son tested for allergies. Aside from mosquitoes, he showsno "classic" signs of allergies (runny nose, watery eyes, etc). He hadhis adenoids out at 11 months of age and they've grown back. He's 10now, so we'll have them removed again.Has anyone heard of the association between recurrent CToma andallergies? If it proves to be a problem for my son, I'll bedisappointed (to say the least) that

testing was not suggestedearlier.Would love any thoughts on the above. After having the adenoidsremoved again and the CToma surgery, he'll be at 7 total surgeries.Thanks!!

[Guest guest]

I think you are on to something... it's not so much

the allergy part as the Rhinitis (of whatever origin)

part that gets ya. Not that I'm an expert or

anything. I can tell ya though, that this was

absolutely the worst winter I've ever had for

congestion. I spent about 3 months straight with a

head cold... and viola Cholesteatoma. Heck I got

another cold two weeks after the surgery (hoping it's

OK).

Sue

--- Kazbat <kazbat@...> wrote:

> Hi

>

> I'm a 43 year old Englishwoman and I have had only

> the one cholesteatoma

> (thankfully only the one!), but prior to the

> diagnosis of cholesteatoma, I

> was diagnosed with Eustachian Tube Dysfunction, Glue

> Ear, supposed " inverted

> hayfever " and then, eventually, severe hayfever,

> which became Perennial

> Rhinitis (all year-round hayfever) and which they

> (the medicos) also say is

> Allergic Rhinitis.

>

> Sadly, I suffer all year round and take meds in an

> effort to

> control/counteract the allergies. Back in 1981, I

> think it was, Beechams

> laboratories here in the UK tested me as my hayfever

> was affecting my

> military training (I was a linguist, learning

> languages in the language lab,

> which backed on to a field of rapeseed and which

> caused me severe breathing

> problems if i was in there in the mornings - we

> eventually changed the

> lessons to after lunch and I was much better). Of

> the 40 tests Beechams

> carried out on me, I had reactions to some 22 or

> more allergens... they

> could confirm the 22, but said to me that those 22

> reactions had been so

> great that they interfered with the testing sites of

> the other 18 to such an

> extent that any reactions on those 18 sites couldn't

> be assessed or

> verified.

>

> I live right by the sea and find this helps - if I

> go inland, I suffer

> really badly with my allergies.

>

> I'm lucky, though... I've had no recurrence of

> cholesteatoma, fortunately.

>

> Kazzy :-)

>

>

>

>

> Cholesteatoma and allergies

>

>

> We received confirmation last week that my son's

> cholesteatoma has

> returned (his 4th) and the tympanoplasty done last

> July has

> perforated. We saw a new doctor and for the first

> time, he mentioned

> having my son tested for allergies. Aside from

> mosquitoes, he shows

> no " classic " signs of allergies (runny nose, watery

> eyes, etc). He had

> his adenoids out at 11 months of age and they've

> grown back. He's 10

> now, so we'll have them removed again.

>

> Has anyone heard of the association between

> recurrent CToma and

> allergies? If it proves to be a problem for my son,

> I'll be

> disappointed (to say the least) that testing was not

> suggested

> earlier.

>

> Would love any thoughts on the above. After having

> the adenoids

> removed again and the CToma surgery, he'll be at 7

> total surgeries.

>

> Thanks!!

>

>

>

>

>

>

>

>

[Guest guest]

I've heard about people suffering from colds... but to be honest, I can't

remember teh last time I had a cold or cough - I never get sick... am so

lucky really. I just have allergies and ear infections all the time... I'd

rather not... perhaps occasoinally I would swap them for a cold... but what

ho ;-)

Kazzy :-)

Cholesteatoma and allergies

>>

>>

>> We received confirmation last week that my son's

>> cholesteatoma has

>> returned (his 4th) and the tympanoplasty done last

>> July has

>> perforated. We saw a new doctor and for the first

>> time, he mentioned

>> having my son tested for allergies. Aside from

>> mosquitoes, he shows

>> no " classic " signs of allergies (runny nose, watery

>> eyes, etc). He had

>> his adenoids out at 11 months of age and they've

>> grown back. He's 10

>> now, so we'll have them removed again.

>>

>> Has anyone heard of the association between

>> recurrent CToma and

>> allergies? If it proves to be a problem for my son,

>> I'll be

>> disappointed (to say the least) that testing was not

>> suggested

>> earlier.

>>

>> Would love any thoughts on the above. After having

>> the adenoids

>> removed again and the CToma surgery, he'll be at 7

>> total surgeries.

>>

>> Thanks!!

