Re: Canal Wall Down.........questions-- Attention - Glenda

[Guest guest]

Wow! That is quite a story. I don't know if anyone out there would

agree with me, this is just my own opinion, but I think maybe it is

time you looked for a second opinion. It is great to have alot of

confidence in your doctor, but you have had way too many surgeries!

It really wouldn't hurt for you to go to someone else just in case.

Don't feel like you are going behind your doctor's back; it is YOUR

health at stake. Hope you get well, and will send prayers your way.

Take care - Dee

> Hello to all, I have thought sence I found this group, by reading

> the post, that you all knew every thing about your surgeries, and I

> knew very little about mine. I dont feel so bad now that I see

these

> post here on this subject. I am digging for more answers to the 20

> surgeries I have gone throuh sence 1981. I have congenial c-

> toma,which went undiagnosed till I was 30, for those who dont know

me

> here. I have the same surgeon sence then also. I think I am at

wits

> end here as well. I am still having drainage some sence my last

opp

> in Oct to close the estachion tube and middle ear. The best I can

> figure is I had a CWD. Not sure. I had a radical mastoidectamy

the

> first surgery I went through. I know the hole is big in my ear and

> the canal is wide. My Doc can see the mastoid bowl when he is in

> there and the facial nerves, the dura, that sort of thing. I have

> none of the hearing bones. I did have two reconstructions on the

> three hearing bones along the way, but have sence eroded. They

wont

> try to restore the sound any more being the last attempt 4 years

did

> not work. I am still having suction and all the powder spay the

> works every 2 weeks still. This drainage has been an issue for a

> while the past year. I know the last 2 years have not been going

> good for me at all. I am being kept stable, but not getting

better.

> I am like Kimmi, I dont know what else to think. I believe in my

> Doctor. He did tell me last year if my c-toma comes back he will

not

> opperate any more. I have only had one c-toma removal out of the

20

> surgeries I know of. So most of mine were reconstructive, and to

fix

> other problems in there along the way. Two weeks ago I went in for

> my bi weekly suction and cleaning. I had pain in my good ear and

Doc

> took a look. He said it looked ok. I got home and the next day my

> good ear closed up and now I cant hear well at all. I have a sinus

> cold now and a bit of a cough and a tad of a sore throat. I am

> miserable. I just hope this is a sinus cold. Its that time of

> year. I was suppose to go back to my Doc yesterday. But I am too

> dizzy to be put into a moving car. I called them. I am taking

Afrin

> nasel spray, and a deconjestant jell cap. I see them again this

> comeing Friday.. Also the ringing in my opperated on ear started

> ringing just 3 weeks ago. Months after the surgery, and its loud

> too, I find this strange. I have had the ringing with the other

> opperations. But it usually was along with the recovery from the

> start. This just started and the surgery was in Oct. I am just

> hanging in there. I still need many prayers cause I am a bit sick

> right now. I have you all in my prayers. Keep encourging each

> other. Mountainmama is out of here and on her way back to bed! Be

> well!

[Guest guest]

Hi Dee, Yes I am looking for an Otologist in my area. I have not

found one yet. But am researching Doctors. I go to Cincinnati, Ohio

for all my Doctors. So if any one has any suggestions I would love

to have the refferal!

> > Hello to all, I have thought sence I found this group, by

reading

> > the post, that you all knew every thing about your surgeries, and

I

> > knew very little about mine. I dont feel so bad now that I see

> these

> > post here on this subject. I am digging for more answers to the

20

> > surgeries I have gone throuh sence 1981. I have congenial c-

> > toma,which went undiagnosed till I was 30, for those who dont

know

> me

> > here. I have the same surgeon sence then also. I think I am at

> wits

> > end here as well. I am still having drainage some sence my last

> opp

> > in Oct to close the estachion tube and middle ear. The best I

can

> > figure is I had a CWD. Not sure. I had a radical mastoidectamy

> the

> > first surgery I went through. I know the hole is big in my ear

and

> > the canal is wide. My Doc can see the mastoid bowl when he is in

> > there and the facial nerves, the dura, that sort of thing. I

have

> > none of the hearing bones. I did have two reconstructions on the

> > three hearing bones along the way, but have sence eroded. They

> wont

> > try to restore the sound any more being the last attempt 4 years

> did

> > not work. I am still having suction and all the powder spay the

> > works every 2 weeks still. This drainage has been an issue for a

> > while the past year. I know the last 2 years have not been going

> > good for me at all. I am being kept stable, but not getting

> better.

> > I am like Kimmi, I dont know what else to think. I believe in my

> > Doctor. He did tell me last year if my c-toma comes back he will

> not

> > opperate any more. I have only had one c-toma removal out of the

> 20

> > surgeries I know of. So most of mine were reconstructive, and to

> fix

> > other problems in there along the way. Two weeks ago I went in

for

> > my bi weekly suction and cleaning. I had pain in my good ear and

> Doc

> > took a look. He said it looked ok. I got home and the next day

my

> > good ear closed up and now I cant hear well at all. I have a

sinus

> > cold now and a bit of a cough and a tad of a sore throat. I am

> > miserable. I just hope this is a sinus cold. Its that time of

> > year. I was suppose to go back to my Doc yesterday. But I am

too

> > dizzy to be put into a moving car. I called them. I am taking

> Afrin

> > nasel spray, and a deconjestant jell cap. I see them again this

> > comeing Friday.. Also the ringing in my opperated on ear started

> > ringing just 3 weeks ago. Months after the surgery, and its loud

> > too, I find this strange. I have had the ringing with the other

> > opperations. But it usually was along with the recovery from the

> > start. This just started and the surgery was in Oct. I am just

> > hanging in there. I still need many prayers cause I am a bit

sick

> > right now. I have you all in my prayers. Keep encourging each

> > other. Mountainmama is out of here and on her way back to bed!

Be

> > well!