>>

>>

>>

>>

>>

>>

>>

>>

[Guest guest]

It's weird, I've never had a winter like this past,

don't have a clue what happened. But those of us with

eustacion tube issues can run into problems when

dealing constant congestion be it from allergies or

colds. Fluid traps and gives you infection, constant

nose blowing causes eardrum retraction because the

pressure can't equalize, ect....

Sue

--- Kazbat <kazbat@...> wrote:

> I've heard about people suffering from colds... but

> to be honest, I can't

> remember teh last time I had a cold or cough - I

> never get sick... am so

> lucky really. I just have allergies and ear

> infections all the time... I'd

> rather not... perhaps occasoinally I would swap them

> for a cold... but what

> ho ;-)

>

> Kazzy :-)

>

> Cholesteatoma and

> allergies

> >>

> >>

> >> We received confirmation last week that my son's

> >> cholesteatoma has

> >> returned (his 4th) and the tympanoplasty done

> last

> >> July has

> >> perforated. We saw a new doctor and for the

> first

> >> time, he mentioned

> >> having my son tested for allergies. Aside from

> >> mosquitoes, he shows

> >> no " classic " signs of allergies (runny nose,

> watery

> >> eyes, etc). He had

> >> his adenoids out at 11 months of age and they've

> >> grown back. He's 10

> >> now, so we'll have them removed again.

> >>

> >> Has anyone heard of the association between

> >> recurrent CToma and

> >> allergies? If it proves to be a problem for my

> son,

> >> I'll be

> >> disappointed (to say the least) that testing was

> not

> >> suggested

> >> earlier.

> >>

> >> Would love any thoughts on the above. After

> having

> >> the adenoids

> >> removed again and the CToma surgery, he'll be at

> 7

> >> total surgeries.

> >>

> >> Thanks!!

> >>

> >>

> >>

> >>

> >>

> >>

> >>

> >>

[Guest guest]

Our otologist was quite insistent about getting our daughter checked

for allergies after her ear still had fluid behind the eardrum

following surgery. I was skeptical since I had had her checked when

she was 2, but he was right-- she had developed allergies to dust

mites, cats, and fall weeds. I knew she had a runny nose sometimes

but thought she had lots of colds. 10 mg of Zyrtec/day clears up the

obvious symptoms, but not necessarily the fluid. For that the

allergist recommended nasal sprays (Astelin and Nasonex). It's a lot

of medicine for a 9 year old, but the otologist was *really* insistent

that the fluid had to be dried up behind the drum or the cholesteatoma

would be more likely to return.

--Lynn

[Guest guest]

Thanks for the great info. This is the first time we've had allergies

mentioned, and he has his 4th Ctoma in the left ear. May I ask where

your otologist is located? I'm in the Southeast and we are traveling

to see one in Nashville!

Glad to hear the medicines have been effective. My son is 10, so we

may be on a similar path.

Has your child's Ctoma returned, or has it just been one?

Thanks,

Sheri

[Guest guest]

We see C. in Nashville. I think he's an absolutely

excellent surgeon, though he's slightly difficult to relate to. But I

don't really care too much. I seriously checked out all the Nashville

otologists and could also say that Haynes was a close second for

us, but is the one who has trained many of the otologists

around here (and elsewhere), so we went with him. Plus he has

published quite a bit on the topic. He's truly a world expert. He

did a one-stage operation and reconstruction with no second look. So

far, so good after 1 1/2 years, though the reconstruction didn't work

due to her fixed footplate (something congenital, apparently).

Feel free to contact me with questions.

--Lynn

>

> Thanks for the great info. This is the first time we've had allergies

> mentioned, and he has his 4th Ctoma in the left ear. May I ask where

> your otologist is located? I'm in the Southeast and we are traveling

> to see one in Nashville!

>

> Glad to hear the medicines have been effective. My son is 10, so we

> may be on a similar path.

>

> Has your child's Ctoma returned, or has it just been one?

>

> Thanks,

> Sheri

>

[Guest guest]

So GLAD I found you. We live in , MS and traveled to Nashville

last week to see DR. JACKSON! I can't believe that you use him also.

I found him after extensive research. There's only one otologist in

Miss. and Dr. is " Mr. Personality " compared to him.

Do you live in Nashville? Getting little ones to bed right now, but

will certainly email with many questions.

THANKS-I'm thrilled to chat with you!

Sheri

[Guest guest]

i also have a ct and have to have an allergy test.. I was wondering myself

if it could be due to ct.. i often swell up on lip fingers wrist knee etc...

why now suddenly at 30 would i be allergic to something when i never was

before?? Sharon

>From: " awbsjb " <keithsheri@...>

>Reply-cholesteatoma

>cholesteatoma

>Subject: Cholesteatoma and allergies

>Date: Tue, 16 May 2006 15:31:40 -0000

>

>We received confirmation last week that my son's cholesteatoma has

>returned (his 4th) and the tympanoplasty done last July has

>perforated. We saw a new doctor and for the first time, he mentioned

>having my son tested for allergies. Aside from mosquitoes, he shows

>no " classic " signs of allergies (runny nose, watery eyes, etc). He had

>his adenoids out at 11 months of age and they've grown back. He's 10

>now, so we'll have them removed again.

>

>Has anyone heard of the association between recurrent CToma and

>allergies? If it proves to be a problem for my son, I'll be

>disappointed (to say the least) that testing was not suggested

>earlier.

>

>Would love any thoughts on the above. After having the adenoids

>removed again and the CToma surgery, he'll be at 7 total surgeries.

>

>Thanks!!

>

>

>

>

[Guest guest]

I had an allergic reaction to Shrimp at age 32, after eating shellfish

all of my life, almost daily. It can happen. I recently saw a

commercial for an RX referring to " new " allergies.

Good Luck

[Guest guest]

Go see a Otologist.......

Tom Hansen

From: dutchnl607 <dutchnl607@...>cholesteatoma Sent: Tuesday, February 3, 2009 11:18:01 PMSubject: Cholesteatoma and Allergies

My ENT thinks that Cholesteatoma' a are caused by Eustation Tube problems. He thinks my Eustation Tube is not working properly because of Allergies. I just did an allergy test where they gave me little shots under the skin to see if I would react to anything. When they got to the grasses I reacted big time, I was off the charts. I have been around grasses my whole life. I use to have a landscaping business for years and now I am a PE teacher. I am now taking allergy shots. He wants to cure me from my allergies, not just treat the symptoms. I am going to have my 5th surgery this month. My ENT plan for me is this:-C-toma's grow because of Eustation Tube problems.-Allergies are causing my Eustation Tube problems.-Cure me from my Allergies and my Eustation Tube will work properly.-Once my E-Tube works properly the C-toma won't grow back.Has anyone else heard of allergies being the

underlying cause of Cholesteatoma' s? or is my ENT nuts?

[Guest guest]

I dont think he is nuts at all. Both My old ENT and current Neuro Otologist think both of my ctoma's were caused by the same thing you describe. I have very poor ET functon caused by allergies and it makes my ears fill with fluid. It was this fluid and constant infections that led to my c-coma's. They both came with the same exact nswer when i asked so i would have to believe there is some truth to it.

In addition to the Otoligist i see an allergist and i get the shots. From what im told they dont " cure " the allergies but they do make your body less sensitive to the allergens so that the reaction isnt as severe. I can tell you for sure that thry have helped me bigtime. I get as lot less fluid buildup and no more watery eyes, sneezing etc.

On Wed, Feb 4, 2009 at 11:22 AM, s <thequeen.christine@...> wrote:

I don't have ctoma, but my ETD seems to be worse during allergy

season, and I am trying a steroid nasal spray to see if that makes a

difference in Eustachian tube function. I don't think he's nuts, and

it won't hurt to address your allergies...

On 2/4/09, Tom Hansen <pingmn123@...> wrote:

> Go see a Otologist.......

>

> Tom Hansen

>

>

>

>

> ________________________________

> From: dutchnl607 <dutchnl607@...>

> cholesteatoma

> Sent: Tuesday, February 3, 2009 11:18:01 PM

> Subject: Cholesteatoma and Allergies

>

>

> My ENT thinks that Cholesteatoma' a are caused by Eustation Tube

> problems. He thinks my Eustation Tube is not working properly because

> of Allergies. I just did an allergy test where they gave me little

> shots under the skin to see if I would react to anything. When they

> got to the grasses I reacted big time, I was off the charts. I have

> been around grasses my whole life. I use to have a landscaping

> business for years and now I am a PE teacher. I am now taking allergy

> shots. He wants to cure me from my allergies, not just treat the

> symptoms. I am going to have my 5th surgery this month.

>

> My ENT plan for me is this:

>

> -C-toma's grow because of Eustation Tube problems.

> -Allergies are causing my Eustation Tube problems.

> -Cure me from my Allergies and my Eustation Tube will work properly.

> -Once my E-Tube works properly the C-toma won't grow back.

>

> Has anyone else heard of allergies being the underlying cause of

> Cholesteatoma' s? or is my ENT nuts?

>

>

>

>

>